JULY 2016! NEWSLETTER!

Transcription

1 TRAINEES JULY 2016! NEWSLETTER!

2 Highlights%this%Month% ScoCshRecruitmentbegins 117pa6entsrecruited MoreinvestmentinBOSS ThePerthes Associa6onare delightedthatsurgeonsareuni6ng toiden6fythebesttreatments. Lisa%Grant% CEO Perthes Associa6on

3 How%is%recruitment?% BOSS is now one of the best recrui6ng studiesinthenhs.wehave117%recruits% in3months Has%my%hospital%given% permission%for%the% anonymised%element%of% the%study?% England Every trust has permission to collect data without pa6ent consent. The HRA granted global permission for this using a new na6onal system. Airedale and North Middlesex are the only groups not taking part which I m workingon! Scotland Scotlandwillstartonthe1 st August. You have permission to collect data without pa6ent consent for the BOSSStudy. Wales Everyone in Wales has permission to proceed. You have permission to collect data without pa6entconsentforthebossstudy. Which%PaCents?% Slipped% Epiphysis% % Y All new cases of disease.enterthempostyop. Perthes % Disease% % All new cases presen6ngtoprovidersofdefini6vecare i.e.maybediagnosed6monthsagobut taken some 6me to be referred from emergencydept,gp,colleaguesetc).% Top%recruiCng%hospitals:% ManchesterChildren's,NorthMidlands, EastLancashire,Southampton,Kings College,AlderHey,RoyalNa6onal Orthopaedic. Who%has%recruited?% 48%sites%haverecruitedsofar: Barts Basildon Birmingham Bristol Cambridge Cardiff Chelsea Colchester Coventry CwmTaf Dudley EastKent EastSussex EastLancs Epsom GreatOrmondStreet Guys Hull Kings Lancashire Lewisham MiltonKeynes Liverpool NoCngham Manchester MiltonKeynes MorecambeBay Newcastle NorthMidlands Oxford Peterborough Plymouth Portsmouth RobertJones RoyalOrthopaedicHospital RoyalBerks Southport Stoke Southampton Taunton Warrington WestMiddlesex WhiCngton Worcester Worthing WexhamPark % One of the fastest recruiting studies in the UK

4 Has%my%hospital%given% permission%for%the% consented%study?% This part of the study involves collec6ng pa6entreportedoutcomesproms).the consentedstudystartedthismonth 70 hospitals will be collec6ng PROMS on children with SCFE addi6onal permission capacity and capability) is neededineachhospitaltogetgoing. We%are%not%parCcipaCng%in% the%consented%study% %but% can%my%pacent s%scll%get% involved%in%this?% Yes. Ask the pa6ent to go to the website. The pa6ent can be recruited to the consented element of the study by speaking to a research nurse based at Alder Hey hospital. Missing%Data:% Thedatamostcommonlymissingis Height% Weight% % Please% try% to% remember% to% ask% the% nursing% teams% to% collect% this% when% you% are%treacng%these%children. More%investment:% BOSS has now got another injec6on of support about 300k), We are not allowed to reveal all of the details yet, but this is to perform computer modeling on the radiographs to help predict outcomes based on early hip shape.allpapersgeneratedwillinclude allbosscollaboratorsintheauthorship list. Monthly%eMmails:% The oneyclick case confirma6on is needed to ensure that we are collec6ng all cases i.e. to establish incidence). Without this we can t be sure if surgeons/ teams aren t engaging REDCap% SorryifREDCapisalidleclunky the mobile web version seems the best andmostaccessible. Thedesktopsiteatonepointinthe dataentryprocessfalselystatesthat thisprojectisindevelopment Do notenterrealdata.thisisfalse,and thestudyisliveandrealpa6entdata CANbeentered.Sorryforthe confusion butwecan tseemto removethismessage. Please try to click on the monthly system I promise it is a single click. Without this we can t confirm case ascertainment. Dan%Perry,%BOSSStudyCollabora6ve

5 Who%are%the%BOSS% CollaboraCve?%

6 Who%are%the%lead%invesCgators%at%sites% 1%of%2)?% HOSPITAL LEAD+CONSULTANT Abertawe Bro Morgannwg University Health Board Swansea, Wales) Paul Williams Alder Hey Children's NHS Foundation Trust Colin Bruce Aneurin Bevan Health Board Wales) Mr Sujit Kadambande Barking, Havering and Redbridge University Hospitals NHS Trust Krishna Vemulapalli Barnet and Chase Farm Hospitals NHS Trust Bob Chatterjee Barnsley Hospital NHS Foundation Trust Nick Nicolaou Barts & The London Manoj Ramachandran Basildon and Thurrock University Hospitals NHS Foundation Trust Madhu Tiruveedhula Bedford Hospital NHS Trust Phillip Edge Betsi Cadwaladr University Health Board Wales) * Mr Koldo Azurza Birmingham Children's Hospital NHS Foundation Trust Ed Bache Blackpool Teaching Hospitals NHS Foundation Trust Amit Shah Bolton NHS Foundation Trust Mr Majid Bradford Teaching Hospitals NHS Foundation Trust David Shaw Brighton and Sussex University Hospitals NHS Trust Naidu Maripuri Buckinghamshire Healthcare NHS Trust Jo Hicks Calderdale and Huddersfield NHS Foundation Trust * Mr Nitish Gogi Cambridge University Hospitals NHS Foundation Trust Kuldeep Stohr Cardiff and Vale University Local Health Board Clare Carpenter Central Manchester University Manchester Children's) Sattar Alshryda Chelsea and Westminster Hospital NHS Foundation Trust Stuart Evans Chesterfield Royal Hospital NHS Foundation Trust John Cashman City Hospitals Sunderland NHS Foundation Trust Mr G De Kiewiet Colchester Hospital University NHS Foundation Trust V Shiv Shanker Countess Of Chester Hospital NHS Foundation Trust Pete Kenyon County Durham and Darlington NHS Foundation Trust Jonathan Page Croydon Health Services NHS Trust Miss Karen Daly Cwm Taf Health Board Judy Murray Derby Hospitals NHS Foundation Trust Mohan Utukuri Doncaster and Bassetlaw Hospitals NHS Foundation Trust Robert Kuchaski Dorset County Hospital NHS Foundation Trust Nicholas Savva East and North Hertfordshire NHS Trust Nick de Roeck East Kent Hospitals University NHS Foundation Trust QEQMH) Mark Cornell East Lancashire Hospitals NHS Trust Robin Paton East Sussex Healthcare NHS Trust Adrian Butler-Manual Epsom and St Helier University Hospitals NHS Trust Mark Churchill Frimley Park Hospital NHS Foundation Trust Azal Jalgaonkar Gloucestershire Hospitals NHS Foundation Trust Mr R Brown Great Ormond Street Hospital for Children NHS Foundation Trust Andreas Roposch Great Western Hospitals NHS Foundation Trust Sarah Irby Guy's and St Thomas' NHS Foundation Trust Mr Fabian Norman-Taylo Hampshire Hospitals NHS Baisingstoke) Nigel Rossiter Hampshire Hospitals NHS Winchester) Iain MacLeod Harrogate and District NHS Foundation Trust * Mr David Lavalette Heart Of England NHS Foundation Trust Rozalia Dimitriou Hillingdon Hospitals NHS Foundation Trust * Sanjay Kumar Hinchingbrooke Health Care NHS Trust Mr Arpit Patel Homerton University Hospital NHS Foundation Trust Toby Baring Hull and East Yorkshire Sally Hobson Imperial College Healthcare NHS Trust * Raj Bhattacharya Ipswich Hospital NHS Trust Graeme Carlile James Paget University Hospitals NHS Foundation Trust * Anish Snaghrajka Kettering General Hospital NHS Foundation Trust S Shyamsunder King's College Hospital NHS Foundation Trust Om Lahoti Lancashire Teaching Hospitals NHS Foundation Trust Tony McEvoy Leeds General Infirmary Colin Holton Lewisham and Greenwich NHS Trust * Mohammed Abdus-Same Luton and Dunstable Hospital NHS Foundation Trust Yega kalairajah Maidstone and Tunbridge Wells NHS Trust Jo Dartnell Medway NHS Foundation Trust * Prof Bijay Singh Mid Cheshire Hospitals NHS Foundation Trust David Machin Mid Essex Hospital Services NHS Trust Jeremy Tuite Mid Yorkshire Hospitals NHS Trust Nirmal Tulwa Milton Keynes Hospital NHS Foundation Trust Julian Flynn Norfolk and Norwich University Hospitals NHS Foundation Trust Anish Sanghrajka North Cumbria University Hospitals NHS Trust Carol Brignall North West London Hospitals NHS Trust also includes Ealing above) Ian Holloway Northampton General Hospital NHS Trust Mr R Natarajan Northern Devon Healthcare NHS Trust Nick Treble Northern Lincolnshire and Goole Hospitals NHS Foundation Trust F R Howell Northumbria Healthcare NHS Foundation Trust John Leitch Nottingham University Hospitals NHS Trust Kathryn Price Oxford University Hospitals NHS Trust Rachel Buckingham Pennine Acute Hospitals NHS Trust North Manchester) Edward Yates

7 Who%are%the%lead%invesCgators%at%sites% 2%of%2)?% HOSPITAL LEAD+CONSULTANT Pennine Acute Hospitals NHS Trust Oldham) Mr Ardeshir Bonshahi Peterborough and Stamford Hospitals NHS Foundation Trust Mr P Mitchell Plymouth Hospitals NHS Trust Ben Holroyd Poole Hospital NHS Foundation Trust Alexander Aarvold Queen Alexander Hospital, Porstsmouth Robert Richards Queen Elixabeth Hospital, Woolwich - part of University Hospital LewishSunil Bajaj Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS T Robert Freeman Royal Berkshire NHS Foundation Trust Nev Davies Royal Cornwall Hospitals NHS Trust Mr Russell Hawkins Royal Devon and Exeter NHS Foundation Trust Peter Cox Royal Free London NHS Foundation Trust Olivia Malaga Shaw Royal National Orthopaedic Hospital NHS Trust Deborah Eastwood Royal Surrey County NHS Foundation Trust Chris Coates Royal United Hospital Bath NHS Trust Andy McBride Royal West Sussex AND Worthing And Southlands Hospitals Nhs Trust Adam Ajis Salisbury NHS Foundation Trust Phil Pettit Sandwell and West Birmingham Hospitals NHS Trust Siten Roy Scarborough and North East Yorkshire Health Care NHS Trust Suraj Joshy Sheffield Children's NHS Foundation Trust Sanjeev Madan Shrewsbury and Telford Hospital NHS Trust* Jae Rhee South Devon Healthcare NHS Foundation Trust Guy Wansbrough South Tees Hospitals NHS Foundation Trust Hopcroft Richard Southport and Ormskirk Hospital NHS Trust Marcus Cope St George's Healthcare NHS Trust Ms Karen Daly St Helens and Knowsley Hospitals NHS Trust Stephen Lipscombe Stockport NHS Foundation Trust Barnes Morgan Tameside Hospital NHS Foundation Trust Wiqqas Jamil Taunton and Somerset NHS Foundation Trust Andrew J Kelly The Dudley Group NHS Foundation Trust Veronique Spiteri The Newcastle Upon Tyne Hospitals NHS Foundation Trust Philip Henman The Princess Alexandra Hospital NHS Trust Alex Amini The Rotherham NHS Foundation Trust Stephen Giles The Royal Wolverhampton NHS Trust Ram Vadivelu The Whittington Hospital NHS Trust Adrian O'Gorman United Lincolnshire Hospitals NHS Trust Tom Southorn University College London Hospitals NHS Foundation Trust Mr Michael J Oddy University Hospital Of South Manchester NHS Foundation Trust Nasser Kurdy University Hospital Southampton NHS Foundation Trust Alex Aarvold University Hospitals Bristol NHS Foundation Trust Fergal Monsell University Hospitals Coventry and Warwickshire NHS Trust Stephen Cooke University Hospitals Of Leicester NHS Trust Mr Alwyn Abraham University Hospitals Of Morecambe Bay NHS Foundation Trust Paul Marshall University Hospitals of the North Midlands Belen Carsi Warrington and Halton Hospitals NHS Foundation Trust David Atkinson West Hertfordshire Hospitals NHS Trust* Krisztian Deierl West Middlesex University Hospital NHS Trust* Hilal Fareed West Suffolk NHS Foundation Trust Miss S Deakin Wexham Park Frimley Health NHS) Jacob Thampy Whipps Cross University Hospital Kes Sri-Ram Wirral University Teaching Hospital NHS Foundation Trust Gillian Jackson Worcestershire Acute Hospitals NHS Trust Charlie Docker Wrightington, Wigan and Leigh NHS Foundation Trust Henry Wynn Jones Wye Valley NHS Trust Iain Bissell York Teaching Hospital NHS Foundation Trust Ken Mannan Who%isn t%in%the%boss%group?% AiredaleNHSTrust NorthMiddlesexHospital The biggest study on the NIHR portfolio almost everyone treating orthopaedic diseases of childhood