National Institute for Public Health and the Environment Digital decision aids at the Dutch national health and care portal

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and the Environment Digital decision aids at the Dutch national health and care portal www.kiesbeter.nl etelemed, Feb. 2009 Hans C. Ossebaard [University of Twente]

Collaboration in ehealth and the Environment (RIVM) > National health portal kiesbeter University of Twente > Center for ehealth Research [Faculty Behavioral sciences] and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 2

National health and care portal 2004 Assignment of NL Ministry of Health Background: - Consumer centered health care system (choice) - Demography - E-citizens > e-patients - Increasing health costs and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 3

National health and care portal Objectives: - Reliable and objective (comparative) information on health, care and insurances - Consumer oriented (accessibility, simplicity) - Multi-channel (internet, phone, help desks) and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 4

National health and care portal Anno 2009 Comparative healthcare information Display information on the full spectrum of care Quality information (performance indicators, benchmarks) Health insurances Additional information on Medicines Healthy living Patients rights Medical information (decision aids) and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 5

Visitors per month (2006-20) 20: > 3M visitors 500,000 450,000 400,000 350,000 300,000 250,000 200,000 150,000 100,000 50,000 0 jan feb mrt apr mei jun jul aug sep okt nov dec 2006 2007 20 and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 6

Decision aids Sub site Medical information visited by 2:3 visitors Decision aids: Assignment of Ministry of Health Developed by Dutch Institute for Healthcare Improvement (CBO) in collaboration with major stakeholders Disclosed on national healthcare portal (medical information) and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 7

Decision aids Patient involvement has beneficial effect on process and outcomes (O Connor 2004, et al.) Shared decision making model Decision aids: - interventions to help people make choices - innovative e-tools to improve doctor-patient communication and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 8

Decision aids - Developed according to IPDAS standards, 2005 - Based on clinical guidelines - Preference-sensitive decisions and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 9

Decision aids - ADHD (children) - Anxiety disorders - Breast cancer non-metastatic - Depression - Diabetes - Cardiovascular risk management (+HR) - Lumbar disc prolapse - Pneumothorax - Post-menopausal symptoms - Prenatal screening on Down s syndrome - Screening for prostate cancer and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 10

and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 11

Portal vs Medical information vs DA visitors per month (20) Bezoekers per maand 500.000 450.000 400.000 350.000 300.000 250.000 200.000 150.000 100.000 50.000 0 jan- feb- mrt- apr- mei- jun- jul- aug- sep- okt- nov- dec- Totaal kb MI DA and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 12

Total amount of DA visitors 60.000 50.000 40.000 30.000 20.000 10.000 0 nov dec and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 13

Visitors per Decison aid November/December 20 800 700 600 500 400 2011 2012 300 200 100 0 Overgang Depressie Borstkanker Prostaatkanker Hart- en vaatziekten Prenatale screening ADHD bij kinderen Diabetes Hernia Klaplong Verhoogde kans op hart- en vaatziekten and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 14

Visitors duration (min.) per Decison aid November/December 20 30 25 20 15 10 nov dec 5 0 Overgang Depressie Borstkanker Prostaatkanker Hart-envaatziekten Prenatalescreening ADHDbijkinderen Diabetes Hernia Klaplong Verhoogdekansophart-envaatziekten and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 15

Visitors clicks within decison aid November/December 20 800 700 600 500 400 2011 2012 300 200 100 0 Overgang Depressie Borstkanker Prostaatkanker Hart- en vaatziekten Prenatale screening ADHD bij kinderen Diabetes Hernia Klaplong Verhoogde kans op hart- en vaatziekten and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 16

Decison aids > promoting use by professionals > promoting use by patients - decentralised use - e-awareness among public, professionals en policymakers slowly increases > further research needed and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 17

and the Environment etelemed 2009, Feb. 2009 - Hans C. Ossebaard 18