Health Literacy, Access to Care, and Patient Satisfaction in a National Sample of Older Americans

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Health Literacy, Access to Care, and Patient Satisfaction in a National Sample of Older Americans Helen Levy, PhD, Univ. of Michigan Alex Janke, BS, Wayne State Univ.

Background Well-established link between low health literacy and poor outcomes Many studies rely on samples defined by site of care, managed care plan, or a particular chronic condition All of these presuppose a connection to the health care system What about the effect of low health literacy on access in the general population?

Data: The Health & Retirement Study HRS: A cooperative agreement between NIA and the University of Michigan Longitudinal bi-annual study started in 1992 Nationally representative of Americans ages 51+ New cohorts added every 6 years About 22,000 respondents in 2010 Topics include health, wealth, work, & cognition

Data: HRS mailer on access to care Fall 2011: self-administered mail questionnaire ( mailer ) sent to about half the HRS sample 75% response rate Sample for analysis: n=7,166 3,900 ages 65+; 3,266 ages 51-64 Included questions on access to care and selfassessed health literacy (confidence filling out medical forms)

Plan of analysis Outcomes No usual source of care Delayed medical care in past year (& reasons) No doctor visits in past year Difficulty finding a provider (& kind of difficulty) Key predictor: low self-assessed health literacy (27% of sample) Control variables: Age, race/ethnicity, gender, marital status, health insurance Years of education, general cognitive ability (word recall & serial 7s)

0.160 0.140 Marginal effect of low health literacy on access outcomes: Near elderly Bright bars = statistically significant 0.120 0.100 0.080 0.060 0.040 Pale bars = not stat. significant 0.020 0.000 No USC (0.145) Delayed (0.267) No MD visit (0.063) Difficulty finding provider (0.085) -0.020 No controls + demographics, insurance +education, cognition

30% Reasons for delaying medical care, by self-assessed health literacy 25% 20% 15% 10% 5% 0% Extremely Confident Quite Confident Somewhat Confident A Little Confident Not At All Confident Couldn't get through on phone No appointment soon enough Wait at office too long Not open when I can go No transportation I am too busy Afraid of what I might find out Don't believe in doctors Dislike going to the doctor

Recap of results just shown Low health literacy means more delayed care and more difficulty finding a provider No effect on Prob(no medical visit) or Pr(usual source of care), once covariates included Reasons for delaying care are different. Low health literacy means > more likely to say no transportation or wait at office is too long > less likely to say they are too busy

Other results (not shown) Reasons for difficulty finding a provider also vary with health literacy: low health literacy means > Low health literacy means more likely to say None close by, No appointments > No gradient in Could not get referral, Not accepting new patients, Did not accept insurance Satisfaction with doctors & nurses is lower for patients with low health literacy, who are more likely to say: Doctors & nurses don t listen carefully Doctors & nurses don t show respect Doctors & nurses don t spend enough time

Conclusion Patients with low health literacy are more likely to report delaying care or having difficulty finding providers These findings are robust to the inclusion of covariates (including general cognition) They also have different reasons for delaying Transportation; long wait Satisfaction with providers is lower More complaints about communication

Backup slides start here.

HRS 2010 core sample, ages 51+ 2010 CPS, ages 51+ Our participants Core, No Mailer ALL 2010 core Age 64.281 64.321 64.315 64.201 % 65 or Older 0.424* 0.409 0.415 0.423 Female 0.544 0.536 0.539 0.537 Married 0.678* 0.578 0.614 0.629 White, Non-Hispanic 0.82* 0.769 0.787 0.766 Black, Non-Hispanic 0.076* 0.114 0.100 0.099 Other Race, Non-Hispanic 0.029 0.026 0.027 0.051 Hispanic 0.076* 0.091 0.085 0.084 Less Than High School 0.135* 0.166 0.155 0.146 High School 0.326* 0.295 0.307 0.337 Some College 0.242 0.252 0.248 0.242 College 0.292 0.283 0.286 0.274 Region1 0.162* 0.180 0.174 0.191 Region2 0.276* 0.236 0.250 0.222 Region3 0.361* 0.378 0.372 0.366 Region4 0.200 0.204 0.203 0.221 Self-Reported Health Fair/Poor 0.215* 0.269 0.249 0.248 Mean Memory Score (0-20) 9.988* 9.412 9.618 N/A Serial Sevens score (0-5) 3.674* 3.419 3.510 N/A Sample N 7,583 14,387 21,970 54,206 *Indicates mean is signficantly different from mean to the right with p<0.05.

0.120 Marginal effect of low health literacy on access outcomes: Near elderly 0.100 0.080 0.060 0.040 No controls + demographics, insurance +education, cognition 0.020 0.000 No USC Delayed No MD visit Difficulty finding provider -0.020

Fraction who delayed care (ages 55-64) 0.7 0.6 0.5 0.4 0.3 0.2 0.1 0 Extremely Quite Somewhat A little Not at all Confidence filling out medical forms Usual source of care No USC

0.45 Reasons for difficulty finding a provider 0.4 0.35 0.3 0.25 0.2 0.15 0.1 0.05 0 Extremely Confident Quite Confident Somewhat Confident A Little Confident Not At All Confident Did Not Accept Insurance No Appointments Available Not Accepting New Patients None Close By Could Not Get Referral

90% Satisfaction w/doctors & nurses 80% 70% 60% 50% 40% 30% 20% 10% 0% Extremely Confident Quite Confident Somewhat Confident A Little Confident Not At All Confident Did Not Respond Doctors & nurses listen carefully Doctors and nurses spend enough time Doctors & nurses show respect How satisfied overall w/doctors & nurses