6th Global Patients Congress Better access, better health: A patient-centred approach to universal health coverage

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6th Global Patiets Cogress Better access, better health: A patiet-cetred approach to uiversal health coverage Cogress Programme Macdoald Berystede Hotel, Ascot, UK 29 31 March 2014 Co-fuded by the Health Programme of the Europea Uio With the support of Most patiets orgaizatios aroud the world face similar issues; patiet-cetred healthcare is radically differet from what we have ow; together we have a voice. Lesley Jorda, INPUT Patiet Advocacy, UK, Delegate at the 5th Global Patiets Cogress

About the Cogress IAPO is pleased to share the programme for its 6th Global Patiets Cogress. This Cogress is the global evet for patiet leaders ad others workig to improve healthcare systems. The 6th Global Patiets Cogress will brig together expertise ad experiece i how to build patiet-cetred healthcare globally. The Cogress provides a global platform for high-level policy debate, kowledge ad skills-buildig as well as opportuities for exchage ad etworkig. The programme features plearies with keyote speakers ad a rage of parallel sessios, icludig papers submitted through a ope call process. The member day programme will explore how patiet ivolvemet ca achieve access to healthcare through workshops ad iteractive forums. The multistakeholder programme will explore a patiet-cetred approach to uiversal health coverage withi three areas: equity, quality ad fiacig. Multi-stakeholder pleary ad workshop sessios will explore questios such as: What are the barriers to access to healthcare i differet world regios? What are the priciples that promote equity? What are the idicators of quality healthcare? What is the value of iovatio? How should healthcare be fiaced? Better access, better health: A patiet-cetred approach to uiversal health coverage A key priciple of patiet-cetred healthcare is access to healthcare, but what does this look like? Accordig to IAPO s Declaratio o Patiet-Cetred Healthcare, it must be safe ad of high quality, uiversal (patiets must have access to the healthcare services warrated by their coditio) ad tailored to patiets eeds. These priciples are cetral to the World Health Orgaizatio (WHO) defiitio of uiversal health coverage (UHC), with syergies betwee IAPO s work o patiet-cetred healthcare ad global efforts to achieve uiversal health coverage. The Cogress will explore how a patiet-cetred approach ca address the factors that will lead to UHC ad cosider the patiet s perspective. A amazig evet that brought together people from aroud the world! They have a commo bod ad seem to work together as oe. It was a eve playig field for all the orgaizatios. That is a rare thig i today s world. It is my sicere hope that IAPO cotiues its work for a log time. Thaks for brigig these folks together. Peey Cowa, America Chroic Pai Associatio, USA

6 th Global Patiets Cogress Better access, better health: A patiet-cetred approach to uiversal health coverage Macdoald Berystede Hotel, Ascot, UK 29 31 March 2014 u Keyote speakers cofirmed: Dr Marie-Paule Kiey, Assistat Director-Geeral, World Health Orgaizatio Dame Sally Davies, Chief Medical Officer, UK Govermet Sir Michael Hirst, Presidet, Iteratioal Diabetes Federatio Cogress Programme u Saturday 29 March IAPO MEMBER ONLY DAY 08.00 Breakfast briefig (How to get the most from the Cogress) 09.00 Registratio ad refreshmets 09.30 IAPO Aual Geeral Meetig 11.00 Refreshmet break 11.30 Pleary Sessio: Achievig access to healthcare 13.00 Luch 14.00 REGIONAL WORKSHOPS: Patiet ivolvemet i access to healthcare i each world regio 14.45 Case studies of regioal work ad feedback from regioal workshops 15.45 Refreshmet break 16.15 Buildig patiet ivolvemet i UHC globally 16.30 World café: A global patiet movemet priciples o UHC from a patiet s perspective 17.30 Roud up ad coclusios 17.45 Close of the day 18.30 Welcome receptio (All welcome) 20.00 Thak you dier for Cogress sposors, parters, edorsers ad advisory committee at the Royal Berkshire Hotel Truly ispirig stories showig the impact of the voice of patiet orgaisatios, especially whe workig together. (Tweet o the 5th Global Patiets Cogress) It was superb because it provided a opportuity to get cross-fertilizatio of ideas with regard to amplifyig the patiet voice. Further to this I was able to etwork with idividuals from orgaizatios that are implemetig programmes that may be beeficial to or complemet our activities. Ellos Lodzei, Patiet ad Commuity Welfare Foudatio, Malawi u Suday 30 March MULTI-STAKEHOLDER DAY 08.30 Registratio ad refreshmets 09.30 Pleary Sessio: Better access, better health 10.30 Refreshmet break 11.00 Streamed Sessios: E1: Equity Stream Esurig access for all 12.30 Luch 13.30 Streamed Sessios: E2: Equity Stream Patiet-led iitiatives for patiet-cetred healthcare 15.00 Refreshmet break 15.30 Pleary Sessio: Breakig barriers to access 17.30 Close of the day Q1: Quality Stream Challeges i achievig quality i healthcare Q2: Quality Stream Patiet safety: the impact of patiets i improvig quality of care F1: Fiacig Stream Healthcare fiacig i the 21st cetury F2: Fiacig Stream Access to healthcare who decides? 19.00 Driks receptio followed by Cogress gala dier Sposorship ad exhibitio opportuities IAPO welcomes iterest i supportig ad participatig i the Cogress from a wide rage of orgaizatios ad idividuals. We have may differet packages to suit all budgets ad would be happy to tailor a bespoke package for you. View our sposorship prospectus at: www.globalpatietscogress.org. For further iformatio please cotact Rebecca Johso by phoe o +44 20 7250 8281 or by email at: rebecca@patietsorgaizatios.org. u Moday 31 March MULTI-STAKEHOLDER DAY 08.00 Registratio ad refreshmets 09.00 Streamed Sessios: E3: Equity Stream Patiet empowermet a visio for the future 10.30 Refreshmet break 11.00 Pleary Sessio: Egagig patiets to achieve uiversal health coverage 13.00 Luch ad close of Cogress for delegates u How much is it to register to atted the Cogress? To thak our members for their cotiued commitmet to IAPO, we are pleased to offer all member orgaizatios ONE FREE delegate place at the Cogress (subject to availability). All subsequet delegate requests will be placed o a waitig list ad offered a place if room is available. Registratio fees for subsequet delegates ad ivited guests vary depedig o the type ad icome level of the orgaizatio. Delegate Type Q3: Quality Stream Measurig quality through patietcetred idicators Early Bird Discout 1: 20% off book ad pay o or before Fri 1 Nov 2013 F3: Fiacig Stream Uiversal health coverage a patietcetred visio Early Bird Discout 2: 10% off book ad pay o or before Fri 31 Ja 2014 Stadard Fee All IAPO members first participat oly FREE FREE FREE Subsequet participats from IAPO members with 160 180 200 icome US $1,000,000 Subsequet participats from IAPO members with 400 450 500 icome US $1,000,001 Ivited guests ot for profit / academic 560 630 700 Ivited guests for profit 1,600 1,800 2,000

Travel Guide Accommodatio The Cogress veue, the Macdoald Berystede Hotel i Ascot, ear Lodo, is a four-star hotel surrouded by beautiful ladscaped gardes. The Berystede has worked hard to accommodate the requiremets of participats at the IAPO Cogress with disabilities ad is refurbishig some of its guestrooms to make them more accessible for guests, whilst retaiig its woderful Old Eglish coutry maor appeal. The veue is fully accessible to wheelchair users ad guide dogs are welcome to stay free of charge. Room service is available 24 hours a day, while Wi-Fi throughout the hotel ad osite parkig are complimetary. Bookig your accommodatio Delegates are required to book their ow accommodatio directly with the Macdoald Berystede Hotel. Rooms are priced at 99 per ight (reduced from 126) ad are reserved o a first come, first served basis, so you are advised to book as early as possible. I case of oversubscriptio, IAPO has arraged for the same room rate to be offered to delegates at other earby hotels. Details of how to book your accommodatio will be set to you upo your successful registratio for the Cogress. Please ote that the Cogress veue is ot a cetral Lodo veue. If you do ot choose to stay at this veue, you are advised to stay at aother hotel i or ear Ascot. Please check travel routes ad jourey times to the Berystede from your chose hotel i advace. It is ot advisable to stay at a cetral Lodo hotel as your travel time betwee hotel ad veue could be over a hour. Travel iformatio Access to the Macdoald Berystede Hotel is very easy by car or from Lodo Heathrow Airport, which is just 15 miutes away. IAPO expects to operate a free shuttle service to ad from the airport (Cogress delegates will be set further details earer the evet date). Alteratively, the earest trai statio is Ascot, approximately 2km away, from where taxis ca be arraged. Visas Some visitors to the UK will require a visa. We recommed that all delegates check their idividual coutry visa requiremets as soo as possible. Please see: www.ukvisas.gov.uk/e/doieedvisa. IAPO ca provide letters of ivitatio if ecessary. Please idicate your eed o the registratio form or email your request to us at: ifo@globalpatietscogress.org. Great opportuity to meet ew ad existig cotacts, to lear about the latest iitiatives i patiet-cetred healthcare ad to share iformatio about our programmes ad work. I am hopig to work more closely with IAPO s Africa etwork, thikig of potetially valuable ways to collaborate. Aa Lee, Patiets for Patiets Safety, World Health Orgaizatio

Frequetly Asked Questios 1. Who will atted? The diversity of IAPO s membership makes it such a powerful voice for patiets. As well as patiets ad patiet represetatives, you ca expect to meet a wide rage of healthcare stakeholders at the Global Patiets Cogress, icludig healthcare professioals, academics, represetatives of govermetal orgaizatios ad healthcare agecies. 2. How do I register to atted the Cogress? Coferece attedace is curretly ope to IAPO members ad ivited guests oly. You ca register olie at: www.globalpatietscogress.org. (If you are uable to complete a olie registratio form, please email us at ifo@globalpatietscogress.org for assistace.) 3. What is icluded i the Cogress registratio fee? The registratio fee icludes etry to the Cogress sessios, luch ad refreshmets o all days of the Cogress, a Cogress delegate pack, welcome receptio ad Cogress Gala Dier. Please ote that registratio fees do ot cover travel to or from the Cogress, accommodatio or ay icidetals. 4. Ca I get fudig to atted? Oe delegate from each IAPO member orgaizatio ca apply for the IAPO Cogress Bursary, which will be ope util 30 September 2013. There are limited places available o the Cogress Bursary ad we caot guaratee that all applicatios will be successful. IAPO members receivig a bursary from IAPO will do so o the uderstadig that this is to facilitate the attedace of oe represetative of their orgaizatio. 5. How is the Cogress fuded? The Cogress receives sposorship from a umber of sources, icludig IAPO s healthcare idustry parters, the ot-for-profit sector, academic istitutios ad IAPO members. The registratio fees are also used to cover the costs of the Cogress. 6. How ca I support the Cogress? IAPO would gratefully receive ay cotributios towards the Cogress, either i a sposorship capacity or through doatios to the Cogress Bursary fud, which supports all or some of the costs of attedace for IAPO members who would ot otherwise be able to participate. To view the sposorship prospectus or to make a olie doatio to the Bursary fud, go to: www.globalpatietscogress.org. 7. Ca I brig more tha oe delegate to the Cogress? Oe represetative from each IAPO member orgaizatio ca atted (subject to availability). All extra represetatives, regardless of orgaizatio icome, will be placed o a waitig list ad registered o a first come, first served basis. Other stakeholders are by ivitatio oly. 8. Will my special requiremets be catered for? If you have ay special dietary, access or other eeds, please let us kow before the evet by submittig your relevat details o the olie registratio form or by emailig us at ifo@globalpatietscogress.org. We will do our best to accommodate your eeds. 9. Will I get the opportuity for sightseeig? IAPO may ru a sightseeig trip to a local attractio o 31 March after the Cogress has closed if there is sufficiet iterest. Please idicate your iterest o the registratio form (please ote that there will be a extra fee for this trip if it goes ahead). Otherwise, the Berystede s cocierge desk would be happy to orgaize a idividual trip for you, which ca be arraged upo check-i. 10. Who ca I cotact if I have further questios? If you have ay further questios about the Cogress, please do ot hesitate to cotact the Evet Coordiator by email at ifo@globalpatietscogress.org or by phoe o +44 1932 429610. (Please ote that this umber is moitored o Tuesdays ad Thursdays oly. Voicemail messages are checked at the ed of every workig day.) Alteratively, you ca call the mai IAPO office o +44 20 7250 8280. 11. How ca I keep up-to-date with the Cogress? Joi the discussios! For the latest iformatio o the Cogress, like IAPO o Facebook ad follow us o Twitter. /iteratioalalliaceofpatietsorgaizatios /IAPOtweets Cogress hashtag: #GPC2014 49 51 East Road, Lodo N1 6AH, Uited Kigdom Tel: +44 20 7250 8280 Fax: +44 20 7250 8285 Email: ifo@patietsorgaizatios.org www.patietsorgaizatios.org Cogress website: www.globalpatietscogress.org