Mended Little Hearts Saturday, July 14

Transcription

1 Saturday, July 14 8:00 a.m. 8:45 a.m. MLH Arrival Registration Badge Pick Up Los Rios Foyer 9:00 a.m. 9:25 a.m. Keynote: Straight from My Heart Rio Grande Ballroom Max Page: actor (Young and the Restless, One Mississippi), advocate, survivor 9:30 a.m. 11:20 a.m. Panel: Innovations in CHD Care Rio Grande Ballroom Dr. Daniel Nento, Children s Hospital of San Antonio Dr. Rolando Zamora, Pediatric Cardiology Associates, San Antonio Dr. Steven Zangwill, Phoenix Children s Hospital Dr. Ryan Moore, Cincinnati Children s Hospital Medical Center 11:30 a.m. 12:45 p.m. Panel: Neurodevelopment, Psycho-social, and Rio Grande Ballroom Emotional Issues Faced by CHD Families Emily Delaplane, LSW, Nemours/Alfred I dupont Hospital for Children Melissa Cousino Hood, C.S. Mott Children s Hospital Dr. Jacqueline Sanz, Children s National Health System 12:45 p.m. 1:45 p.m. Lunch: Meditation to Improve Children s Health Regency Center Cyndi Maurer, Playful Meditations 1:45 p.m. 3:00 p.m. Bereavement Breakout Pecan Sharee McCoy, MLH National Bereavement Chair 1:45 p.m. 3:00 p.m. Panel: Development of the CHD Child and Teen Rio Grande Ballroom Dr. Matt Timmons, CHD dad, Texas Children s Hospital Dr Seth Goldstein, Methodist Children s Heart Institute Dr. Keila Lopez, Texas Children s Hospital 3:00 p.m. 3:45 p.m. Innovations Visiting Exhibits Rio Grande Ballroom Exhibitors

2 3:50 p.m. 5:00 p.m. CHD According to Me: Mental Health Rio Grande Ballroom Dr. Corinne Anton, Children s Health Social Worker/Child Life, Emily Delaplane, Nemours Mom, Mary Hobson, Michigan Dad, Jason Hafer, MLH of Delaware Angel Parent, Sarah Stewart, MLH of Dallas Adult with CHD, Meagan Houpt, MLH of Orlando 5:00 p.m. 5:10 p.m. MLH Closing Remarks Rio Grande Ballroom 5:45 p.m. 7:45 p.m. FIESTA Reception and Awards Ceremony Rio Grande Ballroom Come in your FIESTA attire! Dinner Included Angel Olvera, Vice President Sunday, July 15 7:15 a.m. 8:15 a.m. Breakfast Garden Terrace Continental Breakfast 8:30 a.m. 8:45 a.m. Opening Remarks and Welcome Rio Grande Ballroom 8:45 a.m. 9:05 a.m. Getting to Know You Icebreaker Rio Grande Ballroom 9:10 a.m. 9:50 a.m. MLH Update & Vision Rio Grande Ballroom Angel Olvera, Vice President Mended Hearts 101 Dr. Fredonia Williams, National Visiting Chair and Assistant Regional Director 9:50 a.m. 10:30 a.m. Back to Our Roots How Do We Support Rio Grande Ballroom Families in the Age of Technology? Town Hall Discussion Facilitated by Jodi Smith Lemacks, National Program Director & Andrea Baer, Mended Little Hearts Director of Patient Advocacy 10:30 a.m. 10:45 a.m. Break/Networking 10:45 a.m. 11:15 a.m. Being a MLH Spokesperson Locally and Nationally Rio Grande Ballroom Jodi Smith Lemacks, National Program Director 11:20 a.m. 11:55 a.m. Working with Media to Create CHD Awareness Rio Grande Ballroom Christian Bove, Crisis Communications Director For USAA San Antonio

3 11:55 a.m. 12:30 p.m. Bereavement (Angel Boxes, Do s & Don ts, Rio Grande Ballroom Remembering Angels, Starting an Angel Program) Sharri McCoy, MLH National Bereavement Chair 12:30 p.m. 1:30 p.m. Lunch with Networking Garden Terrace 1:30 p.m. 2:15 p.m. Breakout Sessions Annual Reports 101 What Information is Needed and Why? Mandy Sandkuhler, Field Communications Manager High-Level Grants & Sponsorships Al Voss, Southern Assistant Regional Director Budgeting and Managing Finances Andrea Baer, Director of Patient Advocacy and 2:30 p.m. 3:15 p.m. Breakout Sessions Repeat Annual Reports 101 What Information is Needed and Why? Mandy Sandhuhler, Field Communications Manager High-Level Grants & Sponsorships Al Voss, Southern Assistant Regional Director Budgeting and Managing Finances Andrea Baer, Director of Patient Advocacy and Rio Grande Ballroom Pecan Live Oak Rio Grande Ballroom Pecan Live Oak 3:30 p.m. 4:20 p.m. Having Great Fundraising Events Rio Grande Ballroom With Round Tables & Sharing Jon FitzSimon, Inspired Race Events 4:30 p.m. 5:20 p.m. Working with Hospitals Panel with Q&A Rio Grande Ballroom Dr. Mary Porisch, Pediatric Cardiology Associates, San Antonio, Texas Kimberly Stephens, MPA, CCLS, Dell Children s Medical Center, Austin, Texas Samantha Reeh, MSN, RN, CPNP-PC, Aguirre Pediatrics 6:00 p.m. 7:30 p.m. & Mended Hearts Meet & Greet Regency East Welcome Reception, Dinner Included Donnette Smith, President and Catherine Case Larson, Coordinator for MLH of Austin Service Project Facilitator: Andrea Baer, Director of Patient Advocacy and

4 Monday, July 16 7:15 a.m. 8:15 a.m. Breakfast Rio Grande Foyer Continental Breakfast 8:00 a.m. 8:15 a.m. Taking Leadership Training Home Rio Grande Ballroom Don t Lose That Loving Feeling! 8:15 a.m. 8:45 a.m. National Events & Toolkits for Chapter Events Rio Grande Ballroom Emily Schaffhausen, MLH National Events Chair 8:45 a.m. 9:15 a.m. Tutorial: What MLH Has & How to Find It Rio Grande Ballroom Mandy Sandkuhler, Field Communications Manager 9:15 a.m. 9:45 a.m. Community Resources & How to Find Them Rio Grande Ballroom Roundtables 9:45 a.m. 10:30 a.m. Roles for MLH Leaders National & Local Rio Grande Ballroom With Discussion & Regional Networking 10:30 a.m. 10:50 a.m. Break 10:50 a.m. 11:30 a.m. Supporting Teens & Young Adults with CHD Rio Grande Ballroom How We Can Support a New Population 11:30 a.m. 12:30 p.m. Fun Group Awards, Best Idea Sharing & Goodbyes Rio Grande Ballroom

5 Mended Hearts Sunday, July 15 12:00 p.m. 3:00 p.m. MH Attendee Arrival Registration Badge Pick-Up Los Rios Foyer Free Health Screenings and Other Activities 4:00 p.m. 5:30 p.m. 1 st Timers Program Live Oak Cathy Byington, 2018 Conference Committee 6:00 p.m. 7:30 p.m. & Mended Hearts Meet & Greet Regency East Welcome Reception, Dinner Included Donnette Smith, President and Catherine Case Larson, Coordinator for MLH of Austin Service Project Facilitator: Andrea Baer, Director of Patient Advocacy and Mended Hearts Monday, July 16 7:15 a.m. 8:15 a.m. Mended Hearts Breakfast Regency Foyer Continental Breakfast 7:00 a.m. 7:30 a.m. Morning Walk Hotel Lobby Larry Mantle, Regional Director Midwest Region 8:30 a.m. 10:00 a.m. Regional Meetings Central G. Bruce Norris, Regional Director Nueces Mid-Atlantic William Bill Carter, Regional Director Frio Midwest Larry Mantle, Regional Director Blanco Rocky Mountain Robert Oberfield, Regional Director Llano Northeast Bob Hoffman, Regional Director Pecos Southern Marvin Keyser, Regional Director Directors Southwest Lynn Berringer, Regional Director Mesquite Western Ron Manriquez, Regional Director Live Oak 10:00 a.m. 10:15 a.m. Break/Member Networking

6 10:15 a.m. 11:30 a.m. Two Concurrent Workshops A Cardiac Rehab John Shannon, Memorial Regional Hospital & Rehabilitation Center B Chapter Rejuvenation Judy Himes, Phoebe Putney Memorial Hospital Al Voss, Assistant Regional Director Southern Region Regency East Regency Center 11:30 a.m. 11:45 a.m. Break/Member Networking 11:45 a.m. 1:30 p.m. Mended Hearts Luncheon Regency West/Center Transcatheter Aortic Valve Replacement: The Latest Therapy for Aortic Stenosis TAVR Patient Testimonial S. Hinan Ahmed, M.D., UT Health Science Center at San Antonio 1:30 p.m. 1:45 p.m. Break/Member Networking 1:45 p.m. 2:45 p.m. Mended Hearts/ Regency East Annual Meeting Donnette Smith, President 2:45 p.m. 3:00 p.m. Break/Member Networking 3:00 p.m. 4:00 p.m. Two Concurrent Workshops A Cardiac Rehab John Shannon, Memorial Regional Hospital & Rehabilitation Center B Chapter Rejuvenation Judy Himes, Phoebe Putney Memorial Hospital Al Voss, Assistant Regional Director Southern Region Regency East Regency Center Dinner On your own Mended Hearts Tuesday, July 17 Breakfast On your own 7:00 a.m. 7:30 a.m. Morning Walk Hotel Lobby Larry Mantle, Regional Director Midwest Region 8:00 a.m. 9:00 a.m Board Members Live Oak Private Meeting

7 8:00 a.m. 9:00 a.m. General Session Regency East Heart Attack Warning Signs & Nuclear Stress Tests Janet V. Hays, MD, FACC, FASE, FASNC Patient testimonial Casey & Debbie Kite 9:00 a.m. 10:00 a.m. Two Concurrent Workshops C Discharge Class Training Regency East Joyce Reid, Memorial Regional Hospital Tammy Landa, Memorial Regional Hospital D Ask the Pharmacist Rio Grande Ballroom Kimberly A.B. Cauthon, PharmD, BCGP, BC-ADM Feik School of Pharmacy, University of the Incarnate Word 10:00 a.m. 10:15 a.m. Break/Member Networking 10:15 a.m. 11:15 a.m. Two Concurrent Workshops C Discharge Class Training Regency East Joyce Reid, Memorial Regional Hospital Tammy Landa, Memorial Regional Hospital D Ask the Pharmacist Rio Grande Ballroom Kimberly A.B. Cauthon, PharmD, BCGP, BC-ADM, Feik School of Pharmacy, University of the Incarnate Word 11:15 a.m. 11:30 a.m. Break/Member Networking 11:30 a.m. 1:15 p.m. Mended Hearts Luncheon & General Session Regency Center/West Heart Failure: Activity and Diet Biykem Bozkurt, MD, PhD, FHFSA, FACC, FAHA, FESC, Baylor College of Medicine 1:15 p.m. 1:30 p.m. Break/Member Networking 1:30 p.m. 2:30 p.m. General Session Regency East Basic Technology Skills **Bring your electronic devices to this session!!** Moderator: Michael Cavazos M.D., University of Texas Health Sciences Center at San Antonio 2:30 p.m. 2:45 p.m. Break/Member Networking 2:45 p.m. 4:00 p.m. General Session Regency East Cardiovascular Disease & Diabetes Dr. Rushit Kanakia, University of Texas Health Sciences Center at San Antonio Patient Testimonial Laura Jackson Dinner On your own

8 7:30 p.m. 10:00 p.m. Hospitality Room Regency East First Timers Graduation Cathy Byington, 2018 Conference Committee Mended Hearts Wednesday, July 18 Breakfast On your own 7:00 a.m. 7:30 a.m. Morning Walk Hotel Lobby Larry Mantle, Regional Director Midwest Region 8:00 a.m. 9:00 a.m. Corporate Advisory Council Meeting Live Oak Private Meeting 8:00 a.m. 9:00 a.m. Regional Directors Meeting Pecan Private Meeting 9:15 a.m. 10:15 a.m. General Session Regency East/Center Access to Care Summit: Overcoming Barriers Moderator: Andrea Baer, Director of Patient Advocacy and 10:15 a.m. 10:30 a.m. Break/Member Networking 10:30 a.m. 1:00 p.m. General Session/Awards/Raffle/Lunch Rio Grande Ballroom Innovations in Cardiovascular Therapy on the Horizon Dr. Steve Bailey, University of Texas Health Sciences Center at San Antonio Farewell, Donnette Smith, President Conference Adjournment