10th Annual Living Donation Conference: Essential Donor Team Concepts FOR ENTRY LEVEL & EXPERIENCED PRACTITIONERS

Transcription

1 10th Annual Living Donation Conference: Essential Donor Team Concepts FOR ENTRY LEVEL & EXPERIENCED PRACTITIONERS May WYNDHAM GRAND C L E A R WAT E R B E A C H C L E A R W AT E R, F LO R I DA This activity is sponsored by the American Foundation for Donation and Transplantation

2 Overview Purpose This is a training course on the essential aspects of clinical, psychosocial, advocacy, administrative, financial, quality and regulatory issues related to living donation. The program provides a foundational track for individuals with less than 2 years of experience in the care of the living donor. There is an advanced and a liver track for the experienced practitioners and continuing education/ plenary sessions for all attendees. Organizing Committee Marian Charlton, RN, SRN, CCTC, Course Director AFDT Board of Directors New York Presbyterian Hospital, Weill Cornell Transplant Program, New York, NY Helen Spicer, RN, BSN AFDT Board of Directors Tulane Transplant Institute New Orleans, LA Dianne LaPointe Rudow, ANP-BC DNP, CCTC Mount Sinai Medical Center, New York, NY Suzanne McGuire, RN, BSN, CCTC UCLA Health System Transplant Service, Los Angeles, CA Gwen McNatt, PhD, MS, RN, CNN, FNP-BC Kovler Organ Transplantation Center, Northwestern Memorial Hospital, Chicago, IL Marie Morgievich, RN, APN.C, CNN, CCTC RWJ Barnabas Health, Livingston, NJ Marian O Rourke, RN, BSN, CCTC AFDT Board of Directors Miami Transplant Institute, Jackson Memorial Hospital Miami, FL Andrea Tietjen, MBA, CPA RWJ Barnabas Health, Livingston, NJ Debbie Morgan, MSW, LCSW RWJ Barnabas Health, Livingston, NJ Rebecca Hays, MSW, APSW University of Wisconsin Hospital and Clinics, Madison, WI Continuing Education Credits Applications will be made to the American Board of Transplant Certification for CEPTCs and to the National Association of Social Workers. This activity will be submitted to the American Nephrology Nurses Association (ANNA) for approval to award contact hours. ANNA is accredited as an approver of continuing nursing education by the American Nurses. Who Should Attend? The following staff who are new to their roles, as well as, those who are experienced practitioners: Independent Living Donor Advocates for all clinical disciplines Living Donor Coordinators Social Workers Psychologists Physicians Physician leaders, Administrators and Managers for programs with living donor teams Quality and Compliance Staff Accommodations When you stay at Wyndham Grand Clearwater Beach in Clearwater Beach, you ll be on the beach and minutes from Pier 60 Park and Clearwater Municipal Marina. This 4-star hotel is within close proximity of Captain Blighs Landing and Clearwater Marine Aquarium. Make yourself at home in one of the 343 air-conditioned rooms featuring refrigerators and flat-screen televisions. Your room comes with a pillowtop bed. Cable programming and ipod docking stations are provided for your entertainment, while complimentary wireless Internet access keeps you connected. Private bathrooms with shower/tub combinations feature complimentary toiletries and hair dryers. Take time to pamper yourself with a visit to the full-service spa. You can take advantage of recreational amenities such as an outdoor pool, a spa tub, and a 24-hour fitness center. Additional amenities at this hotel include complimentary wireless Internet access, concierge services, and gift shops/newsstands. Hotel reservations should be made by phone toll free , or online at AFDT2018 prior to April 23, Please reference your attendance at the American Foundation for Donation & Transplantation, Living Donation Conference to receive the group rate of $209 single or double occupancy plus 13% tax per night. The resort fee is waived during the official conference dates of May Inquire about the hotel s cancellation policy to avoid a penalty.

3 Objectives Plenary Sessions Describe the advances in living donor care in the last decade. Discuss effective communication to manage patients expectations related to live donation. Discuss emerging strategies to reduce costs to the live donor. Discuss professional boundaries and confidentiality challenges within live donor teams. Discuss emerging medical and ethical considerations for the care of the live donor. Discuss effective communication between living donor and transplant candidate team members. Outline the live donor process from intake through long term follow-up. Discuss CMS and OPTN/UNOS regulatory requirements for living donor programs. Discuss the kidney paired donation process including staffing roles and patient management. Outline the financial considerations for living donation. Describe the medical evaluation of the living donor, including assessment of short and long term risks. Identify elements of the Independent Living Donor Advocate Interview. Identify elements of the donor psychosocial assessment. Identify the basic principles related to histocompatibility that apply to living donor transplantation. Discuss required elements to operationalize a living donor program. Identify best practices for living donor follow-up. Discuss new strategies to evaluate long term donor risk. Discuss the ethical considerations of new and emerging concepts within living donation. Discuss required elements to maximize living donor opportunities through paired exchange. Liver Track Discuss recipient and donor selection for successful living donor liver transplant (LDLT). Discuss improving care of the live donor. Describe ethical considerations for live donor selection. Discuss the necessary resources for a liver program including new liver policies.

4 AGENDA Wednesday, May 16 7:00 a.m. 8:00 a.m. Registration Desk Open 7:00 a.m. 8:00 a.m. Continental Breakfast with Exhibitors Plenary Session 8:00 a.m. - 8:15 a.m. Welcome and Opening Remarks Marian Charlton, RN, SRN, CCTC, New York Presbyterian-Weill Cornell Transplant Center 8:15 a.m. - 9:00 a.m. Living Donation: Then and Now Matthew Cooper, MD, Medstar Georgetown Transplant Institute 9:00 a.m. - 9:45 a.m. Emerging Data and KDIGO Guidelines - Impact on Living Donor Practice Krista Lentine, MD, PhD, St. Louis University Center for Abdominal Transplantation 9:45 a.m. - 10:15 a.m. ASTS Pilot Project to Cover Donor Lost Wages Will This Increase Donation? Amit K. Mathur, MD, MS, FACS, Mayo Clinic 10:15 a.m. 10:30 a.m. Refreshment Break with Exhibitors 10:30 a.m. - 12:00 noon Emerging Ethical Challenges in Living Donation Marie Chantal Fortin, MD, PhD, FRCPC, University of Montréal 12:00 noon 1:00 p.m. Lunch Breakout Sessions 1:00 p.m. 2:00 p.m. 2:00 p.m. 3:00 p.m. The Live Donor Process: Intake Through Long Term Follow-up Dianne LaPointe-Rudow, ANP-BC, DNP, Recanati/Miller Transplantation Institute, Mount Sinai Hospital Application of New Tools for Donor Risk Assessment: Case Studies Krista Lentine, MD, PhD, St. Louis University Center for Abdominal Transplantation The Medical Evaluation of Living Kidney Donors David Serur, MD, The Rogosin Institute, New York Presbyterian-Weill Cornell Medicine Can Lifestyle Modification Change Long Term Donor Risk? Rebecca Wallschlaeger, MS, RDN, CD, University of Wisconsin Hospital and Clinics 3:00 p.m. 3:15 p.m. Refreshment Break with Exhibitors 3:15 p.m. 4:30 p.m. The Psychosocial Evaluation of Living Donors Debbie Morgan, MSW, LCSW, RWJ Barnabas Health Achieving Compliance with Mandated Living Donor Follow-up Marian O Rourke, RN, BSN, CCTC, Miami Transplant Institute, Jackson Memorial Hospital Next Steps in Long Term Donor Follow-up: SRTR Pilot Program Dianne LaPointe-Rudow, ANP-BC, DNP, Recanati/Miller Transplantation Institute, Mount Sinai Hospital 5:00 p.m. 6:30 p.m. Networking Reception

5 AGENDA Thursday, May 17 7:00 a.m. 8:00 a.m. Registration Desk Open 7:00 a.m. 8:00 a.m. Continental Breakfast with Exhibitors Liver Track 8:00 a.m. 9:00 a.m. 8:00 a.m. 9:00 a.m. 8:00 a.m. 8:40 a.m. Informed Consent: What Do Living Donors Need to Know? Dianne LaPointe-Rudow, ANP- BC, DNP, Recanati/Miller Transplantation Institute, Mount Sinai Hospital Maximizing KPD Opportunities Marie Morgievich, RN, APN.C, CCTC, RWJ Barnabas Health Recipient and Donor Selection for Successful Living Liver Donor Transplant Benjamin Samstein, MD, New York Presbyterian-Weill Cornell Medicine 8:40 a.m. 9:20 a.m. Fatty Liver and the Liver Donor Benjamin Samstein, MD, New York Presbyterian-Weill Cornell Medicine and Rebecca Wallschlaeger, MS, RDN, CD, University of Wisconsin Hospital and Clinics 9:00 a.m. 10:00 a.m. 9:00 a.m. 9:30 a.m. 9:20 a.m. 10:00 a.m. The Independent Living Donor Advocate Interview Hot Topics in Living Donation: HIV to HIV Necessary Resources for a Liver Program Rebecca Hays, MSW, APSW University Of Wisconsin Hospital And Clinics Valerie McBride, RN, BSN, CCTC, UCSF 9:30 a.m. 10:00 a.m. Hot Topics in Living Donation: Voucher Donation Gwen McNatt, PhD, MS, RN, CNN, FNP-BC, Kovler Organ Transplantation Center, Northwestern Memorial Hospital Marian Charlton, RN, SRN, CCTC, New York Presbyterian-Weill Cornell Transplant Center 10:00 a.m. 10:15 a.m. Break 10:15 a.m. 11:15 a.m. 10:15 a.m. 10:45 a.m. 10:15 a.m. 11:15 a.m. Introduction to Histocompatibility Hot Topics in Living Donation: Compatible Share Pressures Affecting Liver Donor Decision Making Suzanne McGuire, RN, BSN, CCTC, UCLA Marie Morgievich, RN, APN.C, CCTC, RWJ Barnabas Health 10:45 a.m. 11:15 a.m. Ethical Analysis of Hot Topics Marie Chantal Fortin, MD, PhD, FRCPC, University of Montréal Rebecca Hays, MSW, APSW University Of Wisconsin Hospital And Clinics

6 Liver Track 11:15 a.m. 12:00 noon 11:15 a.m. 12:00 noon 11:15 a.m. 12:00 noon Living Donation from a Financial Perspective Creating and Sustaining a Successful Living Donor Kidney Program Domino Liver Policies Andrea Tietjen, MBA, CPA RWJ Barnabas Health Debbie Morgan, MSW, LCSW, RWJ Barnabas Health 12:00 noon 1:00 p.m. Lunch 1:00 p.m. 2:00 p.m. 1:00 p.m. 1:30 p.m. Managing Communications Long Term Complications Post Donation Between Live Donor and Recipient Teams Marie Morgievich, RN, APN.C, CCTC, RWJ Barnabas Health Arthur Matas, MD, University of Minnesota 1:30 p.m. 2:00 p.m. Paying for Donor Complications Andrea Tietjen, MBA, CPA, RWJ Barnabas Health 2:00 p.m. 3:00 p.m. 2:00 p.m. 3:00 p.m. KPD: Overview of Staffing Preparing for a UNOS/CMS Survey Needs; Managing Pairs and Logistics Valerie McBride, RN, BSN, CCTC, UCSF Gwen McNatt, PhD, MS, RN, CNN, FNP-BC, Kovler Organ Transplantation Center, Northwestern Memorial Hospital Marian O Rourke, RN, BSN, CCTC, Miami Transplant Institute, Jackson Memorial Hospital

7 AGENDA Friday, May 18 7:00 a.m. 8:00 a.m. Registration Desk Open 7:00 a.m. 8:00 a.m. Continental Breakfast with Exhibitors Plenary Session 8:00 a.m. 3:00 p.m. 8:00 a.m. - 9:00 a.m. The Vulnerable Donor Janna Gordon-Elliott, MD, New York Presbyterian-Weill Cornell Medicine 9:00 a.m. - 10:00 a.m. Managing Magical Expectations and Post Donation Regret Suzanne McGuire, RN, BSN, CCTC, UCLA 10:00 a.m. - 10:45 a.m. What the Donor Needs to Know About ESRD After Donation Arthur Matas, MD, University of Minnesota 10:45 a.m. 11:00 a.m. Refreshment Break with Exhibitors 11:00 a.m. - 11:30 a.m. Peer Support and Advocacy for Living Donors Kelli Collins, MSW, Senior Director, Patient Services, National Kidney Foundation 11:30 a.m. - 12:15 p.m. Professional Boundaries and Living Donor Care Janna Gordon-Elliott, MD, New York Presbyterian-Weill Cornell Medicine 12:15 p.m. 12:45 a.m. Grab Bag Lunch 12:45 p.m. - 1:45 p.m. Confidentiality Challenges Between the Donor and Recipient Facilitating the Process While Honoring Boundaries Marian O Rourke, RN, BSN, CCTC, Miami Transplant Institute, Jackson Memorial Hospital Moderator Case Studies and Panel Discussion 1:45 p.m. - 2:30 p.m. Ask the Experts Case Studies by Faculty Panelists 2:30 p.m. 3:00 p.m. Closing Remarks Marian Charlton, RN, SRN, CCTC, New York Presbyterian-Weill Cornell Transplant Center

8 Registration Credit cards are accepted and online registration is available at Pre-registration via fax is accepted and requested. The course will have a limited number of registrants. Early registration is recommended. Payment is expected prior to the meeting. Registration fees should be in US currency. Fees are not refundable after April 26, , or online at prior to April 23, Please reference your attendance at the American Foundation for Donation & Transplantation, Living Donation Conference to receive the group rate of $209 single or double occupancy plus 13% tax per night. The resort fee has been waived during the official conference dates of May Inquire about the hotel s cancellation policy to avoid a penalty. Contact for course questions: Arlene Skinner, MBA, Mgr. Cont. Edu. & Conf. Planning, kidney9, skinner@amfdt.org I will attend: Liver Track Name Institution Address City State Zip Phone ( ) Fax ( ) Emergency Contact Name Emergency Contact Phone ( ) Please indicate any special needs AFDT Meeting: Wednesday-Friday, May 16-18, 2018: $650 per participant TOTAL PAYMENT ENCLOSED Make all checks/money orders payable to: AFDT 8154 Forest Hill Avenue, Suite 3 Richmond, VA