The Peninsula Network Site Specific Group for Haemato-Oncology Network Annual Report June 2015 Chair: Patrick Medd Date Approved:
Annual report of the Network Site Specific Group for Haemato-Oncology 13-1C-104h Agreement cover sheet The annual report of the Network Site Specific Group for haemato-oncology has been agreed on behalf of group members by: Name Role Date Dr Patrick Medd Chair of Haemato-Oncology NSSG This annual report relates to the period from April 2014 to May 2015 and is compiled to give an overview of the outcomes, achievements and challenges of the Peninsula Cancer Network Site Specific Group for Haemato-Oncology
1. Introduction The Peninsula Haemato-Oncology NSSG is being re-established, not having met for several years due to a national cut-back in network support. Peninsula Cancer Network Manager and Administrative Support have been funded for an initial year by the South West Strategic Clinical Network (SWSCN) and a bid for future funding across participating trusts is expected to be approved by mid-2015. The trusts have continued to meet and share the outcomes of good practice and local developments using the Blood Club as a forum. The first meeting of the new NSSG was held as part of a Blood Club meeting on 14 th May 2015 and attended by a wide representation of clinical and diagnostic members from all five peninsula trusts. Despite the large geographical area covered by the NSSG, the group is working very well together and is keen to keep a strong clinical focus. 2. Network Configuration 13-1C-101h The Peninsula Haemato-Oncology network covers the total catchment population (1.718m) of the following organisations: Organisation Referring CCG Plymouth Hospital NHS Trust NEW Devon CCG Northern Devon Healthcare NHS Trust NEW Devon CCG Royal Cornwall Hospitals NHS Trust Kernow CCG South Devon Healthcare NHS Foundation Trust South Devon & Torbay CCG Royal Devon & Exeter NHS Foundation Trust NEW Devon CCG Note: NEW Devon CCG (Northern, Eastern and Western Devon CCG) 3. Network Group Membership 13-1C-102h The Haemato-Oncology NSSG membership is comprised of clinicians, nurses and diagnostic staff representing the MDTs at the above organisations together with nominated user representatives. 4 Terms of Reference 13-1C-102h The Haemato-Oncology NSSG Terms of Reference were adopted by the members present at the meeting held 14 th May 2015. It was agreed that the Chair (Patrick Medd) and Vice Chair (Jason Coppell) would take on those roles for the next three years. The final document has been posted on the network website: http://www.swscn.org.uk/networks/cancer/sitespecific-groups/peninsula-site-specific-groups/haematology-ssg/peninsula-haematology-ssginformation-for-members/ 5 Meetings 13-1C-103h The first meeting of the new NSSG was held on 14 th May 2015 and attended by a wide representation of clinical and diagnostic members. A further meeting has been scheduled for 15 th October 2015.
Copies of the notes of the meetings and supporting documents can be found on the Peninsula Cancer Network website at: http://www.swscn.org.uk/networks/cancer/sitespecific-groups/peninsula-site-specific-groups/haematology-ssg/peninsula-haematology-ssgmeeting-archive/ Meeting Attendance 2014/15 13-1C-102h, 13-1C-103h Organisation First Name Surname Job Title 14.05.15 Northern Devon Healthcare Jason Coppell Lead Cancer Clinician Present NHS Trust Northern Devon Healthcare Melanie Bowyer Clinical Nurse Specialist Present NHS Trust Plymouth Hospitals NHS Patrick Medd Haematologist (Chair) Present Trust Plymouth Hospitals NHS Trust Hannah Hunter Consultant Haematologist Present / TYA Lead Plymouth Hospitals NHS Trust Joanna Farrugia Clinical Scientist Present Plymouth Hospitals NHS Trust Suzanne Greep Transplant Coordinator Present Plymouth Hospitals NHS Trust Nigel Oakes Lead Biomedical Scientist Present Plymouth Hospitals NHS Trust Jan Malinowski Clinical Nurse Specialist Present Plymouth Hospitals NHS Trust Kerry McKay Clinical Nurse Specialist Present Royal Cornwall Hospitals NHS Bryson Pottinger Lead Consultant Present Trust Haematologist Royal Devon & Exeter NHS Jason Coppell Lead Cancer Clinician Present Foundation Trust Royal Devon & Exeter NHS Clare Fox Clinical Nurse Specialist Present Foundation Trust South Devon Healthcare NHS Deborah Turner Lead Cancer Clinician Present Foundation Trust South Devon Healthcare NHS Victoria Bell Clinical Nurse Specialist Present Foundation Trust Peninsula Research Network Wendy Cook Clinical Research Delivery Preseht Manager Peninsula Cancer Network Liz Boylan Peninsula Cancer Present Network Manager Peninsula Cancer Network Sue Buddin PCN Admin Support Present Additional potential members May 2015 Northern Devon Healthcare NHS Trust Malcolm Hamilton Lead Cancer Clinician Plymouth Hospitals NHS Trust Claire Hutchinson Consultant Haematologist Plymouth Hospitals NHS Trust Tim Nokes Consultant Haematologist Plymouth Hospitals NHS Trust Yin Thi Consultant Haematologist Plymouth Hospitals NHS Trust Wayne Thomas Consultant Haematologist Plymouth Hospitals NHS Trust Amy Roy Oncologist Plymouth Hospitals NHS Trust Simon Rule Pathologist Royal Cornwall Hospitals NHS Trust Julie Blundell Consultant Haematologist
Royal Cornwall Hospitals NHS Trust Richard Noble Consultant Haematologist Royal Cornwall Hospitals NHS Trust Elizabeth Parkins Consultant Haematologist Royal Cornwall Hospitals NHS Trust Anton Kruger Haematologist Royal Cornwall Hospitals NHS Trust Desmond Creagh Lead Consultant Royal Cornwall Hospitals NHS Trust Adam Forbes Consultant Royal Devon & Exeter NHS Foundation Trust Paul Kerr Joint Lead Cancer Clinician Royal Devon & Exeter NHS Foundation Trust Claudius Rudin Consultant Haematologist Royal Devon & Exeter NHS Foundation Trust Tony Todd Consultant Royal Devon & Exeter NHS Foundation Trust Jackie Ruell Consultant Royal Devon & Exeter NHS Foundation Trust Loretta Ngu Consultant Royal Devon & Exeter NHS Foundation Trust Alice Godsall Advanced Nurse Practitioner Royal Devon & Exeter NHS Foundation Trust Kate Denby Advanced Nurse Practitioner South Devon Healthcare NHS Foundation Trust Heather Eve Consultant South Devon Healthcare NHS Foundation Trust Patrick Roberts Consultant South Devon Healthcare NHS Foundation Trust Nichola Rymes Consultant South Devon Healthcare NHS Foundation Trust Stephen Smith Consultant Copies of all minutes sent to: Charlotte Overney Lead Cancer Nurse / Cancer Manager (ND) Sian Dennison Lead Cancer Nurse / Cancer Manager (PHT) Kathryn Radcliffe Senior Matron (RCHT) Tina Grose Lead Cancer Nurse (RDE) Fran Lowery Cancer Cluster Manager (RDE) Sam Brenton Lead Cancer Nurse / Matron (SD) Emma Wheatfill Cancer Manager (SD) 6. Clinical Guidelines 13-1C-107h South Devon have produced a handbook Clinical Haematological Malignancy Guidelines. This has been circulated to all MDT leads who will review and agree if appropriate to adopt for the network. 7. Pathways 13-1C-109g, 13-1C-110h Pathways being reviewed with guidelines. 8. Audit 13-1C-112h The network will review the new 2WW NICE Guidelines when released and agree format of audit on conversion rate 9. Patient Representation 13-1C-102h, 13-1C-106h A minimum of two user representatives will be invited to join the NSSG as co-opted members. Trusts regularly participate in national patient survey. 10. Survivorship 13-1C-111h Now labelled Living With and Beyond Cancer and sponsored by Macmillan Cancer Support. The programme was devised to improve outcomes for patients and support practitioners in
taking the actions necessary to drive improved cancer outcomes whilst reducing the numbers of follow-up appointments. One of the Macmillan Project Managers will be invited to present at the next meeting 11. Research and Clinical Trials 13-1C-113h The group discuss recruitment into clinical trials at each NSSG meeting. Deborah Turner has been appointed subspecialty lead for the haemato-oncology group. A report highlighting the current and proposed recruitment status of each MDT will be posted on the South West Cancer website: http://www.swscn.org.uk/networks/cancer/site-specific-groups/peninsulasite-specific-groups/haematology-ssg/peninsula-haematology-ssg-information-for-members/ The Cancer Research Network transitioned in April 2014 into fifteen local research networks, aligned with the Academic Health Service Network. The new South West Peninsula Cancer Research Network (PCRN) was set up to include: Royal Cornwall Hospitals NHS Trust Plymouth Hospital NHS Trust Northern Devon Healthcare NHS Trust South Devon Healthcare NHS Foundation Trust Royal Devon & Exeter NHS Foundation Trust Taunton and Somerset NHS Foundation Trust Yeovil District Hospital NHS Foundation Trust The new PCRN will: Track EOI return rates Identify and promote new studies Identify blocks to recruitment and escalate Coordinate regional meetings, forums, workshops and share good practice Attend and support NSSG meetings by providing recruitment data and trials information Support Peer Review The Peninsula is supported by: Duncan Wheatley, Clinical Specialty Lead - duncan.wheatley@rcht.cornwall.nhs.uk Wendy Cook, Research Delivery Manager wcook1@nhs.net Ann Courtman, Administrator ann.courtman@nhs.net Dr Deborah Turner, Subspecialty Lead deborah.turner2@nhs.net
SWP Haematology 2013/14 and 2014/15 - Recruitment by Study Study Type Design RDE ND SD PHT RCT 13/14 14/15 13/14 14/15 13/14 14/15 13/14 14/15 13/14 14/15 Leukaemia (acute lymphoblastic) UKALL 14 Non-Commercial Interventional 2 2 1 2 2 1 Leukaemia (acute lymphoblastic) UKALL60+ Non-Commercial Observational 1 2 Leukaemia (acute lymphoblastic), Leukaemia (acute myeloid), Leukaemia (acute promyelocytic), Myelodysplastic syndromes Non-Commercial Interventional Leukaemia (acute myeloid), Myelodysplastic Non-Commercial Interventional syndromes AML17 Leukaemia (acute myeloid), Myelodysplastic Non-Commercial Interventional syndromes AML18 Leukaemia (acute myeloid), Myelodysplastic Non-Commercial Interventional syndromes MDSBio Leukaemia (other), Leukaemia (Chronic Non-Commercial Interventional Lymphocytic Leukaemia), Lymphoma (Non Hodgkins indolent) PICLLe Leukaemia (Chronic Lymphocytic Leukaemia) Non-Commercial Interventional CLL210 Leukaemia (Chronic Lymphocytic Leukaemia) Non-Commercial Interventional FLAIR Leukaemia (Chronic Lymphocytic Leukaemia) Commercial Interventional NCRN-2442-ABT 199 (GDC-0199) Leukaemia (Chronic Lymphocytic Leukaemia) Commmercial Interventional NCRN421:GS-1101 Leukaemia (Chronic Lymphocytic Leukaemia) Commercial Interventional NCRN554 Leukaemia (Chronic Lymphocytic Leukaemia) Non-Commercial Interventional RIAltO Leukaaemia (Chronic Myeloid Leukaemia) Non-Commercial Interventional DESTINY Myelodysplastic syndromes Commercial Interventional 3 2 1 1 1 3 8 12 4 3 10 7 8 2 23 8 6 1 17 1 1 1 1 1 3 2 3 1 2 Myeloma LenaRIC Non-Commercial Interventional 1 1 Myeloma MUK five Non-Commercial Interventional 2 Myeloma MUK four Non-Commercial Interventional 2 Myeloma MYELOMA XI Non-Commercial Interventional 10 14 4 3 9 9 5 11 16 16 Myeloma NCRN431 ENDEAVOR Commercial Interventional 4 Myeloma NCRN443: PREAMBLE Commercial Observational 9 8 Myeloma TEAMM Non-Commercial Interventional 6 2 3 1 5 1 4 4
Study Type Design RDE ND SD PHT RCT Myleoproliferative diseases MAJIC Non-Commercial Interventional 8 1 Soft Tissue POSTAGE Non-Commercial Observational 1 Solid Tumour of Childhood NCRN426 Commercial Interventional 3