E1 Ocean Ward Information Booklet

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Southampton University Hospitals NHS Trust E1 Ocean Ward Information Booklet for young people Help you prepare for your hospital stay

This booklet has been written to help you prepare for your hospital stay. If you would like to visit or speak to someone before your operation you are welcome to contact one of the liaison nurses. In return they will be able to answer any questions or arrange a visit. Contact details are displayed on the back page. Includes: Staff Support... 1-2 About Ocean Ward... 3 Preparation... 3 Admission, what to expect... 4 Relevant Tests... 4-5 Before the Operation... 6 Doctor Ward Round... 7 E1 Ward Routine... 8 Ward Facilities... 9-10 Hospital Facilities... 11-12 Suggestions and Comments... 13 Contact Details... 14 ii E1 Ocean Ward Teenage Information Booklet

Staff Support You may meet many different members of staff during your hospital stay. All staff should be wearing an identification badge, which clearly states their name and job title. If they are not wearing one do not feel embarrassed to ask them who they are and check with your nurse. Liaison Team Senior nurses who can provide written information, diagrams of your heart, how to access further information and details of local and national support groups. Senior Ward Sister The ward and nursing care is managed by the senior ward sister. Please do not hesitate to speak with the sister about your stay on the ward. Play Specialists Can help to prepare you for your operation and investigations, offer any activities you may wish to do or just for a chat. Children s Social Worker Can offer the following someone to chat to about being in hospital and support. Dietitian Aims to meet all patients on the ward. They are also available to discuss and advise you on different food you may like or any eating problems you may be experiencing. Paediatric Nurses A team of nurses who have experience in the care of young people with heart conditions. 1

Staff Support Child Psychologist Available to help and support any emotional or behavioural problems your child may be experiencing, in relation to their heart condition or treatment. Please ask your nurse to contact them if you wish to meet with the psychologist. Nurse Practitioner Childrens nurses with specialist training to admit, discharge and order investigations for the care of your child. Pharmacist The ward pharmacist visits the ward daily, the pharmacist is happy to discuss your medicines with you. Physiotherapist A team of physiotherapists will visit you after surgery to help encourage walking and give advice on breathing exercises. Consultants Each week a consultant will be in charge of your care. The team of consultants work very closely together and are always fully aware of each others patients. The consultants have a team of junior doctors. Consultant Cardiac Surgeon Doctors trained in young peoples heart surgery. Consultant Paediatric cardiologists Doctors trained in young peoples heart problems. E1 Ocean Ward Teenage Information Booklet

About Ocean Ward E1 ward cares for babies, children and young people up to the age of eighteen with heart or lung problems. Being in hospital can be very stressful but we will try to make your stay on the ward as happy as possible. Communication You will always be included in any decisions or treatment plans. Please speak to your nurse if you are unsure of any information given to you Preparation You will need to bring clothes to wear during the day and at bedtime and a wash bag. We ask that you remove all make up and nail varnish before your heart surgery. This is important as we need to observe your skin colour before, during and after surgery. Problems with circulation can easily be detected from the colour of your nail beds and also your skin. If you have jewellery we ask that you leave it at home or give it to your parents to look after. If you are taking any form of contraception (the pill) please contact the liaison nurses on 023 8079 4654 as it is very important to discuss this issue before your operation. Whilst you are in hospital anything you share with your nurse/doctor will be treated in confidence. If there is a chance you may be pregnant you must tell your nurse/doctor. You are welcome to bring any favourite videos, CD s, games etc. from home.

Admission, what to expect When you arrive at the ward there is an intercom system for safety of young children please press buzzer for entry to the ward. Usually you will come in the day before your operation. The Ward Clerk will greet you and then take you to your bed. Your nurse will show you around the ward. The nurse and doctor will discuss the operation with you and a Play Specialist will be on duty to go through photo books with you if you wish and explain anything you may not understand. You may wish to visit the theatre and intensive care before your operation. Relevant Tests On arrival to the ward the nurse will take your temperature, blood pressure and pulse, all other tests will be arranged. These might include the following: Echo An ultrasound scan which can show the structure of the heart and how it is working. E1 Ocean Ward Teenage Information Booklet

Admission, what to expect CXR A chest X Ray that shows the size and position of the heart and shows how air expands in the lungs. It is very important that X rays are not taken if you are pregnant as they harm the unborn baby. Please speak to your nurse if this may be possible. ECG An electrical tracing of the heart, which shows the hearts rhythm and rate. Sticky patches are put on your arms, legs and chest and then they are connected to a recording machine. The test is painless and takes about 5 minutes. Blood test These are carried out to check blood groups and to prepare blood, which may be needed during surgery. Blood can also be taken to test for infections and clotting, a numbing cream or spray will be used before the blood is taken to prevent any discomfort. The cannula will be left in (a small plastic tube in the vein) until after your operation. This will be used to give your anaesthetic medicine through at the time of your operation.

Before the Operation Usually the surgeon will meet you on the ward before the operation to discuss any questions you may have. If you are over 14 years you may wish to sign the consent form with your parents/carers. You will also meet with the Consultant Anaesthetist. They will tell you when you need to stop eating and drinking. Usually this will be no food for six hours and no drinks for two hours before the operation. Your parents may walk with you to theatre with the ward nurse. One parent may go into the anaesthetic room with you. Please discuss this with the anaesthetist. If you are having heart surgery you will meet the Intensive Care Nurse and have the opportunity to look around the Intensive Care unit. Nursing staff will explain before your operation how we will manage any pain you may be feeling. We have a pain team in the hospital that will meet with you before and after your operation to discuss the various methods of pain relief that are available. Make sure you tell your nurse if you are in any pain. You may be nursed in High Care after your operation. If this is likely the bed space will be shown to you before your operation. If you are worried about seeing your scar please talk to your nurse, Play specialist or one of the liaison team. E1 Ocean Ward Teenage Information Booklet

Before the Operation Doctor Ward Round The doctors on the ward round will see you daily. A consultant or registrar and senior house officer will discuss your progress with you and answer any questions. If you wish to arrange a meeting with the ward consultant please speak to a member of nursing staff who can arrange this for you. You can have a copy of the letters sent to your GP, please ask the ward clerk to arrange this. Also if at any time you wish to look at your case notes please ask your nurse who will be able to arrange a viewing with a senior doctor or senior nurse.

E1 Ward Routine Day staff arrive - 7.45am Nurses from night report to the day nurses Breakfast - 7.45am Cereal, toast and fruit juice available for children and parents Playroom activities - 8am Nurse caring for you will be introduced School - 11am - 12 noon School on G level opens. This will be arranged for your child by a play specialist if appropriate Doctor Ward Round - 10am Treatments and tests carried out, observations recorded, medicines given, ward cleaned, bed linen changed Lunch - 12 noon Lunch trolley arrives, meals served to children Observations - 2pm Observations recorded, medicines given Quiet time - 2pm-3pm Lights dimmed, children are encouraged to rest Tea - 5.30pm Tea trolley arrives, meals served to children Observations - 6pm Observations recorded, medicines given, menu cards completed for next day Night staff arrive - 7.45pm Nurses from day report to the night nurses Prepare for bed - 8pm Lights are dimmed Observations - 10pm Observations recorded, medicines given E1 Ocean Ward Teenage Information Booklet

Ward Facilities Meals Meals are supplied. If you need a special diet please talk to your nurse. Snacks are always available in the ward kitchen. A fridge/freezer and microwave are available. Please label your food. Playroom Monday to Friday activities are organised. Activities can also be arranged by the bedside. We can also offer the use of a PlayStation and a laptop computer which can be used to email your friends and to access the internet. Teenage Room A purpose built room funded by Wessex Heartbeat, provides a chill out area, including supervised internet access and other recreational facilities. Bed Area At each bed there is a tv/video/ dvd and a notice board for cards. A selection of dvd s and videos are available on the ward, you may bring in your own. Washing Facilities As well as showers and a bathroom we do have a disabled toilet and shower if needed. Hairdryers and towels can be supplied. School If you are at school a teacher will work with you on the ward. If you are well enough you will be able to go to the hospital school on G level. The hospital teacher will also speak to your own school or college. Computers We have several computers and PlayStations on the ward. The computer can be used to email your friends and family. We aim to have the most up to date PlayStation games, to keep you busy. Electrical Equipment You may bring in your own electrical items, the plugs will need to be checked by the electrician before use.

Ward Facilities Paediatric Cardiac High Care When you come back from intensive care you will be nursed in the high care ward. This area has a higher number of nurses and special equipment to care for you. As you get better you can return to dolphin bay or a side room if available. Fire Safety Fire alarms are tested once a week on a Monday morning. You will hear intermittent alarms sounding for about 20 seconds. In the event of a real fire the alarms will sound continuously until the area has been made safe. An intermittent alarm means there may be a fire in other areas near you. In both cases please follow the instructions of staff who have all been trained in fire safety. If you discover a fire please contact a member of staff or go to the nearest break glass point and raise the alarm. Security and Safety The hospital takes your safety very seriously and there are security staff present 24 hours a day. 10 E1 Ocean Ward Teenage Information Booklet

Hospital Facilities Hospital shops D and F Level West Wing League of Friends tea shop Opening times Weekdays only 10am-3.30pm C Level WHSmith Florist Burger King Upper Crust League of Friends shop Mon-Fri 7.30am-9pm Sat-Sun 9am-7pm Mon-Fri 9am-8.30pm Sat-Sun 10am-6pm Mon-Fri 8am-6pm Sat-Sun 9am-6pm Mon-Fri 8am-8pm Sat 9am-6pm Sun 9am-5pm Mon-Sun 8am-8pm B Level Canteen Your nurse will give you a form to help reduce the costs Breakfast Lunch Supper Late supper 7.30am 11.30am 11.30am 2pm 6pm 8pm 11.30pm-1.30am 11

Hospital Facilities Trolley Shop A League of Friends trolley will visit the ward each morning. This sells newspapers, magazines, sweets, drinks and other items. Smoking Smoking is not permitted in any area in the hospital or in the hospital grounds. Alcohol It is the policy of the hospital that alcohol is not permitted. Laundry A washing machine, tumble dryer and iron are all available on the ward. Cash Machines A cash machine is available on C Level, centre block next to children s X-ray. Chaplaincy The chaplains are happy to be called at any time just for a chat or to meet you and your family. Post Post is delivered to the ward twice a day. The ward address is displayed on the back page. 12 E1 Ocean Ward Teenage Information Booklet

Suggestions and Comments It is important to us to know your views and opinions so that we can continue to improve the service we provide. Your nurse will give you a comments form, please take the time to complete the short form and leave it with the ward clerk on discharge. Complaints Should any matter occur that you are not satisfied with please do not hesitate to share your concern with a liaison nurse or the senior ward sister. If you wish to make a formal complaint you may contact the complaints team by telephone on: Tel: 023 8079 6299 A member of the team will come to discuss your concerns with you, or you may wish to write to the Chief Executive. An information leaflet that explains the complaint procedure is available please ask your nurse. PALS Patient Advice and Liaison Service can help to resolve patient issues and concerns informally. They also provide support and information. PALS Information Point Main Entrance Southampton General Hospital Tel: 023 8079 8498. Available - Monday to Friday 9am-5pm 13

Contact Details Southampton University Hospitals NHS Trust E1 Ocean Ward Southampton General Hospital Tremona road Southampton SO16 6YD Tel: 023 8079 6470 Liaison Nurses Tel: 023 8079 4659 Designed and produced by Learning Media Southampton General Hospital Job No. 35097 Photography by Steve Shrimpton