Counting past One. Anne Muldowney Senior Policy Advisor

Transcription

1 Counting past One Anne Muldowney Senior Policy Advisor Overcoming the challenges of managing chronic diseases in persons with dementia Friday 23 February 2018

2 Healthcare that counts past one 21C healthcare for people with multimorbidity Multidisciplinary and integrative Values both generalist and technical skills Draws on specialist insight and skill Balanced and seamless Empathetic to people with dementia and their families Understands management of chronic disease from viewpoint of patient and family Banerjee, S. (2015). Multimorbidity - older adults need health care that can count past one. The Lancet, (9968), 587. doi: /s (14)

3 The double burden of disease Carers own health challenges Chronic conditions results : SAMSS Carers compared with non-carers more likely to report 49% - Asthma 43% - Diabetes 40% - COPD 34% - Arthritis 34% - Mental Health related conditions 29% - CVD Stacey, A., Gill, T. and Price, K. (2017), A Report Card on Carer Health in SA, The University of Adelaide

4 The invisible workforce (National Health and Hospital Reform Commission) Carers often: take on the role of care coordinators and advocates liaise between health professionals feel lost when navigating a complex health care system don t seek help for their own health needs

5 Carer roles and responsibilties Nine care processes identified monitoring the person s condition interpreting observations decision-making about which course of action to pursue taking appropriate action making adjustments accessing external resources working together with the person receiving care negotiating the health system providing hands-on care. Schumacher, K. L., Stewart, B. J., Archbold, P. G., Dodd, M. J., & Dibble, S. L. (2000). Family caregiving skill: development of the concept. Research in Nursing & Health, 23(3),

6 Triangle of care

7 Potential scenarios Point of diagnosis Care at home/ residential care End of life care Your patient is a carer Your patient has a carer Both carer and person receiving care are your patients

8 Relevant legislation Privacy Act 1988 (Australia) Health Records Act 2001 (Victoria) Mental Health Act 2014 (Victoria) Carer Recognition Act 2010 (Australia) Carers Recognition Act 2012 (Victoria)

9 Partners in care Carers should be supported to enjoy optimum health and social wellbeing and to participate in family, social and community life Carers should be acknowledged as individuals with their own needs within and beyond the caring role The relationship between carers and the persons for whom they care should be recognised and respected Carers should be considered as partners with other care providers in the provision of care, acknowledging the unique knowledge and experience of carers Carers should be treated with dignity and respect.

10 The carer in your team Coordinating a team based approach to care that includes and supports carers, involves: Recognising the importance of organised and structured care planning involving carers and other family members as part of the multi disciplinary team Considering how your patient s illness may be affecting his or her carers' health (from a medical, social and financial perspective) Identifying the implications for carers of any changes made to your patients' management plans UK Royal College of General Practitioners (2014) Involving and Supporting Carers and Families An educational framework and learning resource for GPs and primary care teams

11 Assessing and helping carers

12 The Evidence is in the implications of research as well as principles of good practice unequivocally support the premise that assessing caregivers is a necessary and essential part of working with older clients in virtually every setting. Professor Steven Zarit, cited in: Cameron, I. D., Aggar, C., Robinson, A. L., & Kurrle, S. E. (2011). Assessing and helping carers of older people. BMJ, 343, d5202

13 Identifying carers Hidden carers of people with long-term conditions Don t recognise themselves as carers Comparisons to real carers Most focus is on carers of very dependent people Desire to protect the cared-for person s identity as independent Hidden caring in the context of self-management of long term conditions at home Health professionals can help legitimise the carer role and signpost them to support Knowles, S., Combs, R., Kirk, S., Griffiths, M., Patel, N., & Sanders, C. (2016). Hidden caring, hidden carers? Exploring the experience of carers for people with long-term conditions. Health & Social Care In The Community, 24(2), doi: /hsc.12207

14 Join the Campaign

15 Carers ID Simple online referral Securely request carer contact Minimal information required Carer contacted by one of our qualified Carer Advisors Links carers to programs delivered by Carers Victoria or other organisations.

16 Representation and support for carers Policy and Research Counselling Education and Training Carers Victoria Carer Support Work Information and Advice

17 References Australian Bureau of Statistics (2015) Catalogue Number Disability, Ageing and Carers, Australia Banerjee, S. (2015). Multimorbidity - older adults need health care that can count past one. The Lancet, (9968), 587. doi: /s (14) Broady, T. R., Saich, F., & Hinton, T. (2018). Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice. Palliative Medicine, doi: / Cameron, I. D., Aggar, C., Robinson, A. L., & Kurrle, S. E. (2011). Assessing and helping carers of older people. BMJ, 343, d5202 Knowles, S., Combs, R., Kirk, S., Griffiths, M., Patel, N., & Sanders, C. (2016). Hidden caring, hidden carers? Exploring the experience of carers for people with long-term conditions. Health & Social Care In The Community, 24(2), doi: /hsc Larkin, M., & Mitchell, W. (2016). Carers, choice and personalisation: what do we know?. Social Policy and Society, 15(02), Noble, H. (2015). Schumacher, K. L., Stewart, B. J., Archbold, P. G., Dodd, M. J., & Dibble, S. L. (2000). Family caregiving skill: development of the concept. Research in Nursing & Health, 23(3), Stacey, A., Gill, T. and Price, K. (2017), A Report Card on Carer Health in SA, The University of Adelaide, Paper presented at the 7th International Carers Conference, Adelaide, 4th-6th of October 2017 UK Royal College of General Practitioners, (2014). Involving and Supporting Carers and Families. An educational framework and learning resource for GPs and primary care teams

18 Carers ID Carers-id.org.au