Next 2 Creating and Sustaining A Family Advisory Council (FAC) Co-Presenters: Hayley Hirschmann, FAC Coordinator/Parent Saint Barnabas Medical Center, Livingston, NJ Alexa O Dell, FAC Chair Benefis NICU, Great Falls, MT Moderator: Janelle Bainter, March of Dimes Family Support Specialist, Barbara Bush Children s Hospital, Portland, ME Disclosure None of the presenters have a conflict to disclose. April 5, 2016 1
Hayley Hirschmann FAC Coordinator / Parent Saint Barnabas Medical Center Livingston, NJ hhirschmann@barnabashealth.org hh1mail@aol.com (c) 973-214-6970 A Little History 1. Institute of Medicine - Crossing the Quality Chasm: A New Health System for the 21st Century (7/01) 2. The Joint Commission - TJC Goal 13 - Encourage Patients Active Involvement in their care as a patient safety strategy 3. AHA - Fall 2004 - Strategies for Leadership: Advancing the Practice of Patient and Family-Centered Care 4. IHI - The Patient Experience: Improving Safety, Efficiency, and HCAPS through Patient Centered Care 5. WSJ Article (11/15) - Hospitals Form PACs to Learn How They Can Improve Care April 5, 2016 2
Our Journey 1/05 - As part of the VON QI collaborative, we were challenged to actively involve families as part of QI teams VON team identified staff champion and recruited parent graduate advocate 4/05 - staff champion and parent attended Institute For Family-Centered Care (now IPFCC) 3-day conference Journey Continues Invited Parents to Focus Group and Developed a Parent Satisfaction Survey 4/05 Parent Advocate hired as part time, paid FAC Coordinator 4/05 Held first organized FAC Meeting FAC developed Purpose and Mission Statement Began scheduling monthly FAC meetings yearly (continues today) April 5, 2016 3
The FAC & What we did next Originally composed of past NICU graduate parents, FAC coordinator, Staff coordinator/qi Coordinator, Social Worker & Lactation Consultant FAC drafted & prioritized list of potential improvement ideas Improvement themes: -family space (rest, eat, classroom, lockers..) -resources (books, computer..) -access to information (handouts, newsletters..) -support (peer to peer, Pizza Night, NICU 101..) -education (parent handbook, intro video..) Additional Accomplishments / Involvement FAC representation on NICU team: at least one parent attends each QI collaborative meeting as active team member and FAC coordinator attends multidisciplinary rounds and nurse council meetings Policy Input & Development: family presence guidelines (parents, siblings, designated others), banked human milk, hand hygiene... Developed Educational Materials for Parents: (sensory development pamphlet for small baby room, sibling guide..) April 5, 2016 4
Sustaining a FAC In a word: FLEXIBILITY Can work on some initiatives from home or be involved on less frequent basis (i.e. Nurses Week) Have conference line available to call into monthly meetings Always be recruiting - Continuously collect names of potential new FAC members around discharge Nurture your FAC April 5, 2016 5
Nurturing A Council Provide dinner /breakfast and complimentary parking Ongoing thank you emails for any participation or donation Share the fruits of their involvement Annual holiday dinner for members and spouses Participation certificates and small gifts distributed at holiday dinner or mailed Keys To Success Senior leader support: belief and buy in Hiring a family member is a must Dedicating a staff member to coordinate efforts with Parent Coordinator essential Accept what parents can give in their volunteer role REMEMBER IT S A JOURNEY.. April 5, 2016 6
References https://books.google.com/books?hl=en&lr=&id=b6acagaaqbaj&oi=fnd&pg= PA95&ots=_IPFTWjYK1&sig=Sb OIzOzqD1jI9pvnVhRER7WpWM#v=onepage&q&f=false http://www.jointcommission.org/assets/1/18/improving_health_literacy.pdf http://www.aha.org/content/00 10/resourceguide.pdf http://www.ihi.org/education/inpersontraining/thepatientexperience/pages/ default.aspx http://www.aha.org/advocacy issues/communicatingpts/pt family centeredcare.shtml http://www.wsj.com/articles/hospitals form patient advisory councils tolearn how they can improve care 1448852618 http://www.ipfcc.org/tools/patient Safety Toolkit 04.pdf Alexa O Dell FAC Chair / Volunteer Parent Benefis NICU Great Falls, MT odellmania2@mt.net 406-980-1582 April 5, 2016 7
The Benefis Journey VON driven goal driven by design/build new unit August 2007 - interest forms at NICU reunion February 2008 - interested parents meet with NICU management and staff March 2008 - organizational meeting First Steps as the NICU FAC Organizational bylaws (April 2008) FAC members identified low hanging fruit small change with potentially significant impact Involved family representative in VON meeting overwhelming (many possibilities) attended presentation such as this one narrowed the focus Homework Assignments April 5, 2016 8
Initial Accomplishments Presentations to Staff (August 2008) Communication in the NICU (August 2008) white board concept Addressed Patient Satisfaction Survey Concerns Billing (February 2009) Integrated FAC and NICU Goals (2009 to 2011) Volunteer Training (February 2011) Bunny Trail Hope for Tomorrow More Recent Projects Open\Expanded Meetings Story, Slime, Nuggets Sibling Visitation Involvement in VON QI Work Being Productive Motivates FAC Members! April 5, 2016 9
FAC Organizational Tools Grad Form small change with potentially significant impact Agenda, Minutes and Parking Lot List binky format April 5, 2016 10
Essentials Identified Via Cycles of Change Administrative buy-in Especially with Changes in Leadership Staff Champions Consistency is Key Solid Core Group Regular Meeting Times Name Recognition BONUS! Celebration / Recognition Dinner Family Functions Mileage April 5, 2016 11
QUESTIONS? April 5, 2016 12