HIV Home Care Program (HHCP)

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HIV Home Care Program (HHCP) New Jersey Department of Health and Senior Services Division of HIV, STD and TB Services

Background Funded since 199 by HRSA with Ryan White Part B dollars Medicaid Model Alternative care setting to hospital, nursing home, institution Medical care in the home of individuals with HIV/AIDS Eligibility NJ Resident Income Proof of insurance/lack of insurance Physician documented HIV/AIDS Physician certified diagnosis/surgery related to HIV/AIDS requiring home care services Require direct, hands-on nursing care or the supervision by a registered nurse or hands-on care provided by a home health aide or personal care assistant for chronic or medical dependencies

Purpose Provide home care service for individuals with no or limited insurance Fills the gap in medical care services from hospital discharge until long term insurance is applied for & enrollment confirmed Provide wrap-around services if third party or private insurance is inadequate Provide service if denied long term insurance or ineligible for insurance Must be used as payer of last resort

Administration Statewide network of certified home health care agency providers Annual application for Letter of Agreement (LOA) LOA includes: Eligibility Requirements, Service Categories and Rates, Reporting Requirements Agencies receive referrals from hospitals, physicians, clinics, social service agencies, family

Program & Fiscal Standards HRSA - April 211, 212 Provide skilled health services in the home for a medical diagnosis/surgery related to HIV/AIDS Skilled nursing (SKN) need Nursing home level of care Require assistance w/activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) in neuro/cognitive deficiencies (neuropathy, dementia) Based on a written Physician Certification and Plan of Care prepared by a case management team including health care professionals Case manager prepares Physician Certification and Plan of Care based on assessment Includes service type, quantity, duration of services Treating physician certifies diagnosis and care every 6 days Ongoing communication/coordination of services among team Provided services are documented in a record keeping system Service, date, location (home) & provider signature

Program & Fiscal Standards HRSA - April 211, 212 Services are provided by professionals with appropriate licensure/certification as required by law Ryan Whites funds are payer of last resort; maximize 3 rd party funds Assess insurance status Assist and document steps taken to enroll eligible uninsured clients into Medicare, Medicaid, private insurance, SSI, SSD Coordinate benefits; obtain approval/denial of 3 rd party sources Compliance with HRSA standards is assessed Biannual site visits by program Coordinator Ongoing communication with providers to ensure compliance

Additional HRSA Requirements Assess, Track and Monitor Clients are in care and stay in care Routine care visits Clients receive appropriate laboratory tests CD4, Viral Load, etc. Clients receive appropriate Antiretroviral Therapy Assess compliance Monitor client data Track outcomes

Application and Monitoring Process Form Frequency Purpose Eligibility Application/ Renewal Client Assessment Case Management Client Care Plan Medical Certification by Physician Physician Certification & Care Plan Client Intake Form submitted to HHCP Client Monitoring Record & Progress Notes Client Quarterly Status Report Admission & Every 6 months Admission Admission & Every 6 days Admission Monthly Quarterly Determines eligibility; income, insurance Documents health/mental health, social, physical environment, met/unmet needs Documents services provided by all sources Certifies HIV & HIV-related medical/ surgical condition requiring care; Baseline CD4/Viral Load/ART/Linkage Certifies HIV-related condition & care every 6 days Ongoing CD4/Viral Load/ART/Linkage Summarizes data to determine eligibility Documents monthly visits, communication with client & health team Documents ongoing medical and insurance status

HHCP Client Hospital medical/surgical discharge requiring continued care at home Newly diagnosed HIV+ with an OI HIV+ and on medications for many years with: Multisystem Failure Chronic Condition: Liver/Kidney/Pulmonary/Cardiac Neuro-cognitive process; dementia, neuropathy Reflects NJ aging HIV/AIDS population

Clients Served 4/1/11-3/31/12 by County/Provider Agency County Clients Served New Admits Discharge* Clients 3/31/12 Burlington 1 1 Essex Middlesex Somerset Monmouth 7 1 1 12 5 3 1 5 3 1 Hunterdon 1 1 Hudson Bergen 2 4 Mercer 1 1 Passaic 26 5 15 11 1 6 1 7 7 1 2 14 3 *Reason for Discharge 17 Improved 11 Medicaid/Waiver 6 Expired/Hospice 4 Unable to Locate/ Other Enrollment changes monthly due to constant movement of new admits/discharges 4 new clients in April Union 8 2 3, 5 Sussex Ocean Warren Totals 91 31 38 48

Clients Served 4/1/12-6/15/12 by County/Provider Agency County Clients Served New Admits Discharge * Clients 6/15/12 Burlington 1 1 Essex Middlesex/ Somerset Monmouth 8 1 4 Hunterdon 1 1 Hudson/ Bergen 1 2 2 18 1 2 6 1 4 2 16 *Reason for Discharge 3 Improved 5 Medicaid/Waiver 1 Expired/Hospice 2 MICA Enrollment changes monthly due to constant movement of new admits/discharges Mercer 1 1 Passaic 16 5 6 1 Union 5 1 5 Atlantic Ocean Warren Totals 64 11 11 53

Client Demographics 4/1/1-3/31/11 4/1/11-3/31/12 Clients Served N = 84 N = 91 Sex Male Female Age 13-24 Yrs 25-44 45-64 65+ Race White Black Hispanic Asian/PI Other/Unknown 65% 35% 1% 15% 73% 11% 2.5% 57% 19% 1% 2.5% 62% 38% 1% 17% 74% 8% 21% 53% 22% 1% 3%

Services Monthly Case Management All clients receive monthly case management home visit Skilled Nursing (SKN) SKN Visit (hands-on care, or behavioral, IV, respiratory, diagnostic service by a registered nurse); and/or Home Health Aide/Personal Care Assistant with SKN; and/or supervision; and or Medical Day Care Clients may also be eligible for: Professional Therapy (Occupational, Physical, Speech, Behavioral) Nutritional Counseling/Supplements Respiratory Therapy Durable Medical Equipment Escort Service Diagnostic Testing

Accomplishments Re-establish health status after hospital discharge Gain functioning health level; perform ADLs and IADLs Care while awaiting approval of services by third party payers Prevent hospital/institutional care; maintain dignity at home Ensure linkage to care, laboratory testing, medication adherence Ensure Ryan White Funds are payer of last resort by linking to long term/third party sources when possible; coordinate services appropriately Quality care by the statewide network of HHCP Providers

Accomplishments Ensure appropriate & adequate services to eligible individuals Physician certified home care services Annual Quality Assurance Review Biannual site visit/chart review Ongoing communication with home care provider agencies What the HIV Home Care Program is not: Source of lifetime services Housekeeping service Companion service Source of DMEs

Challenges Securing home care agencies throughout the state Sussex, Morris, Camden, Gloucester, Cape May, Cumberland, Salem, Warren Must be private non-profit agency Predicting client numbers Medicaid HMOs Expansion of NJ Medicaid Increases clients transitioned to Medicaid to ensure payer of last resort requirement Predicting an operating budget No way to predict who will get sick and at what cost

213 Income Guidelines (Based on U.S. Department of Health and Human Services Poverty Guidelines) Household is a domestic establishment which includes members of a family and/or others living under the same roof. The number of persons in a household includes: 1) those persons whose living situation is supported primarily by the individual making application to the program; 2) the parent or guardian in the case of an adolescent; and 3) other persons contributing to the primary support of the applicant. Provide proof of income and 2 proofs of residency in client record. If client filed Income Taxes, provide copies in client record # Persons in Household Maximum Monthly Income Limit 1 $4,788 2 $6,463 3 $8,138 4 $9,813 5 $11,488 For households w/more than 5 persons, add $1675 for each additional person

Statewide Provider Network

Contact Division of HIV, STD and TB Services 5 East State Street PO Box 363 Trenton, NJ 8625 Sally D Errico, MEd, BSN Phone: 69-984-6328 Fax: 69-984-6495 Email: Sally.D Errico@doh.state.nj.us

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