Wish Book. A Gift List for Yale-New Haven Children s Hospital

Transcription

1 Wish Book A Gift List for Yale-New Haven Children s Hospital

2 Thank You!

3 Dear Friends, For the last two years, your spectacular response to our Wish Book has helped make wishes come true. Hospital staff brought us their wish lists items to help patients and their families get through the tough experience of hospitalization a little more easily for us to share with you. For two years, you have made a tangible difference throughout the hospital by providing families with gift cards for food and parking, ipads for patients to stay in touch with friends and loved ones, high-tech rehabilitation equipment and hundreds of other items, large and small. This year s Wish Book is a little different. It focuses exclusively on the needs of our youngest patients those being treated at Yale-New Haven Children s Hospital. There is nothing harder on a parent than having a seriously ill child; there is nothing more frightening to a child than a hospital stay with all the attendant testing, treatment and separation from home and family. The following pages are filled with items that will comfort children and their families at a time when they are most challenged and vulnerable. Won t you help make these wishes come true? Peter N. Herbert, MD Chief of Staff Senior Vice President for Medical Affairs Cynthia N. Sparer Executive Director Yale-New Haven Children s Hospital

4 Providing comfort to children GIFTS TO Reduce Fear and anxiety Strange surroundings, unfamiliar faces, unaccustomed smells and sounds a trip to the hospital away from home, family members and pets is traumatic for anyone, but for children, it is especially frightening. The wishes in this section will do so much to ease stress and comfort children during a hospital stay. Toys for exam rooms These colorful wall structures and play panels provide safe, educational and diverting play activities for children during pediatric assessment exams. #201 $400, 26 needed Decorations for exam rooms Wall decals provide decoration and create a child-friendly environment in outpatient exam rooms. #202 $40, 26 needed Aromatherapy supplies Aromatherapy is used in combination with traditional medical therapies to decrease nausea, headache, stress, anxiety, increase appetite and aid in sleep. #203 $250 Child-friendly amenities for procedure rooms The sterile environment and unfamiliar equipment in a medical procedure room can seem scary and intimidating to children. These items will transform the rooms and offer distractions, making children more comfortable during medical treatments. #204 Painting and wall decorations, $1,500 #205 Flat screen televisions, $700, 2 needed #206 DVD player, $150, 2 needed #207 ipads, $600, 7 needed Legacy Medikin teaching dolls These teaching dolls enable YNHCH staff to use play as a source of education regarding medical procedures. Legacy dolls are soft and friendly, and children can perform medical procedures on them. They come with kits to enable hands-on demonstrations of procedures that patients are facing, such as implanted ports and central lines. The dolls do a wonderful job of reducing fear and promoting understanding in pediatric patients and their families. #208 $1,000, 3 needed

5 Inpatient room furnishings and amenities Pediatric patients in our Respiratory Care Unit are often here for many months. Upgrades from standard hospital furniture and fixtures make the rooms feel more like home. Complete room upgrade includes nursery-style dresser, lamps, shelving and white noise machine. #209 $210, 6 needed Glider-rockers for respiratory care rooms Our youngest patients benefit from large, comfortable rockers that allow parents and caregivers to rock their babies while remaining close to ventilators and other essential medical equipment. #210 $500, 6 needed White noise machines White noise machines can help patients and parents have a more restful stay by providing soothing background noise in the often hectic environment of the Pediatric Intensive Care Unit. #211 $40, 22 needed Bath supplies The hospital provides essentials, but children are delighted to receive specialty scented lotions, soaps, shampoos and conditioners to make them feel pampered during their hospital stay. #212 $20 per kit, 100 needed Find more Wish Book items at: ynhhwishbook.org

6 Providing comfort to families Gifts to improve quality of life for the families of hospitalized children Few experiences could be more difficult than having a child in the hospital. Uncertainty about the future, the pain of watching them go through uncomfortable procedures, the challenges of entertaining them and maintaining a sense of normalcy all these contribute to the fear and anxiety. The items in this section are designed to reduce stress and help family members cope.

7 Reiki training Reiki is a Japanese technique that uses gentle touch to promote relaxation, stress reduction and healing. It is offered to both family members and patients. #213 $100 to train one staff member Bereavement program The loss of a child is usually unanticipated and always devastating. Families often stay for hours, waiting for other family members to arrive and say goodbye to their child. This program provides resources for staff to help family members make handprints, footprints and clip hair for a memory box; create memory stones and jewelry; or make a legacy video to preserve the memory of their child. #214 $200 per family, 50 needed Massage for caregivers Massage is great therapy for caregivers during the challenging course of a child s stay in the hospital, allowing them to have a few moments dedicated to themselves to relax and recharge. #215 $20 per session, 200 needed Magazine subscriptions A selection of magazines helps caregivers and family members pass the time while waiting for a child s test results, consults or other treatment. #216 $25, 30 needed Bedside snacks and drinks for parents and caregivers Offered by hospital staff to caregivers who don t have the opportunity to eat or drink while staying at their sick child s bedside. #217 Healthy snacks including protein and granola bars, healthy drinks and bottled water, $600 per month, 12 months needed #218 Keurig coffee makers, $300, 8 needed #219 Keurig supply kits for making coffee, tea and hot chocolate, $50, 30 needed Find more Wish Book items at: ynhhwishbook.org

8 Family waiting room amenities Just outside the Pediatric Intensive Care Unit, the Family Waiting Room provides space for respite and relaxation to family and caregivers who spend long hours at their child s bedside. #220 Flat screen television, $700 #221 Microwave, $100 #222 Toys for siblings, $200 #223 CD/radio system, $500 ipads ipads are fast becoming the go-to communications devices for families at YNHCH, keeping parents, caregivers and siblings involved and informed about their child s care and condition. ipads allow staff to Skype caregivers who can t always be present into important meetings concerning their child; are available to families onsite for medical research, communication and entertainment; and enable virtual visits with sick patients under visitor restriction due to flu or other illness. #224 $600, 10 needed Group dinners for families of pediatric patients Staff regularly organize light dinners (pizza, sandwiches, salads) for the families of hospitalized children. These well-attended events help families with the cost of meals while providing an opportunity to socialize with others who really understand what they re going through. #225 $150 per catered event, 24 needed Medical journals for caregivers Specially designed journals help track the confusing and complex details involved in overseeing a child s hospital care questions and concerns, instructions, medications, names of care providers, procedures, etc. #226 Publication of 750 journals, $5,000 Family Reflection Room update The Family Reflection Room outside the Pediatric Intensive Care Unit is used by families for confidential conversations about a child s medical prognosis or treatment, or as a quiet, private retreat. The room is in need of an update, including comfortable furniture, softer lighting, artwork and a radio/cd player. #227 $5,000

9 Find more Wish Book items at: ynhhwishbook.org

10 Helping those in need Necessities for those who can t afford them For those with limited financial resources, the stress of having a child in the hospital is often compounded by a host of unanticipated expenses hospital meals, transportation and parking costs and basic supplies for newborns, just to name a few. In many cases, a parent or caregiver must take time off from work, exacerbating the situation. The wishes that follow for things that so many of us take for granted will make an enormous difference to families going through difficult times. Infant/children s clothing The hospital relies on donated clothing, but we often don t have the appropriate sizes and attire for the children who need a change of clothing due to medical procedures or their illness. The smallest hospital gowns are often too big for some infants and children. #228 $15 per change of clothing, 100 needed Car seats No infant or toddler is allowed to leave the hospital without a car seat. Many families have difficulty affording one. #229 $100 each, 150 needed Car seat training model Buckling up the right way on every ride is the single most important thing a family can do to stay safe in the car, and it starts at the time the family leaves the hospital. This simulator car seat is used to instruct families on the correct way to install and secure a car seat. #230 $1,340 Heavy-duty double stroller Children dependent on respiratory equipment require a special stroller to hold all of their equipment. The YNHCH Respiratory Care Unit discharges about 10 patients a year in need of a specialty stroller, which is not covered by insurance. #231 $250, 10 needed Everyday expenses To help families in need manage some of the unplanned expenses they face when a child is in the hospital. #232 Gift cards to local restaurants, $25, 100 needed #233 Gas gift cards, $25, 100 needed #234 YNHH cafeteria gift cards, $20, 125 needed #235 Parking vouchers, $20, 125 needed #236 Pharmacy gift cards, $50, 100 needed

11 Well babies Health Services for Children & Families Every baby s birth brings tremendous changes to a family. At YNHCH, we provide guidance and education to new parents, and information and coaching on the physical and emotional care of infants, with a special emphasis on preventive health care. New baby welcome baskets We stock cheerful baskets with BPAfree divided plates, fork and spoon sets, sippy cups, water bottles and toothbrushes to assist new mothers in understanding nutrition and portion control and to teach their toddlers the importance of dental hygiene. #237 $20, 250 needed Health packs Thermometer, medication spoon, and basic First Response book help new parents learn how to manage common illnesses. #240 $15, 100 needed Books for the big brother or sister These books help older siblings adjust to the addition of a new baby. #238 $10, 100 needed Toddler portion-guide dishware Toddler utensils and plates help families learn portion size for toddlers and avoid obesity. #239 $15, 100 needed Find more Wish Book items at: ynhhwishbook.org

12 Toys & activities Gifts to help kids be kids in the hospital Being in the hospital often requires children to face experiences and decisions that would be difficult for most adults frightening prognoses, painful treatments and side effects, and feelings of sadness, isolation and regret at being separated from their friends and social activities. All the wishes in this section are vitally important they aim to bring our pediatric patients a few moments of the carefree joy of childhood. Lighted mobiles Lighted mobiles engage and distract infants and toddlers undergoing testing and procedures. #241 $50, 4 needed ipads This one small device allows kids to play games, watch TV shows or movies, listen to music, read books and visit face-to-face with family members and friends. Teenage patients can check their social media sites to stay in touch with friends or play interactive games. #242 $600, 6 needed

13 Therapeutic toys for autistic patients Interactive, creative and fun toys develop independence, support sensory integration and create opportunities for children to overcome stress and anxiety. #243 Therapy tangle puzzles, $10, 10 needed #244 Shapes and sorters, $25, 5 needed #245 Zipper, lace, buckle, snap & button board, $12, 4 needed Therapeutic photography program The power of art to express the unspoken, facilitated by the immediate impact of digital photography, inspires hospitalized youth to tell their stories through images. Through the lens of the camera, patients see themselves and their hospital surroundings from a different perspective. This program, taught by an art therapist, uses the creative process of image making to support therapeutic goals for patients. Complete package includes laptop computer, software, digital camera, portable printer, photo paper and ink cartridges. #246 $2,500 Storytime book collection and teacher resources Our storytime program is eagerly anticipated each week by patients and their parents, who love the opportunity to listen, laugh, imagine, sing and do story-related crafts together. A new collection of classic and contemporary picture books, with teacher guides for our facilitator, will make the most of this favorite activity. #247 $250 Hospital stay scrapbooking When pediatric patients and their families are supplied with scrapbooking supplies, they can document their experience, record medical information and milestones, and remember the positive moments and caring people that will inevitably be part of their stay. Constructing these scrapbooks which become important keepsakes for the entire family is a creative and therapeutic activity. #248 Polaroid 300 instant camera, $70 #249 Polaroid 300 film, $11, 5 needed #250 Scrapbook craft supplies, $300 #251 Button maker, $32 Find more Wish Book items at: ynhhwishbook.org

14 Critical first days Gifts for the Neonatal Intensive Care Unit The NICU provides intensive care, consultative support and neonatal transport services for critically ill newborn infants in Connecticut and beyond. Yale-New Haven Hospital opened the world s first NICU in Today, it is the only Level III C the highest level newborn intensive care unit in the state. Premature infants and babies with congenital abnormalities or long-term problems receive devoted care from comprehensive teams of physicians and other care providers with expertise in virtually every relevant specialty. Family support activities Family support activities are scheduled for NICU families parents and siblings to provide supportive interaction among families together with opportunities for education and healing activities. #252 Scrapbooking supplies: scrapbooks, paper, stickers, stencils and stamps, $250 #253 Onesie/bib decorating supplies: onesies of various sizes, bibs, stencils and fabric paint, $15 per set, 10 needed #254 Sibling Saturdays: One Saturday a month, siblings are invited to participate in a special program designed just for them. Storytime is followed by a related craft, in which the sibling has the opportunity to make a gift for Mom, Dad or the new baby. Books, coloring books, crayons, markers, paints, picture frames, t-shirts, refreshments, etc., $400 per event, 12 needed Milestones program Many milestones are met by infants while in the NICU. Crucial firsts and other important moments pass quickly and may only happen once. Families are so grateful when unit team members capture these moments on camera and print them as keepsakes. #255 Digital camera, $500 #256 Printer, $250 #257 Photo paper/ink cartridges, $200 per set, 5 needed Books for bedside reading Studies have shown that reading to babies in intensive care can help parents develop the same feelings of intimacy and attachment that parents of healthy newborns cultivate in the days and weeks after a baby s birth. In addition, parents who read to their hospitalized babies are three times as likely to continue reading to them at home. #258 $15, 20 needed

15 Crib mobiles Crib mobiles in addition to being cheerful additions to the NICU provide a range of benefits to newborns, from stimulating vision and hearing to enhancing the development of motor skills. #259 $50, 5 needed Breastfeeding equipment and facilities Breastfeeding provides important health benefits to premature or sick newborns and their mothers. However, it can be difficult for women to breastfeed in the busy, often stressful NICU environment. Creating more private and comfortable spaces will encourage new moms to breastfeed. #260 Breast pumps, $100, 10 needed #261 Breastfeeding stools, $30, 10 needed #262 Privacy screens, $50, 10 needed #263 Breast milk warming units, $25, 25 needed #264 Flat screen television, $700, 1 needed SimNewB This interactive newborn training simulator has realistic newborn traits to provide lifelike clinical feedback to staff, insuring that their performance in an actual medical emergency is efficient and well-rehearsed. Currently, simulation exercises are performed in an offsite simulation lab. But recent research shows that running tailored simulations in the actual work place allows the teams that work together to train together, improving patient outcomes. With SimNewB, a wide variety of patient conditions can be accurately simulated. #265 $24,000 Find more Wish Book items at: ynhhwishbook.org

16 Developmental and emotional health Children s Psychiatric Inpatient Service

17 Children s Psychiatric Inpatient Service (CPIS) offers comprehensive, compassionate services in both inpatient and partial hospitalization programs for children with developmental or psychiatric disorders. Parents are encouraged to participate in treatment to help better understand their child, initiate active treatment and develop an effective, comprehensive discharge plan. CPIS is the only facility in Connecticut with a state-accredited special education school onsite. ipads The ipad provides an alternative means of communication for children with autism who have delays in speech development or difficulty with speech. #266 $600, 2 needed Picture exchange communication system (PECS) Designed especially for children with autism, PECS is a form of alternative communication that uses picture cards instead of words to help children express themselves. This evidence-based approach encourages children to understand the usefulness of communication, facilitating the development of natural speech. #267 Starter kit: includes training manual, communication notebook and CD, $149 #268 Large PECS notebook, $35, 2 needed Sensory integration tools Children with sensory processing disorder find it difficult to process and act upon information received through the senses, which creates challenges in performing countless everyday tasks. Motor clumsiness, behavioral problems, anxiety, depression, school failure, and other impacts may result if the disorder is not treated effectively. One successful therapy is the use of weighted tools and materials to help the child become calm, focused and relaxed. #269 Therapeutic blanket, $229 #270 Lap pad, $65 #271 Belt, $50 #272 Vest, $100 Therapeutic recreation Life skills, enrichment and stressreduction programs, activities and toys assist in fostering cognitive, social, emotional and physical development. #273 Storyteller, $200 per session, 10 needed #274 Pizza party, $100, 10 needed #275 Playground balls, $8, 12 needed #276 DVDs, $15, 10 needed #277 Individual leisure kits: journal, markers, crayons, pencils, book and cards, $10, 150 needed #278 ipods, $140, 6 needed #279 Set of 100 stress balls, $300 Find more Wish Book items at: ynhhwishbook.org

18 Rehabilitation services Helping kids learn to function in the everyday world The Pediatric Outpatient Rehabilitation Center is dedicated to providing physical, occupational and speech language therapy to children and adolescents with physical, cognitive or developmental disabilities. Children receive care in private treatment rooms or group play based therapy settings to best meet the rehabilitation needs of patients.

19 Up n Go Mobility System The Up n Go is a mobile, partial weight bearing frame used to help pediatric patients develop or regain mobility or the ability to walk. It is flexible enough to assist patients who require support when standing, sitting, walking or even getting out of bed. #280 Complete system and accessories, $6,000 Quickie Kidz First wheelchair This wheelchair is designed specifically for the special needs of pediatric riders. The large wheels can be positioned in the front or the rear to help eager young hands get started. Width and depth adjustments allow the wheelchair to grow with the rider. The wheelchair will benefit both inpatient and outpatient pediatric patients. #281 $2,500 TumbleForms Feeder Seat Tray This combination seat and tray is ideal for therapy activities and feeding for children with development disabilities or delays. The height of the seat and angle of the tray are adjustable, making it adaptable for a wide range of ages. #282 $450, 2 needed Xbox 360 Game Console Kinect Bundle The game console will be used in therapy sessions as a play-based, fun way to give body-position and speed-of-movement feedback to young patients with movement impairment. #283 $350 Thank You! Find more Wish Book items at: ynhhwishbook.org

20 Your Gift Matters Browse through the YNHCH Wish Book and choose from a range of gifts that can help make a real difference in the life of a sick child, a worried parent or a family struggling with illness. Wish Book items make unique and meaningful gifts to mark any occasion or holiday. FY12 Thank You! Office of Development PO Box 1849 New Haven, CT Address Service Requested Nonprofit Org. U.S. Postage PAID New Haven, CT Permit No. 271