ICD to AIS for Road injuries Current practices & problems Discussion on possible solutions

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ICD to AIS for Road injuries Current practices & problems Discussion on possible solutions Niels Bos SWOV-NL CARE-experts meeting. March 23, 2017, Brussels Co-funded by the Horizon 2020 Framework Programme of the European Union 4/24/2017

Contents Severity by Police and Hospital AIS (AAAM) ICD9, ICD10, CM (WHO) Mappings ICD AIS Problems Other issues SafetyCube Guidelines Inclusion criteria External causes Combine HDR and Police Discussion on solutions

How to assess injury severity? by the police at the scene (serious & slight, correct in 60% of cases) by direct assessment in hospital or ambulance e. g. through the Abbreviated Injury Scale AIS by indirect assessment through the injury diagnoses, e.g. through ICD to AIS mapping

DG Move: focus on serious injuries Next to reducing road fatalities, reducing the number of serious traffic injuries is a key priority in the road safety programme 2011-2020 of the European Commission (EC, 2010) A harmonised definition is required In January 2013, the High Level Group on Road Safety, representing all EU Member States, established the definition of serious traffic injuries as road casualties with an injury level of MAIS 3

SafetyCube survey results Current practice in the EU (june 2016) 17 of the 26 countries: MAIS 3 estimates to DG-MOVE Difficulties to get access to hospital discharge data 9 hospital data, 2 corrections to police data, and 4 record linkage of police and hospital data. France and Germany apply a combination The ratio of MAIS 3 casualties / fatalities differs considerably between these countries, from 0.6 MAIS 3 in Poland to 13 MAIS 3 in the Netherlands Care Experts Source: State of data collection on serious traffic injuries across Europe (June 2016). http://www.safetycube-project.eu

Severity Indicators Police can determine killed on the spot (fatal) transported to hospital (fatal, serious, slight) treated on the spot (slight) underreporting when casualties or witnesses call for medical care and do not inform police Follow up after transport to hospital: Privacy no detailed info from hospitals Hospitalised MAIS3+ cannot determined from police data Alternative sources: ambulance data?

Severity Indicators Hospital Treated at Accident & Emergency, Admitted (in-patient) Admissions: detailed info is recorded however not always available for research, selection of traffic casualties can be difficult A&E: detailed data is lacking, sometimes a sample of hospitals can be used (IDB) Hospital Discharge Registers Even admitted casualties are often slightly injured Increase in number of admittances for observation Increase in day-treatment/short stay Length of stay is decreasing (average from 15 to 5 days over last 20 years in many countries) Detailed injury diagnosis codes can be used

What is MAIS3+? AIS: Abbreviated Injury Scale BTSSLL.s B = Body Region T = Type of Anatomical Structure SS = Specific Anatomical Structure LL = Level S = Severity Score Example: 419200.2 inhalation injury NFS (heat, particulate matter, noxious agents) Severity Score (AIS ) distr in HDR fatal survive unknown 7% 7% 1. Minor 2% 16% 2. Moderate 8% 51% 3. Serious 20% 17% 4. Severe 34% 7% 5. Critical 26% 1% 6. Maximum 2% <0.1% MAIS = Maximum AIS for a casualty; MAIS>2 = MAIS3+ AAAM Association for the Advancement of Automotive Medicine Severity Score Examples 1 superficial laceration 2 fractured sternum 3 open fracture of humerus 4 perforated trachea 5 ruptured liver with tissue loss 6 total severance of aorta

Questionaire on current practice Information of health/hospital data Data sources Inclusion criteria (e.g. outpatients, day care patients, readmissions, scheduled admissions, fatalities within 30 days) ICD version Nr. of diagnoses & nr. of digits Conversion algorithm Proportion of failed transformations (ICD > MAIS) ICD injury codes External causes

AIS versions Association for the Advancement of Automotive Medicine http://www.aaam.org/ Versions of AIS 1985 1990, 1998 1200 codes Direct coding in FR, DE (Rhône, Gidas) 2005, 2008 2000 codes Direct coding in DE 2015? Differences: New codes (more specific), revised severity due to better data or medical improvements. SafetyCube result: in AIS2005 the number of MAIS3+ casualties is about 10% lower than in AIS1998 or AIS1990 Recent development: Crosswalk converting AIS1998 to AIS2005 v.v.

ICD9 Interational Classification of Diseases ICD9 or ICD9cm Clinical Modification 800.xx 999.xx approx 2.880 codes Countries: BE, EL, IT, NL, PT, ES all use the clinical modification Tools: 800-959 AAAM9 (3x) to AIS2005 in AIS3+=Yes, No, Unknown ICDpic (1x) to AIS1985 in AIS, BR DGT (-) to AIS1998 in predot.ais ICDmap90 (1x) to AIS1990 in predot.ais In SafetyCube some countries applied more tools; here the official tool is shown in (x)

ICD10 ICD10 or ICD10cm Clinical Modification S00.00 T99.99 or S00.xxx T99.xxx approx 3.900 and 17.500 codes, enabling Left and Right, and first encounter Countries: AT, DK, FI, HU, NL, PO, SI, UK, CH all ICD10, CH uses German modification, IE uses Australian modification, no country uses Clinical modification Tools: AAAM10 (6x) cm to AIS2005 in AIS3+=Yes, No, Unknown ECIP navarra (-) to AIS1998 in predot.ais AGU (1x) swiss, combines other variables e.g. LoS ICDmap90 (1x) after conversion to ICD9cm T00-T19 (multiple injuries) are not mapped by these tools In SafetyCube some countries applied more tools; here the official tool is shown in (x)

AIS to MAIS and ISS If any injury is AIS in (3,4,5,6) then MAIS3+ So ignoring any AIS in (1,2) or 9 (unknown) ISS Injury Severity Score ISS = sum of 3 severest body regions AIS 2 E.g. ISS = 2 2 + 3 2 + 4 2 = 29 Ranging from 1.. 75 (any AIS=6 results in ISS=75) Medically ISS >= 16 is considered Severe (AIS=4 or 3+3 or 3+2+2) Only possible if you have AIS severity score by body region

How to determine MAIS3+

Problems Principle from many codes to a more limited set: could work ICD9cm AIS2005 is ok. AAAM9 works well, limited info on Body regions and impossible to derive ISS for multiple injury ICD10 AIS2005 is difficult Missing codes in the AAAM-list many countries trunk AAAM10 was build for CM Some countries use Australian or German modification The number of injuries available is limited in many countries ECIP maps to AIS1998 and is not officially accepted by AAAM

To check, work arounds Check the mapping/join Avoid misjudgement because of leading or trailing spaces Apply ECIP + Crosswalk AIS1998 AIS2005 Conversion after conversion, # of codes Multiple injury (T00-T18): check that the detailed single injuries are present If you only have a limited nr of injury codes or principal diagnosis only, check that this is not a code for multiple injury

Solutions? AAAM asks to report missing codes https://www.aaam.org/get-updates-missed-code So maybe this gives an opportunity to have them added? truncated codes (older) European ICD10-codes (i.e. not clinical modification) AAAM developed an additional mapping which includes the AIS-level and Body region, enabling the ISS calculation and also other severity cut-offs such as MAIS2+. Conditions for use are yet unclear. Ask hospitals to map the AIS severity before they trunk the ICD-codes or limit the number of injuries delivered to you Develop our own indication of the severity If the codes are not detailed enough to specify one AIS or MAIS3+, we can opt to return a distribution over AIS instead. (so from observed detailed counts, it appears that for example 10% of the cases is AIS=4, 70% is AIS=3 and 20% is AIS=2). In order to estimate the number of MAIS3+ cases (statistically, not at the casualty record level) this may work well...

What do we expect? The MAIS3+ new methodology should yield more reliable and comparable data than the old reporting system In the longer term, the Commission will be able to monitor and benchmark Member State performance Also, the new data (*) shows that fatal crashes and crashes resulting in serious injury have different characteristics. This will help to see where more work is needed, such as on safety for vulnerable road users or safety in urban areas * SUSTAIN project: ec.europa.eu/transport/road_safety/sites/roadsafety/files/injuries_study_2016.pdf

What still needs to be done? Further harmonisation of methods (HLG 1,2,3) over the next years is desirable in order to ensure that the estimated numbers of MAIS 3 road traffic injuries are comparable across Europe Improve on mapping tools from ICD10 to AIS2005 Complete ongoing research on MAIS3+ Guidelines by the EU Horizon 2020 project SafetyCube: www.safetycube-project.eu

MAIS3+ data availability: 17! MAIS3+ estimationscurrently or soon available? For which years are MAIS3+ data available? Austria yes (2016) 2014 Belgium yes (2015) 2011-2014 Bulgaria No - Croatia No - Cyprus yes (soon) - Czech Republic* Yes 2014 Denmark No - Estonia No - Finland yes (2015) 2010 & 2011, 2014 France yes (preliminary figures) 2006-2014 Germany yes (2015) 2014 Greece No - Hungary No - Ireland* Yes 2014 Italy yes (2015) 2012-2014 Latvia No - Lithuania No - Luxembourg No - Malta No - Netherlands yes (2015) 1993-2014 Poland yes (2015) 2013 Portugal yes (2015) 2010-2014 Romania No - Slovakia No - Slovenia yes (2015) 2012-2014 Spain yes (2016) 2000-2014 Sweden* Yes 2014 United Kingdom yes (2016) 1999-2011 (soon up to 2015) Iceland No - Norway No - Switzerland yes (2016) 2011-2014

The report The leaflet The team Pérez, K., Olabarria, M. (ASPB, Agència de Salut Pública de Barcelona), Spain Weijermars, W., Bos, N., Houwing, S. (SWOV Institute for Road Safety Research), Netherlands Machata, K., Bauer, R. (KFV, Austrian Road Safety Board), Austria Amoros, E., Martin, JL., Pascal, L. (IFSTTAR, French Institute of Science and Technology for Transport, development and Networks), France Filtness, A. (LOUGH, Transport Safety Research Centre, Loughborough University), United Kingdom Dupont, E., Nuyttens, N., Van den Berghe, W. (BRSI, Belgian Road Safety Institute) Johannsen, H. (MHH, Medical University of Hannover), Germany Leskovsek, B. (AVP, Slovenian Traffic Safety Agency), Slovenia http://www.safetycube-project.eu/ Thank you! The present document is a draft. The sole responsibility for the content of this publication lies with the authors. It does not necessarily reflect the opinion of the European Union. Neither the INEA nor the European Commission are responsible for any use that may be made of the information contained therein