WELCOME 2 nd Annual UNSW Paediatric Research Week Programme 2014

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1 WELCOME 2 nd Annual UNSW Paediatric Research Week Programme th - 14 th November 2014 UNSW CRICOS Provider Code 00098G, ABN

2 ND ANNUAL UNSW PAEDIATRIC RESEARCH WEEK Monday 10 th - Friday 14 th November 2014 MONDAY 10 NOV TUESDAY 11 NOV WEDNESDAY 12 NOV THURSDAY 13 NOV FRIDAY 14 NOV 9:30am-1:00pm Good Clinical Practice

2 2 ND ANNUAL UNSW PAEDIATRIC RESEARCH WEEK Monday 10 th - Friday 14 th November 2014 MONDAY 10 NOV TUESDAY 11 NOV WEDNESDAY 12 NOV THURSDAY 13 NOV FRIDAY 14 NOV 9:30am-1:00pm Good Clinical Practice (GCP) Training Registration Necessary 2:00pm-5:00pm Aboriginal Child Health - Research & Teaching Workshop 10:00am-11:00am Biostatistics Workshop 1:00pm-2:00pm Young Investigators Seminar Series Speakers: Dr Antoinette Anazodo Dr Sandra Chuang 2:00pm-4:00pm Workshop: Research or quality improvement projects? How to make it work in practice 6:00pm-7:00pm John Beveridge Oration Registration Necessary 12:30pm-2:00pm 2 nd UNSW Paediatric ILP Awards 2:00pm-4:00pm Allied Health & Nursing Research Symposium All Day Research Posters Foyer 1:00pm Westfield Research Laboratories Tour Registration Necessary POSTPONED Westfield Research Lab All Day Research Posters Foyer 9:00am-12:30pm 2 nd Annual UNSW Paediatric Research Showcase 2:05pm-2:15pm Winners of 2 nd UNSW Paediatric ILP Awards Announced 2:15pm-4:00pm 2 nd Annual UNSW Paediatric Research Showcase cont d

3 CONTENTS Monday 10 th November - Friday 14 th November Level 1 Sydney Children s Hospital Page 3

GOOD CLINICAL PRACTICE TRAINING Monday 10 th November 9:30am-1pm Level 1 Sydney Children s Hospital Hosted by Sydney Children s Hospital Clinical Research Centre Registrations Necessary! Fee applies.

4 GOOD CLINICAL PRACTICE TRAINING Monday 10 th November 9:30am-1pm Level 1 Sydney Children s Hospital Hosted by Sydney Children s Hospital Clinical Research Centre Registrations Necessary! Fee applies. Contact: Nisha Berthon-Jones Nisha.Berthonjones@sesiahs.health.nsw.gov.au Good clinical practice (GCP) is an international quality standard that is provided by the International Conference on Harmonisation (ICH), an international body that defines standards, to regulate clinical trials involving human subjects. GCP enforces guidelines on ethical aspects of a clinical study. High standards are required in terms of comprehensive documentation for the clinical protocol, record keeping, training, and facilities, including computers and software. Quality assurance and inspections ensure that these standards are achieved. GCP aims to ensure that the studies are scientifically authentic and that the clinical properties of the investigational product are properly documented. Ongoing research shows that whether conducting research involving a new drug, a behavioural intervention, or an interview or survey, GCP provides investigators and their study teams with the tools to protect human subjects and collect quality data. The Sydney Children s Hospital Clinical Research Centre (SCH CRC) in conjunction with UNSW Paediatric Research Week will be holding ICH-GCP Training on Monday 10 th November. Places are strictly limited, to reserve you spot - please Nisha Berthon-Jones, Manager, SCH CRC. Nisha.BerthonJones@sesiahs.health.nsw.gov.au The workshop is licenced through the Paediatric Trials Network Australia. This course is interactive and an attendance certificate is issued at the end which can be placed in training folders as required for clinical trials. Workshop Outline: Understand the principles of GCP and how to apply them to all human research projects Australian researchers undertaking drug and device research must comply with the TGA s Notes for Guidance on Good Clinical Practice (GCP), but GCP is not only relevant to drug and device research, it guides us in good practice for all human research. This workshop will provide you with an understanding of the key GCP principles and how to apply them. Stage of Learning Reflection/collaborative Knowledge Reflection/modelling/collaborative Reflection/modelling/ collaborative/knowledge Knowledge Reflection/modelling/collaborative/knowledge Reflection/modelling/collaborative/knowledge Reflection Content Outline Ice-breaker activity What is GCP Presentation: Why is it important? What happens if you are not compliant? Activity 1 - Identifying GCP Principles Discuss each example and the principles, mistakes etc. Audits Presentation Activity 2 You are the auditor Discussion of audit findings Summary of content Page 4

ABORIGINAL CHILD HEALTH: RESEARCH & TEACHING Monday 10 th November 2:00pm-5:00pm Level 1 Sydney Children s Hospital Hosted by the Department of Community Child Health Contact: Dr Sue Woolfenden susan.

5 ABORIGINAL CHILD HEALTH: RESEARCH & TEACHING Monday 10 th November 2:00pm-5:00pm Level 1 Sydney Children s Hospital Hosted by the Department of Community Child Health Contact: Dr Sue Woolfenden susan.woolfenden@sesiahs.health.nsw.gov.au The Department of Community Child Health at Sydney Children s Hospital in conjunction with UNSW Paediatric Research Week will be holding an Aboriginal Child Health: Research & Teaching Session on Monday 10 th November. This half-day workshop on Aboriginal child health services and research in NSW was originally designed for Community Child Health Trainees but is open to all interested health professionals and students. PROGRAMME: (Please Note: May be subject to change) Chair: Dr Sue Woolfenden 2:10pm: Dr Suzie Gardner Creating a Picture of Aboriginal Child Health in our area. 2:40pm: Lola Callaghan, Michelle Jersky, Jennifer Winters Working together in health and education with Aboriginal families for SCH network. 3:10pm: Drs Justine Noble,Terry Yoong New Directions 3:40pm: Dr Jenny McDonald The GUDAGA PROJECT 4:10pm: Wendy Bryan Clothier and Lizzy Mayers Aboriginal Health 4:30pm: Questions and Discussion How can we work together in research, training and service delivery in Community Child Health to improve Aboriginal Child Health? Page 5

BIOSTATISTICS WORKSHOP Tuesday 11 th November 10am-11am Level 1 Sydney Children s Hospital Presented by: Kylie-Ann Mallitt Biostatistician, Discipline of Paediatrics, School of Women s & Children s

6 BIOSTATISTICS WORKSHOP Tuesday 11 th November 10am-11am Level 1 Sydney Children s Hospital Presented by: Kylie-Ann Mallitt Biostatistician, Discipline of Paediatrics, School of Women s & Children s Health, UNSW Medicine Kylie-Ann Mallitt will discuss the importance of using the correct statistical analysis in research and the pitfalls and consequences for not doing so. She will discuss basic statistics including data entry, simple analysis for example from qualitative questionnaire data, and preparing grants, ethics applications, and research protocols. This session will be beneficial for clinicians, nurses, allied health professionals, higher degree students and undergraduate students. Page 6

YOUNG INVESTIGATORS SEMINAR SERIES Tuesday 11 th November 1pm-2pm Level 1 Sydney Children s Hospital The Young Investigators Seminar Series is a regular event held by the Discipline of Paediatrics,

7 YOUNG INVESTIGATORS SEMINAR SERIES Tuesday 11 th November 1pm-2pm Level 1 Sydney Children s Hospital The Young Investigators Seminar Series is a regular event held by the Discipline of Paediatrics, School of Women s & Children s Health, UNSW Medicine. During UNSW Paediatric Research Week we have two PhD candidates presenting, both of whom are also clinicians: Dr Antoinette Anazodo Fertility Understanding through Registry and Evaluation (FUTuRE) Fertility. Dr Sandra Chuang Non-Invasive Measures of work of breathing during sleep in children. The Young Investigators Seminar Series occurs approximately twice per month, on a Tuesday from 1pm-2pm in the, Level 1, Sydney Children s Hospital. The Young Investigators Seminar Series forms part of the annual progress review for higher degree research students (PhD & Masters). It is an opportunity for the students to present their research. Page 7

8 RESEARCH WORKSHOP Tuesday 11 th November 2pm-4pm Level 1 Sydney Children s Hospital RESEARCH OR QUALITY IMPROVEMENT PROJECTS? HOW TO MAKE IT WORK IN PRACTICE This workshop will feature a number of speakers discussing: When studies are research and when they are quality improvement; How to turn a clinical question into a research question; Research project design and methodologies; Approval pathways for projects and support available: quality improvement approval, ethics, and governance. This workshop has been designed to assist all budding researchers, regardless of the scope and size of the project. Clinicians, nurses, allied health professionals, current and prospective higher degree students are encouraged to attend. PROGRAMME: 2:05 PM Chair: Professor Anne Cunningham Professor of Paediatrics; UNSW Director of Developmental Neurosciences Program; Head of Laboratory Research, Sydney Children s Hospital The definition of research, what is research as opposed to quality improvement. 2:30 PM Laurel Mimmo Quality Manager/Clinical Improvement Officer Quality Improvement at SCHN: Gaining QI Ethics Approval through CHARLI The pathway of institutional approval for quality improvement projects not subject to the human research ethics pathway. 2:45 PM Jillian Shute Executive Officer - Research Ethics, Sydney Children s Hospitals Network Carolyn Casey Research Governance Manager, Sydney Children s Hospitals Network Brief explanation of human research ethics and governance processes at Sydney Children s Hospitals Network. Where to start, what is required, where to find guidance, and who to ask for assistance. 3:00 PM Dr Keith Ooi Lecturer, PhD (submitted 2014), Discipline of Paediatrics, School of Women s & Children s Health Staff Specialist, Gastroenterology, Sydney Children s Hospital So you want to do a research project? Asking the right questions and choosing a study design. Page 8

JOHN BEVERIDGE ORATION Tuesday 11 th November 6pm-7pm Level 1 Sydney Children s Hospital Health, human rights and children in immigration detention.

9 JOHN BEVERIDGE ORATION Tuesday 11 th November 6pm-7pm Level 1 Sydney Children s Hospital Health, human rights and children in immigration detention. Professor Gillian Triggs President, Australian Human Rights Commission Presentation 6pm-7pm (refreshments from 5:30pm) Hosted by Sydney Children s Hospital Contact: Linda Hall Linda.hall@sesiahs.health.nsw.gov.au Emeritus Professor Gillian Triggs is the President of the Australian Human Rights Commission, taking up her appointment in She was Dean of the Faculty of Law and Challis Professor of International Law at the University of Sydney from and Director of the British Institute of International and Comparative Law from She is a former Barrister with Seven Wentworth Chambers and a Governor of the College of Law. Professor Triggs has combined an academic career with international commercial legal practice and worked with governments and international organisations on offshore insurers, World Trade Organisation law and human rights. Her focus at the Commission in on the implementation in Australian law of the human rights treaties to which Australia is a party, and to work with nations in the Asia Pacific region on practical approaches to human rights. Professor Triggs long-standing commitment to legal education builds upon the Commission s efforts to inform Australians about their fundamental human rights, especially those of children. Page 9

INDEPENDENT LEARNING PROJECT (ILP) AWARDS Wednesday 12 th November 1pm-2pm Light lunch provided from 12:30pm Level 1 Sydney Children s Hospital 2013 Overall Winner - Nadia Perera & Dr Michelle Farrar

10 INDEPENDENT LEARNING PROJECT (ILP) AWARDS Wednesday 12 th November 1pm-2pm Light lunch provided from 12:30pm Level 1 Sydney Children s Hospital 2013 Overall Winner - Nadia Perera & Dr Michelle Farrar (supervisor) In 2013, the Discipline of Paediatrics offered (for the first time) Independent Learning Project (ILP) students the opportunity to submit abstracts on the research they had been undertaking, competing to win one of two UNSW Paediatrics ILP Awards. In 2014, all UNSW Medicine students who were completing their ILP that year in the field of paediatrics were invited to enter. The Discipline received 17 abstracts that were scored by a review panel. Four finalists were selected and will present their work at this special, Sydney Children s Hospital Grand Rounds. We encourage all to attend the awards to support our future doctors and see the quality of research they have engaged in this year, under the guidance of our dedicated supervisors. The winners of both awards will be announced at the 2 nd Annual Paediatric Research Showcase held on Friday 14 th November in the, Level 1, Sydney Children s Hospital. WELCOME: 12:55pm Chair: Dr Sean Kennedy Senior Lecturer; Director of Education Discipline of Paediatrics, School of Women s & Children s Health, UNSW Medicine FINALISTS PRESENTATIONS: 1:00pm David Chan Supervisors: Dr Jordan Wood; Conjoint A/Prof David Champion Project Title: Survey or patients and parents about the pain experience at and after discharge following appendicectomy at Sydney Children s Hospital. 1:15pm Supervisors: Project Title: 1:30pm Supervisors: Project Title: 1:45pm Supervisors: Project Title: Bernadette Cameron Dr Sean Kennedy; Dr Fiona Mackie The natural history of CMV, EBV and BKV viraemia in paediatric renal transplant recipients reeiving valganciclovir prophylaxis. Kenneth Chew Dr Michelle Farrar; Dr John Widger The impact of nutrition on respiratory function in Duchenne Muscular Dystrophy. Jasmine Chan Conjoint A/Prof Avi Lemberg; Dr Steven Leach Tacrolimus Use in Inflammatory Bowel Disease. Page 10

ALLIED HEALTH & NURSING RESEARCH SYMPOSIUM Wednesday 12 th November 2pm-4pm Level 1 Sydney Children s Hospital Paediatric research should not only involve multiple medical sub-specialties but also

11 ALLIED HEALTH & NURSING RESEARCH SYMPOSIUM Wednesday 12 th November 2pm-4pm Level 1 Sydney Children s Hospital Paediatric research should not only involve multiple medical sub-specialties but also multiple disciplines therefore the aim of the Symposium is to encourage and cultivate allied health and nursing involvement and collaboration in research at Sydney Children s Hospital and within the Discipline of Paediatrics. PROGRAMME: 2:05 PM Chair: Lyn Biviano Department Head, Social Work, The Children s Hospital at Westmead; Director of Allied Health, Sydney Children s Hospitals Network 2:15 PM Jessica Menzies (Nutrition & Dietetics) & Jennifer Hughes (Speech Therapy) Growth and feeding problems in patients with Oesophageal Atresia/Tracheoesophageal Fistula (OA/TOF). 2:30 PM Liz Evans & Zoe Stuttard (Nursing) Let someone know: Improving patient and families hospital experience focusing on clinical bedside handover and multidisciplinary ward rounds. 2:45 PM Leslie Wollin (Occupational Therapy) The Conservative Management of Camptodactyly in Children and Adolescents 0-18 years of age. 3:00 PM Sara Burrett & Danielle Beston (Social Work) Improving disclosure rates of domestic violence in a paediatric setting. 3:15 PM Irene Mitchelhill (Nursing) Evolution of a patient education website. 3:30 PM Laura Brown (Physiotherapy) Physiotherapy intervention to improve motor co-ordination, postural stability and behaviour in pre-school children born extremely preterm or with extremely low birth weight: a randomised controlled trial. Page 11 For the second year, the Allied Health & Nursing Research Symposium will be held during UNSW Paediatric Research Week. A chance for Allied Health and Nursing staff to present the research they have been involved in with the aim of exhibiting the diverse nature of the professions, and we hope inspiring others to become more involved.

RESEARCH POSTERS 2 nd Annual UNSW Paediatric Research Week Thursday 13 th November & Friday 14 th November All day Foyer Level 1 Sydney Children s Hospital Presented a poster in 2014?

12 RESEARCH POSTERS 2 nd Annual UNSW Paediatric Research Week Thursday 13 th November & Friday 14 th November All day Foyer Level 1 Sydney Children s Hospital Presented a poster in 2014? Want it displayed during Research Week? Drop it in to the Discipline of Paediatrics offices by Friday 7 th November Level 3 Emergency Wing Sydney Children s Hospital Posters can be collected post-research Week (from Tuesday 18 th November) Research posters previously presented at conferences in 2014 will be displayed during the 2 nd Annual UNSW Paediatric Research Week & Showcase. This is an opportunity to share your research and also view the research of others within paediatrics. Posters will be displayed in the Foyer, Level 1, Sydney Children s Hospital on Thursday 13 th November and Friday 14 th November. Page 12

WESTFIELD LABORATORY TOUR Thursday 13 th November 1pm Foyer Level 1 Sydney Children s Hospital POSTPONED Professor Anne Cunningham, Head of Laboratory Research, Sydney Children s Hospital will lead

13 WESTFIELD LABORATORY TOUR Thursday 13 th November 1pm Foyer Level 1 Sydney Children s Hospital POSTPONED Professor Anne Cunningham, Head of Laboratory Research, Sydney Children s Hospital will lead interested parties on a tour of the Westfield Laboratories at Sydney Children s Hospital. Registrations are necessary! Tour will only go ahead if sufficient numbers reached. Registrations close Monday 10 th November To register, contact Samantha McFedries, Research Coordinator s.mcfedries@unsw.edu.au Interested parties can still register to tour the laboratory. Please register with Samantha McFedries, Research Coordinator s.mcfedries@unsw.edu.au Professor Cunningham will contact those who have registered on Monday 17 th November to arrange tours, as needed. Page 13

UNSW PAEDIATRIC RESEARCH SHOWCASE Friday 14 th November 9am-4pm Foyer Level 1 Sydney Children s Hospital Keynote Speaker: Prof John Mattick Executive Director, Lab Head - RNA Biology and Plasticity

14 UNSW PAEDIATRIC RESEARCH SHOWCASE Friday 14 th November 9am-4pm Foyer Level 1 Sydney Children s Hospital Keynote Speaker: Prof John Mattick Executive Director, Lab Head - RNA Biology and Plasticity Senior Principal Research Fellow The Garvan Institute of Medical Research ÌÌ ÌÌ Clinicopath Conference (CPC) as per regular scheduling: 1pm-2pm Announcement: ILP Awards Winners 2014 Margaret Dance Honours Prize :05pm The School of Women s & Children s Health encourages all to attend the 2nd Annual UNSW Paediatric Research Showcase on Friday 14 th November The Showcase is being held in the, at Sydney Children s Hospital and features a number of researchers at varying stages of their career, improving health outcomes for children - from infants through to adolescents. The Showcase is designed to encourage, stimulate, and inspire paediatric research at UNSW, the Randwick Hospitals Campus, and associated Medical Research Institutes. PROGRAMME: 9:00 AM Opening Address: Professor Terry Campbell Senior Associate Dean, UNSW Medicine; Professor of Medicine, St Vincent s Clinical School, UNSW Medicine; Convenor, The Health-Science Alliance. 9:15 AM Keynote Address: Professor John Mattick Executive Director; Lab Head - RNA Biology and Plasticity, The Garvan Institute of Medical Research Transforming the diagnosis, understanding and treatment of paediatric disease through genomics. SESSION 1: CHAIR - PROFESSOR ADAM JAFFE 9:45 AM Accepted Abstract: Dr Claire Wakefield: Quality of life in grandparents of children with, and without, cancer. 10:00 AM Accepted Abstract: Dr Sue Woolfenden: Equitable Access to Developmental Surveillance and Early Intervention - Understanding the Barriers for Children from Culturally and Linguistically Diverse (CALD) Backgrounds. Page 14

15 10:15 AM Accepted Abstract: Ms Ursula Sansom-Daly: Harnessing e-health to promote resilience in adolescent and young adult cancer survivors. 10:30 AM Accepted Abstract: Dr Santuri Rungan: Child development and settlement: A longitudinal study of refugee children. 10:45 AM Invited Speaker: Dr Meredith Ward Vascular endothelial growth factor receptor 3 expression in normal and hypoxic developing brain and retina. 11:00 AM MORNING TEA SESSION 2: CHAIR - PROFESSOR RICHARD LOCK 11:15 AM Accepted Abstract: Dr Paul Gray Next Generation Sequencing for diagnosis and discovery of single gene immune diseases: Preliminary report of the CIRCA collaboration. 11:30 AM Invited Speaker: Dr Antoinette Anazodo: Fertility Understanding Through Registry and Evaluation (FUTuRE Fertility) 11:45 AM Invited Speaker: Dr Nadine Kasparian Risk, Resilience, and Relationships in Paediatrics: A Model of Care for Children with Life- Threatening Cardiac Arrhythmias and their Families. 12:00 PM Accepted Abstract: Dr Lisa Ewans The success of whole exome sequencing diagnosis in a large cohort of patients with Mendelian disorders. 12:15 PM Accepted Abstract: Ms Christina Signorelli The impact of long term follow-up care on dental awareness and practices in childhood cancer survivors. 12:30 PM Invited Speaker: Dr David Ziegler Novel therapies for the most aggressive cancer of childhood. 12:45 PM LUNCH 1:00 PM CLINICOPATH CONFERENCE (CPC) 2:05 PM ANNOUNCEMENT OF ILP AWARD WINNERS & THE MARGARET DANCE PRIZE FOR HONOURS SESSION 3: CHAIR - PROFESSOR WILLIAM LEDGER 2:15 PM Accepted Abstract: Dr Kristen Neville Appearance of Vitamin D abnormalities in older survivors of childhood cancer. 2:30 PM Invited Speaker: A/Prof Maria Craig Enterovirus infection and type 1 diabetes more than a chance association 2:45 PM Accepted Abstract: Ms Jeyran Shabazi: Highly synergistic combination therapy of the BET bromodomain inhibitor JQ1 and the histone deacetylase inhibitor Panobinostat against neuroblastoma. 3:00 PM Accepted Abstract: Mr Sohaib Virk Impact of glycaemic variability on complications risk in young people with type 1 diabetes. 3:15 PM Invited Speaker: Dr John Lawson Adventures with Clinical Trials in Tuberous Sclerosis. 3:30 PM Accepted Abstract: Dr Laverne Lok Mental Health Needs of Children in Out-of-Home-Care. 3:45 PM Accepted Abstract: Ms Swaranjali Jain Characterising severity and assessing responsiveness to change of the epidermolysis bullosa disease activity and scarring index. 4:00 PM Closing Address: Professor Bill Ledger Head of School, School of Women s & Children s Health, UNSW Medicine 4:10 PM AFTERNOON TEA Page 15

16 Discipline of Paediatrics, School of Women s & Children s Health, UNSW Medicine Sydney Children s Hospital, High Street, Randwick, NSW 2031 CRICOS Provider Code 00098G ABN

Longitudinal study of refugee children. Tuesday 13 December 2016 Primary Integrated and Community Health Research Forum

Longitudinal study of refugee children Lisa Woodland, SESLHD A/Prof Karen Zwi, SCHN Dr Sue Woolfenden, SCHN Prof Katrina Williams, RCH VIC Dr Pam Palasanthiran, SCHN Prof Adam Jaffe, SCHN Tuesday 13 December