TSANZ ADVISORY COMMITTEES AND WORKING GROUPS MEMBERSHIP & WORKPLANS AS AT 29 FEB. 2012* 1. Name Donor Surgeons and Donor Coordinators Advisory Committee 2. Chair John Chen Co-Chair Tina Coco 3. Size (including Ex-officio members) 16 4. Membership Name John Chen Michael Fink Henry Pleass Anthony Griffin Bulang He Carl Muthukumaraswamy Tina coco Carrie Alvaro James McCance, SA Health Jo Sanders Melissa Smith Interest Group/Jurisdiction Surgeon, Director South Australian Liver Transplant Unit (SA & NT) General Surgeon, Austin Health (VIC &TAS) Surgeon, Surgeon West Sydney Area Health Service (NSW&ACT) Director Renal Transplantation, Princess Alexandra Hospital Surgeon, Health WA (WA) Surgeon, Auckland District Health Board Clinical State Manager, Donor Coordinator, DonateLife Queensland Organ and Tissue Donation Service Donor Coordinator, NSW Organ & Tissue Donation Service (NSW & ACT) Donor Coordinator (SA & NT) Donor Coordinator (VIC & TAS) Donor Coordinator 1
Janice Langlands Fleur Zani Emily Granger (WA) Donor Coordinator, Organ Donation New Zealand Recipient Coordinator Clinical Nurse Specialist, St. Vincents Hospital. (Cross jurisdiction) Cardio-thoracic Surgeon, St. Vincents Hospital (Cross jurisdiction) 5. Meeting Schedule 2011/12 Date Type of meeting 21 Sep 2011 Teleconference 7 Dec 2011 Face to Face meeting, Sydney 26 Apr 2012 Teleconference 26 June 2012 Face to Face Meeting, Canberra 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. TOR Adoption of TOR 31/12/2011 b. CDRF Printing and supply of booklet 30/11/2011 c. EDR Review CDRF 20/02/2012 d. Donor Retrieval Establishing consensus on minimum Surgical Technique e. Donor Vessel Packaging, Labeling Storage and Use f. Document for Interstate Organ Transfers g. Organ Retrieval Report Form standards across all jurisdiction Establishing standards and formulating operating procedures 20/04/2012 Standardisation of documentation 20/04/2012 Establishing common quality assurance for organ retrievals across all jurisdictions 20/04/2012 2
1. Name Liver Advisory Committee 2. Chair Jonathan Fawcett 3. Size (including Ex-officio members) 19 4. Membership Name Jonathan Fawcett Graeme Macdonald Geoff McCaughan Michael Crawford Bob Jones Michael Fink John Chen Rob Panbury Luc Delriviere Gary Jeffrey Stephen Munn Ed Gane Helen Evans Winita Hardikar Interest Group/Jurisdiction General surgeon, Director Queensland Liver Transplant Service, Princess Alexandra Hospital Staff Specialist, Department of Gastroenterology and Hepatology, Princess Alexandra Hospital AW Morrow Gastroenterology & Liver Centre, Royal Prince Alfred Hospital (NSW&ACT) Surgical Director of the Australian National Liver Transplant Unit. (NSW& ACT) Transplant Surgeon, Director of the Victorian Liver Transplant Unit. (VIC&TAS) General Surgeon, Austin Health (VIC&TAS) Surgeon, Director South Australian Liver Transplant Unit. (SA & NT) Director of Surgery at Flinders University. Surgeon (SA & NT) Head of Transplant Surgery, Sir Charles Gairdner Hospital. (WA) Surgeon, Medical Director of the Western Australian Liver Transplantation Service. (WA) Surgeon, Director of Liver Transplant Unit, Auckland Hospital Hepatologist Auckland University Paediatric Gastroenterologist, Auckland Hospital (cross jurisdictional) Paediatric, Head of Liver and Intestinal Transplantation Department of Gastroenterology, 3
Libby Johns Diana Aspinall Vacant Peter MacDonald Geoff McCaughan Royal Children's Hospital Melbourne. (cross jurisdictional) Clinical Services Coordinator Liver Transplant Unit Flinders Medical Centre. (ATCA Rep) Consumer Rep Community Rep Ex officio (TSANZ President) Ex officio (Chair TSANZ Advisory Committees and Work Groups.) 5. Meeting Schedule 2011/12 Date Type of meeting 5 Dec 2011 Face to Face meeting, Sydney 26 June 2012 Face to Face Meeting, Canberra 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. TOR Adoption of TOR. 31/03/2012 b. Urgent Listing Review of criteria and procedure for category 2 a listing for urgent liver transplant. c. DCD Liver Review of outcomes of DCD Liver Transplants transplants in Australia and NZ. d. Medicare Item for liver Submission to the Federal Government. transplant e. Metabolic disease and liver transplant outcomes f. Allocation of small bowel transplant organ g. Liver transplant survival rates Research relationships between the two variables using Aus-NZ data. Seeking funding and developing protocols for this emerging treatment. Research to update liver transplant outcomes of the past 15 years using Aus-NZ data based on UCSF criteria. 20/04/2012 4
1. Name Cardiac Advisory Committee 2. Chair Paul Jansz 3. Size (including Ex-officio members ) 12 4. Membership (TBC) Name Paul Jansz Peter MacDonald Peter Bergin Enzo de Angelis Lawrence Dembo George Javorsky Peter Ruygrok Jo Maddicks-Law Peter Wicks Richard McCluskey Peter MacDonald Geoff McCaughan Interest Group/Jurisdiction Title Cardiothoracic and Transplant Surgeon Cardiac Transplant Clinic, St Vincents Hospital Transplant Cardiologist, The Alfred Hospital Cardiologist, Adelaide Heart Clinic (SA) Cardiologist, Wembly (WA) Physician, Heart and Lung Transplant Unit, Prince Charles Hospital Cardiologist, Clinical Director, Greenlane Hospital. Cardiac Transplant Nurse Practitioner, The Prince Charles Hospital District Health Service (ATCA Rep) President, Australian Heart Lungs Transplants Association (ACT) Heart Support Australia (ACT) Ex officio (TSANZ President) Ex officio (Chair TSANZ Advisory Committees and Work Groups.) 5
5. Meeting Schedule 2011/12 Date Type of meeting 17 October 2011 Teleconference 26 June 2012* Face to Face Meeting, Canberra *To be confirmed 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. TOR Adoption of TOR 31/03/2012 b. Urgent Listing Review of Allocation Protocols 31/03/2012 c. Donor Angiograms Develop a protocol for coronary angiography for extended criteria of heart donors d. Feedback on organ refusal Develop a policy to ensure meaningful feedback is given to ICU consultants. 6
1. Name Lung Advisory Committee 2. Chair Glen Westall 3. Size (including Ex-officio members ) 16 4. Membership Name Interest Group/Jurisdiction Glen Westall Greg Snell Peter Hopkins Daniel Chambers Allan Glanville Dhital Khumud Michael Musk Sharon Lawrence Mark Holmes Tanya McWilliams Chris Lewis Trish Leisfield Jo Sanders Consultant Respiratory Physician, The Alfred Hospital Head (Medical) Lung Transplant Service, Alfred Hospital Senior Staff Specialist, Director Queensland Centre for Pulmonary Transplantation and Vascular Disease, Prince Charles Hospital Thoracic & Transplant Physician, Head of Research, Queensland Centre for Pulmonary Transplantation & Vascular Disease Director of Thoracic Medicine, St Vincents Hospital, Cardiothoracic Surgeon, St Vincents Hospital. Physician, Medical Head of the Western Australian Lung Transplant Unit,, Royal Perth Hospital (WA) Clinical Nurse, Royal Perth Hospital (WA) Physician, Respiratory and Sleep Disorders, Royal Adelaide Hospital (SA). Respiratory Physician, Respiratory Medicine and NZ Heart and Lung Transplant Service, Auckland City Hospital Respiratory Physician, Auckland City Hospital Recipient Coordinator, Prince Charles Hospital Donor Coordinator, Organ Donor Coordinator. Michele Harkess Clinical Nurse Consultant, Heart & Lung Transplant Unit, St Vincents Hospital (ATCA Rep) 7
Peter MacDonald Geoff McCaughan Ex officio ( TSANZ President) Ex officio (Chair TSANZ Advisory Committees and Work Groups) 5. Meeting Schedule 2011/12 Date Type of meeting 31 October 2011 Teleconference 27 February 2012* Teleconference 26 June 2012* Face to Face Meeting, Canberra *To be confirmed 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. TOR Adoption of TOR 31/03/2012 b. Urgent Listing Explore the need to develop a formal rotation c. Ex vivo Lung Perfusion (EVLP) d. National database protocol as in the case of liver and heart The likely introduction of EVLP in QLD may influence whether marginal lungs would still be offered interstate on rotation. Study QLD s protocol Current database at St Vincent is resource intensive and therefore there is a need to lobby for more funding to develop a national lung transplant database. e. Research Develop multi-centre research projects and seek NHRMC funding e.g. antibody-mediated rejection, CMV prophylaxis. f. Paediatric Lung transplantation Review protocols for liver and heart with a view to developing similar protocols for paediatric lung. g. Older Donors Review upper age limit with regards to lung donors 8
1. Name Renal Transplant Advisory Committee (RTAC) 2. Chair Scott Campbell 3. Size (including Ex-officio members ) 18-22 4. Membership Name Dr. Henry Pleass Kate Wyburn Scott Campbell Tony Griffin Graeme Russ Toby Coates Shlomo Cohney Frank Ierino Ashley Irish Frank Christiansen Interest Group/Jurisdiction Surgeon, West Sydney Area Health Service (NSW/ACT) Doctor, Royal Prince Alfred Hospital (NSW/ACT) Consultant Renal Physician, Princess Alexandra Hospital Director Renal Transplantation, Princess Alexandra Hospital Professor and Director of Nephrology and Transplantation Services at the Queen Elizabeth Hospital (SA/NT) Renal Transplant Nephrologist and Laboratory Head (SA/NT) Physician, Consultant Nephrologist Physician-in-charge of Transplant, Royal Melbourne Hospital (Vic/TAS) Transplant Physician, Associate Professor and Deputy Director of the Renal Unit at Austin Health (VIC/TAS) Nephrologist, Director of Physician Training at Royal Perth Hospital (WA) Professor Department of Immunology Royal Perth Hospital (WA) 9
Ian Dittmer Christine Russell Stephen May Frank Ierino Rhonda Holdsworth Julie Haynes David Parker/ James Dellit Jeremy Chapman EX Officio Jenni Wright Alison Bond Ellie McCann Transplant Nephrologist, Renal Clinical Director, ADHB Renal Transplant Surgeon Chair DNT Committee TSANZ Representative ASEATTA Rep ATCA Rep Consumer Representative NOMS Manager NOMS Analyst ARCBS Transplant Systems Manager Organ Donation Agency Managers Group 5. Meeting Schedule 2011/12 Date* Type of meeting 29 November Face to Face Meeting 2011 8 May 2012* Face to Face Meeting 26 June 2012 Face to Face Meeting (wider interest group) Canberra *To be confirmed 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. TOR Adoption of the new TOR b. Wait List and Allocation Criteria Allocation algorithms require more work, definition of an ECD kidney for the 10-15% for donor kidneys (deceased); tissue typing and its implication on NOMS functionalities, especially the IT system. c. Quality Assurance Auditing and monitoring of the Interstate Exchange. 24/12/2012 Ongoing 10
1. Name Pancreas and Islet Advisory Committee 2. Chair John Kanellis 3. Size (including Ex-officio members) 17 (TBC) 4. Membership (To be determined) Name John Kanellis Interest Group/Jurisdiction Associate Professor, Head of Transplantation and Deputy Director of Nephrology Monash Medical Centre 11
5. Meeting Schedule 2011/12 Date Type of meeting 15 February Teleconference 26 June 2012 Face to Face Meeting, Canberra *To be confirmed 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. TOR Adoption of TOR 31/03/2012 b. Wait List Data Collate wait list data biannually (June & December) by both solid pancreas and islet transplants units by categories 1-4 31/12/2011 c. Organ Allocation and National Rotation and circulate these to the interest group Review draft protocol in consultation with ATCA 31/03/2012 12
1. Name Tolerance Working Group 2. Chair Frank Ierino 3. Size (# of members in the Group) 16 (TBC) 4. Group composition (TBC) Name Frank Ierino Stephen Alexander Alex Bishop Mauro Sandrin Barbara Fazekas Interest Group/Jurisdiction Transplant Physician, Associate Professor and Deputy Director of the Renal Unit at Austin Health. Head of Laboratory Research, Centre for Kidney Research, Children s Hospital at Westmead Senior Research Fellow, Medicine - Central Clinical School, University of Sydney Professor, Department of Surgery, The University of Melbourne Professor, Centenary Institute Glen Westall Bruce Hall Keryn Williams Shane Grey Alex Sharland Head of the National Funded Centre for Paediatric Lung Transplantation, The Alfred Professor of Medicine, Immune Tolerance Laboratory, Faculty of Medicine, University of New South Wales Professor School of Medicine Flinders University, Associate Leader, Ophthalmology, Eye and Vision (SA) Associate Professor, Garvan Institute Senior Lecturer, Medicine, Central Clinical 13
Toby Coates Rob Carroll Geoff Hill Steve McTaggart Andrew Lew Derek Hart Stephen Munn School, University of Sydney. Renal Transplant Nephrologist and Lab Head (SA/NT) Physician, SA Health (SA) Professor at Griffith University and Associate Professor at the University of Queensland Clinical Haematologist, Nephrologist, Queensland Child and Adolescent Renal Service, Royal Children s Hospital Physician, Immunology Division and Inflammation Division, the University of Melbourne, Walter and Eliza Hall Institute of Medical Research, Department of Medical Biology Transplantation and Immunotheraphy, University of Sydney Surgeon, Professor and Director of Liver Transplant Unit, Auckland Hospital 5. Meeting Schedule 2011/12 Date To be decided Type of meeting Workshop 1 : Immune monitoring Flow Cytometry Workshop (Funding to be requested from B&D) To be decided Workshop 2:TSANZ Workshop (ASI) Melbourne 2012 26 June 2012* Face to Face Meeting, Canberra *To be confirmed 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. Tolerance Workshop Organise workshop 13/12/2011 b. Treg Flow analysis Standardise analysis c. Patient Register Develop a separate Australia-wide Register for renal and liver patients (off immunosupp) 14
1. Name Paediatric Working Group 2. Chair Steven McTaggart 3. Size (# of members in the Group) 15 4. Group Composition Name Steven McTaggart Bob Jones Winita Hardikar Rowan Walker Stephen Alexander Fiona Mackie Albert Shun Rebecca Spicer Deborah Lewis Sean Kennedy Peter MacDonald Interest Group/Jurisdiction Dr, Queensland Child and Adolescent Renal Service, Royal Children s Hospital Transplant Surgeon, Professor and Director of the Victorian Liver Transplant Unit Associate Professor, Head of Liver and Intestinal Transplantation Department of Gastroenterology Royal Children's Hospital Melbourne Associate Professor, Department of Nephrology, The Alfred Hospital Head of Laboratory Research, Centre for Kidney Research, Children s Hospital at Westmead Physician, Department of Nephrology, Sydney Children s Network Transplant Surgeon, Sydney Children s Hospital at Westmead Sydney Children s Hospitals Westmead Physician, Childrens Hospital at Westmead Physician, Sydney Childrens Hospital, Randwick Professor, Cardiac Transplant Clinic, St Vincents Hospital 15
Tony Griffin Stephen Munn Kathe Beyerle Lyn Crellin Surgeon, Director Renal Transplantation, Princess Alexandra Hospital Surgeon, Professor and Director of Liver Transplant Unit, Auckland Hospital Liver Transplant Coordinator, Royal Childrens Hospital, Melbourne Transplant Coordinator, Royal Childrens Hospital, Melbourne 5. Meeting Schedule 2011/12 Date Type of meeting 14 February 2012 Teleconference 26 June 2012* Face to Face Meeting, Canberra *To be confirmed 6. Work Plan 2011/12 Topic Issue Reporting Timeframe a. Position Statement on Requirement for Transition Develop a protocol on behalf of TSANZ on requirement for transition 30/06/2012 b. Paediatric Allocation Protocols c. Paediatric Representation Organ allocation protocols in respect to paediatric donors. Lobby TSANZ for paediatricians to be represented in all the TSANZ Advisory Committees 30/06/2012 31/03/2012 16
1. Name Xenotransplantation Working Group 2. Chair Peter Cowan 3. Size (including Ex-officio members ) (12) 4. Group Composition (TBA) Name Peter Cowan Tony d Apice Karen Dwyer Hilton Gock Wayne Hawthorne Frank Ierino Andrew Lew Ian McKenzie Philip O Connell Mauro Sandrin Alexandra Sharland Charmaine Simeonovic Interest Group/Jurisdiction Professor, Department of Clinical Immunology, St Vincents Hospital Professor (retired), University of Melbourne Doctor, Immunology Research Centre, St Vincent s Hospital Melbourne Doctor, Immunology Research Centre, St Vincent s Hospital Melbourne Doctor, Westmead Millennium Institute, Westmead Hospital Associate Professor, Austin & Repatriation Medical Centre/University of Melbourne Associate Professor, Immunology Division, Walter and Eliza Hall Institute of Medical Research Professor (retired), University of Melbourne Professor, Westmead Millennium Institute, Westmead Hospital Professor, Department of Surgery, University of Melbourne Doctor, University of Sydney Doctor, John Curtin School of Medical Research, ANU (ACT) 17
5. Meeting Schedule 2011/12 Date Type of meeting 26 June 2012* Face to Face Meeting, Canberra *To be confirmed 6. Work Plan 2011/12 (Nil) Topic Issue Reporting Timeframe *Note: At the time of compiling this report discussions were ongoing between TSANZ and Chairs of the Coronary and Tissue Working Group on their structure. Hence, their membership and workplans were not available. 18