Dysphagia Practice DYSPHAGIA PRACTICE. Friday 4th and Saturday 5th September 2015

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1 Advancing ADVANCING Dysphagia Practice DYSPHAGIA PRACTICE Bridging Is patient the experience gaps between paramount? research Managing and practice complexity in dysphagia: international inter-professional perspectives perspectives A multi-disciplinary multi-professional Continuing CPD event Professional exploring Development the challenges (CPD) of balancing event - patient supporting safety practitioners with patient to explore experience the and implementation quality of lifeof current research evidence into clinical practice Thursday 8 th May am 4.15pm Friday 4th and Saturday 5th September 2015 University of Central Lancashire, Preston PR1 2HE Course UCLan Campus, fee (including Cyprus lunch) Early Bird Registration until 31st May 2015 only after 1st June Innovative SSTOdysphagia@uclan.ac.uk thinking for the real world

2 Advancing Dysphagia Team UCLan are proud to host the Advancing Dysphagia Practice Team, in partnership with Tees, Esk and Wear Valley NHS Foundation Trust. Tees, Esk and Wear Valleys NHS Foundation Trust All the ADP initiatives and events are delivered by highly specialist professionals who are recognised experts in their field. These events are open to all healthcare professionals working with people who have dysphagia, with emphasis on the context of the Multi-Disciplinary Team. Our aim is to influence best practice by delivery of the highest quality, up-to-date, evidence-based professional development opportunities in dysphagia, by facilitating participants to develop their current knowledge and skills. The Advancing Dysphagia Practice team are delighted to have active support for this event from: Cyprus University of Technology University of Cyprus European University of Cyprus Cyprus Association of Registered Speech-language Pathologists Pulse Allied Health Jobs

3 Conference Overview The Advancing Dysphagia Practice team proudly announce our first international conference event, held at the UCLan Campus, Cyprus. We are delighted to have secured prestigious international speakers who will address topical professional issues including values-based decision making in complex cases, ethical decision-making and risk management, outcome measurement differences between research and practice, plus updates on the latest research news for specified clinical populations. The programme will incorporate chaired Question & Answer sessions with the presenters so that all audience members can participate fully, ask and hear all questions and discussions. Day 2 of the programme will include a choice of interactive workshops for in-depth discussion of specified topics led by the presenters. The event will close with workshop feedback and a final keynote address. Confirmed Keynote Speakers: Professor Paula Leslie, University of Pittsburgh; Dr Kate Reid, University Hospital Birmingham; Dr Emilia Michou, University of Manchester; Dr Hazel Roddam, University of Central Lancashire Unique Programme Features: Talking Heads invited international video presentations; Facilitated workshops to support delegates to apply research findings into clinical practice. Audience: This event has been developed for a multi-disciplinary audience of practitioners working in the field of eating, drinking and swallowing difficulties with any clinical population including: Neonates Paediatric special needs Adult learning disability/intellectual impairment Adult neurology Head and neck cancer End of life care Registration is welcomed by all professionals working in this field, including but not limited to: Speech and Language Therapists/Pathologists Psychologists Nutritionists/Dieticians Specialist Nurses The conference language is English.

4 Day One Programme at a glance Thursday 3rd September Early registration desk open & venue set-up (posters, exhibitors etc) Day One Programme Friday 4th September Registration desk open & welcome refreshments 9.30 Dr Hazel Roddam Welcome address, programme overview & rationale 9.50 Welcome by Cyprus SLP Association President Keynote 1 The sacramental swallow: nutrition or nourishment? Professor Paula Leslie, University of Pittsburgh Refreshment break Keynote 2 The view from the bed: experiences of patients treated for head and neck cancer Dr Kate Reid, University Hospital Birmingham Q&A Plenary with the morning presenters Lunch & viewing exhibition Keynote 3 Dysphagia in neurodegenerative disorders: knowns and unknowns Dr Emilia Michou, University of Manchester Implementing dysphagia research in clinical practice with neonates and paediatric populations incorporating our Talking Heads feature session - a Research Round-up of critical reviews of recent research by invited international presenters, including Abrar Mohammed Alduraibi, CScD, CCC-SLP, Rehabilitation Hospital, King Fahad Medical City Refreshment break Keynote 4 Putting dysphagia research into practice: what are the challenges? Dr Hazel Roddam, UCLan Q&A Plenary with all presenters Instructions for group workshops on Day Dr Hazel Roddam Thanks and close of Day 1 Evening dinner option: Delegates are invited to join a group meal at a local restaurant, transport included (this optional evening dinner is payable on site, price to be confirmed)* *There will also be an option for a cultural tour on Sunday 6th September, payable on site, price to be confirmed.

5 Day Two Programme at a glance Day Two Programme Saturday 5th September Interactive Workshops: Delegates are requested to pre-select up to 3 out of the choice of 4 workshop titles. (Full Workshop titles and descriptors are detailed on next page). Each workshop is led by the conference presenters to facilitate discussion around the implementation of research evidence into real world practice. This unique programme feature will support a learning community and promote peer support. The structured group discussion will elicit consideration of barriers and facilitators from the experience of the delegates in their respective healthcare contexts and will support delegates personal reflection on their learning and action planning for the future. Each workshop will be structured as follows: Introduction to the topic by the session facilitator Delegate introductions international and clinical contexts Paired/small group discussion of priority concerns/challenges Group round-up of hot topics Solution-focused discussion for delegates to share experiences and perspectives Delegates record personal learning log and action plan on template provided in conference pack Workshop Session 1 (choice of 4 options) Refreshment break Workshop Session 2 (choice of 4 options) Lunch & viewing exhibition Workshop Session 3 (choice of 4 options) Refreshment break Feedback from all workshop groups & commentary from Conference Chair Keynote 5 The root of all evil Professor Paula Leslie Patients and carers do not always follow our wise, evidence based recommendations and we call them non-compliant. How do we get to the root of problems and pick up on what patients need from us? What could surgeons from the last century, Ernest Hemingway and lawyers have to teach us? As odd as it may seem talking less, listening more and thinking about our words carefully will lead to more efficient discussions with patients and more closely aligned outcomes between patients and clinicians Presentations: - Attendance certificates - Prizes to local students for posters, critical reviews - Prize draw of research books from our event sponsors Dr Hazel Roddam Thanks and close

6 Workshop Descriptors Interactive Workshops: Workshop 1 led by Professor Paula Leslie Defensible patient-centred assessment When we first graduated life was straightforward: schooling suggested that cases had pathways and there were recipes for intervention. This implies a right course of action and a wrong one. But patients and families hadn t attended the same school or read the cookbook. Is it more about the process than the particulars? Ethics, evidence-based practice, and decision making: providing better care for our patients and families. The issue of compliance will be addressed. Discussion will include the speech-language therapists critical role in assisting the patient, his/her decision maker and carers, and the medical team in the decision-making processes. Workshop 2 led by Dr Kate Reid Competences in dysphagia training and practice: what makes safe, responsive, effective and caring practitioners? How proficient are you in your practice? Can you define to yourself and others what is the purpose of your involvement with a patient? How do you compare to other clinicians and services? This workshop will allow you to spend time reflecting on whether your dysphagia practice is safe, responsive, effective and caring. If you can't confidently describe this to yourself and your colleagues you are not going to be able to do this for patients and buyers of your service. It is important to establish a narrative that enables you to explain your unique skills for patients some of whom are going to be at their most vulnerable when you work with them. Workshop 3 led by Dr Emilia Michou The controversial practises: oral motor therapies and electrical stimulation The aim of this workshop is to stimulate discussions on two areas within the spectrum of therapies for swallowing where controversies currently exist. Oral motor exercises are currently used by clinicians to promote changes on swallowing physiology and functional swallowing outcomes in patients with swallowing disorders. Electrical stimulation has recently received increased attention, given the large number of clinical trials published and the increase in the number of clinicians that use the technique on patients with swallowing disorders. Workshop 4 led by Dr Hazel Roddam Measuring effectiveness of service delivery: approaches to service evaluation and practice-based research How do you demonstrate the effectiveness and impact of the patient contact and services you provide? Measuring outcomes is significantly more challenging when complex interventions are delivered by a multi-disciplinary team, and when there are so many influences on the patient s health and well-being. This workshop will consider a range of approaches to measuring outcomes in dysphagia, including a review of the difference between using outcome measures in research and in clinical practice. The session will also explore the potential for using practice-based patient data to contribute to the collective professional evidence base of effective interventions, where there is limited existing research validated for local populations. Could you be maximising the use of your routinely-collected patient data in this way?

7 Speaker Biographies Dr Paula Leslie, Associate Professor, University of Pittsburgh, US I started my career in the NHS in 1995, and via a circuitous and unorthodox route involving research, clinical and academic teaching, and asking silly questions, I am now the director of a clinical science doctorate programme in the USA. I worked with all populations but gradually focussed on adults with swallowing problems, particularly those with progressive conditions such as dementia and motor neurone disease. People for whom there is no cure and often deeply distressing decisions to be made. I am honoured to have been made a Fellow of RCSLT in recognition of contribution to dysphagia research and to have received the UCLan Distinguished Visitor Award for I participate in groups who all puzzle over swallowing disorders: RCSLT Palliative & Supportive Care SIG, ASHA SIG 13, the Dysphagia Research Society and I co-founded the UK Swallow Research Group. Dr Kate Reid, Head of Speech and Language Therapy, University Hospital Birmingham, UK I work as a speech and language therapist in an acute teaching hospital. My PhD involved studying the experience of head and neck cancer patients from diagnosis through treatment, as I was aware that the bio-clinical labels patients may be described by do not predict how they might function post treatment. As survival figures offer patients little useful insight into what they can personally expect to experience, my thesis identified discrete and significant ways that patients have experienced treatments. The focus of the findings is to help healthcare teams relate to patients as individuals, rather than as a homogenous group and to support them to cope with their diagnosis, treatments and symptoms, with parallel implications for all other patient groups. Dr Emilia Michou, Specialist Speech and Language Therapist, University of Manchester, UK I am currently a research fellow at the Centre for Gastrointestinal Sciences within the Institute of Inflammation and Repair, Faculty of Medical and Human Sciences, University of Manchester. After completing a BSc degree in Greece, my research career has been funded externally through personal awards (Hellenic State Scholarships Foundation for my PhD ( ), Stepping stones award Fellowship for postdoctoral years) plus grants from a number of funders and sources including Parkinson s UK, NIHR Research for Patient Benefit Grant scheme. I undertake research, teach and supervise graduates and postgraduates in the field of deglutition and its disorders, and continue to practice as a speech and language therapist. The present focus of my research is unravelling the underlying mechanisms of plasticity and compensation for swallowing difficulties in stroke and neurodegenerative disease models (Parkinson s disease, Huntington s Disease) by combining various neuroimaging (i.e. fmri, MRS, NIRS), neurostimulation (TMS) and different physiological measurements in human. The current mainstream of work also focuses on treatment solutions employing neurostimulation and behavioural approaches, alongside with projects on swallowing and voice diagnostics. Dr Hazel Roddam, Allied Health Research Unit, UCLan, UK I am an SLT with extensive experience as a clinician working within NHS and local authority contexts, with clinical expertise in working with children who have physical disabilities and special educational needs. I joined the Advanced Dysphagia Course team in 2003 as Academic Advisor and am now the Co-Director of the Advancing Dysphagia Practice initiative which was launched in After gaining my doctorate in 2006, I took up my current post as a researcher at the University of Central Lancashire, where I teach research design and supervise postgraduate research students across allied health groups and wider rehabilitation services. My research has focused on strategies to promote evidence-based practice and I co-authored a book of international exemplars from SLT contributors, now also published in Danish. I was the Chair of Council at RCSLT ( ) and have been the UK delegate on the EU Professional Practice Commission (CPLOL) since 2008.

8 Conference Booking and Enquiries The conference fee ( Early Bird rate up to / Full rate) is for the 2 full days, non-residential. It includes refreshments, lunch and conference documentation, but not accommodation. To book a place at the conference please go to the conference website click on the conference name and complete the expandable online Booking Form. Online payment by credit/debit card is also available at time of booking. Please note that your booking acknowledgement will be sent once the form has been received. Formal joining instructions will be sent to you via approximately two-three weeks before the start of the conference, using address supplied. Our booking terms and conditions and Cancellation Policy are all detailed on the conference website. At the time of booking you will be asked to provide personal contact details and to specify any dietary or mobility/access needs. You will also be requested to pre-select up to a maximum of 3 workshop options. For conference booking enquiries please contact Liz Roberts, Conference and Events, University of Central Lancashire, Preston PR1 2HE healthconferences@uclan.ac.uk Tel +44 (0) For enquiries about the conference programme please contact SSTOdysphagia@uclan.ac.uk For advice about competitive rates for local accommodation and local transport to the conference venue please ADemetriou@uclan.ac.uk Advancing Dysphagia Practice Preston PR1 2HE Telephone (01772)