ATAQ: An Innovative ONS Program. Modifying an Innovative American Program for a European Audience. ATAQ: An Initiative of CLIR.

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Modifying an Innovative American Program for a European Audience ATAQ: An Innovative ONS Program Debra Wujcik RN, MSN, AOCN ATAQ: An Initiative of CLIR Project Team Funded by ONS Foundation Center for Leadership, Information and Research Three components Professional Education Patient Education Research Project team met in Pittsburgh (1999) Project leader Debra Wujcik RN, MSN, AOCN Purpose of project was to improve the management of neutropenia ATAQ Appropriate Treatment Assures Quality ATAQ Professional Education ATAQ Professional Education Development of 3 ½ day courses Ponte Vedra Beach, FL (1999) Absecon, NJ (1999) Dana Point, CA (2000) 673 nurses attended Dissemination projects were required Group or individual > 17,400 people were reached Project Leader Teresa Knoop, MSN, RN, AOCN Development of 1 day conference 10 regional conferences over two years (2001-2002) 448 nurses attended Dissemination projects required 1

ATAQ Patient Education Project Leader NeutroPHIL campaign Poster series (4 poster/set) Patient education booklets NeutroPHIL NeutroFILO (Spanish translation) Flipchart Knowledgy CD-ROM Project Leader Denise Korn, RN, MSN, OCN Games and case studies address Anemia Thrombocytopenia Neutropenia Crossword puzzles included for additional learning activities Knowledgy CD-ROM Released at 2004 Congress Distributed to National Conference attendees and to more than 700 ONS Chemotherapy Course Trainers Available to ONS members & oncology nurses upon request CE awarded as follows: 162 nurses - anemia 162 nurses - neutropenia 169 nurses - thrombocytopenia Quality Improvement Project Project Leader Colleen Lemoine, APRN, MN, AOCN Monograph of CQI initiatives Introduction to Performance Improvement (PI) Review of Nursing Practice Review of Standards/Evidence Case Studies Resources Article reprints CD with sample forms and guidelines Quality Improvement Project Monograph objectives PI process with applications for management of myelosuppression Current evidence base for myelosuppression care Examples of PI projects as potential models for practicing nurse in clinical setting Variety of resources for development of PI project related to myelosuppression Variety of formats for sharing an organization s PI story 2003 ATAQ National Conference Project Leader Theresa Gillespie, PhD, BA, BSN, MA, RN 200 participants National speakers, web cast lecture, debut of gaming CD, and CQI monograph Dissemination projects required 2

2003 ATAQ National Conference Course highlights Current concepts of hematopoiesis in colonystimulating factors Overview of myleosuppression Assessment of the neutropenic patient Use of colony-stimulating factors Case studies Management of infections Complications related to neutropenia How to influence decision makers Impact of the nurse in quality cancer care 2003 Web Conferences Series of three web conference presentations related to hematologic toxicities Risk Assessment and Risk Models for Hematologic Toxicities Clinical Guidelines and Evidence for Risk Assessment and Interventions Educating Patients, the Public, and Providers About Hematologic Toxicities Cancer Nursing in Europe TITAN: An EONS Educational Initiative Jan Foubert President, EONS Cancer Nursing is not recognized as a speciality in most European countries Postgraduate Cancer Nursing Programs are available in most European countries Significant diversity in cancer nursing practice across Europe Europe is expanding rapidly Risk that diversity in practice will increase The provision of high quality education programs can help harmonize cancer nursing practice European Oncology Nursing Society (EONS) EONS s Policy on Education Initiatives Cancer nursing educational initiatives should be: based on a learning needs assessment and expert opinion practice-driven and promote reflective practice Reflect the diversity of cancer nursing practice across Europe Pilot tested to demonstrate applicability of program across a number of European countries Accredited by EONS Available in as many languages as possible 3

TITAN Working Group TITAN arose from EONS commitment to education and improving the quality of care that cancer patients receive Training Initiative in Thrombocytopenia, Anaemia and Neutropenia TITAN was inspired by the ONS ATAQ programme and is supported by an educational grant from Amgen (Europe) Karin Ahlberg Pascale Dielenseger Shelley Dolan Jan Foubert (Chair) Maria Mũnoz Jan Ouwerkerk Mary Uhlenhopp Sweden France UK Belgium Spain The Netherlands Amgen (Europe) AG The Working Group attended ONS s National Conference on Hematologic Toxicities, Dallas, October 04 Helped us to define priority topics for TITAN Provided ideas for the TITAN program structure Provided a vision of what TITAN could become in future years 8% European learning needs assessment 5% 13% Total number of responses = 455 (319 from ECCO 12) 14% 27% 15% 18% Spain Denmark The Netherlands France Germany UK Others 21 countries represented in total Characterizing the respondents 43% oncology nurses 21% clinical nurse specialists 12% lecturers* 11% nurse managers 75% care for patients receiving chemotherapy France, Italy, Netherlands UK, Germany* 64% care for inpatients 39% care for outpatients 57% aged 41 60 UK and Italy respondents were younger 11.3 yrs average oncology nursing experience * 75% of German respondents were lecturers/clinical teachers Learning needs assessment Nurses want to take on more responsibility Nurses are strongly interested in learning more 64%+ believe nurses should have greater responsibility in educating patients 90% want to learn more about neutropenia and anaemia, notably: patient education risk assessment management of anaemia/neutropenic episodes 4

Learning needs assessment Knowledge deficits exist 70% of respondents had not received education in neutropenia or anaemia in the last three years Knowledge deficits exist for both anaemia and neutropenia Variable awareness of the incidence and implications of haematological toxicities in patients with cancer Neutropenia <36% showed knowledge of the guidelines for primary prophylaxis with growth factors 51% Netherlands 48% UK Only 21% defined neutropenia correctly as an ANC <2x10 9 /L 38% Netherlands 4% UK 39% did not identify age as a risk factor prior to chemotherapy 49% France 26% Netherlands 57% UK The learning environment CPE is 100% mandatory only in UK For those undertaking CPE, >50% are undertaking 1 19 hours of study per year little, if any, focus on hematologic toxicities The employer will provide financial support in 69% of cases almost 50% of respondents pay for some CPE themselves The majority rate accreditation of CPE courses as very/extremely important Conclusions the opportunity Nurses are willing to take on more responsibility Nurses are strongly interested in learning more Low responsibility in patients education Poor assessment and management Poor quality care No financial support No CPE/training Greater responsibility in patients education Good assessment and management High quality care TITAN Program structure The TITAN program Application of knowledge Dissemination project Evidence-based practice TITAN course Basic background Pre-course reading 6 months 7 hours ~1 hour Structure Self-learning module Practice-driven one-day course lectures case studies panel discussion activities Dissemination project Content Basic hematology background Signs, causes and impact of hematological toxicities Risk assessment Management of hematological toxicities Patient education 5

TITAN materials Pilot phase Four pilot courses run in conjunction with national oncology nursing societies: Ireland March 04 France June 04 The Netherlands September 04 The UK November 04 Ireland pilot team, March 2004 Feedback from the pilot phase Overall consensus that TITAN is a very valuable course Well structured program Content extremely relevant Presentations pitched at the right level Importance of case studies emphasised local case studies most useful General demand for guidelines and assessment tools Implementing TITAN TITAN COURSES IN 2005/06 Dec 04 Jan 05 May 05 onwards Evaluate feedback from pilot courses and dissemination projects Develop final TITAN materials Translation into Dutch, French, German, Italian and Spanish TITAN courses in conjunction with national oncology nursing societies in over 20 countries 6

Conclusion A systematic approach was adopted to modify the ATAQ program for use with a European nursing audience Language barriers and heterogeneity of cancer nursing practice addressed as part of process The success of the TITAN program demonstrates: Importance of developing education programs in a systematic and culturally sensitive manner Value of international collaboration to avoid duplication of effort 7