Table Of Content. Facilitating exchange of organs donated in EU member states... 2 Summary... 3 Coordinator, Leader contact and partners...

Transcription

1 Table Of Content Facilitating exchange of organs donated in EU member states... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Országos Vérellátó Szolgálat... 5 Agence de la Biomedecine... 5 Deutsche Stiftung Organtransplantation... 5 Public Federal Service - Health, Food Chain control and Environment... 5 Institute for Transplantation of organs and tissues of the Republic of Slovenia - Slovenija Transplant... 5 MINISTRY OF HEALTH OF THE REPUBLIC OF CROATIA... 5 Hellenic Transplant Organization... 5 Koordinacni stredisko transplantaci... 5 Mater Dei Hospital, Malta Ministry of Health... 5 Slovak Medical University... 5 INSTITUTUL CLINIC FUNDENI... 5 Eurotransplant International Foundation... 5 NATIONAL TRANSPLANT BUREAU UNDER THE MINISTRY OF HEALTH OF THE REPUBLIC OF LITHUANIA... 5 Bulgarian Executive Agency for Transplant... 5 Centrum Organizacyjno Koordynacyjne ds. Transplantacji "POLTRANSPLANT"... 5 Instituto Português do Sangue e da Transplantação... 5 NHS Blood and Transplant Department of Health... 5 Outputs... 9 D01 - Interim technical and financial report... 9 D02 - Final technical and financial report... 9 D03 - Final dissemination report... 9 D04 - Final evaluation report on Quality and Impact... 9 D05 - Report on current practice regarding crossborder organ exchanges... 9 D06 - Recommendations for international organ exchange... 9 D07 - Report on use of common forms for international organ exchanges... 9 D08 - Terms of use of IT portal... 9 D09 - Results of pilot testing... 9 D10 - Manual of guidelines on how to communicate efficiently about organ donation and cross border exchange... 9 Page 1/10

2 Facilitating exchange of organs donated in EU member states JA GPSD [705038] START DATE: 01/05/2013 END DATE: 01/05/2016 DURATION: 36 month(s) CURRENT STATUS: Finalised PROGRAMME TITLE: Second Programme of Community action in the Field of Health PROGRAMME PRIORITY: - CALL: Improve Citizen''S Health Security (Hs-2012) TOPIC: IMPROVE CITIZEN'S HEALTH SECURITY (HS-2012) EC CONTRIBUTION: EUR KEYWORDS: Primary Care, Tissue, cell and organ transplants PORTFOLIO: Organ Transplantation Page 2/10

3 SUMMARY General objectives Organ donation and transplantation is a successful therapy that provides cure to some categories of patients suffering from serious organ failures(kidney,heart,liver,lung,pancreas,and bowel).as it is well known,the number of organ donors is still insufficient in all European MS,but another value that should be also considered is the number of organs that are used per donor.since not all tx programs are running in all EU countries yet,and it is more difficult to find the correct compatibility for some patient categories,it may happen that some organs are not allocated at national level,mainly because there is no suitable recipient on the national WL.These organs although suitable are unfortunately wasted although they could be used in another country.first outcomes of COORENORproject show that the present number of exchanges could grow substantially.the main aim of this action is therefore to better practice of exchange of organs with the end objective of increasing bilateral agreements,and an overallapproach that includes raising awareness and preventing wrong communication attitude. Strategic relevance and contribution to the public health programme This Action is meant to complement Member State policies in this field through reaching consensus on essential tools for increasing organ exchange (guidelines, consensus on necessary clinical data, common IT platform, tools for proper communication to general public) and bringing to general attention the possible obstacle and barriers to this form of cooperation, in full accordance with the art 2 of the Public Health Programme This action also fits very well with the implementation of some priorities of the Action Plan set by the EU Commission [Com(2008) 818 final] to strenghten cooperation between MS, namely Priority Action 8 aiming to have a system or a structure for the exchange of organs for urgent patients and difficult to treat patients and Priority action 4 (improving the knowledge and communication skills of health professionals and patient support groups on organ transplantation).for these reasons, sustainibility of IT portal should prospectively be ensured directly by EU commission services for which reason system compatibility has been ensured. Methods and means Taking advantage of COORENOR project outcomes, the consortium will first perform an overview and analysis of contents of existing bilateral and multilateral agreements between national or international organizations aimed at cross-border organ exchanges. At the same time a common form to be used for international crossborder exchanges will be developed with necessary medical information for speeding up the evaluation procedures of donors and organs. Such form will be tested during a Page 3/10

4 pilot performed through the IT tool developed and adapted under a dedicated workpackage. Finally a strategy for tackling communication issues on cross-border exchanges as a part of a general approach to increasing public awareness for organ donation will be defined. Expected outcomes period The expected outcome is a EU-wide common approach to the issue of organ exchanges, along with a better knowledge of present barriers and obstacles (financial, logistic, legal), that are presently hindering this practice. This would also give the EU Commission correct inputs for addressing these issues at their level, if the case. Page 4/10

5 COORDINATOR, LEADER CONTACT AND PARTNERS COORDINATOR (Centro Nazionale Trapianti, Istituto Superiore di Sanit) Viale Regina Elena, Rome Italy Project leader contact Name: Nanni Costa Alessandro Phone: PARTNERS Országos Vérellátó Szolgálat Street: Karolina u City: -H-1113 Budapest Country: Hungary Agence de la Biomedecine Street: Av. Du Stade de France 1 City: Saint Denis La Plaine Cedex Country: France Deutsche Stiftung Organtransplantation Street: Deutschherrnufer 52 City: Frankfurt Country: Germany Page 5/10

6 Public Federal Service - Health, Food Chain control and Environment Street: Place Victor Horta, 40/10 City: 1060 Brussels Country: Belgium Institute for Transplantation of organs and tissues of the Republic of Slovenia - Slovenija Transplant Street: Zaloska 7 City: 1000 Ljubljana Country: Slovenia MINISTRY OF HEALTH OF THE REPUBLIC OF CROATIA Street: KSAVER 200 A City: ZAGREB Country: Croatia Hellenic Transplant Organization Street: AN. TSOHA 5 City: Athens Country: Greece Koordinacni stredisko transplantaci Street: Ruská 5 City: Praha 10 Country: Czech Republic Mater Dei Hospital, Malta Ministry of Health Street: Palazzo Castellania, Health Division, Merchants' Street 15 City: 1171 Valletta Country: Malta Page 6/10

7 Slovak Medical University Street: Limbova, 12 City: Bratislava Country: Slovakia INSTITUTUL CLINIC FUNDENI Street: SOSEAUA FUNDENI 258, SECTOR 2 City: Bucarest Country: Romania Eurotransplant International Foundation Street: Plesmanlaan 100 City: NL 2332 CB Leiden Country: Netherlands NATIONAL TRANSPLANT BUREAU UNDER THE MINISTRY OF HEALTH OF THE REPUBLIC OF LITHUANIA Street: SANTARISKIU STR., 2 City: LT Vilnius Country: Lithuania Bulgarian Executive Agency for Transplant Street: 112 Bratya Miladinovi st.2 City: 1202 Sofia Country: Bulgaria Centrum Organizacyjno Koordynacyjne ds. Transplantacji "POLTRANSPLANT" Street: AL. JEROZOLIMSKIE 87 City: WARSZAWA Country: Poland Instituto Português do Sangue e da Transplantação Page 7/10

8 Street: Avenida Miguel Bombarda, 6 City: Lisboa Country: Portugal NHS Blood and Transplant Department of Health Street: Oak House, Reeds Crescent City: WD24 4QN Watford, Hertfordshire Country: United Kingdom Page 8/10

9 OUTPUTS D01 - Interim technical and financial report D02 - Final technical and financial report D03 - Final dissemination report D04 - Final evaluation report on Quality and Impact D05 - Report on current practice regarding crossborder organ exchanges Page 9/10

10 Powered by TCPDF ( D06 - Recommendations for international organ exchange D07 - Report on use of common forms for international organ exchanges D08 - Terms of use of IT portal D09 - Results of pilot testing D10 - Manual of guidelines on how to communicate efficiently about organ donation and cross border exchange Page 10/10