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Faculty/Presenter Disclosure Faculty: Danielle Hornung, Jennifer Hardy, Ed Macanama Relationships with commercial interests: Grants/Research Support: N/A Speakers Bureau/Honoraria: N/A Consulting Fees: N/A Other: N/A

ENRICHES: A COLLECTIVE IMPACT PLAN FOR CAREGIVERS 55+ Joel Sadavoy Jennifer Hardy Danielle Hornung Edward McAnanama

Objectives learn about a collaborative outreach strategy to identify and engage socially isolated caregivers; learn about various approaches to reducing social isolation in caregivers 55+; and understand the nature of Collective Impact Plans and how they can strengthen community impact.

ENRICHES The ENRICHES collaborative brings together local health and community leaders to address the complex challenges facing isolated caregivers 55+ living in Toronto.

A call for proposals for Collective Impact 2015 ESDC Pan-Canada call for projects that: Involve multiple organizations working together for collective impact Aim to reduce social isolation in seniors 55+ What is Collective Impact? http://www.fsg.org/publications/collective-impact

6 ENRICHES STRUCTURE ENRICHES ENgagement to Reduce Isolation of Caregivers at Home & Enhancing Seniors North York Community House Canadian Mental Health Association WoodGreen Community Services Alzheimers Society Toronto Reitman Centre Newcomer Connections for Senior Caregivers Living Life to the Full WoodGreen Caregiver Initiative OCEAN Outreach, Connection, Education And Navigation i-trice Innovation and Training to Reduce Isolation in Caregivers and the Elderly

ENRICHES: Collective Impact Goal: To reduce social isolation in caregivers aged 55+ in Toronto by 2018 and beyond.

Rational/Context Poor physical health Caregiving Isolation Caregiver Burden Poor mental health

Case Study: Maria Maria is a 56 year old woman, caring for her mother with dementia. Recently, Maria s mother has been having trouble managing on her own, and has moved in with Maria and her daughter. Maria feels so exhausted from supporting her mother that she does not go out or see people anymore. She also feels too embarassed to have them in her home, as she recognizes she doesn t have time for grocery shopping or chores, and feels she would not be a very good host. She feels that her constant worry and upset is leading her to have feelings of anxiety and depression of her own, and doesn t know what to do. Maria would like to get help for both her mother and herself, but she doesn t know what resources are available

Our Approach Caregivers Health Care Providers & Volunteers

Target Population people family, friends, neighbours who provide critical and often ongoing personal, social, psychological and physical support, assistance and care, without pay, for people in need of support due to frailty, illness, degenerative disease, physical/cognitive/mental disability, or end of life circumstances. The Change Foundation, 2016 *Aged 55+

It s Hard to See Something You re Not Looking For People (across sectors) are often focused on another specific task: Supporting the care recipient Working on seniors recreation programs Etc.

Self-Awareness I did not realize that I was a family caregiver. As far as I was concerned, I was just a wife trying to do everything in my power to help my husband during a difficult time and to make sure that I too survived. -Sara Shearkhani, Shedding New Light

ENRICHES: Identification Strategies Partnerships Organizations serving caregivers, seniors and care recipients 1-hour lunch and learn style workshop for service providers that describes what a caregiver is, and why it is important to focus on them Outreach at fairs/events, distributing promotional materials Cold calling/emailing organizations Flyers/brochures (libraries, hospitals, etc.) Cross referrals (power of collective impact!)

Engage Caregivers To have caregivers participate in programs/services, and utilize available resources;

What are the barriers in engaging caregivers to attend programming? Language Respite Time Energy/Fatigue Finances Caregiving Responsibilities Feeling trapped or stuck and unable to leave home Depression

ENRICHES: Engagement Strategies Respond to barriers: Offer tokens Help connect caregiver to respite options Concurrent activities (Caregiver and Care Recipient Come Together) Program/materials translated into other cultural/language groups Marketing materials enhance motivation, what s in it for me? Have person that the caregiver trusts or has rapport with to offer programs and services

Connect Caregivers to Services and Resources

Connect Caregivers to Services and Resources

Connect Caregivers to Services and Resources Creating a menu of options that caregivers can access Services/Resources within ENRICHES Collaborative Leveraging networks Warm referrals Working towards health equity marginalized groups giving voice to what they need to ensure the health system works for them

ENRICHES: Services/Resources for Caregivers Living Life to the Full: Mental health promotion course Alzheimer/Dementia education and training Financial services/tax clinic Social networking groups English conversation circles Yoga Technology education classes Navigation services Tangible supports such as shopping and escort

Build Capacity Provide education and training opportunities for service providers and volunteers that interact with caregivers

ENRICHES: System Capacity Building Service provider training: CMHA Living Life to the Full i-trice (Reitman Centre) 1. CARERS Coaching Advocacy Respite Education Relationship Simulation) 3-day training 2. I-SEE-U To recognize the caregiver 3. PST Problem Solving Techniques Emotional Reasoning to Logical Reasoning

ENRICHES: System Capacity Building Training for new volunteer roles: Community navigator Mentor Mental Health Liaison

IDENTIFY ENGAGE CONNECT BUILD CAPACITY IN THE SYSTEM 55+ ISOLATED CAREGIVERS

Case Study - Maria How might we identify Maria? What tools might you use to engage Maria? What services/resources might you offer Maria?

Case Study: Maria Maria is a 56 year old woman, caring for her mother with dementia. Recently, Maria s mother has been having trouble managing on her own, and has moved in with Maria and her daughter. Maria feels so exhausted from supporting her mother that she does not go out or see people anymore. She also feels too embarassed to have them in her home, as she recognizes she doesn t have time for grocery shopping or chores, and feels she would not be a very good host. She feels that her constant worry and upset is leading her to have feelings of anxiety and depression of her own, and doesn t know what to do. Maria would like to get help for both her mother and herself, but she doesn t know what resources are available

How would the supports offered by a Collective Impact differ from those of a single service provider?

Impact of Collaboration Participants accessing cross-partner programming multiple supports received New program development new initiatives created Cross-training of staff Development of concurrent programming for both the care recipient and caregiver New networks developed Integration of Grassroots groups with formal service providers

Thank you/questions