Will you be ready to care for me?

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Leadership Patient Centered Now Will you be ready to care for me? Planning for the Future Think Tank CLPNA Isabel Henderson Nancy Guebert Co-Leads Continuing Care Resolution Team Thursday October 23, 2014 1

Why this is now the time to act A True Story 2

3

What we can learn from this story A True Story 4

Our Mandate To provide a high level scan of the current state of Home Care, Supportive Living, Long Term Care To review the Continuing Care Concerns Line and Email To connect with clients, families, the public and stakeholders To identify strengths and opportunities in all sectors including educational opportunities 5

Why the burning platform Largest growth area; older adult growth to 880,000 by 2030 Highest number of early dementia cases in Canada Complex Chronic disease Continuing care is more than seniors 6

What we have heard Access Communication Quality Transition 7

Access What we have heard How to navigate the system - who do I call Waiting for information Waiting for a bed 8

Quality of Care What we have heard Responsiveness to call bells Activities of daily living Psychosocial/emotional support Goals of care Wound management Complex chronic conditions (eg: Dementia care) 9

What we have heard Communication Start the conversation early Lack of delay in response to concerns Reluctance to share concerns Use of teleconference, Skype Conflicting or lack of information 10

Transitions Delays in referrals What we have heard Transfers between facilities Too many moves Right place, right care, right provider 11

What we have heard Facility Temperature Food Cleanliness Home-like vs. Institutional 12

What we have heard Other Way-finding What is CCRT? How does long term care work? Some interesting inquiries: noise in the back alley 13

Our Workplan is built around 14

Workplan Patients/Families/Clients Public Navigation/Hub Streamline case coordination Expand family/caregiver/volunteer support Relationships Optimize the client s potential 15

Workplan Staff/Providers Listen, engage, value Leadership at the frontline Orientation, education, knowledge translation Team work 16

Workplan The System Clear vision - Care at home/care in community It is broader than seniors Strong partnerships/relationships Clarify roles, responsibilities, accountability Staff model to support acuity Technology & Innovation Restorative Care Person-Centred Care A Foundation of Stability 17

Quality and Safety Continuing Care in Alberta: Clients/Families/Public Based on: 195/485 interviews/people, 350 documents reviewed, 320 concerns received Quality and Safety Home Living Current waiting for ALC placement in community (all levels) as of Aug 31/14 = 748 Current Home Care client Not enrolled Supportive Living Level 3 (unscheduled 24/7 personal care) HCA s assist residents with ADLs 24/7 RN on call 24/7 Supportive Living Level 4/4D* (hours of care are slightly less than LTC about 3.0 hours of care per resident ) (*Dementia Care in a secure environment) HCA/LPN 24/7 RN available 24/7 but not necessarily on site Long Term Care Alberta currently funds 4.02 hours of direct care per resident per day RN/LPN/HCA 24/7 Acute Care # ALC waiting in Acute care (all levels) as of Aug 31/14 =740 Return Home Facility Living Client education Caregiver /family education Respite Day programs Client and Family Centred Care/Caregiver Resources and Support Caregiver /family education Client education Family councils Options GOAL: LPNs supporting care in place Client education Caregiver /family education Family councils Client education Caregiver /family education Family councils Client education Caregiver /family education Patient and family centred care Don t give up too early; care at home Quality and Safety 18

Quality and Safety Continuing Care in Alberta: Staff Based on: 195/485interviews/people, 350 documents reviewed, 320 concerns received Quality and Safety Home Living Current waiting for ALC placement in community (all levels) as of Aug 31/14 = 748 Current Home Care client Not enrolled Supportive Living Level 3 (unscheduled 24/7 personal care) HCA s assist residents with ADLs 24/7 RN on call 24/7 Supportive Living Level 4/4D* (hours of care are slightly less than LTC about 3.0 hours of care per resident ) (*Dementia Care in a secure environment) HCA/LPN 24/7 RN available 24/7 but not necessarily on site Long Term Care Alberta currently funds 4.02 hours of direct care per resident per day RN/LPN/HCA 24/7 Acute Care # ALC waiting in Acute care (all levels) as of Aug 31/14 =740 Return Home Facility Living Care coordination Collaborative Teams Care at home Education/ knowledge mobilization Client and Family Centred Care/Caregiver Resources and Support Care Coordination Collaborative Teams Education/ knowledge mobilization Options GOAL:LPN s supporting Care in Place Care Coordination Collaborative Teams Education/ knowledge mobilization Care Coordination Collaborative Teams Education/ knowledge mobilization Keep moving Education/ knowledge mobilization Start the conversation early on admission; home Quality and Safety 19

Quality and Safety Continuing Care in Alberta: System Based on: 195/485 interviews/people, 350 documents reviewed, 320 concerns received Quality and Safety Home Living Current waiting for ALC placement in community (all levels) as of Aug 31/14 = 748 Current Home Care client Not enrolled Supportive Living Level 3 (unscheduled 24/7 personal care) HCA s assist residents with ADLs 24/7 RN on call 24/7 Supportive Living Level 4/4D* (hours of care are slightly less than LTC about 3.0 hours of care per resident ) (*Dementia Care in a secure environment) HCA/LPN 24/7 RN available 24/7 but not necessarily on site Long Term Care Alberta currently funds 4.02 hours of direct care per resident per day RN/LPN/HCA 24/7 Acute Care # ALC waiting in Acute care (all levels) as of Aug 31/14 =740 Return Home Facility Living Early enrolment in Home Care Client and Family Centred Care/Caregiver Resources and Support Options GOAL: LPN s supporting care in place Restorative/ Rehab Care Model Restorative/ Rehab Care Model Restorative/ Rehab Care Model Avoid lengthy admissions Keep moving Quality and Safety Restorative/ Rehab Care model Goals of Care Goals of Care Goals of Care Admission Avoidance 20

The LPN s contribution to the plan... Assessment and reporting skills Lead and encourage a team Can practice independently and/or as a collaborative team member working to full scope of practice Has knowledge and skills to assist clients with complex needs Be part of the quality and safety agenda Be a voice 21

Client and Family Education/Information Early enrolment in Home Care Equipping the home environment Advanced Care Planning How to manage the diagnosis 22

Restorative Care Functional Decline Recuperate and rehabilitate Improve/optimize mobility/physical function Quicker recovery - reduce falls, depression, improved sleep, dependency Can be done anywhere! If you don t use it, you lose it 23

Collaborative Practice/Care Coordination Front Line Directly Impacts Care planning Care delivery Shared decision-making Outcomes Leadership is not about titles, positions or flowcharts; it is about one life influencing another. John Maxwell, American Author 24

Education/Knowledge Mobilization Using the education and knowledge that you have Coach and mentor Specialized knowledge/education 25

Patient & Family Centred Care Caring NOT managing Knowing the patient/family stories before we judge or label Seeing ourselves and our work through the patient s/family s eyes Partnership; what we do WITH patients rather than what we do TO them and FOR them Inclusion Please respect me. Please listen to me. Please involve me. Please don t confuse me. Aging in the Right Place 26

Patient &Family-Centred Care We have the opportunity to heal the mind, soul, heart, and body of our patients, their families and ourselves. They may forget your name. But they will never forget how you made them feel. (Maya Angelou) 27

Patient & Family-Centred Care A test of a people is how it behaves toward the old. It is easy to love children. But the affection and care of the old, the incurable, the helpless, are the true gold mines of a culture. (Abraham Joshua Heschel, Rabbi and Civil Rights Activist) 28

We work in the Resident s home: They do not live in our Workplaces Iris Neumann Capital Care 29

What are we being told Have the right capacity to support the care needs Strategies to reduce transfers to Emergency or Acute Care admissions Ask for our ideas & opinions The time is NOW We need everyone 30

Leadership True leaders don t create followers, they create more leaders. Aging in the Right Place 31

Leadership Leaders think and talk about the solutions. Followers think and talk about the problems. (B. Tracy) (B. Tracy) Aging in the Right Place 32

OLD PARADIGM Leadership NEW PARADIGM Have a Leader Follow Best Practices Play the Game Start with What Quick to say No Set boundaries Train Create culture of Leadership Develop Next Practices Change the Game Start with Why Quick to find a way to say Yes Close gaps Develop 33

We have a window of opportunity We need to streamline and simplify We need to be proactive rather than reactive We need to ensure that Continuing Care is on everyone s agenda We need to give Continuing Care the attention that it deserves. We need to keep the conversation alive We need everyone involved! 34

If we all live to be 100 we have a lot of work to do!! The onward march of the century makers (BBC News, Sept 26/14) Austerity may be gripping Whitehall but one department is increasing staff numbers - the Department for Work and Pensions. The new employees are needed to organise the growing number of congratulatory cards for centenarians. The increasingly long lists are dispatched to Buckingham Palace so officials can get the Queen's birthday messages in the post. Figures from the Office for National Statistics, noted by the DWP, show there are now 13,780 people aged 100 or more in the UK, an increase of 70% over the last decade. 35

We will be ready Hope Optimism 36