Care Situations in Different European Countries: The Impact of Formal and Informal Support

Transcription

1 1 Services fr Supprting Family Carers f Elderly Peple in Eurpe: Characteristics, Cverage and Usage E U R O F A M C A R E Cre Grup Care Situatins in Different Eurpean Cuntries: The Impact f Frmal and Infrmal Supprt Pan Eurpean Netwrk Daniel Lüdecke Eva Mnich & Givanni Lamura n behalf f the EUROFAMCARE grup 1 (1) The EUROFAMCARE Grup: Germany: Döhner H. (Prject Crdinatr), Kfahl C., Khler, S., Lüdecke D., Mnich E. (Hamburg) and Rthgang H., Becker, R.(Bremen); Greece: Mesthenes E. (PL), Triantafillu J. (PL), Pruskas C., Mesthenes K.; Italy: Lamura G. (PL), Balducci C., Melchirre M.G., Quattrini S., Spazzafum L.; Pland: Bien B. (PL), Wjszel B., Synak B., Czekanwski P., Bledwski P.; Sweden: Öberg B. (PL), Krevers B., Jhanssn S.L.; UK: McKee K. (PL), Barber L., Brwn J., Nlan M.

2 2 Methdlgy Cre Grup Persnal interviews were cnducted frm 1,000 Family Carers in each f the six Cre Cuntries (DE, EL, IT, PL, SE, UK) Pan Eurpean Netwrk A Cmmn Assessment Tl (standardised questinnaire) was used A cluster analysis was used t cnstruct six clusters which are identical in each f the six cuntries. The clusters represent different care situatins which are cmparable n a natinal as well as Eurpean level.

3 3 Cntent Dmains that describe care situatins Cre Grup Characteristics f care situatins Pan Eurpean Netwrk Prevalence f care situatins in the six cuntries Cuntry cmparisn accrding t supprt by infrmal netwrk and prfessinal services

4 4 Aspects t be reflected in cmparative studies Pssible bias between cuntries due t partly different recruitment strategies Cre Grup Pan Eurpean Netwrk Cuntry specific care structures, which als affect the bserved phenmenn, e.g. mre intrageneratinal care within ne cuntry r a higher rate f wmen carers in emplyment If pssible, these effects shuld be cntrlled. This can be achieved by cluster building

5 5 Selectin f Variables (1) Cre Grup Older persn s impairments and needs Pan Eurpean Netwrk Sci demgraphics / relatinship Care situatin Carer s burden Carer s perceived wellbeing

6 6 Selectin f Variables (2) Cre Grup Older persn s impairments and needs Elder s cgnitive impairments Elder s functinal impairments (ADL/IADL) Elder s needs fr financial supprt Pan Eurpean Netwrk Sci demgraphics / relatinship Care situatin Carer s burden Carer s perceived wellbeing

7 7 Selectin f Variables (3) Cre Grup Older persn s impairments and needs Elder s cgnitive impairments Elder s functinal impairments (ADL/IADL) Elder s needs fr financial supprt Pan Eurpean Netwrk Sci demgraphics / relatinship Care situatin Carer s burden Carer s perceived wellbeing Negative impact n carer (COPE) Duratin f care Supprt during carer s illness

8 8 Selectin f Variables (4) Cre Grup Older persn s impairments and needs Elder s cgnitive impairments Elder s functinal impairments (ADL/IADL) Elder s needs fr financial supprt Pan Eurpean Netwrk Sci demgraphics / relatinship Care situatin Carer s burden Carer s quality f life (WHO5 QL) Carer s perceived wellbeing Negative impact n carer (COPE) Duratin f care Supprt during carer s illness

9 9 Selectin f Variables (5) Cre Grup Sex f carer/elder Elder s age Carer s educatin Carer s emplyment Chabitatin status Lcality type Generatinal relatinship Older persn s impairments and needs Elder s cgnitive impairments Elder s functinal impairments (ADL/IADL) Elder s needs fr financial supprt Pan Eurpean Netwrk Sci demgraphics / relatinship Care situatin Carer s burden Carer s quality f life (WHO5 QL) Carer s perceived wellbeing Negative impact n carer (COPE) Duratin f care Supprt during carer s illness

10 10 Characteristics f the six Care Situatins Cluster n Gender (% female, carer) Gender (% female, lder persn) Cre Grup Generatin (% same) Chabitatin status (% same huse) Caregiving duratin (% > 2 years) IADL abilities (% higher impairment) Pan Eurpean Netwrk Cgnitive status (% higher impairment) Burden (% higher) Quality f life (% better) Help if ill (% n ) Wrking status (% yes, carer) Educatin (% lw, carer) Age (% > 80, lder persn) Place f residence (% urban) Financial supprt (% needed)

11 11 Characteristics f the six Care Situatins Cluster n Gender (% female, carer) Gender (% female, lder persn) Cre Grup Generatin (% same) Chabitatin status (% same huse) Caregiving duratin (% > 2 years) IADL abilities (% higher impairment) Pan Eurpean Netwrk Cgnitive status (% higher impairment) Burden (% higher) Quality f life (% better) Help if ill (% n ) Wrking status (% yes, carer) Educatin (% lw, carer) Age (% > 80, lder persn) Place f residence (% urban) Financial supprt (% needed)

12 12 Characteristics f the six Care Situatins Cluster n Gender (% female, carer) Gender (% female, lder persn) Cre Grup Generatin (% same) Chabitatin status (% same huse) Caregiving duratin (% > 2 years) IADL abilities (% higher impairment) Pan Eurpean Netwrk Cgnitive status (% higher impairment) Burden (% higher) Quality f life (% better) Help if ill (% n ) Wrking status (% yes, carer) Educatin (% lw, carer) Age (% > 80, lder persn) Place f residence (% urban) Financial supprt (% needed)

13 13 Characteristics f the six Care Situatins Cluster n Gender (% female, carer) Gender (% female, lder persn) Cre Grup Generatin (% same) Chabitatin status (% same huse) Caregiving duratin (% > 2 years) IADL abilities (% higher impairment) Pan Eurpean Netwrk Cgnitive status (% higher impairment) Burden (% higher) Quality f life (% better) Help if ill (% n ) Wrking status (% yes, carer) Educatin (% lw, carer) Age (% > 80, lder persn) Place f residence (% urban) Financial supprt (% needed)

14 14 Distributin f Care Situatins* 23,5% 17,9% 6 1 Cre Grup ,4% Pan Eurpean Netwrk 17,5% 8,1% 15,6% N=5384 Unemplyed Carers with high levels f bjectiv and subjective burden Emplyed Carers with high levels f bjective and subjective burden Female carers (spuses and thers) with high levels f bjective and subjectiv burden Male carers (spuses and thers) with high levels f bjective and subjective burden Carers with bjective but n subjective perceptin f burden wh have supprt Carers with relativley lw bjective and subjective perceptin f burden wh have supprt * Ordered by burden fr carer

15 15 Distributin f Care Situatins within the six cuntries Cre Grup N=889 N=792 Pan Eurpean Netwrk N=884 N=972 N=949 N=898 Burdened, unemplyed Burdened, emplyed Burdened wives Burdened husbands Strained, but unburdened Unstrained, unburdened

16 16 Specific supprt services (at least ne) used by cuntry ALL DE Cre Grup UK SE Pan Eurpean Netwrk PL IT EL % f carers

17 Pan Eurpean Netwrk 17 Cre Grup Physical and persnal supprt by E m p l m p l y e d C a r e r s w i t h h i g h l e v e l s C a r e S i t u a t i n Carers themselves Infrmal netwrk Prfessinal services

18 18 Summary (1/2) Cre Grup Mst family carers manage their caring tasks withut using specific prfessinal supprt services fr themselves. Pan Eurpean Netwrk In DE, SE & UK supprt services specifically addressing carers needs are mre available, mainly prviding psychlgical help, infrmatin r respite care. In IT, EL & PL carers rely mainly n generic services t find sme supprt (GPs etc.). The availability f hme health care services is inadequate.

19 19 Summary (2/2) Cre Grup We fund tw majr impacts n the perceptin f burden, which can be described as tw imprtant dimensins f mixed care arrangements: infrmal netwrk and prfessinal help Pan Eurpean Netwrk Neither the infrmal netwrk nr the prfessinal supprt can be seen islated as the main factr fr reducing carers burden.

20 20 Thank yu fr yur attentin! Cre Grup Further infrmatin, publicatins and dwnlads: Pan Eurpean Netwrk r