Concurrent Sessions Cascades Room Māori Cancer Services Profile Tamaki Healthcare Lorraine Hetaraka-Stevens NATIONAL MĀORI CANCER FORUM 2009 Revolution of Cancer Care FOR MĀORI AND WHĀNAU
AWHI MĀROHA cancer service August 2009
Tāmaki Healthcare Dominion Road Surgery Roskill Union Health 109 Doctors Three Kings A&M Onehunga Mall Medical QuayMed A&M Epsom Medical Otahuhu Health Clinic Orakei Health Clinic ETHC Sylvia Park Glen Innes Health Clinic Line Road Medical Centre Tamaki Family Health Centre Otara Union Health Centre 2003: 10,000 patients 3 Practices 6 FTE GPs 4 FTE Nurses 2009: 43,000 patients 13 Practices 30 FTE GPs 20 FTE Nurses 19/08/2009 3
Background Cancer is one of the leading cause of illness in New Zealand, ethnicity, socio-economic status, gender and geographic location have all been associated with inequalities in outcomes of cancer care and service access. Cancer has a disproportionate impact on Māori Māori are 18% more likely to be diagnosed with cancer than non-maori, but nearly twice as likely to die from the condition. (reference: MOH) 19/08/2009 4
Barriers Impacting on Māori Limited service information - simplified information, no medical jargon, translated in Māori Transport difficulties, associated costs i.e.parking, petrol Few Kaupapa Māori services available, (culturally appropriate services) Distance from available services eg: too far Financial barriers Childcare Too whakama or unsure when to ask for help Complicated Hospital access to services 19/08/2009 5
The Māori Pilot Programme There are 3 pilot community cancer support services funded by the Ministry of Health. These services are delivered by Te Kahui Hauora Trust located in Rotorua, Cancer Navigator service delivered by West Coast PHO and Awhi Māroha at Tāmaki Healthcare PHO Although, the overall aims of service delivery are the same the methods for service provision vary slightly. 19/08/2009 6
Tāmaki Healthcare We provide a community cancer support service via two streams of care: 1. Direct support to patients, providing support to patients from initial patient contact through the cancer continuum. 2. Support for patients and their whānau through the provision of support groups. 19/08/2009 7
Who are We? AWHI MĀROHA is a team of dedicated health professionals consisting of: 1 Registered nurse and 2 Community health workers 19/08/2009 8
Awhi Māroha AWHI MĀROHA provides support in collaboration with other services within Tāmaki Healthcare These other services include: Primary care providers eg: G.P clinics Nursing Practice support Kaumatua Primary Mental Health Nutritionist Toi Tū (child health service) Lifestyle Planner s Self Management Programs Au kati kaipaipa (smoking cessations) Information Systems support 19/08/2009 9
How can we help whānau? Provide clients with information and resources required to help clients and their whānau understand cancer Provide educational support A support person when whānau not available Advocate on clients/whānau behalf if required Referring client to other services that could assist and help with their needs eg: childcare, WINZ, Housing NZ, home help, counselling for client and their whānau, etc Assist with transportation A friend to talk too NO CLINICAL PHYSICAL ASSESSMENT DONE eg: wound dressing, showering etc 19/08/2009 10
Cancer support nurse role To offer clinical support: Initial first visit Participate in discharge planning (MDT) Support with recognizing the side effects of diagnosis and monitoring Monitor medications and provide advice when needed Ensure clients understand terminology Provide continuous education & advocacy 19/08/2009 11
Community support worker role To assist with social support/needs out in the community: Assist with finding transportation options WINZ support Housing NZ support Advocacy Childcare etc 19/08/2009 12
Referral is made: A initial phone call Initial process First initial face to face meeting undertaken by the nurse & support worker Information on area s of concern are collected in conjunction with client/whānau Management of care is discussed and care plan established with realistic achievable goals. Support is put into place for client and whānau 19/08/2009 13
Why choose AWHI MĀROHA? Research shows that clients/whānau interact better with culturally appropriate services such as a Māori health workers, Kaumatua Understanding culture, customs and Māori models of health i.e. Te whare tapawha Comfort and non judgemental service 19/08/2009 14
Experience to date Awhi Māroha cancer service commenced at the end of 2007 since then we have: 1. Established policies for the service 2. Developed appropriate information and resources 3. Established networks with community services, social agencies,secondary and tertiary care, local Marae etc 4. Facilitate monthly whānau support groups 5. Supported Community health promotional events 6. Present at regional conferences 7. Provide education in a range of settings 19/08/2009 15
Awhi Māroha Enquiries to: Cancer Support Nurse Tāmaki Healthcare Primary Health Organisation Working hours: Monday Friday 8:30am 5pm 22 Burleigh St Grafton Phone: (09) 307 0516 19/08/2009 16
Concurrent Sessions Cascades Room Māori Cancer Services Profile Tamaki Healthcare Lorraine Hetaraka-Stevens NATIONAL MĀORI CANCER FORUM 2009 Revolution of Cancer Care FOR MĀORI AND WHĀNAU