EnComPaSS: An innovative approach to community-based palliative care delivery

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EnComPaSS: An innovative approach to community-based palliative care delivery Describe an evaluation of the first European e-shift project in a UK hospice the St Luke s e-shift model (EnComPaSS). Professor Debbie Fitzsimmons

Palliative care need: Sheffield - The Steel City High level of health inequality Population of over 575,000 1% die each year (5,750) Palliative care providers: Macmillan Unit, Sheffield Teaching Hospital 18 bed unit St Luke s Hospice 20 bed unit Therapies and Rehabilitation Centre Small community team (band 7 nurses) NIHR CLAHRC Yorkshire and Humber EnCOMPASS Project

Challenges for palliative patients Limited supply of: Palliative care in-patient care Community-based palliative care Symptom escalation: Patient, family and carers unable to cope 999 call leading to hospital admission Lack of support for discharge back home Extended stays in hospital Hospital becomes default place of death EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Traditional Community Care Model 1:1 experienced Band 7 RN to Patient Costly Can t be scaled Limited number of experienced specialist RNs Palliative RN training - accompanying experienced RN EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

EnComPaSS Approach Expand capacity of existing specialist (palliative) nurses Technology-enabled care provision Embedded ipos Specialist nurse works remotely Monitors, mentors, and supports junior nurses Safely and cost-effectively supports patients in home Grow your own training programme for palliative nurses EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Implementation and initial data collection 2014 2015 2016 Hospital admissions data T1 Funding awarded February 2015 Implementation and preparation T1 = 1st October 2014 30th September 2015 T2 = 1st October 2015 30th September 2016 Hospital admissions data T2 First wave: 4 nurses March 2016: fully live system New MDT meeting structure Systematic Recording of IPOS NIHR CLAHRC Yorkshire and Humber EnCOMPASS Project

Findings: Changes to visit types Band 5 nurses able to provide community services Reduced need for joint visits and consultant visits Mar-Sep 2015 Mar-Sep 2016 Difference Band 5 Nurse - Visit 0 286 286 Consultant - Joint visit 65 28-37 Consultant - Visit 40 20-20 Nurse - Joint visit 170 51-119 Nurse - Visit 3361 2730-631 Specialist Palliative Registrar - Joint visit 84 45-39 Specialist Palliative Registrar 5 125 120 Grand Total 3725 3285-440 NIHR CLAHRC Yorkshire and Humber EnCOMPASS Project

Changes to visit times: 800 700 600 Number of patient visits 500 400 300 200 100 0 0 4 8 9 10 11 12 13 14 15 16 17 18 19 Time of patient visits (24hr) March - Sept 2015 March - Sept 2016

Staff experience and perspectives: Data entry: I use the laptop, I started with the phone and it was awful I had patients commenting that I looked like I was texting I do find the phone is quite difficult you look more professional I think if you have got a laptop in front of you When the NHS systems were affected by the Malware I had a couple of visits and actually recording those visits was more laborious because I had to use free text, whereas if we d had e-shift running, it would have been a case of use of the drop down menus and that sort of thing certainly for medications EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Interdisciplinary working: I can, as a delegator, divert anybody in the team that s got their phone or their laptop, back to that patient that I saw the day before because they can access what I ve done and the history [is] there in their hand, so that s a really useful thing Quality of assessments: I think IPOS and e-shift have married together really well, to make everybody have like a structured assessment which has only enabled better communication between ourselves about actually what s going on with that patient, to make ultimately decisions, more clear because before you went with the flow of what the patient was needing to talk about, but that meant that you probably missed other things EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Changes to hospital admissions/los: Improved care results in reduced/more appropriate admissions: Admissions 2014-15 2015-16 Hospital Frequency Percent Frequency Percent Change% NGH 4609 79.9 3441 75.7 4.2â WPH 720 12.5 738 16.2 3.7á RHH 442 7.7 369 8.1 0.4á General Hospital with Emergency Department Cancer Specialist Hospital Total 5771 100.0 4548 100.0 NIHR CLAHRC Yorkshire and Humber EnCOMPASS Project

Improved care results in reduced LOS: Hospital admissions data T1 Hospital admissions data T2 Difference Hospice Patients Patients admitted to Hospital Total admissions Admissions per patient Length of Stay per admission Total hospital time Total time per acute patient 1521 1501 20 1238 1156 82 5771 4548 1223 4.66 3.93 0.73 6.23 days 5.99 days 0.23 days 35902.46 days 27008.60 days 8,893.86 days 29.00 days 23.36 days 5.64 days

Health system savings: Assumptions: a) Admissions accepted by the hospice community service remain static b) All acute admissions are to bed-based services, at a cost of specialist palliative care of 371/bed day (PSSRU, Unit Costs of Health and Social Care 2015). 1,156 patients save 5.64 acute care bed days per patient 1,156 pts x 5.64 days = 6,519.84 days saved 6,519.84 days x 371 = 2,418,861 per year EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Benefits of approach: Synchronous online patient information available - Improves communication / coordination Supports interdisciplinary working - By different providers (acute/community/third sector) - By different professionals (nurses/ot/pt/slp) Supports delegated care delivery - By more junior nurses - By assistant practitioners - By unregistered care providers (care aides) Facilitates timely, seamless care delivery EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Future UK implementation projects: Potential solution for acute sector bed blocking issue: - Early discharge programs: COPD CHF Stroke New community care provision: - Post-surgery wound care EnComPaSS project (Enhanced Community Palliative Care Support Services) www.clahrc-yh.nihr.ac.uk

Thank you! Project Team: Professor Debbie Fitzsimmons, Project Lead D.A.Fitzsimmons@ljmu.ac.uk Professor Sue Mawson, NIHR CLAHRC YH Director s.mawson@sheffield.ac.uk Dr Steven Ariss, Evaluation Lead s.ariss@sheffield.ac.uk EnComPaSS Project: http://clahrc-yh.nihr.ac.uk/industry/case-studies/sensory-technologies NIHR CLAHRC Yorkshire and Humber website: www.clahrc-yh.nihr.ac.uk https://www.eshiftcare.com/land This research was funded and supported by the NIHR Collaboration for Leadership in Applied Health Research and Care Yorkshire and Humber (NIHR CLAHRC YH). www.clahrcyh.nihr.ac.uk. The views and opinions expressed are those of the author(s), and not necessarily those of the NHS, the NIHR or the Department of Health. www.clahrc-yh.nihr.ac.uk