IACCPHP PRESENTATION A day in the life of a Community Care Participant!
Family Involvement Presented by Margaret Raines and Muriel Jones with Addus Health Care Definitions: Family Dynamics Families are complex units that are bonded by strong emotional connections. The ways in which members of a family interact with each other and in relation to the group as a whole are often referred to as family dynamics. Traditions, communication styles, behavioral patterns and emotional interdependence all influence the dynamics between family members. Murray Bowen, M.D., American psychiatrist and a professor in psychology at the Georgetown University Medical Center (1959-1990).
Introduction to our Composite Client Client s condition 88 years old Arthritis Bed bound Receiving 5 days of service, 4 hours each day Others living in the Home Son and Daughter-in-law live there Daughter lives in suburbs Grandchildren have their own place Others involved in Client s Care Daughter handles finances Daughter-in-law handles day-to-day care
The Doctor s Visit-A Home Physician group attends to medical needs of the client Who Takes Charge of the Visit? Daughter is very vocal during visits and speaks for the client Daughter provides medical information to the doctor The client s perspective Client feels that she has no voice Client feels that she is a burden Client finds it best to let daughter-in-law handle medical situations to keep the peace. How client can be helped to become more vocal Coaching from the home care aide
The Bath baths have been performed while the client is in the Who decides bed Daughter-in-law has said that mother doesn t take baths Mother doesn t want to get out of bed The client s perspective Client has expressed to the Home Care Aide her desire to take a tub bath Client is reluctant to discuss with daughter-in-law due to not wanting to put a burden on her Client knows that she is dependent on the care of her family and wants to stay in her home
Breakfast Daughter-in-Law prepares the food for the meals Daughter-in-law has cooked soft foods Home Care Aide took over breakfast responsibility What s the client s perspective Client said the Home Care Aide s food was like her own cooking Client said the daughter-in-law s food was like hospital food
Summary This Composite addresses some of the concerns clients have when faced with dealing with family members Feelings of dependence Feelings of powerlessness Fear of becoming a burden and of the consequences (nursing home placement) If families have a different dynamic We need to understand what is occurring in the home We need to listen to the client We can assist the client to feel more empowered regarding their care
Dementia Presented by Jennifer Moore with Premier Home Care Definition Dementia is a general term that describes a group of symptoms-such as loss of memory, judgment, language, complex motor skills, and other intellectual function-caused by the permanent damage or death of the brain's nerve cells, or neurons.
Frustrated Client Presented by Diane Drew with CHELP You have been independent and have encountered a life changing event. Now you no longer can do what you used to be able to do. Your children tell you that you must have help at home to stay there. Nosy Case Manager comes in then the Home Care Supervisor shows up telling you that a complete stranger is coming in to help.
How does this make you feel Many life altering events have occurred Spousal death No longer able to drive Friends gone But you are resistant Losing your independence is devastating You finally realize you must have help to stay at home but are reluctant. Frustration
Clients Home; Physical Obstacles Presented by Debra Ritchie with Tri-County Opportunity Council
House Poor up-keep Broken windows, floors weak, doors not closing Bugs Mice, roaches, bed bugs, ants, etc. Clutter Boxes, things, garbage, plastic containers, etc. Overstock of food, past expiration dates Waste both human and animal Water leaks and damage, water pressure No lighting in hallways or basement
House continued No electricity in the house, no heat in winter and no air conditioning during summer No facilities for laundry or bathing Appliances don t work No cleaning supplies Rugs covering electrical cords and misuse of power cords
ANIMALS The number of animals Dogs and cats may attack need to be confined in other rooms Feed and clean up No taking animals for walks No taking animals to the veterinary clinics
FAMILY, FRIENDS AND Living with participant Taking money NEIGHBORS Taking possessions Wanting more done than what is on the care plan
Cluttered Home Poor upkeep Clutter Boxes Things Garbage
Pest Infested Homes Bugs Roaches Mice Bed Bugs Ants
Bathing, et al. from a Participant s Perspective Presented by Diane Drew of CHELP and developed by Rita Downs of Adult Comprehensive Homemaker Services
Bathing from the Participant Perspective New Home Care Aide Bathing process Embarrassment
Cranky Old Man Remember this poem when you next meet an older person We will all, one day, be there, too Written by Phyllis McCormick in the 1960 s and adapted by Dave Griffith The best and most beautiful things of this world can t be seen or touched. They must be felt by the heart!
Questions?
THANK YOU! Illinois Association of Community Care Program Homecare Providers 3085 Stevenson Dr Suite 200 Springfield, IL 62703 www.idoahomecare.org