Community Care in England

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The Future of Primary and Community Care in England Towards Integrated Care Organisations Nick Goodwin, PhD Senior Fellow, Health Policy, The King s Fund, London Paper to Bsalut/RISAI, Barcelona, 22 nd October 2009

Agenda The Integrated Care Concept Recent reforms in the English NHS: a battle for integrated care Long-term conditions strategies: Case management Disease management Health promotion Integrated care organisations Conclusions

The Integrated Care Concept A confusion of languages

The Integrated Care Concept Systemic integration Organisational integration Functional integration Integrated care to the patient Service integration Clinical integration Normative integration

NHS, 1997-2009: A Commissioner-Provider Model 1997 2009 Department of Health Department of Health Regional Health Authorities Strategic Health Authorities District Health Authority PCG/Ts Primary Care Trusts Self-Governing NHS Trusts Independent sector Primary care contractors Self-Governing NHS Trusts Independent sector Primary care contractors

Out of Hours Community Care

Independent Community Providers April 2008 Changes in how community services are provided April 2009 PCT Commissioners Provider PCT Commissioners Provider Services PCT Services COMBINED ORGANISATION Commissioners PCT INTERNAL SEPARATION Commissioners APrO APrO CFT CONTRACTUAL RELATIONSHIP V E R T I C A L INT. COMMERCIAL ORGANISATION SE LA PARTNERSHIP HORIZONTAL INTEGRATION DIVERSITY

UK Department of Health s Position Four main goals: 1. Better preventative services, earlier intervention and self-care strategies 2. More support to people with chronic conditions and long-term care needs of the elderly 3. Improve access to community services, reduce inequalities of access and improve joint working between health and social care 4. Give people a louder voice and more choice social justice and selfdetermination agenda

DARZI NHS Next Stage Review An NHS that gives patients and the public more information and choice, works in partnership and has quality of care at its heart Thi This is a once-in-ageneration opportunity to ensure that a properly resourced NHS is clinically led, patient-centred and locally accountable

DARZI : The :The Headlines Quality at the heart of NHS Constitution enshrines es choice ce of the NHS: treatment and provider Care Quality Commission National Quality Board NHS Constitution shows we are a single-insurance Attention on community payer system services End of postcode lottery World Class Commissioning to drug treatments and PBC reinvigorated through guaranteed access Making the NHS locally ll to NICE-approved drugs accountable Managing health on an Clinical leadership industrial scale PROMs Comprehensive health and Investment wellbeing services Coalition for better health Tackling long-term Individualised care plans conditions Reduce your risk campaign individualised care plans Stay health at work Integrated care Personal healthcare budgets organisations

The Battle for Integrated Care Non-integrating forces Isolated providers: GPs; community trusts; hospital care; social care Payment reforms: payment by results Competition rules contract culture Choice Foundation trusts Professional tribalism Integrating forces Best practice - e.g. NICE guidance Regulation/CQC Policy-focus Quality agenda, including payment for quality Integrated t care organisations World Class Commissioning Health and wellbeing

DH Long Term Conditions Model

Inspiration from the Chronic Care Model Source: Epping-Jordan et al. 2004

The Long Term Conditions Policy: Case Management, Disease Management, and Self Care Population management HEALTH PROMOTION Source: adapted from Chambers, R. et al (2006) Supporting self-care in primary care, Oxford: Radcliffe Publishing

Case Management Why developed? Patients stay at home for longer so reduces numbers of unplanned emergency admissions to hospitals and so reduces costs Attempt to shift care out of hospitals into the community promoting supported self-care in the home Enables choice and independence for patients

Preventing negative outcomes Negative outcome Case management Severity increases/ multiple conditions Advanced disease Mild/moderate disease Early symptoms HEALTH PROMOTION Persons at-risk 16

Predicting risk and community matron services: information is power! In England, 5% of patients account for 49% of inpatient bed days in hospitals (and associated costs) Just 2% of patients with longterm conditions account for 30% of unplanned admissions & 80% of visits it to a general practitioner 17

Rationale Recognition that many hospital admissions (especially for long-term care LTC) can be prevented Targeted interventions required to tackle at-risk individuals upstream from traditional care Government policy of caring for people outside hospital and closer to home Community Matrons to case manage high risk patients Expert patient and carer programmes 120 million investment in telecare and telehealth Your Health, Your Way -five pillars 18

Community Matrons New clinical role for nurses Case-management of high-intensity users of health services in the home 3000 community matrons established. Role is to: Use data to actively seek out patients who will benefit Combine physical, mental and social care needs Medications management, some prescribing Provide clinical care and promote health Teach and educate patients (and carers) to self-care Co-ordinate inputs from other agencies

Community Matrons Community matron role inspired by case management success in US e.g. by Evercare Community matron service as yet not cost- effective in most parts of the country issue of impactability on high intensity patients Community matrons not integrated with the rest of the system, especially ill GPs co-ordination i role without power

21

PARR: Patient s at Risk of Rehospitalisation Predictive case-finding tool developed by King s Fund and Health Dialog Developed algorithms using prior hospital discharge data to identify patients at high risk of hospitalisation Flags patients with a high probability of subsequent emergency admission enabling health and social services to case manage patients and reduce hospitalisations Algorithms produce a risk score (0-100) for every individual across an entire population

PARR variables Prior utilisation Diagnostic information Demographic information Re-hospitalisation rates at hospital of current admission for certain conditions Contextual information about area of residence 23

PARR approach Trigger: emergency admission Use information in hospital records to predict patients t at high h risk for re-hospitalisation ti in the next 12 months An algorithm produces a Risk Score of 0.1-100 for individual patients PARR 1: trigger based on a reference condition where improved management can help prevent future admissions PARR 2: not limited i to a reference condition, i focuses on a larger number of patients 24

PARR population p 80% had multiple long term conditions compared with 35% of all admissions Most common conditions of highest risk: Heart disease, hypertension, COPD Mental illness was also higher in the PARR population than all admissions 25

The Combined Predictive Model Aim: to develop a model that uses a number of routine datasets to stratify an entire Primary Care Trust (PCT) population according to risk of admission in the next 12 months Developed and piloted in Croydon PCT (280,000 people) Used as a method to develop community-based case management services 26

Multiple Data Sources Enrich the Predictive Opportunity Inpatient data A&E data GP Practice data Social Services data Outpatient data PARR Combined Model 27

Combined Model Population Combined model identifies a different population to PARR Some patients in top 1000 highest risk with no PARR score Model is slightly more accurate than PARR (73% instead of 65%) 28

Case study: Virtual Wards in Croydon PCT Piloted the practical use of the Combined Model on behalf of the King s Fund and Health Dialog since May 2006. Package of care called virtual wards - solely to people at highest h predicted d risk. Virtual wards now being introduced in other parts of the UK. 29

Case study: Virtual Wards in Croydon PCT In essence, virtual wards use the systems, staffing and daily routine of a hospital ward to provide case management tin the community. 30

Specialist staff Specialist nurses - Asthma - Continenc e - Heart Failure Palliative care team Alcohol service Dietician 31

Impact on health system in Croydon Since the introduction of the Virtual Community Wards the PCT has saved 1 million in Emergency Admissions and over the last 18 months the local hospital has closed 100 beds. The Virtual Community Wards project won four prizes at the Health Service Journal Awards in November 2006: Primary Care Innovation, Clinical Service Redesign, Patient-Centred Care, and Information-Based Decision Making.

Telecare and Telehealth Telecare: the remote delivery of care to people in their own home by means of telecommunications and computer-based systems e.g. a falls sensor Telehealth: the remote exchange of physiological data between a patient at home and medical staff to assist in diagnosis i and monitoring e.g. blood pressure monitor

Telehe ealth Te elecare Cholesterol monitor Bloodpressure cuff Glucose meter Medication tracking Sensor networks Records NHS Social Care Housing Personal Health Record Home Hub Appliance Service Hub care profs Care professionals NHS Direct Home automatio on Pedometer Lights Doors / Windows Motion / Activity Bed Kitchen Bathroom Elderly living independently Friends and family Emergency services Tl Tele-carer Care response service

Whole System Demonstrator Pilots 31m randomised control trial of 6000 patients in three localities of England Proof of concept approach - the level of benefit associated with telehealth and telecare in an integrated health and social care environment. To what extent does the WSD model of care: promote long term well-being and independence improve individuals and their carer s quality of life is more cost effective is more clinically effective provides an evidence base for future care and technology models.

WSDAN www.wsdactionnetwork.org.uk wsdactionnetwork org Action network All the latest news on Events, research and telehealth and telecare in the development management of long-term To assess and evaluate the conditions progress and impact of Regular updates from the telecare and telehealth in WSD pilot sites enabling long-term conditions Regular features on the latest management policies and evidence An integrated point of access for published materials on the evidence Archive of WSDAN events, presentations and papers A new one-touch searchable directory of the evidence-base

Disease Management Policy that every individual with a LTC (15.4m people) should have an individualised care plan and care co-ordinator ordina or Personal health budgets just being piloted Payment to primary and community care providers incentivises disease management: e.g. QOF payments Clinical guidelines e.g. for diabetes - influential BUT: no direct imposition of disease management programmes and approach fragmented

Health Promotion and Disease Prevention Immunization and screening programmes in primary care extended: e.g. the Life Check Your Health, Your Way: Information prescriptions Peer-support groups Expert patients and expert carers Healthy lifestyle advice: e.g. 5-a-day, smoking cessation Tools and self-monitoring devices

Practice-based commissioning g( (PBC) Budget-holding GP practices since 2004 Design integrated g services for local patients with incentives to keep them out of hospital Some developments towards referral management systems, but a failing policy DH calls for reinvigoration and creates the idea of the integrated care organisation

Integrated Care Organisations Darzi Review indicated DH will set up integrated care pilots in primary care The principle of better care integration between primary, community and social care implies a welcome move to better continuity of care, a more personalised service, and more efficient i care co-ordination to patients. t Tension between integrating care across community, primary and secondary care on the one hand, whilst on the other promising patients in the draft constitution the right of greater choice not only over treatment but over providers.

Integrated Care Organisations A first wave of 16 ICO pilots went live on 2 July 2009, to initially run for two years Evaluation being undertaken by RAND Europe and Cambridge University Vary significantly in their scale and scope of their operation size of the population served, degree of organisational linkage the range of services involved: closer alignment of provider services for selected conditions (e.g. diabetes) or care groups (e.g. older people) vertically and horizontally integrated system-wide integration of payer and provider functions across a whole health economy. aspirational pilots roles and functions developing over time

The 16 ICO Pilots BOURNEMOUTH & POOLE PCT CAMBRIDGE ASSURA LLP CHURCH VIEW MEDICAL PRACTICE NEWQUAY NHS CUMBRIA DURHAM DALES NENE COMMISSIONING CIC NHS NORFOLK & NORFOLK CC NORTH TYNESIDE NORTHUMBRIA HEALTHCARE FT PORT ISAAC PRINCIPIA (Nottinghamshire) NHS TAMESIDE & GLOSSOP TORBAY CARE TRUST TOWER HAMLETS PCT WAKEFIELD Dementia care End of life care Personalised LTC management Dementia care Case management of people with severe LTCs Integrated care to a rural population New models of LTC management Personalsesd care planning to the elderly Prevention of falls COPD self-management and care co-ordinationordination Integrated mental health care teams COPD care community wards CVD care pro-active case management Personalised care for the elderly New models of LTC management Substance misuse service

An ICO Example Primary Care Trust PCT commissions ICO via single integrated care contract Integrated Care Organisation Lead Contractor : In House Provider Could comprise: GPs; Other clinicians; Foundation trusts Sub-contracts t Specialist care Independent practices NHS/Independent hospitals Social care

Conclusions Primary and community care remains poorly integrated in England Many GP practices remain isolated, and community trusts now creating a further organisational tier in the system Some moves to larger federations of practices with greater integration with community nurses, hospital specialists and social care staff Integrated care strategies remain haphazard lack of investment and commitment nationally

Gracias! ngoodwin@kingsfund.org.uk