The information provider perspective: Weisse Liste

Transcription

1 Bertelsmann Stiftung The information provider perspective: Weisse Liste Dr. Sebastian Schmidt-Kaehler, MPH Senior Project Manager, Germany EP seminar Tomorrow s cross-border information about hospital care 18 November 2010

2 How we got started Public disclosure legally required (since 2005) Almost 2000 hospital quality reports Usability of PDF reports inadequate for patients Lack of unbiased and comprehensive information No effective support for patients Informed decision-making impossible Goal: Creating a patient-focused and trustworthy patient information website on hospital quality

3 1. Patients don t trust everybody! Who is trustworthy? Patients prefer to receive information from independent information givers like consumer or self-help associations

4 Independent Steering Committee Weisse Liste is a collaboration of Bertelsmann Stiftung and Federal Self-Help Working Group German Consortium of Self-Help Groups Forum for the Chronically Ill and the Disabled German Social Association VdK Federation of German Consumer Organisations

5 2. Information overload not welcome Hospital quality information should always refer to the individual diagnosis or the necessary treatment Our solution: System of indication-based mapping rules Weisse Liste always offers selected set of data Specific to the individual indication ( didactic reduction )

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7 It just takes three clicks to compare

8 38 seconds to your customized handout

9 3. Language and knowledge barriers are hard to break down Lay persons not familiar with medical terms Do not know how to interpret indicators and quality data Patients need presentation in colloquial language Simple illustrations and educational interpretation guidelines Our solutions: Translation of medical terms (including ICD) Medical search engine More than 1000 responses [...] indicate that people take an interest but still do not really know how to use these tools and how to interpret the answers they get

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11 Our solution: Hospital Wizard Provides the information patients need for interpretation Works like an e-learning application Split up into a varying number of steps Enables patients to find the hospital that best fits their personal preferences and individual requirements

12 4. Patient Experiences are relevant. Importance and convieniance of clinical outcome indicators sometimes overrated Communication, information and therapist-patient-relationship also play a decisive role At present no patient survey on a national level. Plurality of questionnaires and methods makes comparison and benchmarking on national level impossible

13 Our solution: Patient s Experience Questionnaire Validated core set instrument Developed in Germany (Bertelsmann Sitftung) and Switzerland (Verein Outcome) Helps to measure and compare patient experiences on a national level

14 5. Multi-channel-approach Choice of information media depends on individual preferences It needs more than a website to turn information into decisions Our solution: Cooperation with telephone help-lines and local patient information centers - plus customized pdf-hand-out Multi-Channel-Strategy

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16 Software as a service Germany s largest statutory health insurance schemes shut down their own hospital information systems and embedded the graphic user interface of Weisse Liste into their websites page 16

17 Perspectives Relaunch of hospital website Customization for TV, tablet PCs, and mobile devices Providing information on all stages of health care hospitals departments physicians nursing facilities rehabilitation facilities

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20 Thank you. Dr. Sebastian Schmidt-Kähler, MPH Senior Project Manager Weisse Liste Bertelsmann Stiftung