Living a Good Life... at the End of Life

Transcription

1 Living a Good Life... at the End of Life 2015 Annual Conference March 17-18, 2015 Embassy Suites Lincoln, Nebraska

2 Nebraska s hospitals H 24/7 improve the health of individuals and the quality of life to entire communities and regions, and make the state a better place to live, work and grow 24 hours a day 7 days a week days a year

3 A special thanks to the following agencies for supporting the 2015 annual conference. Contact to learn how your organization can serve as part of the conference providership. This CNE is supported by an unrestricted educational grant and/or exhibits. This does not imply Nebraska Hospice and Palliative Care Association approval or endorsement of any product/medication. 1

4 trade show exhibitors. As of Feb. 9, 2015 Aetna Better Health of Nebraska Centering Corporation Hospice Rx Lions Eye Bank of Nebraska Methodist Home Health & Hospice OCS HomeCare by National Research Corporation Roper & Sons Funeral Services The Next Conversation Tri-State Nursing 2015 conference workgroup. Chair Diane Randolph, R.N., B.S.N. Methodist Hospice, Omaha Marcia Cederdahl, R.N., CHPN AseraCare Hospice, Regional Office, Lincoln Carrie Healy, CMSW AseraCare Hospice, Omaha Lori Molzer, R.N., CHPN AseraCare Hospice, Lincoln Mary Oliver, R.N., B.S.N. St. Joseph Villa Hospice, Omaha Tim Snyder, M.A. Hillcrest Hospice, Bellevue Ed Vandenberg, M.D. University of Nebraska Medical Center, Omaha Jennifer Eurek, CSW Vice President of Hospice and Palliative Care, NHPCA Pam Truscott, M.S.N., Nurse Educator, RN, Director of Professional Development, NHPCA Kathryn Nohl Membership and Marketing Manager, NHPCA Mallory Connelly Membership and Marketing Coordinator, NHPCA 2

5 Embassy Suites 1040 P Street, Lincoln, NE Phone embassysuiteslincoln.com X Directions to Embassy Suites Hotel from I-80: Take downtown exit onto I-180 south. Proceed to P Street, turn left, and go one block. Hotel is located on the corner of 10th and P Streets. Parking: City parking garages are located on the east and west side of Embassy Suites for a daily parking charge of $9. Hotel valet parking is available for $15 per day. Hotel Reservations Attendees are responsible for their own hotel reservations. Call the Embassy Suites at EMBASSY to make your reservation. Request group code HPC. For online reservations, go to: LNKESES-HPC /index.jhtml Make reservations before Feb. 22, 2015, to guarantee room rate. Room Rate: $139* *Includes cook-to-order breakfast and evening reception 3

6 conference information. Nebraska Hospice and Palliative Care Association (NHPCA) Mission: A statewide partnership to improve the quality of life for all Nebraskans who have chronic conditions or are near the end of life and to support the various communities who care for them. Vision: No Nebraskan lives in pain or dies badly. Nebraskans with chronic or end-of-life conditions regardless of age, live their last months to their fullest, with their wishes expressed and respected, their pain and suffering alleviated, their fears and questions heard and addressed, their relational, spiritual, cultural, and financial needs met, with their loved ones around them and supported up to and following their death. Conference Purpose The goal of this conference is to improve end-of-life care and conditions across the state of Nebraska by providing education on end-of-life issues for physicians, nurses, social workers, advocates, administrators, and others working in the end-of-life field. Who Should Attend? This is a premier regional conference for everyone caring for patients and families with chronic illness or at the end of life. Attendees include physicians, nurses, therapists, social workers, administrators, and counselors. Cyber Station/Handouts The 2015 annual conference is paperless! The cyber station offers attendees a place to check and print handouts. Session handouts will be ed to registered attendees two weeks prior to the conference. Be sure to include your address on the registration form. ADA Requests If you need auxiliary aids or services identified in the Americans with Disabilities Act, please attach a description of requested accommodations to your registration form or call NHPCA at Photos NHPCA takes photographs during its events for use in Association media releases, newsletters, and other promotional materials, whether in print, electronic or other media including the NHPCA website and online social networking sites. By participating in this conference and other NHPCA events, you grant NHPCA the right to use your name and photograph for such purposes. Daily Certificate of Attendance and Daily Evaluations AT THE BEGINNING OF EACH DAY, REGISTRANTS MUST PICK UP A DAILY CERTIFICATE OF ATTENDANCE AND EVALUATION PACKET. The certificate and evaluation packet will be located near the conference registration area. It is the responsibility of each registrant to retain his or her own certificate as verification of continuing education hours. Continuing Education Credit This program is co-provided by the University of Nebraska Medical Center and the Nebraska Hospice and Palliative Care Association. Registrants can choose from hours of conference education sessions. The specific number of continuing education credit hours that have been requested from the appropriate licensing agencies are listed after each day s session descriptions. Physicians, Nurse Practitioners, and Physician Assistants: This activity has been planned and implemented in accordance with the Accreditation Requirements and Policies of the Accreditation Council for Continuing Medical Education through the joint providership of the University of Nebraska Medical Center, Center for Continuing Education, and the Nebraska Hospice and Palliative Care Association. The University of Nebraska Medical Center, Center for Continuing Education, is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The University of Nebraska Medical Center, Center for Continuing Education, designates this live activity for a maximum of AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Nurses, Social Workers, Licensed Mental Health Practitioners, and Nursing Home Administrators: Contact hours are listed after each day s session descriptions. Nursing peer-reviewed continuing education credit provided by Iowa Western Community College, Iowa Board of Nursing Provider #6. Peer review approved. 4

7 keynote speakers. Jennifer Kennedy, M.A., B.S.N., CHC, LNC Jennifer Kennedy is the Director of Regulatory and Compliance for the National Hospice and Palliative Care Organization. She has 28 years of experience as a leader and nurse in diverse health care settings and has worked in hospice care for more than 16 years and at the National Hospice and Palliative Care Organization for eight years. She has a bachelor s degree in nursing, a dual master s degree in health education and case management, and is currently working on a doctoral degree in health care education. Jennifer speaks at national and state conferences, writes articles for trade journals, and develops education and resources for hospice and palliative care providers. David Casarett, M.D., M.A. David Casarett is a palliative care physician and health services researcher whose work focuses on improving systems of care for people with serious, life-threatening illnesses. He is a Professor of Medicine at the University of Pennsylvania, a faculty member of the Pennsylvania Department of Medical Ethics, and Director of Hospice and Palliative Care for the University of Pennsylvania. Dr. Casarett is a recipient of the Presidential Early Career Award for Scientists and Engineers, the highest honor given by the U.S. government to researchers in the early stages of their careers. Dr. Casarett is the author of two non-fiction books, Last Acts and Shocked: Adventures in the Strange Science of Bringing Back the Recently Dead. His third book, about the science of medical marijuana, will be published in May T. Marni Vos, RGS T. Marni Vos is a clean and refreshing, award-winning humorist. She is as funny as she is inspiring. A motivational speaker, she entertains as she renews and invigorates her audience to be top performers in their work and as individuals. A former educator with three degrees, she continues to educate individuals, in all walks of life, to meet their challenges with a light heart and the echo of laughter. In today s business environment, where every skill counts, humor, laughter, and creativity can provide a winning edge. T. Marni Vos became one of only seven women in 20 years to be a finalist in the prestigious San Francisco International Stand-up Comedy Competition. She has performed on Lifetime s Girls Night Out and opened for Jay Leno. She has delivered more than 1,000 keynote speeches in over 45 states, Canada, and on cruise ships. Deborah Grassman, ARNP Deborah Grassman is CEO and co-founder of Opus Peace: Healing Center, a non-profit 501(c)3 organization whose mission is to help people re-own and re-home scattered pieces of broken self lost through heartache, neglect, abuse, trauma, death, and war. She is a nurse practitioner whose career with the Department of Veterans Affairs lasted for nearly 30 years. Deborah s book, Peace at Last: Stories of Hope and Healing for Veterans, is used by multiple agencies to learn about the effects of past trauma on the quality of a person s dying process, the influence of the various cultures of war on dying veterans, stoicism, and warrior wisdom. She has a new book, The Hero Within: Redeeming the Destiny We were Born to Fulfill, which describes the processes of abiding, reckoning, and beholding our interior hero. Shandy Loberg Shandy Loberg is CEO of Shandy s Solutions, a public speaker, and an author. Shandy is a mother of four children and a devoted Christian wife. Her background and college degrees are in human resources. She has owned her own business and has been a public speaker for 13 years. Shandy has spoken for 250 different companies and reached 4,000 people with her entertaining, educational and inspiring speeches. She has written a book titled Surviving Life: How to Turn Nightmares Into Dreams. 5

8 schedule at a glance. Tuesday, March 17 7:15 a.m....registration 7:15 a.m. - 3:45 p.m....trade Show Open 8:00 a.m. - 8:15 a.m....welcome 8:15 a.m. - 8:45 a.m....nhpca Annual Meeting 8:45 a.m. - 10:00 a.m....general Session I Hospice: A View from Washington Jennifer Kennedy, M.A., B.S.N., CHC, LNC 10:00 a.m. - 3:45 p.m....nhpca Raffle Open 10:00 a.m. - 10:30 a.m....break 10:30 a.m. - 12:00 p.m....general Session II Shocked: Adventures in Bringing Back the Recently Dead David Casarett, M.D., M.A. 12:00 p.m. - 1:00 p.m....lunch 1:00 p.m. - 2:00 p.m....concurrent Sessions [A1-A4] A1: The Fallout from Addiction: Adult Children, Family Roles, Codependency A2: Becoming a Conversation Starter for End-of-Life Discussions A3: ALS Basics A4: Hospice Approach to the Pulmonary Patient 2:00 p.m. - 2:15 p.m....break 2:15 p.m. - 3:15 p.m....concurrent Sessions [B1-B4] B1: Communication Approaches for Supervisors B2: Patient Safety: Why Do Medication Errors Happen and What Can I Do? B3: ALS and End of Life B4: Ethics, Autonomy and End-of-Life Care (This session meets the requirements for one hour of ethics continuing education for certified social workers.) 3:15 p.m. - 3:30 p.m....break 3:30 p.m. - 3:45 p.m....announcements/door Prizes 3:45 p.m. - 5:00 p.m....general Session III Healer, Healing and Humor T. Marni Vos, RGS 5:00 p.m....adjourn/evaluations/certificates 5:30 p.m. - 6:30 p.m....reception 6:30 p.m...banquet 6

9 schedule at a glance. Wednesday, March 18 7:15 a.m....registration 7:15 a.m. - 3:30 p.m....trade Show Open 7:15 a.m. - 3:15 p.m....nhpca Raffle Open 8:00 a.m. - 8:15 a.m....welcome 8:15 a.m. - 10:15 a.m....general Session IV Soul Injury: An Overlooked, Unassessed Consequence of War and Trauma Deborah Grassman, ARNP 10:15 a.m. - 10:45 a.m....break 10:45 a.m. - 11:45 a.m....concurrent Sessions [C1-C4] C1: Aging: Redeeming the Destiny We Were Born to Fulfill C2: Customizing Comfort Care to Individual Patient Needs: A Toolkit Approach C3: Creating Opportunities for Discussing End-of-Life Planning: The Begin with the End in Mind Series C4: Children Grieve Too: Tips and Tools to Support Grieving Children and Families 11:45 a.m. - 12:45 p.m....lunch 12:45 p.m. - 1:45 p.m....concurrent Sessions [D1-D4] D1: Update on Transition to Pediatric Hospice Project D2: Survive to Succeed: The Communication Wall D3: The Role of Hospice and Palliative Care in Organ and Tissue Donation D4: Estate Planning and Planning with Hospice: Starting the Conversation 1:45 p.m. - 2:00 p.m....break 2:00 p.m. - 3:00 p.m....concurrent Sessions [E1-E4] E1: Children and Families in the Face of Illness and Death E2: Pediatric End-of-Life Issues: Symptom Management E3: Power of Attorney and Guardianship E4: It s My Funeral 3:00 p.m. - 3:15 p.m....break 3:15 p.m. - 3:30 p.m....announcements/door Prizes/Raffle Prizes 3:30 p.m. - 4:45 p.m....general Session V Survive to Succeed: Learning the Lessons of Surviving Successfully from the Elderly Shandy Loberg 4:45 p.m....adjourn/evaluations/certificates For your personal comfort, we suggest you dress in layers to accommodate variable room temperatures. 7

10 tuesday. march 17. schedule details. 7:15 a.m.... Registration Opens 7:15 a.m. - 3:45 p.m.... Trade Show Open 8:00 a.m. - 8:15 a.m.... Welcome 8:15 a.m. - 8:45 a.m.... NHPCA Annual Meeting 8:45 a.m. - 10:00 a.m.... General Session I Hospice: A View from Washington Jennifer Kennedy, M.A., B.S.N., CHC, LNC, Director, Regulatory and Compliance, National Hospice and Palliative Care Organization, Alexandria, Va. This session will provide a view of the national environment as it relates to health care and hospice. The presentation will look at the congressional and regulatory issues related to federally funded hospice care and the future of hospice and palliative care. This training will allow participants to explain the national environment and what is driving the scrutiny on hospice, diagram current hospice legislative and regulatory issues, and discuss the future of end-of-life care including hospice and palliative care. 10:00 a.m. - 3:45 p.m.... NHPCA Raffle Open 10:00 a.m. - 10:30 a.m.... Break 10:30 a.m. - 12:00 p.m.... General Session ll Shocked: Adventures in Bringing Back the Recently Dead David Casarett, M.D., M.A., Professor of Medicine, University of Pennsylvania, Philadelphia, Pa. In this session, Dr. David Casarett chronicles his exploration of cutting-edge resuscitation and reveals just how far science has come. Fascinating, thoughtprovoking, and funny, this session is an exploration of how all of these scientific breakthroughs are changing the way we think about life and death. This training will allow participants to discuss the history of CPR, describe recent advances in resuscitation, and identify potential future advances in resuscitation science. 12:00 p.m. - 1:00 p.m.... Lunch 1:00 p.m. - 2:00 p.m.... Concurrent Sessions [A1-A4] A1: The Fallout from Addiction: Adult Children, Family Roles, Codependency Edward DeSimone, R.Ph., Ph.D, FAPhA, Professor of Pharmacy Sciences, Creighton University, School of Pharmacy and Health Professions, Omaha, Neb. The purpose of this activity is to enable the learner to understand who adult children and codependents are, what personal behaviors they exhibit, how they became that way, and the lifelong impact that these precipitating factors create in their lives. Gain an understanding of the dysfunctional family roles that grow out of these early experiences and how they remain a major aspect of one s personal life. This training will allow participants to select from a list of behaviors that are characteristic of adult children; given a dysfunctional family role, list two characteristics of this role; and describe at least three treatment strategies for adult children and codependents. A2: Becoming a Conversation Starter for End-of-Life Discussions Jackie Bates, R.N., CHPN, Owner and Founder, The Next Conversation, Bennet, Neb. The purpose of this activity is to enable the learner to become a conversation starter and helper in the discussion process as patients and families try to make health care decisions, especially regarding a terminal illness. This training will allow participants to diagram three key points on a timeline where critical health care decisions are made, identify motivating reasons (the timeline) for patients to become an active participant in their health care decisions, and formulate and apply their own personal style as a conversation starter for end-of-life discussions. A3: ALS Basics Shannon Todd, MSW/MPA, CSW, Care Services Specialist, The ALS Association Mid-America Chapter, Omaha, Neb. The purpose of this activity is to enable the learner to understand and recognize the clinical features of Amyotrophic Lateral Sclerosis (ALS), as well as 8 (continued on next page)

11 tuesday. march 17. schedule details. to identify the common symptoms of ALS and how those symptoms should be managed throughout the progression of the disease. The learner will also understand the programs offered by The ALS Association and how The ALS Association can assist both clients and a hospice facility caring for a person with ALS. This training will allow participants to describe the clinical features of ALS including risk factors, common onsets, and how ALS is diagnosed; identify symptoms of ALS and explain common recommended management of these symptoms; and identify the organizational purpose of The ALS Association and describe the services provided to people with ALS and their families by The ALS Association. A4: Hospice Approach to the Pulmonary Patient Bob Bleicher, M.D., Medical Director, HoriSun Hospice, Lincoln, Neb. The purpose of this activity is to highlight the common and less common fatal pulmonary diseases such as pulmonary fibrosis, lymphangioleiomyomatosis, pulmonary hypertension, and Hepato-Pulmonary syndrome. It will also highlight respiratory failure from all causes including ALS, stroke, and head trauma. Participants will learn about these illnesses, their treatment, and the final symptom complex of dyspnea, cough, wheezing, chest pain, hemoptysis, and anxiety. Ventilator management in hospice will also be discussed, as well as terminal ventilator weaning. This training will allow participants to describe fatal pulmonary diseases, describe symptoms and signs of end stage pulmonary diseases, and describe treatment plans for pulmonary conditions. 2:00 p.m. - 2:15 p.m.... Break 2:15 p.m. - 3:15 p.m.... Concurrent Sessions [B1-B4] B1: Communication Approaches for Supervisors Sen. Colby Coash, B.A., Nebraska State Senator, District 27, Lincoln, Neb. This session will help participants identify their communication style and recognize how their strengths make them leaders and bring value to a team. Participants will leave with new strategies for communicating with their staff, peers and stakeholders. This training will allow participants to explain their personal communication style, practice applying their style to their work environments, leverage their strengths as they compare to other styles, and apply their communication awareness to future work through identified behavior changes. B2: Patient Safety: Why Do Medication Errors Happen and What Can I Do? Edward DeSimone, R.Ph., Ph.D, FAPhA, Professor of Pharmacy Sciences, Creighton University, School of Pharmacy and Health Professions, Omaha, Neb. The purpose of this activity is to enable the learner to understand the major causes of medication errors. The learner will be introduced to the National Coordinating Council for Medication Error Reporting Program and the guidelines for reporting medication errors. Learn risk management techniques that can be utilized to minimize medication errors. This training will allow participants to list and describe the five major categories of medication errors, describe the Medication Error Index, and list and describe at least three risk management techniques in order to reduce medication errors. B3: ALS and End of Life Shannon Todd, MSW/MPA, CSW, Care Services Specialist, The ALS Association Mid-America Chapter, Omaha, Neb. The purpose of this activity is to enable the learner to understand when patients with Amyotrophic Lateral Sclerosis (ALS) should be considered for hospice. The discussion will also include ALS-specific considerations on timing of hospice. The learner will be able to recognize ALS end-of-life symptoms and management techniques. The session will also explain challenges and needs of the ALS caregiver at the end of life and provide tools to assist caregivers at this stage of the disease. This training will allow participants to be able to describe the clinical features of ALS and define hospice criteria for ALS, identify end-of-life symptoms of ALS and explain recommended management of these symptoms, and identify end-of-life issues and characteristics of ALS caregivers. (continued on next page) 9

12 tuesday. march 17. schedule details. B4: Ethics, Autonomy and End-of-Life Care Leslie Kuhnel, MSHCE, MPA, Ethics Center Director, CHI Health, Omaha, Neb. The purpose of this activity is to enable the learner to recognize the ethics principle of respect for autonomy within the context of end-of-life care and learn how to apply a decision-making tool to assist when conflicts occur. Participants will be able to describe the principle of respect for patient autonomy within the context of end-of-life care, identify barriers and challenges of respect for autonomy within the context of end-oflife care, and apply the patient-centered decisionmaking diagram to promote respect for autonomy. (This session meets the requirements for one hour of ethics continuing education for certified social workers.) 6.0 contact hours awarded. Nursing peer-reviewed continuing education credit provided by Iowa Western Community College, Iowa Board of Nursing Provider #6. Peer review approved. This program meets the criteria for 6.0 hours of an approved continuing education program for certified social workers, certified master social workers, and licensed mental health practitioners. This program meets the criteria for 6.0 hours of an approved continuing education program for Nebraska nursing home administrators. 10 3:15 p.m. - 3:30 p.m.... Break 3:30 p.m. - 3:45 p.m.... Announcements/Door Prizes 3:45 p.m. - 5:00 p.m.... General Session III Healer, Healing and Humor T. Marni Vos, RGS, President, Laughter s Echo, Inc., Lincoln, Neb. There are four attributes to our health: the physical, the mental, the emotional, and the spiritual. Both the patient and the healer know that stress is the number one medical bill in this country. Stress is not an event; it is how we choose to perceive an event. Perceiving the world around us with humor, hope, joy, and faith, not only assists the health care provider, but also the patient. This training will allow participants to be able to discuss the physiological responses of humor, respiration, ventilation, heart rate, blood pressure and flow, muscle tension, and hormones; identify what stress is and how we perceive it; and examine ways of incorporating positive attitudes into our daily life, not only in our professional lives, but our personal lives as well. 5:00 p.m.... Adjourn/Evaluations/ Certificates 5:30 p.m. - 6:30 p.m.... Reception 6:30 p.m.... Banquet

13 wednesday. march 18. schedule details. 7:15 a.m.... Registration Opens 7:15 a.m. - 3:45 p.m.... Trade Show Open 7:15 a.m. - 3:15 p.m.... NHPCA Raffle Open 8:00 a.m. - 8:15 a.m.... Welcome 8:15 a.m. - 10:15 a.m.... General Session IV Soul Injury: An Overlooked, Unassessed Consequence of War and Trauma Deborah Grassman, ARNP, CEO, Opus Peace Corporation, Saint Petersburg, Fla. Soul injury can subtly and not-so-subtly rob veterans of their vitality. The source of soul injury is unmourned grief from fallen comrades and other losses, as well as unforgiven guilt and shame over things veterans think they should or should not have done. Family members of combat veterans are also affected; their wounds, too, often go unnoticed and untended. This presentation will provide insight about soul injury and ways to respond. This training will allow participants to identify at least three reasons why soul injuries surface as veterans age, identify the essential elements of unmourned grief and unforgiven guilt, verbalize the role of stoicism in disconnecting from soul pain, and identify the essential elements of a soul injury ceremony. 10:15 a.m. - 10:45 a.m.... Break 10:45 a.m. - 11:45 a.m.... Concurrent Sessions [C1-C4] C1: Aging: Redeeming the Destiny We Were Born to Fulfill Deborah Grassman, ARNP, CEO, Opus Peace Corporation, Saint Petersburg, Fla. American culture overvalues youthfulness and undervalues aging. Acute illness is viewed compassionately and treated aggressively; chronic illness receives less attention, support, and sympathy. As members of our death-denying, youth-inspired society, we unconsciously adopt these values for ourselves. It is never too late or too early to make the acquaintance of the wise elder archetype that awaits redemption. This session will help you discover ways to access the interior sage awaiting your acquaintance. This training will allow participants to be able to identify cultural barriers that interfere with healthful aging and recognize our ageless, interior wise person and how it can be used to help us inhabit ourselves more completely. C2: Customizing Comfort Care to Individual Patient Needs: A Toolkit Approach Deborah Marks Conley, MSN, APRN-CNS, GCNS-BC, FNGNA, Gerontological Clinical Nurse Specialist; Assistant Professor; NICHE and AgeWISE Director, Nebraska Methodist Hospital, Omaha, Neb. Barbara Johnson, AD, R.N., Staff Development Nurse Oncology Surgery Unit, Methodist Hospital, Omaha, Neb. This session will provide a step-by-step comfort care plan for patients at the end of life in the acute care setting. It offers opportunities for interprofessional collaboration and provides patients and families with care that is consistent with their values and preferences. Components of the comfort care plan, as well as a potpourri of comfort care resources, supplies and options developed by this hospital will be presented. This training will allow participants to be able to describe comfort care plan development for inpatient use, examine the interprofessional comfort care plan, and examine a toolkit approach to comfort care in an inpatient setting. C3: Creating Opportunities for Discussing Endof-Life Planning: The Begin with the End in Mind Series Julie Masters, Ph.D., Professor and Chair, Department of Gerontology, University of Nebraska at Omaha, Omaha, Neb. Paige Toller, Ph.D., Associate Professor and Assistant Director, School of Communication, University of Nebraska at Omaha, Omaha, Neb. Lyn Holley, Ph.D., Professor, Department of Gerontology, University of Nebraska at Omaha, Omaha, Neb. Nancy Kelley Gillespie, Ph.D., Associate Professor and MSW Coordinator, Grace Abbott School of Social Work, University of Nebraska at Omaha, Omaha, Neb. Participants will gain an understanding of the role of education in end-of-life planning and how this can be done through community programming. The (continued on next page) 11

14 wednesday. march 18. schedule details. 12 increasing popularity of death cafés suggests an interest in discussing end-of-life issues. Learn the results of a three-part series focused on end-of-life planning, with suggestions on topics for future programming. This training will allow participants to discuss the history of death cafés and how these have served to encourage end-of-life planning, discuss the three-part series on end-of-life planning, and explain the value of an end-of-life series and how this program can be replicated in other locations. C4: Children Grieve Too: Tips and Tools to Support Grieving Children and Families Cathy Fox, MSW, Program Director, Ted E. Bear Hollow, Omaha, Neb. The death of a family member or friend is a lifechanging experience, yet bereaved children are often left unsupported to navigate it alone. Unresolved grief in youth can contribute to problems in physical health, emotional and mental health, behavior, school performance, and social engagement. In this session, attendees will learn ways to incorporate developmentally-appropriate grief-support strategies and provide a nurturing environment for grieving youth. This training will allow participants to identify the impact of developmental levels on grief responses among youth, describe ways in which to support grieving youth, and assess the impact of death on a family system. 11:45 a.m. - 12:45 p.m.... Lunch 12:45 p.m. - 1:45 p.m.... Concurrent Sessions [D1-D4] D1: Update on Transition to Pediatric Hospice Project Julia Delcour, APRN, FNP, Nurse Practitioner, Hand in Hand/Palliative Care, Children s Hospital and Medical Center, Omaha, Neb. Sue Bace, LICSW, Supervisor, Hand in Hand/Palliative Care, Children s Hospital and Medical Center, Omaha, Neb. This session will review the 2012 pediatric hospice survey and provide an update on the Transition to Hospice Performance Improvement Project at Children s Hospital and Medical Center. The project resulted in a new hospital policy, Electronic Medical Records order sets for nursing and physicians, a transitions folder with information to families, and a comprehensive information tool for hospice agencies geared toward easing the transition of care for children and their families. This training will allow participants to review the Nebraska Hospice Survey from 2012 and NHPCA 2013 presentation results, describe the process and content of Performance Improvement Project activity in 2014, and discuss statewide education needs of hospice providers. D2: Survive to Succeed: The Communication Wall Shandy Loberg, CEO, Shandy s Solutions, Omaha, Neb. A person s ability to communicate is an important survival tool in their pursuit of personal and professional goals. Effective communication helps us interact with the outside world throughout our entire life, no matter what age or ailments we may have. It helps us better understand a person or situation, enabling us to resolve differences, build trust and relationships, and perform effectively as a unit. Proper communication can create an environment where creative ideas, problem solving, affection, and caring can flourish. This training will allow participants to explain the differences between understanding and hearing, discuss how two-way communication is necessary to survive successfully, and apply survival tools which ensure more effective understanding of the message they are trying to convey. D3: The Role of Hospice and Palliative Care in Organ and Tissue Donation John Stallbaum, B.S., Client Services Manager, Nebraska Organ Recovery System, Omaha, Neb. The purpose of this activity is to enable the learner to understand the impact that hospice and palliative care staff have on patients and their families in the organ and tissue donation process. This training will allow participants to be able to summarize the organ and tissue donation process, identify the role of hospice and palliative care staff in the organ and tissue donation process, and develop an understanding of suitability requirements for organ and tissue donation. (continued on next page)

15 wednesday. march 18. schedule details. D4: Estate Planning and Planning with Hospice: Starting the Conversation Christine Vanderford, B.S., J.D., Attorney, Law Office of Christine Vanderford, Lincoln, Neb. The purpose of this activity is to enable the learner to become better acquainted with basic legal concepts regarding estate planning and end-of-life decisions in which legal documents may be needed. The attendees should leave the presentation with more questions than answers, but with an overall better knowledge of what documents are needed when end-of-life issues arise. Real-life examples from a variety of sources will help attendees more effectively assist their clients/patients as to when advocacy is needed for those clients/patients. This training will allow participants to be able to discuss learning opportunities to better utilize legal dynamics involved in end-of-life issues, including, but not limited to, estate planning documents and probate issues. 1:45 p.m. - 2:00 p.m.... Break 2:00 p.m. - 3:00 p.m.... Concurrent Sessions [E1-E4] E1: Children and Families in the Face of Illness and Death Nicole Walker, MS, CCLS, Lead Child Life Specialist, Children s Hospital and Medical Center, Omaha, Neb. Sheila Mee, DMin, BCC, CHTP, Coordinator of Spiritual and Pastoral Care, Children s Hospital and Medical Center, Omaha, Neb. Learn vital information regarding the types of loss children and families experience in the midst of illness and death, as well as examine family dynamics that may occur. This session will highlight the role of spirituality in supporting these children and families. It will also provide resources and information to assist caregivers in helping children and families cope. This training will allow participants to be able to describe the type of loss children and families experience, examine family dynamics in the face of illness and death, recognize the role of spirituality in the illness and death of children, and provide helpful information with how to cope. E2: Pediatric End-of-Life Issues: Symptom Management Andrew Macfadyen, M.D., Medical Director, Hand in Hand Pediatric Palliative Care Program, Omaha, Neb. The purpose of this activity is to enable the learner to manage the distressing symptoms commonly found in children at the end of life. This training will allow participants to describe the physical signs of dyspnea, list the causes of dyspnea, and identify effective therapies; assess the causes and level of pain and be able to name appropriate narcotic, non-narcotic, and non-pharmacologic therapies; and assess the causes of agitation and identify effective therapies. E3: Power of Attorney and Guardianship Mary Wilson, B.S., J.D., Attorney, Buford Law Office, Omaha, Neb. This session will define what a power of attorney and guardian is, the differences between them, and how those differences relate to the provision of health care when there is a subrogate decision maker. Current rules and regulations will also be discussed. This training will allow participants to explain the definition of power of attorney, guardian, and conservator; translate current requirements for a person serving as a power of attorney or guardian; and formulate guidelines for dealing with consumer and agent while providing health care. E4: It s My Funeral Sarah Bernhagen, BFA, John A. Gentleman Mortuary, Bellevue, Neb. This session will teach you how to create a unique celebration of life for yourself or a loved one. It will explain the importance of prearranging and the benefits of prefunding in a non-threatening, fun way! This training will allow participants to create a unique funeral, outline how to prearrange a funeral, and be able to define prefunding. 3:00 p.m. - 3:15 p.m.... Break 3:15 p.m. - 3:30 p.m.... Announcements/ Door Prizes/Raffle Prizes (continued on next page) 13

16 wednesday. march 18. schedule details. 3:30 p.m. - 4:45 p.m.... General Session V Survive to Succeed: Learning the Lessons of Surviving Successfully from the Elderly Shandy Loberg, CEO, Shandy s Solutions, Lincoln, Neb. Shandy has spent her whole life, in one way or another, with the elderly. She has come to see they hold the keys to successful survival, even in modern times. However, most people don t take time out of their busy lives to see the jewels the elderly can provide. Shandy will entertain and enlighten the listeners to such jewels as resiliency, forgiveness, commitment, and perspective by using some of her own humorous and entertaining experiences with the elderly. This training will allow participants to formulate a plan to challenge themselves to look at their lives with a new self-discovery attitude, describe the survival tool of forgiveness, explain the survival tool of commitment, and paraphrase the survival tool of perspective contact hours awarded. Nursing peer-reviewed continuing education credit provided by Iowa Western Community College, Iowa Board of Nursing Provider #6. Peer review approved. This program meets the criteria for 6.25 hours of an approved continuing education program for certified social workers, certified master social workers, and licensed mental health practitioners. This program meets the criteria for 6.25 hours of an approved continuing education program for Nebraska nursing home administrators awards. Shining Star Award The Shining Star Award recognizes an individual, group or organization that has illustrated outstanding leadership in the promotion of end-of-life services, raised awareness of or educated others on end-of-life issues, developed a new program, or developed or completed outstanding work in an end-of-life coalition. Spirit of Hospice Award The Spirit of Hospice Award recognizes true commitment and outstanding dedication to the hospice philosophy of care. Nominees should have promoted quality hospice care over the last year. They should display openness to the needs of all they have cared for, reverencing the dignity of all areas of diversity. Outstanding Hospice Volunteer Recognition Honors exemplary volunteers from Nebraska s hospice programs. Award recipients will be recognized at the awards banquet on Tuesday, March 17, at 6:30 p.m. 14

17 Registration Form Living a Good Life...at the End of Life NHPCA Annual Conference March 17-18, 2015 Name Title Credentials Organization Address City, State, Zip Phone Fax If you have a disability that warrants special requirements, please attach a written description of your needs. Please note any dietary restrictions or requests. Please complete all three sections below: Select your choice of concurrent sessions: Tuesday, March 17 Wednesday, March 18 1:00 p.m. A1 A2 A3 A4 10:45 a.m. C1 C2 C3 C4 2:15 p.m. B1 B2 B3 B4 12:45 p.m. D1 D2 D3 D4 2:00 p.m. E1 E2 E3 E4 Select which continuing education you require: Physician/NP/PA Nursing Nursing Home Administrator Social Work/LMHP Circle the appropriate registration fee: Member on/before March 2 Member after March 2 Non-Member on/before March 2 Non-Member after March 2 Total Full Conference Registration Both Days: March $ $ $ $ Daily Registration Tuesday, March 17 $ $ $ $ Daily Registration Wednesday, March 18 $ $ $ $ Awards Banquet/Dinner Tuesday, March 17 $ $ $ $ Total Additional registration information and the cancellation policy are provided on the back side of this form. Send completed form and payment to: NHPCA,1200 Libra Dr Ste 100, Lincoln NE or register online at nehospice.org 15

18 Registration Information Full Conference Registration: Includes both days of education (March 17 and 18), breaks, lunches, admission to the trade show, raffle, and annual meeting. Daily Registration: Registration on a per-day basis for Tuesday or Wednesday. Daily registration includes all education sessions, lunch, breaks, admission to the trade show, and raffle for the day. Tuesday registration includes the annual meeting. Awards Banquet/Dinner Tickets: Tickets must be purchased separately to attend the Tuesday evening awards banquet NOT included in full conference registration or daily registration. Cancellation Policy All cancellation requests must be submitted in writing. A $50 processing fee will apply to all cancellations. Cancellations on or before March 3, 2015, will receive a full refund less the processing fee. No refunds will be given on cancellations postmarked after March 3, Substitutions are welcome; please submit your request in writing. NHPCA reserves the right to substitute faculty or to cancel or reschedule sessions due to unforeseen circumstances. If the conference must be canceled, registrants will receive full credits or refunds of the paid registration fees. No refunds can be made for lodging, airfare, or any other expense related to attending the conference. NHPCA Raffle Contribution Form YES, I would like to donate an item or package for the raffle. Please submit a form for each item or package donation. Provide name of contributing person or agency/organization as it should appear on recognition: Contact Name Organization Name Address City, State, Zip Phone Fair Market Value of Item or Package: $ Provide a detailed description of the item or package. Attach a description if more space is needed. Donations should be delivered to NHPCA by March 10 or brought to the conference registration desk by 10 a.m. on Tuesday, March 17. The Nebraska Hospice and Palliative Care Association is an IRS-recognized 501(c)3 non-profit organization. Your contribution to NHPCA may be tax deductible. To Donate a Raffle Prize: Complete the contribution form and mail or fax to NHPCA by Feb 27. To Participate in the Raffle: See the directions on the following page. 16 For questions, contact Kathryn Nohl at the Nebraska Hospice and Palliative Care Association 1200 Libra Dr Ste 100, Lincoln NE phone fax KathrynN@nehca.org

19 banquet and entertainment. Tuesday, March 17 5:30 p.m. Reception 6:30 p.m. Awards Banquet and Entertainment Award Winner Recognition Shining Star Award Spirit of Hospice Award Outstanding Volunteer Recognition Entertainment T. Marni Vos Christopher Fry wrote that Laughter is a narrow escape from despair into hope. We need humor in every aspect of our lives. We need it to create happy relationships and memories; we need it to breakdown barriers, to lighten the load. We need humor to maintain our sanity, to remain whole; and tonight we use humor to celebrate! trade show. Tuesday, March 17 7:15 a.m. to 3:45 p.m. Wednesday, March 18 7:15 a.m. to 3:30 p.m. Registered conference attendees are invited to the Trade Show. The Trade Show offers a great opportunity to visit with exhibitors and become better acquainted with their variety of products, services and equipment. Trade Show Door Prizes Sign up at participating booths to win a variety of exciting prizes donated by exhibitors. Win Door Prizes! Door prizes will be given away during the NHPCA Conference Trade Show. Sign up at participating booths! nhpca annual raffle. During the conference, plan to visit the NHPCA Annual Raffle. Winners can take home a variety of fun items and packages! Funds raised through the raffle support scholarships for hospice professionals in Nebraska. To Participate in the Raffle: Raffle items will be displayed at the raffle booth in the Trade Show from 10 a.m. to 3:45 p.m. on Tuesday, March 17, and 7:15 a.m. to 3:15 p.m. on Wednesday, March 18. Stop by to see the prizes that you can win! Raffle tickets can be purchased from any conference workgroup member, board member, or at the raffle booth. To Donate a Raffle Prize: Donations of single items and packages are needed to make this event a success. To donate, complete the NHPCA raffle contribution form. Donations should be delivered to NHPCA by March 10 or brought to the conference registration desk by 10 a.m. on Tuesday, March 17. Additional details are available at nehospice.org. 17

20 1200 LIBRA DR STE 100 LINCOLN NE Living a Good Life... at the End of Life 2015 Annual Conference, March Embassy Suites, Lincoln, Neb. Nebraska Hospice and Palliative Care Association 1200 Libra Drive, Suite 100, Lincoln, NE Phone Fax nehospice.org