A Patient Centered Infrastructure. Dr. Christian Seebode ORTEC medical ICCS 2013 Hong Kong

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1 A Patient Centered Infrastructure Dr. Christian Seebode ORTEC medical ICCS 2013 Hong Kong

2 Outline Healthcare w/o Patients Economic situation of HC systems Finding a new role for Patients The Patient Centered Process The Patient Centered Infrastructure Development - Status Conclusion Copyright: Ortec medical GmbH 2

3 Healthcare w/o Patients Healthcare delivery tries to hide the complexity of medicine away from patients Patients don t need to know exactly what is going on in order to cure them Patient Physician (Provider) communication is reduced to collecting facts and data Copyright: Ortec medical GmbH 3

4 Economic situation of HC systems Technology is expensive Innovation cycle in medicine leads to rising costs and NOT to a cost reduction Biggest share of money is consumed by diseases with chronic conditions Patient experience has almost no economic impact Copyright: Ortec medical GmbH 4

5 Finding a new role for Patients Information society changes expectations of patients Patients become consumers of information Patients learn to demand and consume health information and improve their health literacy to achieve better outcomes Copyright: Ortec medical GmbH 5

6 Health Literacy Supporting patients consuming and sharing information to achieve better self perception and improvment of health literacy Copyright: Ortec medical GmbH 6

7 The Patient Centered Process 5. Act (Medical Services) 1. Manage (Health Record Management) 4. Learn (Education) 2. Retrieve (Information Retrieval) 3. Gain Insight (Knowledge Management) Copyright: Ortec medical GmbH 7

8 Patient Centered Infrastructure Copyright: Ortec medical GmbH 8

9 Manage (Health Record Management) Patients store health and personal data using data services like EHR EHR contains facts and semantics Patients use self management services like Tracking conditions Reminders Calendar Copyright: Ortec medical GmbH 9

10 Retrieve (Information Retrieval) Patients ask questions Patients search information Patients communicate Information retrieval should be based on the personal level of health literacy Human powered (guided) search Experts, Patients, Community Semantic search Indexed search and browsing Sources: Web, Provider Content, Case DBs, Textbooks Copyright: Ortec medical GmbH 10

11 Gain Insight (Knowledge Management) Explicitely manage knowledge Semantically enriched facts Text Mining Annotation (Semantic Workbench) Ontologies represent formal knowledge Ontologies may be aligned to scale Analyze, discuss and share facts and knowledge Knowledge history Knowledge diff Copyright: Ortec medical GmbH 11

12 Learn (Education) Patient receive professional edcucation Community based education Peer2Peer, Offline, LMS Informed patients are eager to pick the right education Patient provide education Learning patients do not only consume but also may provide information and knowledge to others (ROI) Copyright: Ortec medical GmbH 12

13 Act (Medical Services) Make Appointments Decision support Second Opinion Services Process support in clinical pathways Telemedicine Offline services Patients are able to make mature decisions that reflect their level of health literacy and comply with their need Treatment does refer to medication, procedures AND information Copyright: Ortec medical GmbH 13

14 Ortec Clinical Information Management Platform Enterprise/Content Management Knowledge Management Copyright: Ortec medical GmbH 14

15 Event-Bus Event-Bus Linguistic Pipeline CDR FeasibilityExplorer Processed Data Raw Data StudyMatcher StudyMatcher De-Pseudonymization Ontology Pseudonymization Aliases Ontology structured preprocessing unstructured Architecture Adapter Adapter Semantic Workbench HL7 Data sources HIS Copyright: Ortec medical GmbH 15

16 Development Status Core Platform currently rolled out within Joint Project First Patient Centered Service Semantic Workbench currently under development Copyright: Ortec medical GmbH 16

17 Conclusion Patient Empowerment heavily relies on information management Providing adequate health information improves health literacy and outcome Patient Centered Process assures continuous refinement of data and knowledge Treatment does refer to medication, procedures AND information Copyright: Ortec medical GmbH 17

18 Thank You! es/patient-centered- IT/ Copyright: Ortec medical GmbH 18

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