Home Health Care in California: An Overview

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s n a p s h o t Care in California: An Overview 2006

Introduction As advances in health care technology and improvements in lifestyle choices increase the lifespan and as baby boomers reach old age, there will be an increasing number of older Americans with health problems and disabilities. Most individuals with illness and disability prefer to remain at home where they can receive care and support from family members and friends. Home health care is any kind of health care service that is provided to clients at home. Home health agencies emphasize short term post-acute rehabilitative services. Services include basic care from home health aides and skilled care from registered nurses and therapists. This report provides an overview of home health agency utilization, quality measures, and inspection and investigation results in California from 1996 through 2004. Most notably: The number of home health agencies in the state, as well as the number of individuals using home health care services, decreased from 1996 through 2004. But, the average number of clients served by each agency has increased. The use of home health aides declined significantly from 1996 to 2004. This could be due in part to changes in payments by third party payers and a growth in the availability of home care services that provide the same care as home health aides. Nursing home consumers and advocacy groups have charged the state with failing to promptly investigate complaints and analyses of home health complaints show similar results. Fewer complaints have been deemed substantiated in recent years, possibly due to a lack of adequate resources to investigate them on a timely basis. C O N T E N T S Introduction......................... 1 Agencies vs. Clients....... 2 Characteristics of Agencies. 3 Average Number of Visits per Client..... 4 Total Number of Visits and Clients....... 5 Average Number of Visits by Provider Type.................... 6 Selected Quality Measures............ 7 Average Number of Deficiencies....... 8 Percent of Agencies by Number of Deficiencies............ 9 Number of Complaints............... 10 Percent of Agencies by Number of Complaints........... 11 Who Pays for Care....... 12 Authors........................... 13 2006 California HealthCare Foundation 1

Agencies vs. Clients 1,500 Overall, the number of home health agencies decreased 1,200 27 percent from 1996 to 2004. The decline was due in part to 900 Number of HHA stronger regulatory oversight by the federal government, starting in 1998. 600 Average Number of Clients per Agency per Year 300 1996 1998 2000 2002 2004 1,194 1,214 808 727 867 540 549 705 719 606 Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using Office of Statewide Health Planning and Development home health and hospice utilization data, 1996 through 2004. 2006 California HealthCare Foundation 2

Characteristics of Agencies Home health clients represent Pregnancy Cancer Brain Digestive System 5% Primary Diagnosis (by condition or disease area) 5% 5% 4% Heart 20% Other 28% Skin 21% Over 80 30% Under 51 21% Gland/ Hormone 12% 51 to 70 25% 71 to 80 25% Age people of all ages, but the majority of people who use home health care services are over 70 years old. People with problems of the skin or the heart make up two-fifths of all home health care clients. Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using Office of Statewide Health Planning and Development home health and hospice utilization data (2004). 2006 California HealthCare Foundation 3

Average Number of Visits per Client The average number of visits for each home health care client 25.6 declined 38 percent from 1996 to 2002, then increased again 19.2 slightly in 2004. 17.0 15.6 16.0 1996 1998 2000 2002 2004 Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using Office of Statewide Health Planning and Development home health and hospice utilization data. 2006 California HealthCare Foundation 4

Total Number of Visits and Clients Visits 20,000,000 15,000,000 10,000,000 Clients 800,000 700,000 600,000 500,000 The number of people using home health care services declined by 19 percent from 1996 to 2004. After a sharp decrease in total visits in 1999, the number of visits increased in 2002 and was still below the 1996 levels in 2004. 5,000,000 1996 1998 2000 2002 2004 400,000 16,480,575 11,309,041 8,878,947 8,371,443 10,072,141 644,844 666,752 569,936 522,883 525,379 Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using Office of Statewide Health Planning and Development home health and hospice utilization data. 2006 California HealthCare Foundation 5

Average Number of Visits by Provider Type 43 1 4 14 24 45 2 3 11 29 25 1 2 4 Other Occupational and Physical Therapy Aide Skilled Nursing 32 1 3 3 25 40 1 3 3 33 Most home health care visits are provided by skilled nurses; the use of home health aides by home health agencies has declined significantly. From 1996 to 2004 the average number of visits provided by home health aides decreased 79 percent. 18 1996 1998 2000 2002 2004 Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using Office of Statewide Health Planning and Development home health and hospice utilization data. 2006 California HealthCare Foundation 6

Selected Quality Measures National Average State Average The federal government s National Quality Forum (NQF) Get Better at Bathing 61 64 has selected a number of standardized measures to help Have Less Pain When Moving 61 62 consumers compare the quality of home health care providers. Get Better at Getting In and Out of Bed Get Better at Taking Medication Correctly Get Better at Walking or Moving 39 40 38 38 52 51 The average performance of California home health agencies in helping clients improve their condition is similar to the average performance of Had to Be Admitted to the Hospital 23 28 all agencies nationwide. When selecting a provider it Need Urgent, Unplanned Medical Care 21 18 is important to look at each agency s performance compared to state and national averages. Sources: Centers for Medicare and Medicaid Services (CMS), Compare (www.medicare.gov). Accessed October 20, 2005. National Voluntary Consensus Standards for Care, National Quality Forum, Washington, DC, October 2005 (www.qualityforum.org/webhhpublic09-23-05.pdf). A complete list of quality measures for home health agencies in California is available at www.calnhs.org. 2006 California HealthCare Foundation 7

Average Number of Deficiencies Home health agencies are required to be surveyed by the state s Licensing and 4.1 4.0 4.3 Certification Program once every three years to ensure that minimum state and federal 3.0 2.8 standards of care and safety are being met. Only one-fourth of agencies are surveyed each year. The average number of federal and state deficiencies received 1996 1998 2000 2002 2004 by home health agencies declined steadily from 1998 Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using California Department of Health, Licensing and Certification Program, Automated Certification and Licensing Administrative Information and Management Systems (ACLAIMS) data. to 2004. 2006 California HealthCare Foundation 8

Percent of Agencies by Number of Deficiencies Approximately two-thirds to 0 1 10 11 25 26 50 51+ three-fourths of agencies do not receive any deficiencies 1996 1998 2000 2002 2004 67% 27% 4% 11 76% 12% 5% 6% 2 76% 14% 4% 4% 2 61% 27% 7% 4% 1 68% 24% 6% 1 * in any given year. Another 12 to 25 percent receive between one and ten deficiencies. There is a great disparity in the number of deficiencies received by agencies. For example, in 2004 68 percent of agencies did not receive a deficiency and 24 percent received between one and ten, but one agency received *Less than 1 percent. Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using California Department of Health, Licensing and Certification Program, Automated Certification and Licensing Administrative Information and Management Systems (ACLAIMS) data. 64 deficiencies and one agency received 108. 2006 California HealthCare Foundation 9

Number of Complaints 250 Recently, nursing home consumers and advocacy groups 200 150 100 50 0 Unsubstantiated Substantiated Percent Substantiated 1996 1998 2000 2002 2003 223 217 144 139 125 152 (41%) 247 (53%) 167 (54%) 94 (40%) 106 (46%) have charged the state with failing to promptly investigate complaints, resulting in an increase of the number of complaints found to be unsubstantiated. Analyses of home health complaints show a similar trend. The percent of substantiated complaints received by home health agencies decreased 13 percent from 1998 to 2003. Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using California Department of Health, Licensing and Certification Program, Automated Certification and Licensing Administrative Information and Management Systems (ACLAIMS) data. 2006 California HealthCare Foundation 10

Percent of Agencies by Number of Complaints The vast majority of agencies None One Two Three or more do not receive any complaints, approximately 7 to 10 percent of 1996 1998 90% 9% 1 * 85% 11% 3%1 agencies receive one complaint, 1 to 3 percent receive two complaints, and less than one percent get 3 or more complaints. 2000 85% 11% 3%1 2002 90% 7 % 2* *Less than 1 percent. Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using California Department of Health, Licensing and Certification Program, Automated Certification and Licensing Administrative Information and Management Systems (ACLAIMS) data. 2006 California HealthCare Foundation 11

Who Pays for Care Medicare pays for most home 20% 26% 30% 31% 27% Other Self-pay Medi-Cal health care, although the percent of care paid for by Medicare 2% 5% 73% 3% 6% 65% 2% 7% 61% 3% 9% 57% 2% 8% 63% Medicare decreased 14 percent from 1996 to 2004. At the same time, the percent of care paid for by Medi-Cal and payments from other sources made up the difference. 1996 1998 2000 2002 2004 Source: Janis O Meara and Charlene Harrington, University of California, San Francisco. Calculations provided using Office of Statewide Health Planning and Development home health and hospice utilization data. 2006 California HealthCare Foundation 12

Authors Charlene Harrington, Ph.D., R.N., and Janis O Meara, Department of Social and Behavioral Sciences, UCSF GIVE US YOUR FEEDBACK Was the information provided in this report of value? Are there additional kinds of information or data you would like to see included in future reports of this type? Is there other research in this subject area you would like to see? We would like to know. Please click here to access our feedback form. Or visit www.chcf.org/feedback and enter Report Code #1134. Thank you. FOR MORE INFORMATION California HealthCare Foundation 476 9th Street Oakland, CA 94607 510.238.1040 www.chcf.org 2006 California HealthCare Foundation 13