Social care New ways of working

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Social care New ways of working Marie Roulston Director of Children s Services/Executive Director of Social Work, NHSCT Phil Hughes Assistant Director Mental Health, NHSCT Seamus McErlane Social Care Commissioning Lead HSCB Geoff Huggins Director, Health and Social Integration, Scottish Government

Leading Transformation Mental Health Older People Services in NHSCT New Ways of Working Karen Harvey Head of Service Maureen Serplus Locality Manager NI Confederation Annual Conference Tuesday 28 th June 2016

Background NHSCT Adding Life to Years 2007 New Ways of Working 2013 Ramp 2015

Background Mental Health Older Peoples Service Dementia Inpatient services on 3 wards 7 CMHTOP s fragmented pathway Inpatient and Community responsibility Inconsistent links with voluntary/community/independent sectors Resources

New Ways Working Focus Bamford, Dementia Strategy, TYC and RAMP Right professional, Right time Change to the model of service delivery Enhanced multi-disciplinary team working Workforce Development

What needed to happen? Engagement Management of change process Practical arrangements Staff re-allocation 5 Team Model Training

NWW June 2016 Memory Service Consultant CMHTOP or Inpatient Dementia Home Support Team Rapid Assessment Interface Discharge Supported Living Dementia Friendly Communities In Patient Services

Real Benefits for Service User Dementia Care Pathway Comprehensive Assessment Increased Diagnosis rate Right person right time Increased accessibility to services Dedicated Advocacy

Service User/Carer Feedback the practitioner was very professional, competent and understanding and put me at ease throughout helped me get my dad back 80% very satisfied 14% were satisfied

Next Steps Acute Pathway Consolidate Memory Service Extend to phase 2/3 Dementia Care Pathway Dementia Intensive Care Unit, CMHTOP and Dementia Home Support Team Partnership Dementia Friendly Communities

Thank - You

Leading Transformation: New Ways of Working in Dementia Care NI Confederation Annual Conference Tuesday 28 th June 2016

Dementia Care Technological and Medical advances in Health Care Improved Life Expectancy / Demographics Increased prevalence - chronic conditions Costs Financially Personal 13

Global Perspective G8 Dementia Summit - London 2013 WHO Ministerial Conference - Geneva 2015 Prime Minister s Challenge - 2020 National Strategies Improving Dementia Services in NI: A Regional Strategy (2011) 14

Local Perspective Launched November 2011 44 recommendations / 7 themes Transforming Your Care (2013) Making Life Better (2013-23) Service Frameworks and Standards Guides 15

Improving Dementia Services Regional Implementation Group Investments Executive s Delivering Social Change Programme Memory Services Collaborative Research Legislation (Capacity) 16

Other Developments Dementia Friendly communities Regional and Trust initiatives Dementia Innovation Lab Dementia NI Delivering Social Change - Phase 2 Beyond the Strategy 17

Next Steps Training Strategy Research Programme Health Economics and Analytics (next 30 years) Environment / Accommodation / Technology Dementia Alliance Centre of Excellence 18

THANK YOU Seamusw.McErlean@hscni.net 19

Co production and involving people change that works? Laura Collins Carer Martin Quinn Regional Lead on Personal and Public involvement PHA Maeve Hully Chief Executive, Patient Client Council

Co-production and Involving People Change that Works?

Laura Collins Family Carer 22

Martin Quinn Regional PPI Lead PHA 23

What is PPI? New term, not a new concept. Personal and Public Involvement (PPI) is a process whereby service users/carers and the public are empowered and enabled to inform and influence the commissioning, planning, delivery and evaluation of health and social care services in ways that are relevant and meaningful to them. 24 24

Policy and legislative context Policy influencers - Health for all (2000) - WHO - Wanless (2004/5) and Appleby (2005) Reports - DHSSPS - PPI Circulars 2007 & 2012 - Quality 2020 - Putting Patients First and Foremost - Transforming Your Care Legislation - Equality legislation 1998 - Health and Social Care (Reform) Act (NI) 2009 - No decision about me, without me, DoH 2010 - Judicial reviews, growing body of case law Public Interest - Francis Report 2013 - Donaldson Report 2013/14 - Human Rights Commission Inquiry 2015 25 25

PPI roles & responsibilities Organisation DoH PHA HSCB PCC RQIA Trusts Other HSC Bodies Role Policy Lead, issuing formal guidance, setting priorities Policy Implementation Lead. Operational leadership, consistency of approach, building capacity, develop training, raising awareness, chair and facilitate the Regional PPI Forum, develop PPI standards and undertake monitoring and provide assurances to the DoH. Ensure PPI is embedded into Commissioning, encourage Family Practitioner services to adopt PPI approaches Promote public involvement, represent public interest, challenge function Independent assurances to DHSSPS re PPI structures Organisational and governance arrangements to meet Statutory Duty of Involvement Comply with / encouraged to adopt PPI 26 26

Co-production definition A delivery model for health services, co-production is based on the sharing of information and on shared decision making between the service users and providers (Bettencourt, Ostrom et al, 2002; Needham and Carr, 2009). It builds on the assumption that both parties have a central role to play in the process as they each contribute different and essential knowledge (Cahn, 2000). The Health Foundation, 2010 27 27

Level of Involvement Volunteering g Co-design (Commissioning) Co-Delivery (Providing) Social Capital (Peer Led Service & Social Enterprises) Personal Briege Quinn PHA & Rodney Morton HSCB 28 28

Bringing PPI and Co-production together The PHA undertakes PPI using coproduction/delivery methodology. Examples are: HSC Regional PPI Forum PPI Standards PPI Monitoring Engage & Involve Training Programme 29 29

Co-Production in Action Maeve Hully Chief Executive

Our role in Health and Social Care To provide a powerful, independent voice in health and social care for patients, clients, carers and communities.

We aim to: Listen and act on people s views Encourage people to get involved Help people make a complaint Promote provision of advice & information

What has the done?

No decision about me, without me Clare Rayner Past president of the Patients Association

Future Planning Success Brian Sinnamon Expert by experience

Help Stop Choking Raising Awareness of Choking John Toal & Angela Crocker

Choking is when food sticks in your throat. You might cough or not be able to cough, speak or breath. If you can t breathe you could collapse and you could die.

Hi I m John I have a learning disability, epilepsy, Cerebral Palsy and swallowing difficulties. I choked a few times and it scared me. I worked with Speech and Language therapy to make changes to help reduce my risk of choking. I haven't choked since, I think my experience with Angela saved my life. I want to share my story to help other people reduce their risk of choking.

Before I did this work I didn t realise choking was so serious. I would take big big bites and my mum would say slow down your going to choke but I didn t know that I could die. This is me telling my story and how I feel being through it (choking), even if I help one person it will be fantastic.

Made my story into a DVD.

DVD available on elearning training and YouTube.

The DVD helps empower service users I had a very bad choke on lettuce. I don t eat it now. If I had known it was a hard food I might never have choked. I used to eat all my food dry, now I take gravy and the food doesn t get stuck in my throat anymore. We make sure everyone is quiet during lunch to help John. John doesn t eat on his own anymore. My friend's brother died from a choke when he went to live in a new house. We all need to know what to do to help.

Secured funding from the BHSCT Health Improvement Consortium to create a website and mobile app

Comments Excellent project that could save someone s life should be shared across trusts in all LD areas also brilliant for children Absolutely superb. Johns teaching was excellent he is obviously a choking expert Brilliant, great idea to have service users perspective Excellent presentation will help many people make better choices and others to better support individuals Great session, I didn't know lettuce was hard to eat. Put it on YouTube.

PPI John is a real service user, talking about what matters to him. Listening to him talking about his experience brings the subject of choking to a human level. This project has given John a strong voice, helped him influence the NHS work and play a significant role in shaping services.

Thank you for listening to this presentation about choking. I hope it helps you to think more about choking to try to stop people dying from choking.

CO-PRODUCTION IN NORTHERN REGION RECOVERY COLLEGE AUDREY MONTGOMERY ROSEMARY HAWTHORNE

BACKGROUND TO RECOVERY COLLEGE All courses must be co-produced and cofacilitated There is a physical base (hub) then courses are taken out to different areas in the community

BACKGROUND TO RECOVERY COLLEGE The college operates on mainstream college principles (ie, prospectus, enrolment forms, semester timetables.) It s for EVERYONE There is a personal tutor (or equivalent) to give information and offer guidance about courses

BACKGROUND TO RECOVERY COLLEGE The college is not a substitute for traditional assessment and treatments The college is not a substitute for mainstream colleges. The college must reflect recovery principles

Steering group Working group How did we go about coproduction Getting people with lived experience and carers (PPI) involved

Ensuring Effective Co- Production Dignity and Respect for the views of all Inclusivity, Equity and Diversity to ensure everyone who needs to and wishes to be involved is facilitated to do so irrespective of culture, language, skills, knowledge and experience Collaboration and Partnership Working which is respectful of the views of others and based on constructive relationships Transparency and openness in interactions and relationships.

Barriers to Recovery and Coproduction Not understanding the ethos of recovery Not understanding the ethos of co production Not actively listening Not enough time for co production Not enough time to develop relationships

Recovery and PPI Recovery stories Book Recovery DVD Develop What is Recovery and Social Inclusion Recovery College Courses Co-production and co-facilitation

Recovery College Courses Co produced Co delivered Experts in own field Equals in the room Joint Decision Making

Benefits of PPI within the Recovery College Reduces Stigma Change in culture Shared Learning Environment Instils Hope Joint decision making Equality Volunteering Employment opportunities Enhances personal recovery Networking

Group Discussion Hosted by Martin Quinn 59

Want to know more? Lauracollins56@hotmail.com Martin.quinn@hscni.net info.pcc@hscni.net Angela.Crocker@belfasttrust.hscni.net Rosemary.hawthorne@northerntrust.hscni.net 60 60