My involvement as a President with EBMT has been about passion, vision, and serving

Transcription

1 My involvement as a President with EBMT has been about passion, vision, and serving President s Activity Report Mohamad Mohty

2 My Vision 4 years ago was... Enhancing the scientific output of the organisation Collaborating with the different international working and cooperative groups Widening the scope of the Annual Meeting Developing a broad annual educational events agenda Advocating for patients in order to maintain a high standard of care In the next slides, you can find the summary of my 4 years of presidency, thanks to your strong and continuous support

3 Current and past board Members during the last 4 years

4 Membership growth Top ten countries in terms of number of centres participating in the EBMT The Netherlands 15 Belgium 18 Germany 86 Poland 20 U.K. 53 France 51 Spain 48 Our 582 members are located in 65 different countries 12 Switzerland 87 Italy 12 Austria 39 Turkey EBMT Members EBMT Centres

5 Our sponsors

6 Main Achievements from 2014 to 2017 based on the EBMT 3 pillars Science Education Patient Care

7 Science

8 Research projects 267 ongoing projects (including Retrospective studies, academic NIS, NIS, surveys, Data Quality Initiatives, Clinical Trials) Number of Studies

9 EBMT Publications Impact factor Publications * 2017 incomplete data

10 The Registry upgrade project In January 2017, the EBMT Registry database reached the milestone of 500,000 patient registrations. After the failure of the first registry upgrade project launched in 2012, Elsevier was appointed to develop a new registry system, based on the EDC system called MACRO. The registry upgrade project is now on track and will be delivered successfully soon. During 2017, the new Cell therapy forms were finalised and implemented in preparation of the advent of the novel cellular therapies such as CAR-T cells.

11 Education

12 The Annual Meeting, the EBMT s flagship event Examples of new features added to the scientific programme: The «How do I» sessions launched in 2015 in Istanbul The 1 st Pharmacist Day launched in 2016 in Valencia This 1 st Psy Day launched in 2017 in Marseille Special sessions (e.g. Social media, global collaborations, How to get published etc.) EBMT Annual Congress Attendance Milan 2014 Istanbul 2015 Valencia 2016 Marseille 2017

13 New organisational and business model for the Annual Meeting 43 rd Annual Meeting Marseille rd Annual Meeting Lisbon 2018 EBMT Annual Meeting benefit in million 3 2,8 2,5 2 1,5 1 1,2 1,2 1,9 0,5 0 Milan 2014 Istanbul 2015 Valencia 2016 Marseille 2017

14 Significant growth of the educational events portofolio and educational tool Launch of the 1 st EBMT International Transplant Course (EBMT-ITC) in 2016 with the participation of 200 delegates. EBMT transplant curriculum to be launched in 2018 in Lisbon Launch of educational e-tools (e.g. cgvhd and VOD apps) Steady increase in thenumber of attendees at the Working Parties educational events Attendance to EBMT Educational Events

15 Pomotion of young fellows and junior doctors and nurses from all over the world EBMT ambassadors programme mainly for medical students Poster awards Awards dedicated to young and junior doctors from low and middle-income countries Special rates for nurses and allied health care professionals

16 Patient Care

17 New step by step JACIE initiative The goal is to create an accessible certification model for BMT centres To bring safe and quality care to all BMT patients worldwide Pilot project in progress with Latin American Group for BMT (LABMT) - 3 centres in centres 2019 Gratwohl et al. The Lancet Haematology Volume 2, Issue 3, Pages e91-e100 (March 2015) DOI: /S (15)

18 Highest number of JACIE applications ever in 2017 Applications inspections (10 first-time and 43 reaccreditation) 51 accreditations (13 first-time and 38 reaccreditation)

19 Advocacy and institutional relations Active collaborations with key EU health bodies: DG SANTÉ - EBMT is a member of the Common representation of Substances of Human Origin s (SoHO) (CoRe SoHO). EMA - Since 2015, EBMT in close contact with EMA with the EBMT participation to the EMA Patients Registries Initiative, with CAR-T Cells workshop on 9 February Innovative Medicines Initiative (IMI) - EBMT is a contributor to the HARMONY Project which aims to use big data to deliver information that will help to improve the care of patients with these diseases. IMPROVE THE CARE OF PATIENTS WITH LIFE-THREATENING DISEASES

20 Close collaboration with international societies/ organisations and cooperative groups Objective: define optimal and comprehensive treatment guidelines which integrate transplant and non-transplant approaches.

21 EBMT committed to defending patients interests and access to innovative therapies Active involvement in the triple-a dilemma related to Availability, Accessibility and Affordability of novel therapies to all patients all around the globe. Strong public interventions Position statement paper published in 2017 Large petition posted to urge decision-makers to take action

22 Nurses Group Achievements Educational events Training course for Paediatricians & Paediatric Nurseson HSCT in Children and Adolescents International Nurses training Day and Inaugural Research Nurses day Constitution of the Global Educational Committee Educational resources Updated VOD Learning Programme available on The first-ever Textbook for Nurses (released March 2018) Introduction of a nurse member to the medical Working Parties To perform collaborative nursing/medical projects for patient benefit EBMT Nursing Research Committee Several projects currently recruiting or about to be launched (S-FAST; Nutritional Surveys; Infection Control questionnaire for LMIC; Cutaneous cgvhd QoL questionnaire)

23 Other

24 EBMT communication and social media presence Facebook Followers Newsletter's Visits Twitter Impressions

25 A new and refreshed EBMT website will go live soon Stay tuned!

26 Strong and positive financial situation of the EBMT EBMT Finances in Million 7,0 6,5 6,0 5,0 4,0 3,0 2,0 1,4 2,7 1,0 0,0 0, Benefit Reserves

27 Coming together is a beginning; keeping together is progress; working together is success. Henry Ford It was a true pleasure for me serving EBMT and you can count on my continuous dedication. THANK YOU!