Ipsos Health 30 June Translated by : Lionbridge Belgium SPRL/BVBA Avenue Jules Malou, B-1040 Brussels Belgium. Ipsos Health.

Transcription

1 Qualitative study f scial representatins, knwledge and attitudes f the general public, care-givers and health prfessinals with regard t Alzheimer's Disease Ipss Health 30 June 2008 Translated by : Linbridge Belgium SPRL/BVBA Avenue Jules Malu, B-1040 Brussels Belgium Cntacts: Ipss Health Jean Michel Crnet: Snia Benchiker: Stephanie Chanechickte: Marin Pasini: jean-michel.crnet@ipss.cm snia.benchiker@ipss.cm stephanie.chanechickte@ipss.cm marin.pasini@ipss.cm Ipss Marketing Head Office 35 rue du Val de Marne Paris Cedex 13 - France SAS with a capital f 842,600 Eurs Crprate and Trade Register n. Paris B Ipss Marketing Health Pstal address: 35 rue du Val de Marine PARIS Cedex 13 Phne: Fax: http ://

2 General Public screening questinnaire Recruitment criteria: 80 persns 40 living in Paris (+ near and distant suburbs) and 40 in Tuluse (+ suburbs); 40 men and 40 wmen; Aged frm 35 t 70 years; Different sci-prfessinal categries (SPC) A, B and C; All wh knw r used t knw smene with Alzheimer's disease (AD) althugh nt caring fr this persn themselves; t belnging t France Alzheimer Assciatin r equivalent; Organisatin: 8 meetings f a grup f 8 t 10 participants (½ in Paris and ½ in Tuluse) - 2 grups aged years with at least ne parent still alive wh may therefre have t cnfrnt AD in ne f their parents. Individuals wh currently have ne f their parents r clse relatives with AD will be excluded in rder t cncentrate n representatins. One mixed upper SPC grup in Paris One mixed lwer r middle SPC grup in ther French regins - 2 grups years wh knw at least ne persn amng their relatives with AD but wh are nt care-givers. One mixed upper SPC grup in Paris One mixed lwer r middle SPC in ther French regins - 2 lder grups aged years. Individuals with AD r with a relative with AD will be excluded frm these grups in rder t cncentrate n representatins. One mixed middle and lwer SPC grup in Paris One mixed upper SPC grup in ther French regins - 2 lder grups aged years wh knw at least ne persn amng their relatives with AD but wh are nt care-givers. One mixed middle and lwer SPC grup in Paris One mixed upper SPC grup in ther French regins Interview site: Paris (Rm TBD) & Tuluse (rm TBD) 1

3 1. Are yu... A man Recruit 40 A wman Recruit Hw ld are yu? Less than 35 years Between 35 and 50 years Between 55 and 70 years Over 70 years Recruit 40 - Quta Recruit 40 - Quta RECRUITMENT OF 40 PERSONS AGED BETWEEN 35 AND 50 YEARS AND 40 PERSONS AGED BETWEEN 55 AND 70 YEARS / / SIMILAR NUMBERS MEN-WOMEN 3. What is yur prfessin? / / 4 GROUPS UPPER SPC AND AND 4 GROUPS MIDDLE AND/OR LOWER SPC 4. Have yu participated in a market r pinin study in the field f health care during the last three mnths? G t Q5 5. Des any f yur clse relatives have Alzheimer's disease? G t Q6 [Only in rder t recruit persns with an AD patient amng their relatives wh are nt care-givers.] 6. D yu help r will yu help this persn in any way during the activities f daily living (e.g. preparing meals, getting washed and dressed, paperwrk, ging ut etc.) n a regular basis i.e. at least 2-3 times a week? Recruit 40 - G t Q10 4 GROUPS WITH AGE/GENDER/SPC QUOTA [Only fr the recruitment f persns with at least ne parent still alive wh d nt have AD but may have t cnfrnt this disease.] 7. Is at least ne f yur parents (father r mther) still alive? G t Q8 2

4 8. Des he r she have Alzheimer's disease? G t 9 9. D yu belng t Assciatin France Alzheimer r anther similar assciatin? ELIGIBLE INVITATION: Wuld yu like t participate in this survey? Required identifying infrmatin Name, First name Pstal Address address (if pssible) Landline phne n Mbile Phne (ESSENTIAL) Date and time f appintment 3

5 Pharmacist screening questinnaire Recruitment criteria: 8 Pharmacists 4 practicing in Paris (+ near and distant suburbs) and 4 in Tuluse (+ suburbs); 4 men and 4 wmen; In private practice fr mre than 5 years; Dispensing at least ne AD treatment per week; Interview site: Paris (Rm TBD) & Tuluse (rm TBD) 1. Have yu participated in a market research r pinin study in the field f health care during the last three mnths? 1. G t Q Fr hw lng have yu practiced? Less than 5 years Mre than 5 years G t Q4 3. Are yu a pharmacist...? Owner f pharmacy Assistant Pharmacy technician G t Q5 G t Q5 4. D yu have AD patients amng yur custmers? G t Q6 5. On average, hw many AD treatments d yu dispense in ne week? Less than ne Mre than ne G t Q7 6. Can yu name at least ne medicatin fr this disease? / / (e.g. : Aricept, Cgnex, Ebixa, Exeln and Reminyl) IF CAN'T NAME ANY DRUGS 4

6 7. D yu currently have a cnsultant activity r are yu attached t a pharmaceutical cmpany r a market research r cmmunicatin agency? G t Q7 8. Are yu... A man A wman Recruit 4 pharmacists Recruit 4 pharmacists 9. Hw ld are yu? / / years INVITATION: Wuld yu like t participate in this survey? Required identifying infrmatin Name, First name Pstal Address address (if pssible) Landline phne n Mbile Phne (ESSENTIAL) Date and time f appintment 5

7 GENERAL PRACTITIONER SCREENING QUESTIONNAIRE Recruitment criteria: 30 General practitiners All practicing full time in a private practice r a hspital; 15 practicing in Paris (+ near and distant suburbs) and 15 in Tuluse (+ suburbs); 15 men and 15 wmen; Between 5 and 25 years f practice; All fllwing-up at least 2 patients with Alzheimer's disease; 15 GPs with a large prprtin f elderly patients in their practice (practicing in EHPAD nursing hmes (Residential care hmes fr dependent adults), making many hme visits etc.) And 15 GPs with n specific geriatric practice Organisatin: - 2 meetings f grups f 8 t 10 participants (½ in Paris and ½ in Tuluse) and 10 individual interviews (½ in Paris and ½ in Tuluse) Interview site: Paris (Rm TBD) & Tuluse (rm TBD) 1. Are yu A General Practitiner G t Q2 4. Other 2. Fr hw lng have yu practiced? Less than 5 years and mre than 25 years Between 5 and 25 years G t Q3 DIVERSITY OF NUMBER OF YEARS OF PRACTICE 3. D yu practice full-time as a general practitiner? G t Q4 4. Yur activity is Only private practice Only hspital practice Mixed (Private + Hspital) G t Q5 G t Q5 MIXED RECRUITMENT OF PRIVATE GPS AND HOSPITAL GENERAL PRACTITIONERS // NO SPECIALISED GPS 5. Are yur patients relatively... Yung - less than 30 years Old - mre than 65 years G t Q6 - Quta ½ 6

8 Mixed G t Q7 - Quta ½ 6. Fr yur lder patients, d yu usually make visits r even intervene in EHPAD care hmes/retirement hmes? G t Q7 7. Hw many patients with Alzheimer's disease d yu see in yur practice? At least 2 Less than 2 G t Q8 8. During the last three mnths have yu participated in market research in the field f health? G t Q7 9. D yu currently have a cnsultant activity r are yu attached t a pharmaceutical cmpany r a market research r cmmunicatin agency? G t Q Are yu... A man A wman Recruit 15 GPs Recruit 15 GPs 11. Hw ld are yu? / / years INVITATION: Wuld yu like t participate in this survey? Required identifying infrmatin Name, First name Pstal Address address (if pssible) Landline phne n Mbile Phne (ESSENTIAL) Date and time f appintment 7

9 NURSE SCREENING QUESTIONNAIRE Recruitment criteria: 8 nurses... 4 practicing in Paris (+ near and distant suburbs) and 4 in Tuluse (+ suburbs); 2 men and 6 wmen; In private practice fr mre than 5 years; Fllwing-up at least 2 patients with Alzheimer's disease. Organisatin: 8 interviews f ne hur (½ in Paris and ½ in Tuluse) Interview site: Paris (Rm TBD) & Tuluse (rm TBD) 1. Are yu... Nurse/private nurse Nurse/hspital nurse G t Q2 2. Fr hw lng have yu practiced? Less than 5 years Mre than 5 years G t Q3 DIVERSITY OF NUMBER OF YEARS OF PRACTICE 3. D yu practice full-time as a private nurse? G t Q4 4. Hw many patients with Alzheimer's disease d yu see in yur practice? At least 2 Less than 2 G t Q5 5. D yu see them regularly (at least nce a week)? G t Q6 6. During the last three mnths have yu participated in market research in the field f health? G t Q7 7. D yu currently have a cnsultant activity r are yu attached t a pharmaceutical cmpany r a market research r cmmunicatin agency? G t Q8 8

10 8. Are yu... A man Recruit 2 A wman Recruit 6 9. Hw ld are yu? / / years AGE DISTRIBUTION INVITATION: Wuld yu like t participate in this survey? Required identifying infrmatin Name, First name Pstal Address address (if pssible) Landline phne n Mbile Phne (ESSENTIAL) Date and time f appintment 9

11 Care-givers screening questinnaire Recruitment criteria: 20 care-givers 10 living in Paris (+ near and distant suburbs) and 10 in Tuluse (+ suburbs); 10 men and 10 wmen; Aged 18 years and mre; All vlunteer care-givers prviding care and mral and/r financial supprt and imprving adherence f AD patients; Persnally visiting patients 2-3 times per week; Only 2 care-givers (because f their lw representatin) will be recruited thrugh the Assciatin France Alzheimer; Organisatin: 2 mini-grups with 4 t 5 participants (½ in Paris and ½ in Tuluse) and 10 individual interviews (½ in Paris and ½ in Tuluse) Interview site: Paris (Rm TBD) & Tuluse (rm TBD) 1. Are yu... A man A wman Recruit 10 care-givers Recruit 10 care-givers 2. Hw ld are yu? l l years HOMOGENEOUS RECRUITMENT BETWEEN 18 AND 80 YEARS 3. What is yur ccupatin? / / IF IN MARKETING OR HEALTH INTERVIEW 4. Have yu participated in a market research r pinin study in the field f health care during the last three mnths? G t Q5 5. Des ne f yur clse relatives have Alzheimer's disease? G t Q6 10

12 6. D yu help this persn in any way during his/her activities f daily living (e.g. preparing meals, getting washed and dressed, paperwrk, ging ut etc.) n a regular basis i.e. at least 2-3 times a week? G t Q7 7. Are yu paid fr this? G t Q8 8. D yu belng t Assciatin France Alzheimer r anther similar assciatin? QUOTA LIMITED TO 2 CARE-GIVERS G t Q7 INVITATION: Wuld yu like t participate in this survey? Required identifying infrmatin Name, First name Pstal Address address (if pssible) Landline phne n Mbile Phne (ESSENTIAL) Date and time f appintment 11