Using data to improve quality of care for LTC residents in Ontario

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Using data to improve quality of care for LTC residents in Ontario Peter Tanuseputro MHSc (CH&E), MD, CCFP, FRCPC (PHPM) Kathy Greene BScOT, MPA February 11, 2016

Using Data to Drive Improvement in Long-term Care Peter Tanuseputro MHSc (CH&E), MD, CCFP, FRCPC (PHPM) Investigator, Bruyère Research Institute and Centre for Learning, Research and Innovation (CLRI) in Long- Term Care

Objectives 1) Provide an overview of health administrative data in Ontario Focus: Long-term Care 2) Describe how data is used and by whom 3) Give concrete examples of use (from our research)

Many Sources of Health Data From: Lee and Thacker, 2011

Evidence to Inform Action Source: PHO, Taking Action to Prevent Chronic Disease: Recommendations for a Healthier Ontario

Health Administrative Data Data from routine administration of health care Administrative Purposes: Billings/payment, accountability agreements Quality of Care Canada: Single-payer system! Hospitalizations, physician services, homecare, long-term care

Health Administrative Data Data available varies Physician claims: physician info, patient info, diagnosis codes, service provided Hospital discharges: same; all services, procedures, many dx codes, unit/bed type Home care & Long-term care: Resident Assessment Instrument (RAI) assessments

RAI Assessment Unique features: Living arrangement Functional Status: ADL s, IADL s Cognitive Function Allied health services: PT, OT, PSW Longitudinal data

Where is the Data? Several Data Custodians: Ministry of Health: Physician Claims Canadian Institute for Health Information (CIHI): Hospitalizations, home care, LTC Several Data Warehouses /Research Institutes: Institute for Clinical Evaluative Sciences Manitoba Center for Health Policy Population Data BC

Ontario: ICES 10 Linked at the individual level: Continuing care : Long-term care (LTC), Complex continuing care (CCC), Home care, Rehab Acute care : Hospital admissions, Intensive Care Unit (ICU), Emergency Room (ER) Outpatient care : Physician visits/claims, outpatient hospital visits, select: drugs, nonphysician, labs, devices

11 LTC Capacity Planning & Performance HIGHLIGHTS FROM OUR RESEARCH PROGRAM Supported with funding from Bruyere CLRI, MOHLTC HRSF Program Award (HSPRN), CIHR Operating grants. The views expressed in this publication are the views of the author(s)/presenter(s) and do not necessarily reflect those of the funder.

Incidence rate of LTC Admission 12

Results 13 What proportion of residents had a live-in care giver prior to entry? a) 0-20% b) 20-30% c) 30-40% d) 40-50% e) 50%+ Answer: 59.8% (38,368)

Results Low Needs 14 4.5% of admissions had low care needs Cognitively Intact & No ADL restrictions

Results Low Needs 15 6.0% of total admissions could likely be taken care of in the community at a lower over cost; 3,871 residents At least 1.1% (745 people) may be cared for in supportive housing

Results High Needs 16 About half (47%) have high needs 33.5%: extremely high needs: cannot be safely taken care of in the community

Conclusions 17 Ontarians admitted to LTC institutions generally have high level of needs. Given the current options for community supports in Ontario, only a small proportion (about 1 in 20) could likely be taken care of in the community at lower costs Note that these individuals will also likely deteriorate further following admission.

Discussion 18 At capacity: Useful to think less about LTC beds, and more about creating LTC "spaces"? Across multiple settings: private homes, supportive housing, specialized units (e.g., targeting dementia short-stays), etc. Many innovative approaches to supporting even high needs persons, and their caregivers, appropriately and cost-effectively. But once a person gives up their community residence, transitions out of LTC are difficult!

Next Steps 19 Further define the 36 groups What are the drivers (including modifiable ones) that make some people with the same ADL/IADL/cognition/caregiver situation be placed in LTC versus not? Chronic conditions, acute care events, services received from home care, hospital, physicians, etc. Geographic variations best practices

20 Q2. Within the current system, what are drivers of outcomes in LTC? JAMDA paper Hospitalization and mortality rates in long-term care facilities: Does for-profit status matter? Peter Tanuseputro, Mathieu Chalifoux, Carol Bennett, Andrea Gruneir, Susan E Bronskill, Peter Walker, Douglas Manuel

JAMDA Paper 21 This study examines, at a population level: 1) Who is entering LTC 2) What are their rates of outcomes 3) Describes the predictors of outcomes

Methods 22 Retrospective cohort study All first nursing home admissions in Ontario January 1, 2010 to March 1, 2012 Data: Continuing Care Reporting System (CCRS) based on RAI-MDS assessments 53,739 incident admission 640 publicly funded LTC facilities (384 for-profit, 256 not-for-profit)

Methods 23 Outcomes: All incident admissions: Linked to hospitalization data (CIHI-DAD) Linked to mortality data (RPDB) Examined for 4 publically reported indicators Looked at both crude & adjusted numbers Publication:

Why the Ownership Angle? 24 Considerable academic and policy discussion E.g., review: Comondore et al. BMJ, 2009 inconsistent results over 80+ studies Largely unanswered questions when it comes to hard outcomes of mortality/hospitalizations Considerable heterogeneity across Canada & Internationally on financing structures

Results Crude Rates 25

Variation of Rates - Mortality 26

Variation of Rates - Hospitalizations 27

Results Adjusted Model 28 Age, Sex, Marital Status Resident Income Quintile (prior to entry) Facility urbanicity Where residents are admitted from Facility Size Ownership

Results At 6 months after entry: Age predicts mortality, not hospitalizations Females: lower mortality/hospitalization rates CHESS score: highly predictive of mortality, and moderately for hospitalizations FP: 16% higher rate of mortality FP: 33% higher rate of hospitalizations Larger facilities: higher hospitalization rates, lower mortality rates

Results: HQO Indicators 30 Not much difference in publically reported indicators

Study Conclusions 31 Significant facility level predictors for hospitalizations and mortality Proprietary status Facility size Difference are not seen with HQO indicators once baseline is accounted for

Next Steps 32 Unpack & Focus on Variations Provincial reporting of hospitalizations & mortality discussion with: LTC sector & Health Quality Ontario & MOHLTC Reporting scheme? Adjustments? Benchmarking? Other concepts? Work together to improve including tools at front lines: www.projectbiglife.ca/elderly

Burdensome transitions @ EOL Transfer to another LTC facility within 90 days before death 2 Hospitalizations or 1 Hospitalization for pneumonia, UTI, dehydration, sepsis in last 90d ICU in the last 30 days before death Any institution use (Acute, ER, CCC, Rehab) in the last 3 days before death

50 45 40 35 30 25 20 15 10 5 0 Burdensome Transitions @ EOL

Application of Research 35 https://www.projectbiglife.ca/elderly

Conclusions 36 Overview of health admin data including LTC Aging concerns RE caring for LTC needs LTC beds are already at capacity Demand increasing We need to pay attention to reforming LTC spaces and at same time improving current care in LTC beds

37 Questions? QUESTIONS? Thank-you! PTANUSEPUTRO@OHRI.CA

Using of your Facility s RAI-MDS Data to Improve Care Kathy Greene Director of Decision Support, Admissions & Health Records

What is the Resident Assessment Instrument? Comprised of 3 components: Minimum Data Set version 2.0 (MDS) Resource Utilization Group (RUG) determined by select MDS elements Resident Assessment Protocol (RAP)

Who Uses the RAI-MDS? All Ontario LTC facilities are mandated by the Ministry of Health & Long-Term Care to use the RAI-MDS 2.0 - RUG 34 RAI-MDS provides invaluable resident level data as well as at the facility & system level. Are you leveraging your facility level data? Invest in pressure relief mattresses versus low rise beds to prevent falls

RAI Usage across Sectors RAI is used across the healthcare continuum RAI Mental Health RAI Contact Assessment used by CCAC RAI-MDS in Complex Continuing Care (RUG-44) Data is used by both government & health organizations to inform health planning & funding Data is linked across sectors to inform healthcare usage

Why Use the RAI-MDS? Standardized tool completed at point of care to provide real-time data on a resident s needs Ensures providers use common language & assessments to: Plan a resident s care Identify risks Measure resident outcomes from baseline scores Facility level use of data Monitor quality indicators (falls, pain, pressure ulcers) Understand resource intensity of residents

Flow of RAI-MDS Data Completed on all admitted residents & then each 92 days afterwards. Data submitted quarterly to the Canadian Institute of Health Information (CIHI). Data flows to the MOHLTC & organizations such as Health Quality Ontario (HQO). Your facility s data is used by decision makers!

Data Usage in the Public Forum Expectation from the public for data transparency HQO Patient Safety Public Reporting (hospital hand washing compliance) Provincial Stroke report card identifies high performing Stroke care providers Health Quality Ontario public reporting for LTC &Home Care High level of public interest in certain indicators

HQO s Public Reporting Program

Importance of Knowing your Data Knowing & using facility level data is vital to: Understand your residents' needs Resource intensity of residents across units Types of care interventions & impact on educational needs Understand if quality concerns exist Target improvement initiatives & monitor for change

Importance of Data Quality Availability & use of data heightens need for accurate data. Dimension of data informing a facility s funding Data quality must be owned by clinicians & mgmt. Value of learning to extract data from CIHI e- reports in addition to vendor software CCRS@cihi.ca

Resources Available through CIHI

Factors Impacting Data Accuracy Importance of remaining current with RAI-MDS coding guidelines (revised restraint guidelines) CIHI CCRS Bulletins Knowledge of RAI-MDS coders Strategy to monitor data accuracy (i.e. audits) Organizational commitment towards data quality

Where to Start with using Your Data? Review your raw data- monthly & quarterly Compare current results to past performance Bring data directly to front-line staff Does it make sense? What can be done to improve results?

Bring Data to Your Clinicians - Falls

Look for Opportunities to Showcase Results

Leverage your MDS Data to Measure Quality Sounds obvious, but not always practiced At Bruyere, MDS data forms the basis of quarterly quality reports to the Board % of residents whose bladder continence worsened % of residents who fell in the last 30 days % of residents whose Stage 2 to 4 pressure ulcer worsened % of residents in daily physical restraints % of residents who had a newly occurring Stage 2 to 4 pressure ulcer % of residents whose ADL self-performance worsened % of residents whose behavioral symptoms worsened % of residents whose mood symptoms of depression worsened % of residents whose pain worsened

Know Your Audience Data must be understood to be used: Trend over time & risk adjust where possible Presented visually in addition to table format Compared to established benchmarks (HQO, provincial average, high performing peers) Contrasted to other types of data

Risk Adjusted Data for Peer Comparisons

Time for Questions kgreene@bruyere.org