GeriPal and Eprognosis Stories. Alex Smith, MD, MS, GeriPal.org eprognosis.org

Transcription

1 GeriPal and Eprognosis Stories Alex Smith, MD, MS, GeriPal.org eprognosis.org

2 Acknowledgements No conflicts of interest to disclose

3 Poll: Raise hands if you Have never used social media (newbie) Mostly view but don t add (lurker) Have commented, tweeted, or posted to facebook (user) Have posted to a blog or youtube (power user)

4 Why aren t you doing it?

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6 10 Reasons we got into Social 1. Reach! Media

7 Reach of our articles

8 10,000 9,000 8,000 7,000 6,000 5,000 4,000 3,000 2,000 1,000 0 AGS/GSA AAHPM Annual Meeting Attendence JPSM 2009 JAGS print circulation circulation JAMA total circulation NY Times average total Circulation Twitter monthly active Users Wordpress blogs monthly unique visitors Facebook monthly active users

9 10,000,000 9,000,000 8,000,000 7,000,000 6,000,000 5,000,000 4,000,000 3,000,000 2,000,000 1,000,000 0 AGS/GSA AAHPM Annual Meeting Attendence JPSM 2009 JAGS print circulation circulation JAMA total circulation NY Times average total Circulation Twitter monthly active Users Wordpress blogs monthly unique visitors Facebook monthly active users

10 1,000,000, ,000, ,000, ,000, ,000, ,000, ,000, ,000, ,000, ,000,000 0 AAHPM AGS/GSA Annual Meeting Attendence JPSM 2009 JAGS print circulation circulation JAMA total circulation NY Times Twitter average total monthly Circulation active Users Wordpress blogs monthly unique visitors Facebook monthly active users

11 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it!

12 Pew

13 Social Media 2005: 7% 2014: 74%

14 Caregivers 30% of adults help a loved one with personal needs or household chores, finances, arranging services 79% have access to the internet 88% of these look online for health information Pew Internet Family Caregivers Online, 2012

15 Wikipedia lung cancer Last year: palliative care = palliative chemotherapy

16 Wikipedia lung cancer Now: Palliative care when added to usual cancer care benefits people even when they are still receiving chemotherapy. These approaches allow additional discussion of treatment options and provide opportunities to arrive at wellconsidered decisions. Palliative care may avoid unhelpful but expensive care not only at the end of life, but also throughout the course of the illness. For individuals who have more advanced disease, hospice care may also be appropriate.

17 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed!

18 Search: #HPM

19 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect!

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21 mentionmap

22 Health care professionals and social media 90% of MD s use: personal 65% of MD s use: professional Pharmacists: most use Facebook, only 10% use twitter, few for professional use Nurses???

23 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect! 5. Amplify your brand!

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25 We grew very, very slowly Pageviews/month 50,000 25,000 Jul 2009 Jan 2010 Jul 2011

26 But we had a following after the first year 43% 49% 1% 7% Medicine (MD) Nursing Social Work Chaplaincy Student Perissinotto, C. et al. JAGS (s1): s94

27 And they weren t the usual suspects 40% 35% 36% In What Setting Do You Work? 30% 29% 28% 25% 22% 20% 15% 10% 5% 10% 10% 7% 0% Community Hospital Home Hospice Academic Hospital Long Term Care Academic Clinic Home Care Community Clinic Perissinotto, C. et al. JAGS (s1): s94

28 And they liked us (at least most did) How Valuable is GeriPal to you as a Source of Learning? Extremely valuable 26% Hardly Valuable 1% Very Valuable 51% Somewhat valuable 22% Perissinotto, C. et al. JAGS (s1): s94

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31 And we have grown

32 and grown

33 and grown

34 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect! 5. Amplify your brand! 6. Amplify your research!

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36 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect! 5. Amplify your brand! 6. Amplify your research! 7. Advocate!

37 Is this where I should focus? FB and Twitter? Really??? What was the most influential statement that affected legislation in palliative care in the last decade?

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39 Systematic review Identified 16 validated non-disease specific prognostic indices for older adults Evaluated quality: Accuracy and generalizability

40 Systematic Review Findings Recommended: Use of highest quality indices in conjunction with Clinical factors not captured in index Patient preferences

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47 Algorithm for calculating individual risk based on points derived from the logistic regression analysis Minimum Data Set Mortality Risk Index. Copyright 2005 by The Gerontological Society of America Porock D et al. J Gerontol A Biol Sci Med Sci 2005;60:

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61 eprognosis communication videos

62 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect! 5. Amplify your brand! 6. Amplify your research! 7. Advocate! 8. Say things you can t say in journals!

63 GeriPal

64 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect! 5. Amplify your brand! 6. Amplify your research! 7. Advocate! 8. Say things you can t say in journals! 9. Teach!

65 Teaching Videos GeriPal colon dance #Thickenedliquidchallenge

66 10 Reasons you Should Use Social Media 1. Everyone is doing it! 2. Your patients and caregivers are using it! 3. Stay informed! 4. Connect! 5. Amplify your brand! 6. Amplify your research! 7. Advocate! 8. Teach! 9. Say things you can t say in journals! 10.It s fun!

67 Palliative care: communication teaching Name an emotion Understand fears and concerns Respect patient s experiences Support, help patient identify resources Explore and clarify

68 Teaching video

69 References Ventola P.T Peck J Nurs Educ 2014 Chauhan J Med Pract 2012 Lambert J Healthc Risk Manag 2012 Von Muhlen J Am Med Inform Assoc 2012

70 Thank you!