Regional Caregiver Forums Caregiving and Respite Across the Lifespan: Linkages and Partnerships 2018 April 23, 2018
April 23, 2018 2 Today s Presentation Learning Objectives To review the NY Connects system and its role of streamlining access to respite and other caregiver supports and services, including the NY Connects Resource Directory. To learn about what is available, and how and when to use the new Statewide Caregiving and Respite Virtual Resource Center (VRC) housed at NYSCRC. To expand referral sources and engage partners in conversation on caregiver needs and resources across the lifespan. To create strategies for developing innovative programs to serve caregivers using person-centered approaches through a variety of supports and services.
April 23, 2018 3 Service Access: Making the connection: NY Connects System and Respite for Caregivers and Families across the age and disability spectrum
April 23, 2018 4 The NY Connects System: Serves as the No Wrong Door (NWD) Hub, connecting with partner agencies to better serve individuals across service systems with long term services and support (LTSS) needs. Provides consistent, comprehensive, and locally based information on and assistance with accessing long term services and supports (including respite).
April 23, 2018 5 NY Connects Resource Directory 2013 to present: Enhanced interagency effort - expand quantity and quality of listings State Agency data feeds Local NY Connects offices are responsible for inputting and maintaining certain types of provider information Website: https://www.nyconnects.ny.gov/
April 23, 2018 6 NY Connects Resource Directory - Respite
April 23, 2018 7 NY Connects Resource Directory - Respite
April 23, 2018 8 NY Connects Resource Directory - Respite
April 23, 2018 9 NY Connects Resource Directory - Respite
April 23, 2018 10 NYSOFA and New York s Aging Network; Navigating Caregiver Services DIFFERENT FUNDS = DIFFERENT RULES
April 23, 2018 11 Who is NYSOFA serving?
April 23, 2018 12 NYSOFA Programs The National Family Caregiver Support Program (NFCSP) also known as Title III-E Lifespan Respite Grant State Respite Program Caregiver Resource Centers Expanded In-home Services for the Elderly (EISEP) Respite component
April 23, 2018 13 National Family Caregiver Support Program (Title III-E) Definition of Respite: Services which offer temporary, substitute supports or living arrangements for care recipients in order to provide a brief period of relief or rest for caregivers.
April 23, 2018 14 NFCSP Title III-E Eligible Caregivers Adult family members or other informal caregivers (age 18 and older) providing care to: someone 60 years of age or older any age with Alzheimer s disease and related disorders Older Relatives age 55 and older providing care to: Children under age 18 (NOT parents) Adults age 18-59 with disabilities (includes parents)
April 23, 2018 15 NFCSP Title III-E Definitions Child: The term child means an individual who is not more than 18 years of age. Individual with Disability: The term individual with a disability means an individual with a disability, as defined in section 3 of the Americans with Disabilities Act of 1990 (42 U.S.C. 12102), who is not less than age 18 and not more than age 59. Older Relative Caregiver: The term older relative caregiver means a caregiver who Is age 55 or older; Lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child or an individual with a disability.
April 23, 2018 16 NFCSP Title III-E Definitions In the case of a caregiver for a child; Is the grandparent, step-grandparent, or other relative (other than the parent) by blood, marriage, or adoption of the child. Is the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and Has a legal relationship to the child, such as legal custody, adoption, or guardianship, or is raising the child informally.
April 23, 2018 17 NFCSP Title III-E Definitions In the case of a caregiver for an individual with a disability, is the parent, grandparent, or other relative by blood, marriage, or adoption of the individual with a disability.
April 23, 2018 18 NFCSP Title III-E Priorities Priority shall be given to: Caregivers who are older individuals with greatest social need, and older individuals with greatest economic need (particular attention to low-income older individuals); and Older relative caregivers of children with severe disabilities, or individuals with disabilities who have severe disabilities.
April 23, 2018 19 NFCSP Title III-E Important Rule Family caregivers who provide care for individuals with Alzheimer s disease and related disorders with neurological and organic brain dysfunction shall be given priority and are not subject to age limitations for eligibility.
April 23, 2018 20 NFCSP Title III-E Five Service Types 1. Information to caregivers about available services 2. Assistance to caregivers in gaining access to services 3. Individual Counseling, organization of support groups, and caregiver training 4. Respite Care 5. Supplemental services, on a limited basis
April 23, 2018 21 Lifespan Respite Grant Definition of Respite: Respite provides temporary relief for family caregivers from the ongoing responsibility of caring for an individual with special needs, or who may be at risk of abuse or neglect.
April 23, 2018 22 Lifespan Respite Grant Beginning in 2010 Lifespan Respite Grant from Administration for Community Living (ACL): Expand and enhance respite care services across the age and disability spectrum. Improve statewide dissemination and coordination of information about respite care. Provide, supplement, or improve access to and quality of respite care services. Meet the aims of the Lifespan Respite Care Act (P.L. 109-442)
April 23, 2018 23 Lifespan Respite Grant Lifespan Respite Grants from ACL achieving goals and objectives through strong partnership Lifespan Respite Core Team the strength of partnership and important roles for each team member: NYS Office for the Aging Monroe County Office for the Aging NY Connects/NWD (NYS ADRC) Lifespan of Greater Rochester Inc New York State Caregiving and Respite Coalition (NYSCRC)
April 23, 2018 24 Lifespan Respite Grant 2017-2020 Goal and objectives Goal: New York will build upon prior and current Lifespan Respite initiatives by engaging key stakeholders to increase and expand access to respite services statewide and enhance partnerships for education, outreach, and service provision to advance development of a Lifespan Respite Care System. Objectives: 1. Increase number of respite volunteers through additional training and recruitment activities; 2. Expand available respite services statewide through formalizing a caregiver-directed respite model; 3. Expand access to caregiver services through improved respite listings in the NY Connects Resource Directory across age and disability types; and 4. Implement and continue to update the Statewide Action Plan for Lifespan Respite sustainability.
April 23, 2018 25 State Respite Program Definition of Respite: Respite shall mean the provision of infrequent and temporary substitute care or supervision of frail or disabled adults on behalf of and in the absence of the caregiver for the purpose of providing relief from the stresses or responsibilities concomitant with providing care, so as to enable the care-giver to maintain a normal routine.
April 23, 2018 26 State Respite Program History of Program Elder Law 208 Grantees Catholic Charities of the Diocese of Albany Jamaica Service Program for Older Adults New York Foundation for Senior Citizens Ridgewood Bushwick Senior Citizens, Inc. Alzheimer's Disease & Related Disorders WNY Home Aides of Central New York Madison County Office for the Aging People, Inc. EAC Home Aides of Central New York Suffolk County Office for the Aging New York Foundation
April 23, 2018 27 State Respite Program Definitions Respite Client: Caregiver Caregiver shall mean the family member or other natural person who normally provides the daily care or supervision of a frail or disabled adult. Such caregiver may, but need not, reside in the same household as the frail or disabled adult. Respite Client: Care Receiver Frail or disabled adult shall mean any adult who is unable to attend to his or her daily needs without the assistance or regular supervision of a care-giver due to mental or physical impairment and who is otherwise eligible for services on the basis of his or her level of impairment. Priority shall be given in all cases to frail or disabled adults sixty years of age or older.
April 23, 2018 28 State Respite Program Service Types Respite Services: Caregivers o Information and Assistance o Case Management o Caregiver Support Groups o Caregiver Education/Training o Caregiver Counseling
April 23, 2018 29 State Respite Program Service Types Respite Services: Care Receivers o Adult Day Services o Group Respite o Friendly Visiting and Companion o Personal Care Level I o Personal Care Level II o Home Health Aide o Consumer Directed In-Home Respite o Overnight-Adult Home o Overnight-Nursing Home o PERS
April 23, 2018 30 Caregiver Resource Centers No Respite available with this funding source
April 23, 2018 31 Caregiver Resource Centers 17 Area Agencies on Aging (AAAs) receiving funds. Services offered: Group Training/Workshops Support Groups Counseling/Information and Referral (Broome, Cattaraugus, Clinton, Cortland, Fulton, Genesee, Madison, Monroe, Nassau, Onondaga, Orange, Putnam, Rockland, Steuben, Sullivan, Tompkins, Westchester)
April 23, 2018 32 Expanded In-home Services for the Elderly Program (EISEP) Non-institutional Respite Definition of Respite: The provision of short-term substitute care and supervision of functionally impaired older individuals to offer their caregivers temporary rest and relief from caregiving responsibilities. (Note: Non-Institutional Respite refers to non-medical respite provided in a non-institutional setting.)
April 23, 2018 33 (EISEP) Non-institutional Respite May only be provided to clients receiving on-going care from informal caregivers pursuant to a service plan based on the overall care plan developed. Non-institutional respite may consist of: Homemaker/Personal Services Housekeeper/Chore Services Paid Supervision Nonmedical Adult Day Care
April 23, 2018 34 Serving Caregivers Regardless the Funding
April 23, 2018 35 Serving Caregivers Family caregivers present unique needs and preferences. Therefore, we need to be: Flexible in services Person-Centered Innovative
April 23, 2018 36 Working Better Together Title III-E priority area: Older relative caregivers of children with severe disabilities, or individuals with disabilities who have severe disabilities. The opioid epidemic has recently fueled increases in the number of relative caregivers in need of support.
April 23, 2018 37 New York State Kinship Navigator
Caregiving and Respite Across the Lifespan: Linkages and Partnerships Spring 2018
Introduction to Kinship Care Definition: Non-Parents (Grandparents, other blood relatives, nonrelatives known as fictive kin) who provide full time care and control of children in their homes.
New York s Kinship Families New York State: 200,000 caregivers 153,000 children Fewer than 3,400 children kinship foster care
Outcomes for Kids in Kinship Care Stability Permanency Children have significant trauma/high ACE scores (Adverse Childhood Experiences) when coming into care Studies show that children thrive when being placed with relative caregivers, as opposed to foster care with strangers (GU report, 2016)
Kinship Services in New York OCFS Local Kinship Programs 22 programs serving 22 counties in NYS OCFS NYS Kinship Navigator serves in entire state OCFS Permanency Centers Serves post guardianship and post adoption Other local programs Office of Aging, grassroots support groups
Local Kinship Programs OCFS 22 programs serving 22 counties in NYS Most rural counties unserved Provides on site case management and/or support
Permanency Centers 15 centers serve 57 counties Regional Permanency Resource Centers serve post-adoptive families and post-guardianship families. Post-adoptive families are families who have finalized the adoption of their child. They include any adoptive family member, whether the adoption was an agency (public or authorized voluntary agency) adoption; a private placement adoption; or an international adoption. Post-guardianship families include families with legal guardianship of the child and an approved KinGAP agreement or families with legal guardianship without a KinGAP agreement.
Offices of Aging Title IIIE funds10% discretionary dollars 21 counties use for some type of kinship program either I&R, support services, or lending library NYC Grandparent Resource Center No Wrong Door System and NY Connects KN serves as a partner with NY Connects and NYSOFA to provide services to caregivers (resource partner)
NYS Kinship Navigator 877-454-6463 STATEWIDE REFERRALS LEGAL FACT SHEETS COUNTY RESOURCES LOCAL AND STATEWIDE ADVOCACY EVENTS NEWS PROFESSIONAL NETWORKING
NYS Kinship Navigator www.nysnavigator.org Only OCFS resource in 40 counties Primary purpose: Family Stability Strategies: Connections to available Financial Assistance and Legal Advocacy Partner with local DSS s and kinship services
Kinship Navigator Help Line Accessibility Online Intake System Information, Referral, Advocacy Website Regional Outreach Monday Friday 10:00 4:00 877-454-6463
www.nysnavigator.org County Resources Cited Legal Fact Sheets Primer Videos Monthly Webinars Kinship Events Policy
Kinship Navigator Outreach The Face of Kinship Care Summits Kinship Care Month Award Luncheon Regional Navigator presentations State Level Advocacy
Financial Assistance Child Only grant Eligibility Process Additional Considerations Good Cause Exemption SNAP What if the parent is a minor or disabled?
Regional Navigators Federal Demonstration Project Permission to Contact Form LDSS and Community Collaborations Collaborations
Legal Arrangements Elements of Care: Recognition: How the law identifies you Authority: Schooling and school enrollment Medical Care: emergency care, immunizations, routine, major Records Birth Certificate, Social Security Card, Passports, etc. Security: Protections from losing children Financial: Access and Types of financial assistance Resources: Access and Types of services
Regional Navigators 2016 Pilot Program Increased contact with communities and county human services agencies 5 Regions Virtual and in person advocacy for the caregivers Greater breadth of resources for kinship families
Legal Options for Caregivers Informal Custody Legal Custody Legal Guardianship Direct Custody Foster Care Kinship Guardianship Adoption
Federal Demonstration Project 3 year federally funded grant County Collaboration Agreements Critical Goal: Obtaining Access to Caregivers Improved Outcomes for Informal Kinship Families Child Well-Being, Family Stability, Permanency Caregiver Well-Being How: Via Signed Permission to Contact Activity: Obtaining Signed Forms
Permission to Contact Form Makes it easier for kinship families to have contact and receive services from KN Meeting with agencies to implement Referring Kinship Families to us
Permission to Contact Form 1. Identify client 2. Describe and Ask 3. NYS Kinship Navigator Tri-fold 4. Review "Permission to Contact" form & Obtain Signature 5. Fax or email form to NYS Kinship Navigator
LDSS Collaborations 5 Pilot Counties (Tioga, Broome, Ulster, Dutchess, Orange) 600% increase in caregivers Increase in knowledge and supports Local Referrals Local Advocacy Legal Pro Bono Effort
Local and Regional Connections Speaking Engagements Go To Webinar Contact us! NYC/L.I. NY: Jerry Wallace meimeiwallace@aol.com Western NY/Finger Lakes: Rae Glaser rglaser@cfcrochester.org Central/Eastern NY: Ryan Johnson ryanjohnson@cfcrochester.org North Country: Brenda Reynolds breynolds@cfcrochester.org Hudson Valley: Emi Disciullo edisciullo@cfcrochester.org
Outreach Join KinCare Coalition Listserv Use Permission to Contact Form September is Kinship Care Month View The Face of Kinship Care film Kinship Event Next September, 2018 HELP KINSHIP CAREGIVERS BY REFERRING CAREGIVERS TO KINSHIP SERVICES!
Contact Jerry Wallace: meimeiwallace@aol.com Rae Glaser: rglaser@cfcrochester.org Ryan Johnson: ryanjohnson@cfcrochester.org Brenda Reynolds: breynolds@cfcrochester.org Navigator Email: navigator@nysnavigator.org
April 23, 2018 63 Wrap Up
April 23, 2018 64 Summary of Today s Presentation NY Connects o Serves caregivers and care receivers of all ages NYSOFA Programs o o o o o NFCSP also known as Title III-E Lifespan Respite Grant New Lifespan Respite Virtual Resource Center (VRC) Resources for professionals and caregivers Assisting caregivers in accessing respite services State Respite Program Caregiver Resource Centers EISEP Respite component NYS Kinship Programs o o o o OCFS Local Kinship Programs OCFS Permanency Centers Office for the Aging OCFS NYS Kinship Navigator Working better together o o o Understand what s available for caregivers in each network Engage new partners Create innovative programs
April 23, 2018 65 Resources NY Connects Resource Directory www.nyconnects.ny.gov NYS Kinship Navigator www.nysnavigator.org New York State Caregiving and Respite Coalition www.nyscrc.org ARCH National Respite Network and Resource Center https://archrespite.org/
April 23, 2018 66 Contact Information Deana Prest, New York State Family Caregiver Support Coordinator, New York State Office for the Aging (NYSOFA) Deana.prest@aging.ny.gov (518) 486-2719 Caregiver Program Mailbox caregiver@aging.ny.gov