Kennedy s Disease Association. Living for Today - Preparing for Tomorrow

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1 2011 Annual Conference and Education Symposium Comfort Inn & Conference Center Bowie, MD Living for Today - Preparing for Tomorrow A practical gathering showcasing the combined wisdom and knowledge of leading authorities, doctors, researchers, and folks like you and me with plenty of time to meet and interact with others with KD from around the world Table of Contents 1. Dates Registration Cost & Early Bird Cutoff Date Late Registration Hotel Information Attractions Transportation Silent Auction Tuesday Evening Meet and Greet Proposed Agenda Conference Registration Form... 6

2 1. Dates Wednesday, November 9, 2011 Thursday, November 10, 2011 Friday, November 11, Registration Cost & Early Bird Cutoff Date The registration fee for this year s conference is $ Early bird cut off October 15, This year we have included two lunches in the registration price along with free continental breakfasts and the Thursday night dinner. The hotel also has a very competitive room rate of $ plus tax per night. The low room rate and the included lunches makes this conference very competitive if not less expensive than past year s conferences 3. Late Registration Registrations received after October 14, 2011 will be $ Hotel Information Location: Shipping Address: Comfort Inn & Conference Center Comfort Inn & Conference Center 4500 Crain Highway 4500 Crain Highway Attn: Kennedy s Disease Assoc. The room rate is $ plus tax and all 11 HC room are available. Blocks of rooms are reserved for November 8, 9, 10. Please identify yourself as being with the KDA when making your reservation. The hotel is 25 miles from Ronald Reagan Airport, Arlington, VA and 22 miles from Baltimore-Washington, International (BWI), Baltimore, MD. 5. Attractions Washington DC is 18 miles from the hotel, and Annapolis, MD is only 20 miles. Annapolis is a beautiful seacoast town with lots to see and do. The Naval Academy, at Annapolis, has a museum and it is an interesting place to visit. National Harbor, 20 miles from the hotel is located on 300 acres of prime real estate along the scenic Potomac River in Prince George's County, MD, National Harbor is the new gateway to the National Capital Region. This spectacular urban-waterfront community offers stunning views of downtown Washington, D.C. and Old Town Alexandria, and is just a 15-minute drive - or water taxi ride - to the heart of the nation's capital 2

3 6. Transportation The hotel does not offer any transportation services from the airports. BWI Airport Taxi Cabs operate twenty-four hours a day, seven days a week. They can transport passengers with power wheelchairs with 48 hours advance notice. 1. Call: Lorraine Foster, Office Manager, BWI Taxi Management, Inc., ID yourself as with Kennedy's Disease Association and give her the flight number, date and time of arrival. Also advise if you will need a vehicle that can accommodate a wheelchair or scooter. 3. The driver and/or the dispatchers will assist in any way necessary. 4. They will have signs to direct them to the waiting taxi. 5. The passengers may make arrangements with their drivers to return for them. This would be a special circumstance as the drivers are "Outbound Only". Bowie is approximately 22.3 miles from Baltimore-Washington International (BWI). The estimated fare is approximately $ If there is more than one traveling together, the fare is still the same. Should you require additional information, please do not hesitate to contact: Lorraine Foster, Office Manager, BWI Taxi Management, Inc, Phone: Silent Auction This year, as always, during the dinner on Thursday night the KDA will sponsor a Silent Auction. Thanks to the generosity of the attendees this has been a very successful fund raiser for the KDA. Plus it is a lot of fun. Please bring items for the auction that you feel people would be like to bid on. We are never really sure what people will bid on so we rely on your imagination to bring the items you think will sell. 8. Tuesday Evening Meet and Greet From 4:30 8:00 on Tuesday evening, November 8, there will be an informal Meet & Greet at the Hotel. Dinner is on your own. 3

4 9. Proposed Agenda Tuesday 11/8/11 4:30 8:00 Informal Meet & Greet at the Hotel; Dinner on your own Wednesday 11/9/11 7:30 8:30 Registration and Continental Breakfast 8:30 9:45 Welcome, KDA BOD Introduction, Introduction of all Conferees 9:45 10:15 Break 10:15 11:45 Nutritionist Talk with Q&A 11:45 1:15 Lunch (Included with Conference registration) 1:15 2:45 Psychologist Talk Depression, Frustration, Anger with Disease 2:45 3:15 Break 3:15 4:45 Planning: Home Modifications that Make Sense and Save Cents 4:45 5:00 Q&A Wrap Up -- followed by Dinner on your own this evening Thursday 11/10/11 7:30 8:30 Continental Breakfast 8:30 9:45 Ed Meyertholen, PhD Talk: KD, In Words that you Understand 9:45 10:15 Break 10:15 11:45 Updates from the Research Community (Intro Drs/Rschrs) 11:45 1:15 Lunch (Included with Conference registration) 1:15 2:45 Breakout session A for Men & Women (sex, drugs, rock & roll) 2:45 3:15 Break 3:15 4:45 Breakout session B for Men & Women (sex, drugs, rock & roll) 4:45 5:30 Set up for Silent Auction & Dinner 6:00 6:30 Cash Bar & Silent Auction (continues thru dinner) 6:30 8:00 Dinner (included with Conference registration) 4

5 Friday 11/11/11 7:30 8:30 Continental Breakfast 8:30 9:00 Conferees Experience with Dutasteride (Falling, etc.) 9:00 9:45 Planning selfishly for the next 1-2 and 3-5 years 9:45 10:15 Break 10:15 11:30 Doctors & Researchers Update: More Good News Ahead 11:30 11:45 Conference Wrap Up There is a dinner Thursday evening at the hotel that will provide an excellent opportunity to interact with many KDA Associates as well as researchers who work towards unraveling the puzzle that is KD. There will be a silent and live auction again this year after the dinner. Please consider contributing a nonbreakable item (or two), and bring your checkbook. These auctions have become an anticipated event - we never know what will be up for sale or what the MC will do to get it sold. If you plan on attending, we need to receive your registration information (see Page 6) as soon as possible (and no later than September 15th for the early bird pricing). Please print the registration form, fill it out completely and mail it with your conference registration fees to: Kennedy's Disease Association P.O. Box 1105 Coarsegold, CA

6 10. Conference Registration Form Important: This registration form does NOT register you for your hotel accommodations. You must make these arrangements yourself (see Page 2 for hotel information). Total Number of Attendees: Early Registration: (Before October 15, 2011) x $ (U.S.) = $ Late Registration: (On or after October 15, 2011) x $ (U.S.) = $ I would like to also include a donation to the KDA at this time in the amount of: $ (U.S.) Total Amount Enclosed: $ (U.S.) Note: There are no refunds of registration fees Names of Attendees Address Type of Attendee (As you would like them (Individual with KD, Carrier written on the badges) Family Member, or Other) Where should we send your meeting confirmation and information packet? Mailing Address: City: State: Zip Code: Country: Phone Number: ( ) Mail this form and your registration fees to: Kennedy's Disease Association P.O. Box 1105 Coarsegold, CA