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Gastroenterology Family Advisory Council Volume 1, Issue 2 Winter 2013 Getting to Know Our GI Team From left to right: Allison Holt, MSN, RN, CPNP, Jane Keng, M.D., Nicholas Ogunmola, M.D., Lyn Hunt, M.D., Bankole Osuntokun, M.D., Robin Henson, DNP, RN, CPNP-PC and Samson Cantu, M.D. Not pictured: Danny Rafati, M.D., Ph.D., Lori Thompson, DNP, RN, CPNP-PC We provide care for children and teenagers with diseases and disorders of the digestive system. Offering educational resources and support to our patients and families. Special Dates & Events Nutrition & IBD: Choices for Adults & Kids December 4, 2013 @ 6:30 p.m. - 8:00 p.m. Cook Children s Medical Center, Hochberger Auditorium Nicholas Ogunmola, MD & Monte Troutman, DO, FACOI Please RSVP to Vernessa Thomas at vthomas@ccfa.org Or call 972-386-0607, Ext. 2 by November 29, 2013.

We are actively participating in the ImproveCareNow Network (ICN) What is Improve Care Now (ICN)? ICN is the leading learning health network for children in the nation. Clinicians, researchers, patients and families are working together to improve the care and health of all children and adolescents with Crohn's Disease and Ulcerative Colitis (also known as inflammatory bowel disease or IBD). How can ICN help me and my child? ImproveCareNow provides tools and support that the GI team at Cook Children's uses to deliver more reliable and proactive care to you. The benefits of participating in ImproveCareNow include the assessment of your disease activity and health at each visit, checking your medications and observing for side effects, monitoring your growth and nutrition and the creation of an individualized treatment plan for your care. Ask your Gastroenterologist about ImproveCareNow or Contact Wendy Ludlow at 682-885-7223 for more information today. Wendy is available Monday Friday @ 8:30 a.m. 5:00 p.m. Welcome Our New Physician Danny Rafati, M.D., Ph. D. Dr. Rafati earned his medical degree from the University of Texas Medical Branch in Galveston, Texas. He completed his pediatric residency and pediatric gastroenterology, hepatology and nutrition fellowship at Baylor College of Medicine in Houston, Texas, where he became neonatal and pediatric Chief Resident. Dr. Rafati is board certified in general pediatrics. He is a member of the American Academy of Pediatrics, the Texas Society of Gastroenterology and Endoscopy, the American Gastroenterological Association and the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition.

GI in the Community A group of 5 GI team members participated in the CCFA Crohn's and Colitis Team Challenge endurance program. The event took place September 28, 2013 in Nashville TN. They chose as a team to nominate one of their very own team members, Eliana Lira, who herself battles Colitis as their honored hero. They completed 13.1 miles along with raising $15,442 in funds throughout the community for CCFA to be used towards research and other resources in finding a cure for Crohn s and Colitis. It was a great journey and accomplishment for this group of GI team members to represent their Honored Hero, Eliana Lira and Cook Children s GI Family. From Left to Right: Eliana Lira, BobbieJo Bishop, Arlene Caudillo, Adriana Rivera, RN, and Alma Lozano. Team Captains Kevin-Cook Children's Spin the Wheel Host Beverly Hale & Alma Lozano #1 GI Team Plaque Liam Having Fun with Bubbles! Allee - Cook Children's Face Painting Artist

Gastro Word Search G D Y C O L I T I S E A B G O K H F T Y R E S O P H A G U S D I N T E S T I N E K P R G R E F L U L Z K A S T O M A C H Colitis GERD Esophagus Gastro Intestine Stomach Check out these GI Apps: GI Buddy by CCFA Used to help you easily track important aspects of you IBD to share with your provider. https://itunes.apple.com/us/app/gi-buddy/id579320415?ls=1&mt=8 Gastroenterology-Animated Pocket Dictionary Series 100-plus gastroenterology & medical terms defined & illustrated using life-like 3D animation.

Tanya Kimmey, RN Clinical Coordinator Tanya loves going to Disney, if you need ideas, planning, or just want to be in the know when you re there Tanya is your gal. Tanya was recently one of the Top 10 nurses nominated at Cook Children s. Go Tanya!! Donna Beach, RN Donna adopted her daughter from Korea when she was 8 months old and has lived in New Zealand. Adriana Rivera, RN Adriana has traveled abroad for mission trips to Thailand, Uganda Africa, and Mexico. She has also been to Egypt and saw the Great pyramids and Sphinx! Mechell York, LVN Mechell married her high school sweetheart; they have been married 21 years and have 2 handsome boys. She likes to draw and paint in her spare time. Amanda Yorek, RN Amanda earned dance scholarships to go to college and was the Captain of her college dance team. Welcome Laura M. Federspiel, RN! Laura has daughters who are 14 and 4. Her passion outside of nursing is making custom cakes, she has no formal training so over the last year she has enjoyed learning the art and techniques of custom cake making and decorating. Welcome Ashley Davis, RN! Ashley owns a photography and graphic design business, she was a participant in the Main Street Art Festival last year and was named Dallas Photographer of the year in 2012 by RAW.

. GUTS Group For parents who have a child with Short Gut Syndrome or Motility Disorders. Volunteers available to sit with young children during group Cook Children s Family Support Meeting Room 3 rd Tuesday of EVERY MONTH 6:00pm-8:00pm Jill Finto Heather.finto@cookchildrens.org Crohn s and Colitis Pediatric Support Group For patients age 5 and up Cook Children s Pavilion Classrooms-rooms will vary 3 rd Tuesday of EVERY MONTH 6:00pm-8:00pm Brenda Sonnier, CCLS Child Life Specialist Office: 682-885-4822 brenda.sonnier@cookchildrens.org Sommer Mims, RN Sommer.mims@cookchildrens.org Crohn s and Colitis Parent Support Group meet at the same time and location (separate room) Finding Help in Texas www.hhsc.state.tx.us/ Adriana Rivera Adriana.rivera@cookchildrens.org Texas may be able to help in your time of need: Electric Service Payment Assistance Child Care Provider Referrals Free School Supplies Medicaid Food Stamps (SNAP) Rent Payment Assistance Utility Assistance Medical and Dental Applications and much more If dialing 2-1-1 directly doesn't work on your phone, you can reach us at our toll-free number (877-541-7905). To better serve you, you will be asked for a ZIP code for the area you are seeking services.

Tomato Soup: Sauté: 4 finely dice garlic cloves 1 cup finely diced Vadalia onion 2 Tbsp. olive oil 1 tsp. fresh thyme leaves Add: 2 cans diced tomatoes, 28 ounce size 3 cups chicken stock / No Chicken broth (vegan version) ½ tsp. basil 2 ½ Tbsp. sugar 4 Tbsp. half n half 2 Tbsp. grated parmesan cheese Pepper and sea salt Sauté above ingredients for approximately 5 minutes over medium heat. Add remaining ingredients and heat over medium heat for 15-20 minutes. Use a hand-held blender to remove chunkiness, or use a regular blender. Blend to desired texture. If serving kids, they may prefer a very smooth consistency. Grilled Cheese Hearts: Oatmeal bread slices Mozzarella slices Butter For each sandwich, start with two slices of bread. Either hand-cut a heart shape or use a heartshaped cookie cutter. Butter bread slices on one side. Set one buttered slice in pan over medium heat, set cheese slice on top and then top off with second slice of bread, butter side up. Flip sandwich once first side is lightly browned. Lightly brown Holiday Reindeer Treats (Gluten-Free Recipe*) 20 min.prep time 1:35 total time (20 treats) Ingredients 1/2 cup Land O Lakes Butter 2 (1-ounce) squares unsweetened baking chocolate 1 (16-ounce) bag (64) Large marshmallows 8 cups gluten-free brown rice crisps cereal Decorations White decorator icing 20 small gluten-free pretzel twists, broken in half 20 small red spice gumdrops 40 candy-coated chocolate pieces 20 (4-inch) lollipop or craft sticks, if desired Directions Generously butter 15x10x1-inch baking pan; set aside. Place 1/2 cup butter and chocolate in 6-quart saucepan; cook over low heat 3-4 minutes until melted. Add marshmallows; continue cooking 4-5 minutes, stirring occasionally, until melted and smooth. Remove from heat. Add cereal; stir until well coated. Press mixture evenly into prepared pan. Cool 15 minutes. Remove mixture from pan; cut using 3-inch heartshaped cookie cutter. For each reindeer, use icing to secure 2 pretzel pieces onto top of heart to form antlers, 2 chocolate pieces for eyes and 1 gumdrop for nose. Insert lollipop stick into each reindeer, if desired.