Mended Little Hearts - Day 1 Saturday, July 14

Transcription

1 Mended Little Hearts - Day 1 Saturday, July 14 8:00 a.m. 8:45 a.m. MLH Arrival Registration Badge Pick Up Los Rios Foyer 9:00 a.m. 9:25 a.m. Keynote: Straight from My Heart Rio Grande Ballroom Max Page: actor, advocate, survivor 9:30 a.m. 11:20 a.m. Panel: Innovations in CHD Care Rio Grande Ballroom Dr. Daniel Nento, Children s Hospital of San Antonio Dr. Steven Zangwill, Phoenix Children s Hospital Dr. Ryan Moore, Cincinnati Children s Hospital 11:30 a.m. 12:45 p.m. Panel: Neurodevelopment, Psycho-social, and Rio Grande Ballroom Emotional Issues Faced by CHD Families Emily Delaplane, LSW, Nemours/Alfred I dupont Hospital for Children Melissa Cousino Hood, C.S. Mott Children s Hospital Dr. Jacqueline Sanz, Children s National Health System 12:45 p.m. 1:45 p.m. Lunch: Meditation to Improve Children s Health Garden Terrace Cyndi Maurer, California 1:45 p.m. 3:00 p.m. Bereavement Breakout Pecan Sharee McCoy 1:45 p.m. 3:00 p.m. Panel: Development of the CHD Child and Teen Rio Grande Ballroom Dr Seth Goldstein, Methodist Children s Heart Institute Dr. Keila Lopez, Texas Children s Hospital 3:00 p.m. 3:45 p.m. Innovations Visiting Exhibits Rio Grande Ballroom Exhibitors 3:50 p.m. 5:00 p.m. CHD According to Me: Mental Health Rio Grande Ballroom Psychologist, Dallas Children s Hospital Social Worker/Child Life, Emily Delaplane, Nemours Mom, Mary Hobson, Michigan Dad, Jason Hafer, MLH of Delaware Angel Parent, Sarah Stewart, MLH of Dallas Adult with CHD, Meagan Houpt, MLH of Orlando

2 Mended Little Hearts - Day 1 (Continued) Saturday, July 14 5:00 p.m. 5:10 p.m. MLH Closing Remarks Rio Grande Ballroom 5:45 p.m. 7:45 p.m. FIESTA Reception Come in your FIESTA attire! Rio Grande Ballroom Dinner On Your Own Mended Little Hearts - Day 2 Sunday, July 15 8:30 a.m. 8:45 a.m. Opening Remarks and Welcome Rio Grande Ballroom 8:45 a.m. 9:05 a.m. Getting to Know You Icebreaker Rio Grande Ballroom 9:10 a.m. 9:50 a.m. MLH Update & Vision Rio Grande Ballroom Angel Olvera Mended Hearts 101 Dr. Fredonia Williams 9:50 a.m. 10:30 a.m. Back to Our Roots How Do We Support Rio Grande Ballroom Families in the Age of Technology? Town Hall Discussion Facilitated by Jodi Smith Lemacks & Andrea Baer 10:30 a.m. 10:45 a.m. Break/Networking 10:45 a.m. 11:15 a.m. Being a MLH Spokesperson Locally and Nationally Rio Grande Ballroom Jodi Smith Lemacks 11:20 a.m. 11:55 a.m. Working with Media to Create CHD Awareness Rio Grande Ballroom Christian Bove 11:55 a.m. 12:30 p.m. Bereavement (Angel Boxes, Do s & Don ts, Rio Grande Ballroom Remembering Angels, Starting an Angel Program) Sharri McCoy 12:30 p.m. 1:30 p.m. Lunch with Networking Garden Terrace 1:30 p.m. 2:15 p.m. Breakout Sessions Annual Reports 101 What Information is Needed and Why? Mandy Sandkuhler High-Level Grants & Sponsorships Budgeting and Managing Finances Rio Grande Ballroom Pecan Live Oak

3 Mended Little Hearts - Day 2 (Continued) Sunday, July 15 2:30 p.m. 3:15 p.m. Breakout Sessions Repeat Annual Reports 101 What Information is Needed and Why? Mandy Sandhuhler High-Level Grants & Sponsorships Budgeting and Managing Finances Rio Grande Ballroom Pecan Live Oak 3:30 p.m. 4:20 p.m. Having Great Fundraising Events Rio Grande Ballroom With Round Tables & Sharing Jon FitzSimon, Inspired Race Events 4:30 p.m. 5:20 p.m. Working with Hospitals Panel with Q&A Rio Grande Ballroom Medical Professionals Panel 6:00 p.m. 7:30 p.m. Mended Little Hearts & Mended Hearts Meet & Greet Welcome Reception and Service Project Mended Hearts - Day 1 Sunday, July 15 12:00 p.m. 3:00 p.m. MH Attendee Arrival Registration Badge Pick-Up Los Rios Foyer Free Health Screenings and Other Activities 4:00 p.m. 5:30 p.m. 1 st Timers Program Live Oak Cathy Byington & Brad Totty 6:00 p.m. 7:30 p.m. Mended Little Hearts & Mended Hearts Meet & Greet Welcome Reception and Service Project Mended Little Hearts - Day 3 Monday, July 16 7:30 a.m. 8:30 a.m. Mended Little Hearts Breakfast Rio Grande Foyer Continental Breakfast 8:00 a.m. 8:15 a.m. Taking Leadership Training Home Rio Grande Ballroom Don t Lose That Loving Feeling! 8:15 a.m. 8:45 a.m. National Events & Toolkits for Chapter Events Rio Grande Ballroom Emily Schaffhaussen

4 Mended Little Hearts - Day 3 (Continued) Monday, July 16 8:45 a.m. 9:15 a.m. Tutorial: What MLH Has & How to Find It Rio Grande Ballroom Mandy Sandkuhler 9:15 a.m. 9:45 a.m. Community Resources & How to Find Them Rio Grande Ballroom Roundtables 9:45 a.m. 10:30 a.m. Roles for MLH Leaders National & Local Rio Grande Ballroom With Discussion & Regional Networking 10:30 a.m. 10:50 a.m. Break 10:50 a.m. 11:30 a.m. Supporting Teens & Young Adults with CHD Rio Grande Ballroom How We Can Support a New Population 11:30 a.m. 12:30 p.m. Fun Group Awards, Best Idea Sharing & Goodbyes Rio Grande Ballroom Mended Hearts - Day 2 Monday, July 16 7:30 a.m. 8:30 a.m. Mended Hearts Breakfast Regency Foyer Continental Breakfast 7:00 a.m. 7:30 a.m. Morning Walk Larry Mantle 8:00 a.m. 5:00 p.m. Social Time & Visit Exhibitors Regency Foyer 8:30 a.m. 10:00 a.m. Regional Meetings Central G. Bruce Norris Mid-Atlantic William Bill Carter Midwest Larry Mantle Rocky MT Robert Oberfield Northeast Bob Hoffman Southern Marvin Keyser Southwest Lynn Berringer Western Ron Manriquez Nueces Frio Blanco Llano Pecos Directors Mesquite Live Oak 10:00 a.m. 10:15 a.m. Break/Member Networking 10:15 a.m. 11:30 a.m. Two Concurrent Workshops A Cardiac Rehab John Shannon B Chapter Rejuvenation Judy Himes & Al Voss 11:30 a.m. 11:45 a.m. Break/Member Networking

5 Mended Hearts - Day 2 (Continued) Monday, July 16 11:45 a.m. 1:30 p.m. Mended Hearts Luncheon Regency West/Center Transcatheter Aortic Valve Replacement: The Latest Therapy for Aortic Stenosis S. Hinan Ahmed, M.D. 1:30 p.m. 1:45 p.m. Break/Member Networking 1:45 p.m. 2:45 p.m. Mended Hearts/Mended Little Hearts Annual Meeting 2:45 p.m. 3:00 p.m. Break/Member Networking 3:00 p.m. 4:00 p.m. Two Concurrent Workshops A Cardiac Rehab John Shannon B Chapter Rejuvenation Judy Himes & Al Voss Mended Hearts - Day 3 Tuesday, July 17 Breakfast On your own 7:00 a.m. 7:30 a.m. Morning Walk Larry Mantle 8:00 a.m. 5:00 p.m. Networking & Visit Exhibitors Regency Foyer 8:00 a.m. 9:00 a.m Board Members Live Oak Private Meeting 8:00 a.m. 9:00 a.m. General Session Heart Attack Warning Signs & Nuclear Stress Tests Janet V. Hays, MD, FACC, FASE, FASNC Patient testimonial Casey & Debbie Kite 9:00 a.m. 10:00 a.m. Two Concurrent Workshops C Discharge Class Training Joyce Reid & Tammy Landa D Ask the Pharmacist Kimberly A.B. Cauthon, PharmD, BCGP, BC-ADM 10:00 a.m. 10:15 a.m. Break/Member Networking

6 Mended Hearts - Day 3 (Continued) Tuesday, July 17 10:15 a.m. 11:15 a.m. Two Concurrent Workshops C Discharge Class Training Joyce Reid & Tammy Landa D Ask the Pharmacist Kimberly A.B. Cauthon, PharmD, BCGP, BC-ADM 11:15 a.m. 11:30 a.m. Break/Member Networking 11:30 a.m. 1:15 p.m. Mended Hearts Luncheon & General Session /West Heart Failure: Activity and Diet Biykem Bozkurt, MD, PhD, FHFSA, FACC, FAHA, FESC 1:15 p.m. 1:30 p.m. Break/Member Networking 1:30 p.m. 2:30 p.m. General Session Rio Grande Ballroom Basic Technology Skills **Bring your electronic devices to this session!!** Moderator: Michael Cavazos M.D. 2:30 p.m. 2:45 p.m. Break/Member Networking 2:45 p.m. 4:00 p.m. General Session Rio Grande Ballroom Cardiovascular Disease & Diabetes 7:30 p.m. 10:00 p.m. Hospitality Room First Timers Graduation Mended Hearts - Day 4 Wednesday, July 18 Breakfast On your own 7:00 a.m. 7:30 a.m. Morning Walk Larry Mantle 8:00 a.m. 5:00 p.m. Networking & Visit Exhibitors Regency Foyer 8:00 a.m. 9:00 a.m. Corporate Advisory Council Meeting Live Oak Private Meeting 8:00 a.m. 9:00 a.m. Regional Directors Meeting Pecan Private Meeting

7 Mended Hearts - Day 4 (Continued) Wednesday, July 18 9:15 a.m. 10:15 a.m. General Session /Center Access to Care Summit: Overcoming Barriers Moderator: Andrea Baer 10:15 a.m. 10:30 a.m. Break/Member Networking 10:30 a.m. 1:00 p.m. General Session/Awards/Raffle/Lunch Rio Grande Ballroom Dr. Steve Bailey Innovations in Cardiovascular Therapy on the Horizon Farewell, Donnette Smith President Conference Adjournment