FROM THE DESK OF THE PRESIDENT

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1 FNINR NEWS FROM THE DESK OF THE PRESIDENT It is a privilege to share the work of the Friends of NINR for this year, This is our second newsletter of the year! We hope that this communication helps you understand the impact of the research happening at NINR, learn about our activities to share the impact with Congress and other legislatures, as well as recognize the researchers themselves for their outstanding work. In October 2017, over 800 nurse leaders gathered in Washington, D.C. at the Ritz Carlton Hotel to celebrate and network and learn at the FNINR NightinGala event. We recognized several outstanding nurse researchers during our Awards Ceremony at the Gala (note recipient list on page 5). FNINR also announced the new Faye Abdellah Leadership Award that will be bestowed for the first time next year at the 25th Anniversary Celebration of FNINR. Learn more about the Faye Abdellah Leadership Award in this newsletter. I believe you will share the Board s view that this award is a true tribute to Faye and her work. At this year s Gala, we also announced the growth of the Ambassadors Program, which is a group of expert nurses who are serving the Friends by educating Congress and other legislatures about the great work going on at NINR. Those involved in the Program doubled this year, and we now have 30 nurse leaders serving as Ambassadors. Read all about their incredible work this year as they have educated our communities about the great work that nurse scientists are doing and the impact of the funding that NINR receives. We rely heavily on the philanthropic support of our friends to continue the work of the FNINR Ambassadors. We have several ways you can support this work, including becoming a Friend of the Friends with a modest contribution (see page 9) which includes the opportunity to recognize a nurse researcher, faculty member, or clinician. It has been a privilege to serve as the President of the Friends of NINR this year, and I am grateful for the opportunity to serve during We will continue to work on our strategic priorities educating our stakeholders about the impact of nursing research and NINR programs through continued growth of our Ambassadors Program; striving for excellence in governance through our Board work and stewardship; and assuring the financial viability of the way forward. We appreciate your support of NINR and during this time of thanksgiving, we give thanks to each and every one of you! All the best, Karen Drenkard PhD, RN, NEA-BC, FAAN President, Friends of the National Institute of Nursing Research 1

2 FNINR ANNOUNCES 2018 BOARD OFFICERS FNINR is excited to announce that the new Officers of the Organization, starting January 1, 2018, will be the following individuals who have served tirelessly in furthering the mission of NINR and nursing science and who have guided FNINR so judiciously over the last number of years. Congratulations! PRESIDENT Karen Drenkard, PhD, RN, NEA-BC, FAAN Senior Vice President/Chief Clinical Officer O Neil Center/GetWellNetwork PRESIDENT ELECT Connie W. Delaney, PhD, RN, FAAN, FACMI, FNAP Dean and Professor, School of Nursing University of Minnesota TREASURER Mary Kerr, PhD, RN, FAAN Dean, Frances Payne Bolton School of Nursing Case Western Reserve University SECRETARY Dorrie Fontaine, RN, PhD, FAAN Sadie Heath Cabaniss Professor of Nursing and Dean University of Virginia School of Nursing IMMEDIATE PAST PRESIDENT Michael R. Bleich, PhD, RN, FAAN President and Chief Executive Officer NursDynamics, LLC FNINR BOARD ANNOUNCES 2018 NEW DIRECTORS During the October 4 FNINR Board of Directors Meeting at the Ritz Carlton Hotel in Washington, D.C., the following outstanding executives were elected to the Board, with their two-year term beginning on January 1, Each individual brings a unique perspective and experience to the governing body of FNINR. AZITA EMAMI PHD, MSN, RNT, RN, FAAN Executive Dean University of Washington School of Nursing JERRY A. MANSFIELD PHD, RN, NEA-BC Executive Chief Nursing Officer and Chief Patient Experience Officer Medical University of South Carolina MOLLY K. MCCARTHY, RN, MBA Chief Nursing Strategist Microsoft US Health & Life Sciences CONGRATULATIONS! VICTORIA NIEDERHAUSER DrPH, RN, PPCNP-BC, FAAN Dean and Professor University of Tennessee Knoxville College of Nursing LINDA D. NORMAN, DSN, RN, FAAN Dean and Valere Potter Menefee Professor of Nursing Vanderbilt University School of Nursing SANDRA J. WEISS, PHD, DNSc, FAAN Professor and Eschbach Endowed Chair Department of Community Health Systems Interim Dean, School of Nursing University of California San Francisco CINDY L. MUNRO PHD, RN, ANP-BC, FAAN, FAANP, FAAAS Dean and Professor, University of Miami School of Nursing and Health Studies CATHLEEN WHEATLEY, MS, RN, CENP Chief Nurse Executive and Senior Vice President, Clinical Operations, Wake Forest Baptist Health 2

3 By: Teresa Morris FNINR Director of Advocacy and Government Relations 3 The Friends of the National Institute of Nursing Research celebrated its 24th Annual NightinGala on October 4 in Washington, D.C. Alongside the amazing nurse scientists that received recognition for their research, FNINR Ambassadors were on hand to discuss their work as advocates on behalf of NINR. The day began with an extraordinary event entitled Breakfast with a Message. Suzanne Ffolkes, Senior Vice President of Communications for Research!America presented a truly eye-opening, fact-filled message about the economic impact of research. More from Suzanne s presentation can be found in this newsletter on page 4. Armed with research data and FNINR s policy ask for NINR, Ambassadors stormed the Hill and met with their Congressional delegations to push for more funding for research! Ambassadors have been active at home and in Washington throughout the year - sending the message that research must remain a critical part of the health care discussion. Some of their stories include: Ambassador Ellen Hahn, PhD, RN, FAAN, and r epresentatives from the University of Kentucky, met with eight of Kentucky s legislators highlighting what nurse scientists at UK College of Nursing are providing in health research that impacts their constituents. Ambassador Linda Weglicki, RN, PhD, of Florida Atlantic University, met with Senator Marco Rubio and his staff and has attended District Town Hall Meetings with others to inform Congressional members about the importance of nursing research and its impact on improving the lives of Florida s population. Ambassador Cheryl Taylor, PhD, RN, FAAN, from Southern University and A&M College in Louisiana, was invited to participate in a roundtable discussion with Senator Bill Cassidy and leaders from NINR. The discussion was prompted by Senator Cassidy and his staff wanting more information on how to build research programs in nursing science. Ambassador Victoria Menzies, PhD, RN, PMHCNS-BC, FAAN, of Virginia Commonwealth University, met with Senators Mark Warner and Tim Kaine, as well as Congressman McEachin. Dr. Menzies spoke passionately about how nurse scientists strive to conduct research that extends into all areas of patient care, from symptom management interventions to research having to do with quality and safety throughout the health care system. She went on to mention that this is only a small part of what nursing research and its outreach to patient care and to nursing education has done, can do, and will do. Ambassador Susan Carol Saladino, PhD, RN, from SUNY Downstate, discussed NINR research and the grant process with Senators Schumer and Gillibrand in their Washington, D.C. offices. These are just a few of the many outreach efforts that Ambassadors have made throughout the year. They continue to educate policy leaders, health care leaders, and the public about the powerful impact of nursing research. This is the focus and the primary goal of FNINR s Advocacy Program. FNINR President Karen Drenkard, PhD, RN, NEA- BC, FAAN, in her remarks to Gala attendees, reminded everyone of the importance of being focused on our role to educate the public and Congress about the value of nursing science and the impact nurses make in contributing to life-altering interventions through science. The impact of nursing science directly affects people in every community. Sharing the importance of this work with our legislators, health care leaders, and the public is critical in assuring that the science advances, said Drenkard. We hope you will join us in our efforts to bring research and science to the forefront of the conversation about health care for the future.

4 Nursing Research Resonates By: Suzanne Ffolkes Senior Vice President of Communications, Research!America Philanthropist and research advocate Mary Lasker famously said: If you think research is expensive, try disease. Her quote summarizes the challenges in convincing policymakers about the importance of strong investments in research to combat disease and reduce soaring health care costs. Nursing research, in particular, reduces health care costs by translating research findings into evidence-based improvements in clinical practice and health care delivery. Nurses are also driving value-based care which can lead to better health outcomes and cost savings. Health care spending accounts for 18% of U.S. GDP and continues to rise. Aligning quality patient care with cost effectiveness is a critical national priority as policymakers make tough decisions on funding non-defense and defense programs. Unfortunately, many programs will likely be flat-funded or cut under current budget caps. Highlighting the economic benefits of nursing research must be part of the conversation in meetings with members of Congress and their staff to ensure federal support for such research keeps pace with scientific opportunity and current and emerging health threats. National data as well as state and local data on nursing research s impact on job growth, economic development, health care savings, disease burden and more would be of interest to policymakers, particularly data relevant to their Congressional districts or states. For example, the Centers for Disease Control and Prevention s Chronic Disease Calculator provides state-level estimates of medical expenditures and absenteeism costs on cancer and other diseases. Colorectal cancer (CRC), the third most prevalent cancer in the U.S., is expected to claim 50,000 lives in 2017, making it the second leading cause of cancer deaths. Direct medical costs of CRC care were estimated to be $14 billion in But with early detection, CRC is highly treatable. Early diagnosis predicts survival rates upwards of 80% for both colon and rectal cancer. Recognizing the need for interventions to increase early cancer detection, Dr. Usha Menon, Professor and Associate Dean for Research and Global Advances at The University of Arizona College of Nursing in Tucson, led an NINR-supported research study showing that tailored education and counseling strategies resulted in a more than two-fold increase in the likelihood that participants would successfully complete a CRC screening. Persistent pain affects more than 50 million Americans with estimated costs of $200 billion annually for direct care and lost productivity. Dr. Angela Starkweather, Director, Center for Advancement in Managing Pain Professor at the University of Connecticut School of Nursing, and her colleagues conducted an NIH-supported study in precision medicine that identified molecular mechanisms underlying the transition from acute pain to chronic pain in lower back pain (LBP) patients. Dr. Starkweather s group found that patients whose back pain progressed from acute to chronic had significant differences in gene expression during the acute phase of LPB, compared to those patients whose acute LPB later resolved. This suggests a molecular signature for acute LBP patients who may be more vulnerable to develop chronic LBP, a finding that could potentially save millions of dollars in the early diagnosis and preventative care of this disease. Nurse researchers play a pivotal role in preventing and treating disease and disability. In addition to describing the health and societal impact of their work to policymakers, economic data could make the difference between robust, flat or shrinking budgets for nursing research in the next fiscal year and beyond. 4

5 FNINR RECOGNIZES OUTSTANDING NURSE SCIENTISTS The Friends of the National Institute of Nursing Research honored four distinguished nurse scientists at the October 4 NightinGala celebration. 5 Dr. Barbara A. Given, Distinguished Professor and Associate Dean Emeritus, Michigan State University College of Nursing, was presented with the FNINR Ada Sue Hinshaw Award for her work in Symptom Management, Supportive Care and Family Caregivers. Dr. Patricia F. Brennan, Director, National Library of Medicine, and NIH Interim Associate Director for Data Science, was presented with the FNINR President s Award for her work in Nursing Informatics. In Honor of FAYE GLENN ABDELLAH... The Friends of the National Institute of Nursing Research is pleased to announce the establishment of the FNINR Faye Glenn Abdellah Leadership Award. The first issuance of this award to honor Dr. Abdellah will be at the 2018 NightinGala FNINR s 25th Anniversary next year. Dr. Abdellah was instrumental in the transfer of the Center for Nursing Research, Division of Nursing (DN), Bureau of Health Professions, Health Resources and Services Administration, United States Public Health Service (US PHS), to the National Center for Nursing Research at the National Institutes of Health (NIH). The Center was the forerunner of the National Institute of Nursing Research (NINR). She felt strongly that nursing research belonged at NIH. The newly renamed FNINR Welch/Woerner Path Paver Award was given to Dr. Janean E. Holden, Professor and Associate Dean for Research, University of Michigan School of Nursing, for her work in Preclinical Studies on Modulation of Nociceptive and Neuropathic Pain. FNINR recognized Dr. Canhua Xiao, Associate Professor at Emory University Nell Hodgson Woodruff School of Nursing, with the 2017 Protégé Award for her work in Symptom Clusters and Fatigue in Patients with Head and Neck Cancer. Dr. Abdellah, a policy expert, spearheaded obtaining congressional authority for the transfer. On November 21, 1985, Congress established the National Center of Nursing Research at NIH to conduct, support, and disseminate information respective to basic and clinical nursing research, training and other programs in patient care research done by nurses. The following criteria/eligibility has been approved by the FNINR Board for this award: The recipient shall be an individual who is or has been widely recognized for their leadership in advancing the nursing research agenda, issues and/or policy; The recipient shall be a non-nursing leader, scientist, and/or policy maker or organization. The recipient shall have made either a lifelong, consistent impact OR has made a singular contribution that has had outstanding impact in advancing the nursing science agenda through advocacy, policy, or other influential avenues. Further details will be included in the FNINR Call for Awards Nominations to be sent out in early 2018.

6 NIGHTINGALA 2017 FEATURED SPEAKERS This year s FNINR NightinGala featured a break from as part of FNINR s first cohort of Ambassadors. the traditional Keynote Speaker role, and instead, took Dr. Munro has been a key player in educating and a look at the National Institute of Nursing Research advocating for NINR research to Congressional and FNINR s Advocacy Program. Two outstanding Members in Florida. She highlighted the growth of speakers provided Gala guests with an impactful message on how we work together, as partners, in moving 30 members strong and spoke to the role we all must FNINR s Advocacy and Ambassadors Program now the health of the nation forward. play in educating policy leaders about the science. She encouraged all those at the Gala to be advocates Dr. Jessica Gill, PhD, RN, Lasker Clinical Research for research to discuss their own projects at home Scholar, NINR/NIH, spoke about her research with reminding them that All Politics is Local. Congress respect to traumatic brain injuries and concussions wants to know what affects their constituency and how in athletes and how blood biomarkers can be used they can help! to improve diagnosis. Dr. Gill studied biomarkers found in CTE patients and linked them to increased FNINR was honored to show Gala attendees a look concussions often found in athletes who return to play into how our Ambassadors Program is providing after experiencing a concussion during play. Her work support for NINR funding, and how that funding is is providing critical outcomes in brain injury research being used to improve the health care of individuals which will make a difference in how we treat future and communities across the country. sports injuries on every level. She also provided a look Dr. Gill and Dr. Munro eloquently presented both inside the research lab that many have not seen, and sides of the story of the partnership between NINR taught the Gala attendees what a Tau marker means. and FNINR. We are grateful for their continued work Dr. Cindy Munro, PhD, RN, ANP-BC, FAAN, FAANP, and support of both programs, and hope that you will FAAAS, Dean and Professor, University of Miami join us in continuing to tell the story. School of Nursing and Health Studies, was selected NIGHTINGALA 2017 ATTENDEES ENJOY THE EVENING! 6

7 NIGHTINGALA 2017 ATTENDEES ENJOY THE EVENING! 7

8 THANK YOU TO GALA SPONSORS The Friends of the National Institute of Nursing Research extends its most sincere appreciation to the following individuals, schools and organizations for their tremendous support and sponsorship of the 2017 NightinGala. Thank you for adding so much to the success of this annual celebration of nursing science! CEDARS SINAI MEDICAL CENTER COLLEEN CONWAY-WELCH GETWELLNETWORK/O NEIL CENTER LOUISE WOERNER MARK YOUR CALENDARS WEDNESDAY, OCTOBER 31, 2018 The FNINR 25th Anniversary NightinGala will be held on Wednesday, October 31, 2018, at the Grand Hyatt Hotel in Washington, D.C. MASSACHUSETTS GENERAL HOSPITAL MEDSTAR HEALTH NEW YORK-PRESBYTERIAN HOSPITAL NEW YORK UNIVERSITY RORY MEYERS COLLEGE OF NURSING & LANGONE MEDICAL CENTER OHIO STATE UNIVERSITY COLLEGE OF NURSING RUTGERS UNIVERSITY SCHOOL OF NURSING UNIVERSITY OF MICHIGAN SCHOOL OF NURSING UNIVERSITY OF MINNESOTA SCHOOL OF NURSING UNIVERSITY OF VIRGINIA SCHOOL OF NURSING Registration and further details will be sent out soon. Plan to attend and join in the festivities! 8

9 FNINR ANNOUNCES AN EXCITING OPPORTUNITY TO SUPPORT NURSING SCIENCE AND RESEARCH The Friends of the National Institute of Nursing Research (FNINR) Board is excited to announce the creation of a special program called Friend of the Friends. This program is designed to give each and every person who values nursing research the opportunity to become a Friend and support the mission of FNINR. WHAT: A program to support the mission of NINR by becoming a Friend of the Friends with your donation. An opportunity to honor nurse researchers, nurse leaders who support research, nurse educators who teach research, and community members who value research. WHY: HOW: An opportunity to honor the memory of someone special who valued nurse research and the impact it had on the lives of our communities. By becoming a Friend of the Friends you will help advance FNINR s mission and the mission of science and its role in providing positive outcomes to the health care community. Simply go to and click on and designate your Friend support for yourself and/or to honor another individual. Your $100 donation to FNINR will entitle you to receive: 1. All FNINR Newsletters 2. A lapel pin that signifies Friend of the Friends that you may wear proudly in support of nursing science 3. Recognition at the FNINR annual NightinGala 4. Recognition on the FNINR website 9 Those chosen to be honored by you in this fashion will also be recognized at the NightinGala and on the FNINR website. THANK YOU FOR CONSIDERING THIS WONDERFUL OPPORTUNITY TO BECOME A FRIEND OF THE FRIENDS!

10 THANK YOU FRIENDS FNINR wishes to acknowledge those who have, thus far, become a Friend of the Friends and extend appreciation for their support... ANN MARIE DOSE SUSAN GENNARO MARIE BAKITAS REYNALDO RIVERA GAUDIA BANISTER MARY ANN FRIESEN KATHLEEN POTEMPA KAREN DRENKARD KAREN COX CONNIE DELANEY MARILYN RANTZ MARTHA CURLEY RUTH ANDERSON NANCY KAUFMAN MARILYN HAMMER MARGARET HEITKEMPER JEAN WATSON PAMELA JOHNSON DONNA MEYER SANDRA DUNBAR FRANKLIN SHAFFER MICHAEL BLEICH NANCY VALENTINE SANDRA WEISS In Memory of ROBERT HASSMILLER MAUREEN MCCAUSLAND TAMILYN BAKAS SALLY MALISKI MOLLIE CUMMINS THANK YOU FOR BEING A FRIEND OF THE FRIENDS! 10