Health Literacy 101 for Health Professionals October 7, 2015

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Health Literacy 101 for Health Professionals October 7, 2015 Liz Edghill, BA, RN, BSN, Refugee Health Educator/Coordinator Kristin Munro-Leighton, BA, MPH, Health Educator

Liz Edghill Nothing to disclose Kristin Munro-Leighton Nothing to disclose We have no commitments to or relationships with pharmaceutical companies or other businesses, related to this subject matter or otherwise.

Health literacy issues affect the health and health care experience of most Americans yet the demands and expectations of the healthcare system only continue to increase. Health professionals often fail to realize the gap between what they intend to convey and what patients understand. Health professionals need resources to address health literacy issues.

Discuss the definition of health literacy and why it is a problem. Identify strategies for patients and family members. Identify strategies for health providers and facilities. Practice the Teach-Back Method. Review resources to improve health literacy skills.

We hope you will leave with resources to: Improve your own health literacy. Improve your communication with patients. Improve health literacy at your organization. Educate other consumers and professionals.

Definition and Scope of the Problem

The degree to which individuals have the capacity to obtain, process, communicate, and understand basic health information and services needed to make appropriate health decisions. SOURCE: Affordable Care Act, 2010

Fill out patient information and consent forms Follow treatment plans Read handouts, brochures, and news about health topics Figure out timing and dosage of medicines Follow cancer screening guidelines Use medical tools for personal care Figure out health insurance benefits Know where to go for appropriate care and much more

Your naicisyhp has dednemmocer that you have a ypocsonoloc. Ypocsonoloc is a test for noloc recnac. It sevlovni gnitresni a elbixelf gniweiv epocs into your mutcer. You must drink a laiceps diuqil the night before the noitanimaxe to clean out your noloc. SOURCE: http://www.healthed.com

You have a 1 in 10 chance of having Disease A, and a 1 in 20 chance of having Disease B in the next 10 years. SOURCE: http://www.healthed.com

You drink this whole bottle of soda. How many grams of total carbohydrates does it contain? SOURCE: Rothman R, Am J Prev Med, 2006

Take 2 tablets by mouth twice daily. SOURCE: http://www.healthed.com

Challenges for patients: Patient tasks for Diabetes follow up visit SOURCE: Integrating Health Literacy with Health Performance Management, IOM 2013

Improve patient safety Improve quality of care Improve patient compliance with treatment plan Following prevention and screening recommendations Self-management of health conditions Correct use of medication Improve patient health

10 Strategies for Health Care Providers and Facilities

Assume everyone has difficulty with health information Create a safe and shame-free environment Offer help to everyone, regardless of appearance Provide patient-centered care

Patient-Centered Medical Home accreditation The interdisciplinary team identifies the patients health literacy needs. The primary care clinician and the interdisciplinary team incorporate the patients health literacy into the patients education.

Brief Health Literacy Screen (BHLS) 1. How confident are you filling out forms by yourself? 2. How often do you have someone help you read hospital materials? 3. How often do you have problems learning about your medical condition because of difficulty reading hospital materials? SOURCE: Chew L, Family Medicine, 2004, 36(8), 588-94

https://cahps.ahrq.gov/surveys-guidance/item-sets/literacy/2311_about_health.pdf

National Action Plan to Improve Health Literacy US Department of Health and Human Services http://www.health.gov/communication/hlactionplan/ pdf/health_literacy_action_plan.pdf

Healthy People 2020 Objectives Increase the proportion of persons who report their health care provider always gave them easy-tounderstand instructions about what to do to take care of their illness or health condition.

Greet patients warmly. Make eye contact. Use plain, non-medical language. Slow down. Limit content. Repeat key points. Use pictures, illustrations, and 3-D models.

SOURCE: http://www.healthed.com

SOURCE: http://www.healthed.com

Objectives Limit to 2-3 important points Layout One page vs. brochure Reading level Aim for 5 th to 6 th grade More tips Use short words and sentences Avoid medical jargon and idioms Limit fonts Leave white space Careful with images and pictures

TOOLKIT for Making Written Material Clear and Effective Centers for Medicare and Medicaid Services https://www.cms.gov/outreach-and- Education/Outreach/WrittenMaterialsToolkit/

In Plain Words: Creating Easy to Read Handouts Ohio State University http://medicine.osu.edu/orgs/ahec/docu ments/toolkit%20edit.pdf

Test written materials with your patients! Family Health Centers Patient Feedback Group Established in 2009; meets 4-6 times a year

Invite questions using body language Sit Look at your patient Show I have the time Try not to interrupt Ask for questions Ask What questions do you have?" NOT Do you have any questions? Patients will say no

Ask Me 3 National Patient Safety Foundation http://www.npsf.org/askme3/ What is my main problem? What do I need to do about it? Why is it important?

Question Builder Agency for Healthcare Research and Quality http://www.ahrq.gov/legacy/questions/qb/

People are using a lot of prescriptions! 4 billion prescriptions filled at retail pharmacies in 2014 Age 45 64 uses average of 4.7 unique prescriptions a year Age 65 74 uses average of 6.3 unique prescriptions a year Patients with chronic conditions often use 10 or more SOURCE: Medical Expenditure Panel Survey, 2009; Kaiser Family Foundation; FDA

People are using a lot of OTCs! >300,000 OTC medicines available Most users assume all OTCs are safe and don t read instructions Most users are not aware of active ingredient or its importance Many users do not report use to their health provider SOURCE: Medical Expenditure Panel Survey, 2009; Kaiser Family Foundation; FDA

One medicine can be many sizes, colors, shapes, and names What do these pills have in common? Prescription instructions are impossible! SOURCE: Medical Expenditure Panel Survey, 2009; Kaiser Family Foundation

Low health literacy leads to Poorer understanding of medication names, indications, and instructions Poorer adherence to treatment regimens Nearly half of adults misunderstand Common dosing schedules Take two tablets by mouth twice daily Auxiliary warnings Do not chew or crush, swallow whole For external use only SOURCE: Role of Health Literacy in Patient Safety, AHRQ 2009

Remind patients to: Bring medicines to every visit Keep an updated list of their medicines Include OTCs, vitamins, and herbals Get to know their pharmacist and ask questions Know the what-why-when-and-how of their medicines What? Name of the medicine and what it looks like Why? Why they are taking it When? What time(s) of day should they take the medicine How? How much medicine to take each time(dosage). Whether to take it with food or on an empty stomach. How long to take the medicine. How it might affect them. How they will know it is working.

Internet usage About 80% of internet users look for health information online Looking for health information is the 3 rd most popular online activity Symptoms and treatments dominate internet users health searches About 1 in 3 adults in the U.S. owns a smartphone Tell your patients Don t try to diagnose yourself! Don t Google it! Use websites that end with.edu,.org, or.gov Use caution with websites that end with.com Use caution with websites selling a product SOURCE: http://www.healthed.com

http://www.babycenter.com

http://www.medlineplus.gov

Immediately after leaving the doctor s office, patients forget 40-80% of what they heard. Almost 50% of what they do remember is wrong. SOURCE: http://www.healthed.com

Supported by AHRQ research Asking that patients recall and restate what they have been told was one of the 11 top patient safety practices based on the strength of scientific evidence. Healthy People 2020 objective Increase the proportion of persons who report their health care provider always asked them to describe how they will follow the instructions. SOURCE: Making Health Care Safer, AHRQ 2001

A chance to check for understanding and, if necessary, re-teach the information. Ask patients to repeat in their own words what they need to know or do. NOT a test of the patient, but of how well you explained a concept. Can be used by any member of the health care team.

Throughout the visit: Chunk and Check Make a few points Summarize Check for understanding Repeat Replaces asking Do you understand? Patients will say YES! Do you have any questions? Patients will say NO!

I want to be sure I explained your medicine well. Can you tell me how you are going to take it? We covered a lot today about your diabetes and I want to make sure I explained things clearly. Let s go over what we discussed. What are three ways you can keep your diabetes under better control?

Patient perspective: Say it back At the end of the visit, say Okay, let me make sure I got everything. Restate your health problem Restate your treatment plans Take notes Follow up visit? Referral? Fill a prescription?

http://www.teachbacktraining.com

Attributes of a Health Literate Organization The Institute of Medicine http://www.iom.edu/~/media/files/perspectives-files/2012/discussion- Papers/BPH_HLit_Attributes.pdf

Health Literacy Universal Precautions Toolkit Agency for Healthcare Research and Quality http://www.ahrq.gov/professionals/qualitypatient-safety/quality-resources/tools/literacytoolkit/index.html

FHC Health Literacy Policy Treat health literacy as a universal precaution Offer all patients help, regardless of appearance Use clear communication with all patients Use plain language, not medical jargon Use pictures to help patients understand Speak more slowly Use the Teach-Back Method Encourage all patients to ask questions Ask What questions do you have?

FHC Plain Language Policy Plain language guidelines should be followed for all written materials received by patients Includes health education materials, letters, forms Use the FHC Plain Language Tips Documents that will be sent to an external printer for formal, large-scale printing must be reviewed first by members of the Health Literacy Workgroup. Documents that will be translated must be reviewed first by members of the Health Literacy Workgroup.

Building Health Literate Organizations: A Guidebook to Achieving Organizational Change Health Literacy Iowa http://www.unitypoint.org/health-literacyguidebook.aspx

Integrating Health Literacy with Health Care Performance Measurement Institute of Medicine http://www.iom.edu/activities/publichealt h/~/media/files/perspectives- Files/2013/Discussion-Papers/BPH- IntegratingHealthLiteracy.pdf

Affordable Care Act signed March 23, 2010

Who do I see? Where s the ER? Where do I go? What s an MCO? How do I stay well?

How to kynect https://kynect.ky.gov/

From Coverage to Care Centers for Medicare and Medicaid Services https://marketplace.cms.gov/technicalassistance-resources/c2c.html

Resources and Training Tools

Institute of Medicine Roundtable on Health Literacy http://iom.nationalacademies.org/activities/publichealth/healthliter acy.aspx National Network of Libraries of Medicine http://nnlm.gov/outreach/consumer/hlthlit.html Harvard University School of Public Health Health Literacy Studies https://www.hsph.harvard.edu/healthliteracy/ Institute for Healthcare Advancement http://www.iha4health.org/health-literacy-resources/ Health Literacy Consulting www.healthliteracy.com

US DHHS Health Resources and Services Administration http://www.hrsa.gov/publichealth/healthliteracy/ Effective Communication Tools for Healthcare Professionals (free) Centers for Disease Control http://www.cdc.gov/healthliteracy/ Overview, Writing, Using Numbers, Creating Lists/Charts/Graphs, Speaking (free) Health Literacy activities by state Health Literacy Kentucky http://www.healthliteracyky.org Sessions from annual summits (free)

Health Literacy Kentucky http://www.healthliteracyky.org Tools for Teaching

Liz Edghill, Refugee Health Educator / Coordinator (502) 468-6589 eaedghill@fhclouisville.org Kristin Munro-Leighton, Health Educator (502) 772-8588 kmunroleighton@fhclouisville.org