Children and Young Peoples Health Dataset (CYPHS) Presentation for Casemix Community Expert Reference Group

Children and Young Peoples Health Dataset (CYPHS) Presentation for Casemix Community Expert Reference Group Tony Childs/ Dominic Gair Community and Mental Health Team

Background The Children and Young Peoples Health Dataset (CYPHS) is one of three datasets that comprise the broader Maternity and Children's Data Set (MCDS) Dataset. Work on MCDS began with the policy driver of the National Service Framework for Children, Young People and Maternity Services in 2004 and remains aligned to the policy direction set out in: Equity and excellence: Liberating the NHS Achieving Equity and Excellence for Children NHS Outcomes Framework 2013-14 NHS Outcomes Framework 2014-15 Everyone Counts: Planning for Patients 2013-14

But what about Community Information Data Set (CIDS)? Delayed due to funding issues. Data set structure incorporated into CYPHS hence going forward if the age criteria associated with CYPHS is removed all data in scope of the initial CIDS will be captured.

Support for Future Changes to CYPHS Five Year Forward View emphasises the importance of Out of Hospital Care. Martin McShane, Director of Long Term Conditions, NHS England has responsibility for OOH care. Martin has agreed to be SRO for the CIDS dataset.

CYPHS What Is In Scope Only applies to NHS funded Community Services (both Foundation Trusts and Non- Foundation Trusts), including: Acute Trusts Mental Health Trusts Community Healthcare Trusts Care Trusts Social Enterprises Integrated Care Organisations Any Qualified Providers (AQPs) Independent Sector Providers (including Third Sector) 5

In Scope (continued) Fully independent sector services can optionally but NHS commissioned services from independent sector must be submitted. Children and young people aged between 0-19 are included Health visitor activity is in scope regardless of commissioning arrangements as commissioning of Health Visitors moves from NHS England to PHE 6

Out of Scope Community Care for patients aged 19 or older. Inpatient information flows through APC CDS Services which have dedicated data flows (such as NDTMS) Primary Care services Dentistry Social Care Prison or secure facility-based services Paper capture 7

When? Implementation Dates The HSCIC will require a completion of formal state of readiness questionnaire in August 2015 to show that the following requirements are being met: Care Providers From 1st September 2015, providers of NHS-funded CYPHS MUST be able to collect information locally, and from October 2015 MUST begin submitting CYPHS data set submissions in accordance with this standard. System Suppliers From 1st September 2015, CYPHS systems MUST be fully conformant with this standard.

How will the data flow? - 1 Data will be submitted via the Bureau Service Portal also referred to as the Open Exeter system. Routine National Dataset Data Flow Patient Identifiable Data Provider 1 User 1 Provider 2 User 2 Provider 3 HSCIC Bureau Service Portal HSCIC Long Term Storage HSCIC National Reporting Platform User 3 Provider 4 User 4 Provider 5 User 5 Publication 1 Commissioner 1 Publication 2 Commissioner 2 Publication 3 Commissioner 3 Publication 4 9

How will the data flow? - 2 In order to submit the data, the provider must have first contacted the SSD team to ensure that firewalls are configured and other required technical information has been supplied to SSD. The data set must be supplied over the N3 network and it is the provider s responsibility to ensure they have an N3 connection and have liaised with the relevant HSCIC teams to obtain the connection. Queries specifically relating to the N3 network should be raised with: N3 Programme N3 Service Provider (N3SP) N3SP Website: http://n3.nhs.uk/ N3SP Helpdesk: 0800 085 0503 10

How will the data flow? - 3 Registration is required for access to the Bureau Service Portal (BSP) for CYPHS on Open Exeter. All Organisations need to register with the ODS before requesting BSP access. Please visit http://systems.hscic.gov.uk/data/ods for further information. Guidance on how to register for BSP is provided on request. Please note that once issued, accounts must be activated within a short period of time. 11

How will the data flow Recap? - 4 Submission format is XML. Submission sent directly to SSD (Exeter), which is part of the HSCIC, via Bureau Service Portal. This service currently receives the MHLDDS and IAPT data set XML accreditation is not required to use this portal, however an N3 connection is Reporting period is one month Submission window is two months long and opens as soon as the reporting period ends Each organisation is required to make a single submission when reporting activity for their organisation. Organisations with multiple sites with multiple systems will be required to collate their data locally into a single submission and then submit the data. 12

Submission Dates Reporting Period Sep Oct Nov Dec Jan Feb September Data Submission Window October Data Submission Window November Data Submission Window December Data Submission Window Primary Refresh Primary Refresh Primary Refresh Primary Refresh 2 month submission window broken down into two separate submissions Benefit that commissioners and providers will get an extra extract primary and refresh

What Information Will Be Collected? 1 CYP401 Special Educational Need Identified CYP002 GP Practice Registration CYP003 Accommodation Type Special Educational Need Type CYP402 Safeguarding Vulnerability Factor General Medical Practice Code (Patient Registration) Start Date (GMP Patient Registration) End Date (GMP Patient Registration) Organisation Code (GP Practice Responsibility) Accommodation Status Code Accommodation Status Date CYP601 Medical History (Previous Diagnosis) Diagnosis Scheme in Use Previous Diagnosis (Coded Clinical Entry) Diagnosis Date CYP000 CYPHS Header Safeguarding Vulnerability Factors Type CYP403 Child Protection Plan Child Protection Plan Reason Code Child Protection Plan Start Date Child Protection Plan End Date CYP404 Assistive Technology To Support Disability Type Assistive Technology Finding (SNOMED CT) Prescription Date (Assistive Technology) CYP501 Coded Immunisation Immunisation Date Procedure Scheme in Use Immunisation Procedure (Clinical Terminology) Organisation Code (Immunisation Responsible Organisation) CYP502 Immunisation CYP001 Master Patient Index and Risk Indicators PK Local Patient Identifier (Extended) Organisation Code (Local Patient Identifier) Organisation Code (Residence Responsibility) Organisation Code (Educational Establishment) NHS Number NHS Number Status Indicator Code Person Birth Date Postcode of Usual Address Person Stated Gender Code Ethnic Category Language Code (Preferred) Person Relationship (Main Carer) Health Visitor First Antenatal Visit Date Looked After Child Indicator Safeguarding Vulnerability Factors Indicator Constant Supervision and Care Required Due to Disability Indicator Educational Assessment Outcome (Children and Young People's Health Services) Preferred Death Location Discussed Indicator Person at Risk of Unexpected Death Indicator Death Location Type Code (Preferred) Person Death Date Death Location Type Code (Actual) Death Not at Preferred Location Reason NHS Number (Mother) NHS Number Status Indicator Code (Mother) CYP602 Disability Type Disability Code Disability Impact Perception CYP603 Newborn Hearing Screening Audiology Referral Newborn Hearing Screening Outcome Service Request Date (Newborn Hearing Audiology) Procedure Date (Newborn Hearing Audiology) Newborn Hearing Audiology Outcome CYP604 Blood Spot Result Blood Spot Card Completion Date Newborn Blood Spot Test Result Received Date Newborn Blood Spot Test Outcome Status Code (PKU) Newborn Blood Spot Test Outcome Status Code (SCD) Newborn Blood Spot Test Outcome Status Code (CF) Newborn Blood Spot Test Outcome Status Code (CHT) Newborn Blood Spot Test Outcome Status Code (MCADD) Newborn Blood Spot Test Outcome Status Code (HCU) Newborn Blood Spot Test Outcome Status Code (MSUD) Newborn Blood Spot Test Outcome Status Code (GA1) Newborn Blood Spot Test Outcome Status Code (IVA) Data Set Version Number Organisation Code (Code of Provider) Organisation Code (Code of Submitting Organisation) Reporting Period Start Date Reporting Period End Date Date and Time Data Set Created CYPHS Submission Record Count CYP901 Staff Details PK Care Professional Local Identifier Professional Registration Body Code Professional Registration Entry Identifier Care Professional Staff Group (Community Care) Occupation Code Care Professional (Job Role Code) Immunisation Date Childhood Immunisation Type (Children and Young People's Health Services) Organisation Code (Immunisation Responsible Organisation) CYP606 Provisional Diagnosis CYP605 Infant Physical Examination (GP Delivered) Infant Physical Examination Date Infant Physical Examination Result (Hips) Infant Physical Examination Result (Heart) Infant Physical Examination Result (Eyes) Infant Physical Examination Result (Testes) FK1 Service Request Identifier Diagnosis Scheme in Use Provisional Diagnosis (Coded Clinical Entry) Provisional Diagnosis Date CYPHS INPATIENT STAYS & URGENT CARE CDS ITEMS NOT FOR DATA FLOW WILL BE LINKED TO THE CYPHS DATA BY THE HSCIC CYP607 Primary Diagnosis CYP610 Breastfeeding Status FK1 Service Request Identifier Diagnosis Scheme in Use Primary Diagnosis (Coded Clinical Entry) Diagnosis Date CYP608 Secondary Diagnosis FK1 Service Request Identifier Diagnosis Scheme in Use Secondary Diagnosis (Coded Clinical Entry) Diagnosis Date CYP609 Coded Scored Assessment (Referral) FK1 Service Request Identifier Coded Assessment Tool Type (SNOMED CT) Person Score Assessment Tool Completion Date CYP101 Service or Team Referral PK Service Request Identifier Organisation Code (Code of Commissioner) Referral Request Received Date Referral Request Received Time NHS Service Agreement Line Number Source of Referral for Community Referring Organisation Code Referring Care Professional Staff Group (Community Care) Priority Type Code Primary Reason for Referral (Community Care) Service Discharge Date Discharge Letter Issued Date (Mental Health and Community Care) CYP201 Care Contact PK Care Contact Identifier FK1 Service Request Identifier Care Professional Team Local Identifier Care Contact Date Care Contact Time Organisation Code (Code of Commissioner) Administrative Category Code Clinical Contact Duration of Care Contact Consultation Type Care Contact Subject Consultation Medium Used Activity Location Type Code Site Code (Of Treatment) Group Therapy Indicator Attended or Did Not Attend Code Earliest Reasonable Offer Date Earliest Clinically Appropriate Date Care Contact Cancellation Date Care Contact Cancellation Reason Replacement Appointment Date Offered Replacement Appointment Booked Date CYP202 Care Activity PK Care Activity Identifier FK1 Care Contact Identifier Community Care Activity Type Code Care Professional Local Identifier Clinical Contact Duration of Care Activity Procedure Scheme in Use Coded Procedure (Clinical Terminology) Finding Scheme in Use Coded Finding (Coded Clinical Entry) Observation Scheme in Use Coded Observation (Clinical Terminology) Observation Value UCUM Unit of Measurement FK1 Care Activity Identifier Breastfeeding Status 1 CYP611 Observation FK1 Care Activity Identifier 1 Person Weight Person Height In Metres Person Length In Centimetres CYP612 Coded Scored Assessment (Contact) FK1 Care Activity Identifier Coded Assessment Tool Type (SNOMED CT) Person Score CYP102 Service or Team Type Referred To PK Care Professional Team Local Identifier COLOUR KEY Patient Demographics Referrals Care Contact and Activities Group Sessions Social Circumstances Immunisations Diagnoses, Tests and Observations FK1 Service Request Identifier Service or Team Type Referred To (Community Care) Referral Closure Date Referral Rejection Date Referral Closure Reason Referral Rejection Reason CYP103 Other Reason For Referral FK1 Service Request Identifier Other Reason for Referral (Community Care) CYP104 Referral To Treatment FK1 Service Request Identifier Unique Booking Reference Number (Converted) Patient Pathway Identifier Organisation Code (Patient Pathway Identifier Issuer) Waiting Time Measurement Type Referral To Treatment Period Start Date Referral To Treatment Period End Date Referral To Treatment Period Status CYP105 Onward Referral FK1 Service Request Identifier Onward Referral Date Onward Referral Reason Organisation Code (Receiving) CYP301 Group Session PK Group Session Identifier Group Session Date Organisation Code (Code of Commissioner) Clinical Contact Duration of Group Session Group Session Type Code (Community Care) Number of Group Session Participants Activity Location Type Code Site Code (Of Treatment) Care Professional Local Identifier NHS Service Agreement Line Number CYP613 Anonymous Self-Assessment Assessment Tool Completion Date Coded Assessment Tool Type (SNOMED CT) Person Score Activity Location Type Code Organisation Code (Code of Commissioner)

What Information Will Be Collected? 2 What data is being collected? The CYPHS data set describes national definitions for the extraction of data in relation to the following key areas: personal and demographic social and personal circumstances breastfeeding and nutrition care event and screening activity observations of BMI diagnoses, including long term conditions and childhood disabilities scored assessments

Continuing Stakeholder Engagement The HSCIC have been hosting CYPHS System and Provider Stakeholder Engagement Events bi-annually since 2012 both London and Leeds based. Over 50 separate NHS trusts, around 10 system providers plus a number of other interested organisations that we are/have been involved with this engagement. 16

Big Bang or Steady Growth? CYPHS provides opportunity for a wealth of data to be collected consistently at a national level for the first time. As with all new datasets it is expected that there may initially be data quality issues that arise and we will work closely with providers to help identify and address these as they do. Initial reporting of data will be as Experimental Statistics. As the dataset matures this will change and the data will become fit for a wider variety of beneficial uses. 17

Intended Future Reporting A basic report with an associated data quality to be published monthly A more detailed quarterly/annual report to be published Special one off reports on a particular topic of interest may be published once data quality assured New publication method Intended that the data will also be made available via the use of a Business Intelligence tool which will be refreshed monthly More interactive Allows: Filtering, Charts, Hierarchies, Maps, Dashboards and ad-hoc queries by the end user 18

iviewplus+ Sign in or Register to create personalised dashboards The national provider of information, data and IT systems for health and social care Home About iview+ Data Sets Find Data Dashboards Help Welcome to the Maternity and Children s Data Set (MCDS) Homepage Data sets Help LATEST NEWS 01/08/15 Maternity & Children s data set report published The report that examines the current sources of maternity data has been published by the Health and Social Care Information Centre. You are viewing MCDS data for July 2015 Maternity and Children's Data Set The Maternity and Children's Data Set (MCDS) has been developed to help achieve better outcomes of care for mothers, babies and children. The data set will provide comparative, mother and child-centric data that will be used to improve clinical quality and service efficiency; and to commission services in a way that improves health and reduces inequalities. As a 'secondary uses' data set, it re-uses clinical and operational data for purposes other than direct patient care. Information from the data set will be made available to commissioners, providers, clinicians and service users and will be used to record, compare and improve outcomes and safety improve clinical quality and service efficiency commission services in a way that improves health and reduces inequalities improve accountability by providing comparative information to service users provide activity data on which to base mandatory tariffs for Payment by Results What information is available? Information from the data set will be made available to commissioners, providers, clinicians and service users and will be used to record, compare and improve outcomes and safety improve clinical quality and service efficiency commission services Maternity & Children s Dataset report View statistical publications by date on the Publications Calendar

iviewplus+ The national provider of information, data and IT systems for health and social care Welcome An User, to your personalised dashboard Sign out Home About iview+ Data Sets Find Data Dashboards Help Welcome to the Maternity and Children s Data Set (MCDS) You are here/dashboards Data sets Help Create Dashboard Dashboard July 201501 Dashboard Sample 02 Dashboard Sample 03 03 Icon buttons with drop down function function for share/download/save for share/download/save Chart Compare Bar Chart Line Chart Map Table Link Saved Dashboards August 2015 Proportion (%) of Women known to be smoking at time of delivery July 2015 July 2015 September 2015

Future Report Engagement The Community and Mental Health Team are running another round of stakeholder engagements events in the Autumn. These will provide opportunity for input into our reporting plans for the data set. If you would like to participate in these events please complete the contact information form that has been shared with you and return this to cmhteam.support@hscic.gov.uk at the HSCIC and you shall be added onto our stakeholder contacts list for the CYPHS return 24

Q&A Questions? 25