2014 EHDI Conference Jacksonville, FL April 13-15, 2014

Transcription

1 2014 EHDI Conference Jacksonville, FL April 13-15, 2014 Oklahoma Stakeholder s Meeting I. Welcome and Introductions II. III. EHDI Progress, Successes, and Barriers Discussion 30 Years of Newborn Hearing PowerPoint handout provided OKAT Overview Ways to participate EHDI Program Goals and Objectives HRSA Goals CDC Goals IV. Gaps in the System Discussion (Brainstorm) Audiology reporting Best practices EI referrals Parent support V. What to expect from EHDI Conference VI. VII. National EHDI Suggestions Coordination of Stakeholders Session Attendance Quality Improvement (QI)/Plan-Do-Study-Act (PDSA) Personal Action Plan sheets Next steps after the Annual EHDI Meeting

2 Oklahoma Early Hearing Detection and Intervention Information System (EHDI-IS) Surveillance Program CDC-RFA-DD ; CFDA Goal 1: Develop and maintain the EHDI-IS to accurately identify, match and collect data that is unduplicated and individually identifiable through the EHDI process. Annual Objective 1.1: Create opportunities for electronic messaging of individual patient data between the EHDI data tracking system and birthing hospitals and/or Oklahoma public health master patient index portal by the end of the project period. Annual Objective 1.2: Determine the feasibility of completing a pilot with one birthing hospital utilizing an external virtual private network (VPN) to link hospital medical records with the onsite Algo 5 hearing screeners. Annual Objective 1.3: Compile information needed from other state resources to identify, match, collect, and report standardized unduplicated individually identifiable data needed to complete the request for the annual CDC EHDI Survey. Goal 2: Collect and report individualized demographic data (as defined in HSF Survey) for every occurrent birth about the child s status and progress through the three components of the EHDI process. Annual Objective 2.1: By March 31, 2015, submit 100% of data to the National CDC EHDI Hearing Screening and Follow-up Survey. Annual Objective 2.2: By June 30, 2015, develop and/or implement a process to monitor the quality and completeness of individualized demographic data (as defined in HSF Survey) received from reporting sources. Annual Objective 2.3: By June 30, 2015, the NHSP will continue processes to request missing individualized demographic and follow-up data to monitor the quality and completeness of follow-up data received from reporting sources.

3 Goal 3: Analyze EHDI data and utilize findings to guide the development and enhancement of the EHDI-IS and educate stakeholders about the program s successes, challenges, and future opportunities. Annual Objective 3.1: By December 31, 2014, analyze data and identify gaps related to the screening, diagnostic, and early intervention process. Annual Objective 3.2: On a quarterly basis, the NHSP will analyze hospital screening data regarding the number of children not screened, not reported, or those who referred (did not pass) the hospital hearing screening. Annual Objective 3.3: On an annual basis, the NHSP will determine a statewide average regarding the number of children not screened, not reported, or those who referred (did not pass) the hospital hearing screening. Annual Objective 3.4: Analyze actual refer rate per equipment data in comparison with those rates received on the bloodspot filter paper on an annual basis for sites utilizing the electronic data linkage process. Annual Objective 3.5: On a quarterly basis, the NHSP will utilize EHDI data at the Oklahoma Audiology Taskforce (OKAT) meetings Goal 4: Strengthen EHDI-IS by developing and implementing an evaluation plan and utilize findings to improve the system. Annual Objective 4.1: By December 31, 2014, the state EHDI program will have a finalized logic model representing the EHDI-IS development and expected outcomes. Annual Objective 4.2: The NHSP will begin implementation of the evaluation plan/logic model developed by the end of the budget period.

4 OKLAHOMA UNIVERSAL NEWBORN HEARING SCREENING & INTERVENTION Reducing Loss to Follow-up after Failure to Pass Newborn Hearing Screening HRSA ; CFDA METHODOLOGY Goals and Objectives The current proposed project is designed to address several of the unmet needs of the Oklahoma NHSP. The specific goals and objectives of this project are stated below. Specific details regarding the timeline and evaluation methods can be located in the Work Plan Chart provided. Goal/Aim 1: By April 1, 2017, the NHSP will reduce loss to documentation by utilizing quality improvement strategies to reduce the total number of screenings not reported to the NHSP by Oklahoma birthing hospitals by a total of 50%. 1. Monitor all Oklahoma birthing hospitals to ensure a 15% annual reduction in Not Reported Rates. 2. Reduce the Not Reported Rate at Oklahoma State University (OSU) Medical Center by a total of 50% over a 3 year period. Goal/Aim 2: By April 1, 2017, the NHSP will reduce loss to follow-up/documentation by utilizing quality improvement strategies to reduce hospital Refer (did not pass) Rates by a total of 50%. 1. Monitor all Oklahoma birthing hospitals to ensure an average Refer Rate of 5% or lower. 2. Reduce refers at Oklahoma birthing hospitals with a Refer Rate higher than 5%. Goal/Aim 3: By April 1, 2017, the NHSP will reduce loss to follow-up/documentation by utilizing quality improvement strategies to reduce the total number of babies not screened at Oklahoma birthing hospitals by a total of 50%. 1. Monitor all Oklahoma birthing hospitals to ensure a 15% annual reduction in Not Performed Rates. 2. Reduce missed screenings at Oklahoma birthing hospitals with a Not Performed Rate higher than 1%.

5 Goal/Aim 4: By April 1, 2017, the NHSP will reduce loss to follow-up/documentation by utilizing quality improvement strategies to reduce the number of children who are not born at an Oklahoma birthing hospital (home birth) and do not receive a hearing screening by one month of age. 1. Create a baseline of the total number of babies who are not born at an Oklahoma birthing hospital. 2. Ensure 80% of the babies born through Oklahoma s largest midwifery service receive a hearing screening prior to one month of age. Goal/Aim 5: By April 1, 2017, the NHSP will reduce loss to follow-up/documentation by utilizing quality improvement strategies to increase the number of children who received an audiological diagnostic assessment by three months of age from 70% to 85%. 1. Eighty percent or more of infants who did not pass their hearing screening are documented to have received a rescreen and/or an audiological diagnostic assessment by three months of age. 2. On an annual basis, increase access to hearing screening/rescreening capabilities for children born in rural areas to ensure an audiological diagnostic assessment by three months of age. Goal/Aim 6: By April 1, 2017, the NHSP will partner with Oklahoma pediatric audiology practices and the SoonerStart Part C Early Intervention Program to increase the percentage of children diagnosed with hearing loss enrolled in Early Intervention services by 6 months of age from 63% to 80%. 1. Seventy-five percent of all infants diagnosed with hearing loss will be reported to NHSP by pediatric audiologists as demonstrated through SoonerStart Part C Early Intervention tracking forms in order to reduce loss to documentation. 2. Eighty percent of all infants diagnosed with hearing loss will be enrolled in Early Intervention services by six months of age. 3. Ninety percent or more of infants who undergo an audiological diagnostic assessment will have results of this evaluation shared with the NHSP, and all infants diagnosed with hearing loss will be referred for Early Intervention services by six months of age.