Road Map for MINDS Caregivers Support

Transcription

1 Road Map for MINDS Caregivers Support MINDS CAREGIVERS CONFERENCE 2017 By Mike Lee

2 Agenda Introduction EMP3 MINDS Caregivers Support Survey and key programs RoadMapon Caregivers Training and QOL Research Caregivers Issues

3 Introduction:Caregivers Stress Stress: complex & lifelong Child: learning, behavior, care planning Family conflict Financial strain Lack of Support

4 EMP to 2021 Strategic Direction recognition that caregivers play a critical role Recommendation 13 To improve caregivers well-being Enhance their caregiving capabilities. Recommendation 14 To support caregivers in their future care planning.

5 MINDS Caregivers Support Vision We believe that Caregivers with adequate and proper support to mitigate the stressand demands of the caring role can result in positive outcome of living a balance life of their ownand considerable satisfaction in the caring role.

6 MINDS Caregivers Support Mission Provide a comprehensive range of servicesto empower and support caregivers, first to care for themselvesand then to care for persons with special needs.

7 How to accomplish mission? To coordinate initiatives for caregivers To support caregivers in the management and care of their children/siblings through education, training and sharing. To create a strong network amongst caregivers for their emotional and physical wellbeing

8 Hub and Spoke Model

9 Schools & Centers (CSI) Key People Principal, VP, Head AHP, Staff Caregiver leaders

10 Caregivers Support Committee (CSC) Members Exco members DyCEO Caregivers Staff AHP & CSS staff

11 MINDS Caregivers Support Centre Set up to serve all caregivers since April Jalan Ubi Blk 3 #01-21 Kembangan Chai Chee Community Hub Singapore Tel :

12 Bonding & Social Activities Caregivers Conference Workshops Sharing Sessions Dialogues Sessions Caregiver Activities

13 Other Services Call Services Information provision Emotional social support eggroup counseling Care support egrespite care Financial planning Innovation and research Advocacy

14 Caregivers Policy Policy towards Consumer Participation Inclusion programs are open to scrutiny inputs and feedback from carers Policy Towards Equal Opportunity Right to live a balanced life

15 Service Delivery Caregiver as: Client Co-worker Resource but superseded career

16 Desired Outcomes Caregivers feel empowered Caregivers are equipped with learning and behavioural support strategies to train their children at home

17 Desired Outcomes Family relationships are enhanced through the bonding activities Caregivers develop mutual support and understanding through networking with others instead of feeling alone

18 2014 Survey: Top 3 Workshops Managing behavior, building confidence and motivation Future care planning Routines and activities at home

19 2014 Survey: Top 3 Activities Trips to places of interest such as Universal Studios, Botanic Gardens, Zoo, etc. Indoor activities such as yoga, baking, talks, sports & games, art & craft, etc. Sports & recreation such as bowling, cycling

20 Nature of Training (A) New entries caregivers of child 6 yrs & below (B) Caregivers of child 6 to 12 yrs (C) Caregivers of child 13 to 18 yrs (D) Caregivers of adults age 19 to 30 yrs (E) Caregivers of adults above 30 yrs (1) Caregivers socio-emotional well-being Understanding own feelings Balancing role as caregivers, own wellbeing & career Understanding family dynamics & own needs as caregivers Understanding the relationship & rapport with an adult person with special needs 1. Self care and wellbeing in relation to aging 2. Review of care plan for adult child (2) Understanding of child with special needs Accepting & understanding needs of child with special needs Teaching of ADL & home living skills 1. Enhancing child s acquisition of independent living skills 2. Initiation of transition to after school options planning Care planning for child s future care needs 1. Understanding health issues of adult persons with special needs 2. Preparation for care options (3) Managing child s needs and behaviours Managing child s behaviours Understanding & managing child s behaviours Understanding & managing of child s sexuality needs Understanding & managing of sexuality and behaviour issues Managing aging issues in adult persons with special needs (4) Enhancing functional skills of child Teaching of ADL skills Supporting child s academic learning & communication skills Supporting child s acquisition of work preparation skills Supporting adult s acquisition of home & community living skills Fostering of selfindependence in adult person with special needs

21 Quality of Life Evaluation Partnership with the Centre for Disability Studies, University of Sydney Train-the-trainer model Are the programme and activities we are doing lead to an improvement on the well-being and quality of life of caregivers? What programme and activities are effective and what can be improved on?

22 Caregivers Concerns One Stop Information Center Transitions Post Eighteen Options

23 Concerns of Caregivers The greatest worry voiced by caregivers: What would happen to my child when I am no longer able to care for him/her? Institutionalized homes Community Group homes Community living with assistive technology Deputyship

24 Come Connect, Share & Make A Difference!