NAACCR Volume V Revisions
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1 NAACCR Volume V Revisions NAACCR Volume V Revision Task Force Sandy Jones and Josh Mazuryk Co-Chairs NAACCR 2017 Annual Conference June 19-22, 2017
2 NAACCR Volume V Revision Task Force Members Gagan Bal Victor Brunka Mignon Dryden Jagdeep Gill Jovanka Harrison Lori Havener Jeffery Karp Ted Klein Carol Kruchko Mireille Lemieux Richard Moldwin Bruce Riddle Barbara Weatherby Ben Wormeli
3 Role of Cancer Registries Coordinate with laboratories to implement epath reporting Capabilities of small labs vs. large labs Educate on importance of standard epath reporting (NAACCR Volume V) Identify champions to encourage use of standards Demonstrate how data are useful for public health and clinical care 3
4 Reasons for Volume V Revisions With focus on personalized medicine in Cancer treatment, the world of pathology reporting has changed Technological improvements in the way pathologists/systems collect information Specific issues trying to solve: Multiple pathology and biomarker reports on a single tumor received over time from different sources Clearly identify different kinds of pathology reports to locate specific information Better tracking of specimens and results 4
5 Overview of Revisions Enhanced diagrams Standard updates (HL7 coding) Reporting of Identifiers (lab specimen and institution) Update NAACCR data element table to include new fields Inclusion of updated sample HL7 messages and use cases White Paper on specimen identifiers 5
6 Static Domain Diagram 6
7 Specimen Process Flow Diagrams 7
8 This image cannot currently be displayed. Specimen Sequence Diagrams 8
9 Specimen Identifier Issues Tissue specimens routinely divided and sent to multiple locations Reports transmitted with new facility-assigned specimen IDs without including the originally-assigned specimen identifier from the primary ordering Tracking original ordering physician information as specimen is sent to multiple laboratories for processing
10 What is needed? Unique globally-assigned ID transmitted with specimen and sub-specimens in a downstream direction Organizations store specimen IDs assigned by each facility in an upstream direction Potential Options Unique globally-assigned specimen identifier (ID) at the time of collection (GUID) Proper use of HL7 v2 message
11 Concatenation of IDs in HL7 Message Unique globally-assigned ID transmitted with specimen and sub-specimens in a downstream direction Organizations store specimen IDs assigned by each facility in an upstream direction
12 Specimen Identifiers 12
13 Institutional Identifiers 13
14 Other relevant Data elements 14
15 White Paper on Specimen Identifiers Clearly describe the issues with specimen identifiers from a broad healthcare perspective, but focus on cancer registry needs Present possible solutions to address the issues Engage laboratory standard setting organizations to include Specimen ID standard: Clinical and Laboratory Standards Institute (CLSI) Association of Public Health Laboratories (APHL) Identify other champion groups (e.g. Society for Neuro-Oncology) Collaborate with College of American Pathologists Pathology Electronic Reporting (PERT) Committee Informatics Committee 15
16 NAACCR Volume V Revisions Timeline First draft of revised specification submitted to NAACCR Standardization and Registry Development (S&RD)Steering Committee in April 2018 will include: NAACCR record changes related to AJCC 8 th edition and other changes Guidance to map data from revised College of American Pathologists electronic Cancer Checklist (ecc) templates to HL7 v2.5.1 fields for reporting to cancer registries Revised diagrams, use cases, and sample HL7 messages 16
17 Future Improvements and Enhancements Provide an interoperable way for notification of clinician information upstream ~ use of HL7 v specification has dedicated space Identify a place to store the report recipient address/url in the message or transport method to route the reports to the appropriate Ordering EHR system, state cancer registry, and any other entity that should receive the report Include guidance on receipt of Integrating the Healthcare Enterprise (IHE) Structured Data Capture XML structured data
18 Promote use of NAACCR Volume V standard within your states!! 18
19 Follow DCPC CDC Breast Cancer Go to the official source of cancer prevention information: Speaker Contact Information: Sandy Jones, The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention.
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