East Midlands Children s Integrated Cancer Service (CICS)

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1 University Hospitals of Leicester NHS Trust Nottingham University Hospitals NHS Trust East Midlands Children s Integrated Cancer Service (CICS) An integrated service for the investigation of children and young people with suspected cancer and the treatment of those diagnosed with cancer. Our Vision All children and young people with cancer/suspected cancer and their families will have: access to high quality, safe and effective clinical care including emotional and practical support and well co-ordinated care provided in friendly environments that are helpful to healing and as close as to home as possible.

2 Welcome... Children and young people What you can expect Children and young people rarely develop cancer and most of these are treatable.. If your doctor thinks cancer may be the reason for you / your child being unwell, a team of professionals will guide you through the right tests. The team has experts in the Children s Hospitals in Nottingham (Queens Medical Centre) and Leicester (Leicester Royal Infirmary). We work closely with local hospitals and community teams and other specialist services throughout the East Midlands. Your doctor will contact the CICS team who will direct you to either Nottingham or Leicester depending on which tests are required. You / your child may need to be admitted to undergo these tests or will be asked to attend hospital during the day for tests and appointments. We will explain what the tests involve and tell you the results as soon as possible. Sometimes it can take several days, even a few weeks, before it is clear exactly what is wrong. lease ask the nurse or doctor caring for you / your child if you have any questions at any time. The way we work We work in teams across the East Midlands to look at your results and make sure the right treatment is recommended. If you / your child is found not to have cancer we will let your G know or put you in touch with the right services. If you / your child is diagnosed with cancer we will take time to talk you through what this means and plans for treatment. We work with teams around the UK and the world to develop the most suitable treatments for your condition. Often we give you the opportunity to take part in national or international trials for life saving or life prolonging treatment or drugs. We will provide additional information on all these aspects at that everything you need to know and will assign a key worker (paediatric oncology outreach nurse) who will help to guide you through the treatment. In line with national guidance we endeavour to provide you with the highest quality care as close as possible to your home. Due to the rarity of childhood cancer and the complexity of its treatment some treatments are only available in certain hospitals and we will discuss the most suitable option for you as soon as it is clear what your / your child s treatment will involve.

3 Nottingham Children s Hospital and Wards E38/3 Travel QMC car parking»» There are limited parking spaces available for patients, visitors and staff on site, so we encourage everyone to use alternative ways of getting to the hospital where possible. If you use the large car park opposite the ENT building you may find it useful to use the free Hooleys circular minibus that regularly transports people between the car park and the QMC main entrance. Disabled parking facilities at QMC Free disabled parking is available (make sure your blue badge is clearly displayed) at the following locations of the hospital: The disabled car park next to the Fracture Clinic Outside the B Floor Main Entrance Outside West Block near the MRI unit (access the area by using the intercom provided) Emergency parking at QMC Emergency parking is available at the B Floor Main Entrance where you can park for 20 minutes (see Security as you pass through the Main Entrance). If you are longer than 20 minutes let the ward staff know and they can speak to security on your behalf. On site parking fees Time Cost Up to 2 hours hours 4.10 Up to 24 hours 5.10 Weekly ticket Monthly ticket Quarterly ticket To buy a weekly, monthly or quarterly tickets please ask for a letter from the ward receptionist. Take this to the Security Office at the B Floor Main Entrance with your fee to buy your ticket. ark and ride facility/free shuttle bus There is a free park and ride service available called Medilink, which runs every 10 minutes from 8am until 6pm between QMC and City Hospital campuses and connects with free park and ride sites at Wilkinson Street and Queen s ive. There are additional stops at the junction of Nuthall Road and Crown Island. The Medilink bus stops at various places around each hospital site. A leaflet about the service is available from main reception at QMC.» University of Nottingham SCIENCE University of Nottingham DERBY RING SCIENCE DERBY RING North South QM06 QM20 MEDICAL MEDICAL MEDICAL North South A6514 MIDDLETON BOULEVARD NORTH No 2 MEDICAL NORTH RD No 1 OF NURSING EMERGENCY QM08 S WEMYSS GARDENS QM23 QM13 MAIN B Disabled FLOORBadge QM0 Holders only FRACTURE CLINIC Help & Information oint ALS CENTRAL AREA Derby Road Disabled Badge Holders only FRACTURE CLINIC EYE, EAR, NOSE & THROAT QM1 QM1 OST GRADUATE OCCUATIONAL TRENT SIMULATION OST & GRADUATE HEALTH OCCUATIONAL CLINICAL SKILLS TRENT SIMULATION & HEALTH CLINICAL SKILLS METRES Crown Copyright. All rights reserved. Licence Number U METRES roduced by Location Maps Ltd. Tel: Crown Copyright. All rights reserved. Licence Number U roduced by Location Maps Ltd. Tel: QM06 7 QM A6514 MIDDLETON BOULEVARD NORTH No NORTH RD No QM02 OF NURSING 6 EMERGENCY S EYE ENT DERBY River Leen harmacy (B Floor) STORES RD WOLLATON HALL DRIVE Lift S Shops (B Floor) ublic ayphone (B Floor) Cafe (A & B Floor) Accessible Toilets Restaurant (D Floor) Help & Information ublic ointtoiletsharmacy (B Floor) ALS atient KEY Advice & Liaison Service (B Floor) Lift Baby Changing S Shops (B Floor) QM-- Bus Services ublic QM02 ayphone (B Floor) Cafe (A & B Floor) Accessible Toilets Restaurant (D Floor) ublic Toilets ALS atient Advice & Liaison Service (B Floor) Baby Changing Bus Services WEMYSS GARDENS QM04 MAIN B FLOOR ALS CENTRAL AREA 21 EYE, EAR, NOSE 22 & THROAT QM04 Derby Road QM23 QM0 QM-- QM08 EYE, EAR, NOSE & THROAT EYE ENT QM QM15 QM14 ATIENT & VISITOR MULTI STOREY CAR ARK Leen Gate E FLOOR River Leen EYE, EAR, NOSE & THROAT DERBY QM15 QM14 STORES RD WOLLATON HALL DRIVE KEY LEEN GATE HILL SIDE LEENGATE CLINIC TO CITY Nottingham Children s Hospital ATIENT & VISITOR MULTI STOREY CAR ARK Leen Gate 3 E FLOOR»» LEEN GATE HILL SIDE LEENGATE CLINIC TO CITY Wards E38/3

4 Leicester Children s Hospital and Ward 27 Travel»» visit BS BS Leicester Children s Hospital CAR ARK HAVELOCK ST NORTH (A&E) GATEWAY ST JARROM ST KENSINGTON LRI car parking facilities There are limited parking spaces available for patients, visitors and staff on site, so we encourage everyone to use alternative ways of getting to the hospital where possible. WALNUT ST WINDSOR BALMORAL MAIN A&E LANGHAM WARD CLINICAL EDUCATION JARVIS INFIRMARY CLOS E On site parking fees Time Cost Up to one hour 1.00 One to two hours 1.50 Two to three hours 2.00 Three to four hours 3.00 Four to six hours 4.00 Six to eight hours 6.00 Eight to twelve hours 8.00 Twelve to twenty four hours OSBORNE BS SANDRINGHAM AYLESTONE RD HEARING SERVICES IMMUNOLOGY KNIGHTON ST OUTATIENTS DEARTMENT GENETICS HH VICTORIA INFIRMARY RD WELFORD RD WELFORD RD For more information about parking concessions please speak to you / your child s nurse. ublic transport Railway and bus stations are approximately two miles away. The Hospital Hopper bus runs every 30 minutes and links Glenfield Hospital, Leicester General Hospital and Leicester Royal Infirmary with the Beaumont Leys Centre, Hamilton Centre and the railway station. A charge is payable. Ward 27 Ward 28 For more information about how to get to Leicester Royal Infirmary visit Ward 27 Ward 30 Ward 2 Level 4, Windsor Building

5 East Midlands Children s Integrated Cancer Services (CICS) Joint Clinical Service Director (Lead) Joint Clinical Service Director Lead Nurse roject Manager Service Improvement Lead Coordinating Centre manager rof R Grundy1 J Visser2 Ms M arr S Hunjan Ms S Robbins Ms M Hanson Consultant Team aediatric Oncologists aediatric Surgeons rof R Grundy1 D Heney2 M Hewitt1 M Madi2 E Ross2 J Visser2 rof D Walker1 M Vloeburgs1 Ms Cartill1 D Macarthur1 M Vloeburgs1 aediatric Cardiothoracic Surgeons W Abd-Elghany2 K Forman1 S Stokley1 G eek2 athologists Clinical Oncologists rof J Lowe1 D O Neill1 K Robson1 D Saunders3 M Sokal3 Radiologists N Broderick1 F Dickinson2 K Halliday1 T Jaspen1 A Rickett2 J Somers1 Davies1 Fisher2 Nour2 Stewart1 Nottingham Children s Hospital (at Queens Medical Centre) aediatric Neurosurgeons aediatric Haematologists B R S R Shared Care aediatricians S Ali4 D Thomas5 Based at: 1 Nottingham Children s Hospital Contact Numbers Leicester Children s Hospital Nottingham City Hospital Northampton General Hospital Lincoln County Hospital Queens Medical Centre Switchboard Ward E38 Day Care ext Ward E38 Ward E38 Day Care Reception Ward E38 Snoopy hone Ward E3 Ward E3 arents phone Community nurses Forman (Secretary) Stockley (Secretary) rofessor Grundy (Secretary) Hewitt (Secretary) rofessor Walker (Secretary) ext ext (incoming only) ext ext ext ext ext Leicester Children s Hospital (at Leicester Royal Infirmary) Leicester Royal Infirmary Switchboard Ward 27 Day Care Ward 27 aediatric Oncology Outreach Nurses Heney (Secretary) Madi (Secretary) Ross (Secretary) Visser (Secretary) Northampton General Hospital Ali (Secretary) Lincoln County Hospital Thomas (Secretary)

6 Accommodation on the wards We do encourage one parent or guardian to stay with each child at all times. One parent or guardian is welcome to sleep on a camp bed next to their child s bed. Our Values The core values of CICS and its partners are to work as an effective team to provide the best family-centred care. Visitors are always welcome on the wards. There are no strict visiting hours. However, a relaxed and calm atmosphere is created in the evening by turning down the ward lights at pm. We therefore ask that you restrict your visitors after 8pm. Brothers and sisters are welcome onto the ward too, but must be supervised by an adult at all times. Billy s House is a home from home for families of children with cancer made possible by a major fund raising effort led by parents. It is run by CLIC Sargent and is offered to all families making long journeys (more than 45 minutes) when their child is having treatment. Billy s House offers selfcatering accommodation close to the hospital. If your child is well enough then they may stay there too. There are six bedrooms, some with en-suite facilities, and all have bed linen provided. There are two kitchens, a number of washing machines, tumble driers and irons as well as a seating area, teenagers room, TV s, books and indoor and outdoor play facilities. Siblings, grandparents and friends are welcome to stay at the home providing there is a spare bed available in the family s room. The home is run on a daily needs basis so rooms may not be pre-booked. All referrals for use of this service are made directly through the CLIC Sargent team. lease ask a member of the ward team for further information. Billy s House (Nottingham) In line with these values, the following principles will guide us: Our aim is to provide high quality clinical care as well as emotional and practical support to children and their families. We will offer children /young people and their families the opportunity to take part in appropriate clinical trials. We will actively participate in or contribute to a range of laboratory and clinical research projects that aim to improve the outcome for children/ young people and their families in the future. We will provide family-centred care. Our services and care will be age appropriate. We will always talk to children/young people and their families to ensure that we are all in agreement about decisions made. We will identify and meet the needs of the individual child/young person and family. We recognise that this can be a difficult time for children/young person and their families. We will develop ways to reduce distress for our patients and their families wherever possible. We will work with community care providers to optimise services for the care of children/young people;e and their families. We recognise and support our staff and help them gain the skills and support they need to enable them to offer the best care for children/young people and their families.

7 ! Fur ther tion Infor ma This leaflet is prov ide d to introduce you to the CICS service an d help you access it. You w ill receive a more de taile d information pack from the ward th at you are referr ed to an d further di sease an d treatm ent information as re quire d. lease disc uss anything that is not clear to you w ith the nu rse / doctor taking care of yo u / your child.