Catalyzing Advancements via Data Linkage: New Jersey Traffic Safety Outcomes Program Data Warehouse

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1 Catalyzing Advancements via Data Linkage: New Jersey Traffic Safety Outcomes Program Data Warehouse Melissa R. Pfeiffer, MPH Center for Injury Research and Prevention Traffic Records Forum August 2017

2 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse

3 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Licensing data Crash data

4 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Traffic Citations Birth certificate data Death certificate data Licensing data (N = 10 million) Crash data (N = 6 million) Census data Hospital discharge data CHOP electronic health record data (N = 148,000)

5 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Licensing Data (N = 10 million) Crash Data (N = 6 million)

6 Hierarchical Data Linkage 98%! Licensing Data (N = 10 million) 5 Passes Crash Data (N = 6 million) Pass 1: Exact DLN Pass 2: DOB, First Name (FN), Last Name (LN), crash date Pass 3: DOB, FN, LN, Middle Initial (MI), zip Pass 4: DOB, FN, LN, DLN, crash year Pass 5: DOB, FN, LN, DLN, sex, street number, zip, crash date

7 With Linked License and Crash Data

8 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Traffic Citations Birth certificate data Death certificate data Licensing data (N= 10 million) Crash data (N= 6 million) Census data Hospital discharge data CHOP electronic health record data (N=148,000)

9 Crash-related citations Driver charge entry SPEEDING 61 MPH IN A 25 MPH? Coded value 11/Speeding SPEDDING (70/50) 11/Speeding CARELESS/UNSAFE 17/Careless driving TOO MANY PASSENGERS/PROV. DL 34/GDL passenger violation WRONG WAY ON ONE-WAY ST. 1/Other moving violations PARKED IN NO PARKING ZONE BBB? 88/All other violations

10 With Linked Citation Data

11 With Linked Citation Data Enforcement higher among younger drivers

12 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Traffic Citations Birth certificate data Death certificate data Licensing data (N= 10 million) Crash data (N= 6 million) Census data Hospital discharge data CHOP electronic health record data (N=148,000)

13 With Zip Code Level Indicators

14 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Traffic Citations Birth certificate data Death certificate data Licensing data (N= 10 million) Crash data (N= 6 million) Census data Hospital discharge data CHOP electronic health record data (N=148,000)

15 EHR Data Linkage Pass 1: DOB, First Name (FN), Last Name (LN), zip Pass 2: DOB, FN, LN, Middle Initial (MI), sex Pass 3: DOB, FN, LN, MI, zip, city Pass 4: DOB, FN, LN, MI, zip, city among twins Pass 5: DOB, FN, LN, street number, zip Pass 6: DOB, LN, street number, zip True match rate (correct matches/original matches): 99.95% False non-match rate (correct matches not found): 1.5%

16 With Linked Electronic Health Record Data

17 With Linked Electronic Health Record Data Teens with ADHD get licensed at lower rates and later

18 With Linked Electronic Health Record Data

19 NJ Traffic Safety Outcomes (NJ-TSO) Data Warehouse Traffic Citations Birth certificate data Death certificate data Licensing data (N= 10 million) Crash data (N= 6 million) Census data Hospital discharge data CHOP electronic health record data (N=148,000)

20 Incorporation of Additional Data Sources LinkSolv Combine data sets by year of birth Example: Birth year 1985 Source # of records License 140,000 Driver 133,000 Occupant 24,000 Birth 107,000 Death 1,000 Hospital 430,000 Single file match

21 Linkage Data Elements (P = Primary, S = Secondary) Data Element License Crash Birth Death Hosp/ ED Name (first, last, middle initial) P P P P P Date of birth P P P P P Geography of residence P P P P P Sex P P P P P Social Security Number P P Date of death P P P Event date P P P P Event time P P P Father's last name P P Event location S S S E-codes/seat position, vehicle type S S Transport to hospital/hospital code S S ICD-9 diagnosis codes S S Marital status S S Race and ethnicity S S S

22 Evaluation and Completion Visual inspection of each pass Estimate false positive rate (sum of false match probabilities for each pair / total number of pairs) Single imputed warehouse via maximum a posteriori estimation

23 Uses of Hospital Data Injury: crash report vs hospital data Incidence of crash with injury Comorbid conditions

24 Uses of Birth Certificate Data Improve quality of race/ethnicity data

25 Uses of Death Certificate Data Improve quality of demographic data Enhance injury information with crash-related deaths Adjust denominator

26 Analytic Data Elements Underlying cause of death and date of death (death) Motor vehicle crash-related injuries and deaths (hospital/ed, death) Injury severity data (hospital/ed) Economic costs associated with MVC-related hospitalizations (hospital/ed) Patient conditions diagnosed before MVCs (hospital, EHR) Geocoded residential address information (license, crash, perhaps hospital)

27 Population Subgroups License holders who did not crash People with diagnosed conditions, whether or not they crashed Unlicensed drivers who crashed in NJ

28 Potential for Growth

29 Replication in Other Jurisdictions Potential Challenges Federal Drivers Privacy Protection Act of1994, 18U.S.C (b) Permissible Uses [of personal information from state motor vehicle records], (5) For use in research activities, and for use in producing statistical reports, so long as the personal information is not published, redisclosed, or used to contact individuals N.J.S.A 39:2-3.4c(5) For use in educational initiatives, research activities, and for use in producing statistical reports, so long as the personal information is not published, redisclosed, or used to contact individuals and, in the case of educational initiatives, only to organ procurement organizations as aggregated, non-identifying information.

30 Replication in Other Jurisdictions Potential Challenges Legal barriers Administrative barriers Not intended for research purposes Non-matching identifiers

31 Acknowledgements

32 Funding Robert Wood Johnson Foundation Public Health Law Research Program National Science Foundation Center for Child Injury Prevention Studies National Institute of Child Health and Human Development R01HD079398, R03HD and R21HD CHOP Foerderer Grant of Excellence State Farm Insurance Company AAA Foundation for Traffic Safety New Jersey Division of Highway Traffic Safety CHOP Pediatric Development Fund

33

34 Teendriversource.org For communities For educators For families

35 Driver and Teen Passenger Safety Images

36 NJ-TSO Research Team Allison E. Curry (PI), Melissa R. Pfeiffer, Kristina B. Metzger, Meghan E. Kirk Contact Information: Melissa R. Pfeiffer, MPH Center for Injury Research and Prevention The Children's Hospital of Philadelphia

37 NJ-TSO Published Work -1 Curry AE, et al. Comparison of older and younger novice driver crash rates: informing the need for extended GDL restriction. Accident Analysis and Prevention (in press). Curry AE, et al. Longitudinal Study of driver licensing rates among adolescents and young adults with autism spectrum disorder. Autism 2017 Apr. Curry AE, et al. Motor vehicle crash risk among adolescents and young adults with ADHD. JAMA Pediatrics 2017 Jun. Curry AE. Estimating young novice drivers compliance with graduated driver licensing restrictions: A novel approach. Traffic injury Prevention 2017 Jan; 18(1): Curry AE, et al. Compliance with and enforcement of Graduated Driver Licensing Restrictions. American Journal of Preventive Medicine 2017 Jan; 52(1): Gruschow SM, et al. Validation of the use of electronic health records for classification of ADHD status. Journal of attention disorders 2016 Oct. Curry AE, et al. Validation of quasi-induced exposure representativeness assumption among young drivers. Traffic Injury Prevention 2016 May; 17:

38 NJ-TSO Published Work- 2 Curry AE, et al. Association between New Jersey s Graduated Driver Licensing decal provision and crash rates of young drivers with learners permits. Injury Prevention 2015 Dec; 21(6): Curry AE, et al. Long-term changes in crash rates after introduction of a Graduated Driver Licensing decal provision. American Journal of Preventive Medicine 2015 Feb; 48(2): Curry AE, et al. Young driver licensing: Examination of population-level rates using New Jersey s state licensing database. Accident Analysis and Prevention 2015 Mar; 76: Curry AE, et al. Young driver crash rates by licensing age, driving experience, and license phase. Accident Analysis and Prevention 2015 Jul; 80: Curry AE, et al. Inaccuracy of Federal Highway Administration licensed driver data: Implications on young driver trends. Journal of Adolescent Health Sep;55(3): Curry AE, et al. Statistical implications of using moving violations to determine crash responsibility in young driver crashes. Accident Analysis and Prevention Apr;65: Curry AE, et al. Graduated Driver Licensing Decal Law: Effect on Young Probationary Drivers. American Journal of Preventive Medicine Jan;44(1):1-7.

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