The IBD Nurse Specialist Service at CUH GP education update evening

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1 The IBD Nurse Specialist Service at CUH GP education update evening Dee Braim Nurse Specialist 17/10/20

2 Background st UK-wide IBD audit performed within gastroenterology 2009 IBD standards were recommended 17/11/

3 IBD standards (2009) evolving from national audit Standard A: High Quality Clinical Care Standard B: Local Delivery of Care Standard C: Maintaining a Patient-Centred Service Standard D: Patient Education and Support Standard E: Data, Information Technology and Audit Standard F: Evidence-Based Practice and Research 4 rounds of audits are demonstrating continued improvement

4 THE TEAM Specialist consultant Colorectal surgeon IBD CNS Stoma CNS Ward nurse Dietitian Nutrition team GPs Dermatology Ophthalmologist Rheumatologist Obstetrician Stoma nurse Continence nurse IV nurses Histopathologist Radiologist Smoking cessation nurse Psychologist/counsellor Enhanced recovery nurse Secretaries

5 Scope of practice of the IBD nurse specialist RCN 2009 Telephone / advice line (600 contacts over 18mth) Follow-up clinics (6 7 patients per session) Rapid access clinics (within 5days) In-patient support Self management plans Prescribing medication. Immunosuppressive + biologic pre screening and counselling Managing an immunosuppression service (blood monitoring) Liaising with CCG for biologic approval Coordinating MDT meetings and facilitating follow ups Liaising with GP practice nurse (advice) Providing education and counselling to patients/families Providing teaching and support for staff Audits Cancer surveillance Internal /external referrals Providing nutritional advise Health promotion

6 Objectives Reduce A+E attendance Hospital avoidance Reduced length of stay Reduced admissions Patient safety Patient satisfaction

7 Point of contact My contact details on footer of each clinic letter Patient given IBD care card ( address + telephone answer phone no.) Patients given leaflet on IBD Service Patient given pack from Crohn's + Colitis UK

8

9 How far have we come as a service? IBD admissions down year on year

10 Biologic service growing

11 NO COMPLAINTS PATIENT SATISFACTON GOOD VERBAL FEEDBACK FRIENDS AND FAMILY TEST POSTIIVE COMMENTS AND SCORES SERVICE DEVELOPMENT EVALUATION OF A MULTIDISCIPLINARY ONE STOP CLINIC FOR PATIENTS WITH INFLAMMATORY BOWEL DISEASE

12 Introduced One stop clinic 2015 Cost savings for patient, less travel + expenses Pt. satisfaction Reduce clinic appointments Facilitate robust timely management plans Meet standard A. High quality clinical care (2009) Time off work

13 Clinic design Second Tuesday afternoon of the month. 4 Consultant Gastroenterologists. 2 Colorectal Surgeons I.B.D Nurse Stoma Nurse Dietician.

14 Evaluation of the clinic Literature Search very poor yield. None within IBD Other specialties offering similar HIV + liver, Pelvic floor clinic, etc. E Mailed to fellow I.B.D Nurses to see if they offered a one stop clinic.

15 What our colleagues are doing.

16 Questionnaire Inviting patients to answer 6 short questions and add comments

17 Q1. How long did you spend at the clinic

18 Q2.How many people did you see?

19 Q3. Where you given too much information or was it just right? I felt I wasn t given too much information. Just right Just right. Just right. Just right. Just about right. Took time to explain and answer questions and very thorough, for me at times a little confusing, but its difficult to get the balance right. Just Right. Enough information. Perfect balance for me.

20 Q4. What did you think about seeing all the clinical members of the team on the same day?

21 Q5.How does the one stop clinic suit you as an individual? Just right. I am very pleased. Simple, do not need to travel around. Prefer this clinic. It works well. Much more preferable for me. O.K Much prefer as I work. Save time. Such a good idea, works well for me.

22 Q6. Would you recommend the one stop clinic? 100%

23 Q7. Any other comments?

24 Recommendations for future practice? To continue to collect patient evaluations on the service we deliver at the one stop clinic, and to improve the patient experience. To publish our findings. To share our experiences with other units and share their experiences. To encourage our colleagues to work with their IBD nurses to improve the services available to IBD patients.

25 Patient panel Team approach to IBD management

26 Thank you for listening Dee Braim IBD Nurse Specialist Ph ext Fax d.braim@nhs.net CH-TR.IBDCUH@nhs.net

27 Further reading and resources British Society of Gastroenterology Mowat et al (2011) Guidelines for the management of inflammatory bowel disease in adults, Gut, CORE (The Digestive Disorders Foundation) Crohn s & Colitis Foundation of America ia the Ileostomy and Internal Pouch Support Group Crohns and colitis UK Royal College of Nursing Royal College of Nursing (2006) Telephone advice lines for people with long-term conditions. The RCN IBD Special InterestGroup IBD Passport

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29 The IBD programme 4 th round ( 5 elements) 1. Inpatient care audit Assesses in-patient treatment on the first 50 patients admitted with ulcerative colitis in Data collection period: 1 January December 2013 Reporting: June Inpatient experience questionnaire Assesses in-patient quality of patient care (questionnaire) Data collection period : 1 January January 2014 Reporting: June Biological therapy audit Collects information about treatment, delivery, disease activity and quality of life in patients who are prescribed Infliximab or Adalimumab for IBD. Data collection period: Continuous Reporting: September Organisational audit A web-based self-assessment which enables hospitals to measure their organisation of care compared to national service standards. The tool identifies areas for improvement and facilitates change. Data collection period: 3 February March 2014 Reporting: August Quality improvement initiatives Peer support visits, where hospitals are paired up and meet to compare results and identify methods for improving the quality of care for patients. The IBD programme team supports the clinical teams to share best practice and explores new ways of working.

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