Optimizing Healthcare Quality for Children in Families with Limited English Proficiency. Lisa Ross DeCamp, MD, MSPH and Darcy A Thompson, MD, MPH

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Optimizing Healthcare Quality for Children in Families with Limited English Proficiency Lisa Ross DeCamp, MD, MSPH and Darcy A Thompson, MD, MPH 1

Objectives Understand the federal guidelines and standards for providing healthcare to LEP patients and their families Gain skills in applying best practices for working with LEP patients/families at the individual practitioner level Gain skills in applying best practice for working with LEP patients/families at the practice/hospital level Understand methods for teaching skills and competencies recommended for learners who work with LEP patients/families

Increasing US LEP Population >25 million people in the US have limited English proficiency (LEP) Approx. 9% of US population 11 million US children have one LEP parent 2/3 of LEP population Latino, 20% Asian/Pacific Islander LEP Definition Speak a language other than English at home Report speaking English less than very well when responding to question: How well do you speak English?

Healthcare Quality and Safety disparities for children in LEP families Decreased healthcare access Worse parent/provider communication Decreased parent satisfaction with care Increased length of stay in the hospital and emergency department Greater risk of adverse events

Medical Malpractice and LEP patients Lack of use competent interpreters: Family members or friends were used as interpreters, including minor children Failure to translate important documents such as informed consent forms and discharge instructions Poor documentation of a patient s limited English proficiency, the need for or offering of an interpreter, offering of interpreter, physician language competency

Linguistic Competence Part of Larger Network of Factors in Care of LEP Patients Ngo-Metzger Commonwealth Fund, 2006

Regulations Guiding Care of LEP populations Title VI of the Civil Rights Act mandates meaningful access to language services National Standards for Culturally and Linguistically Appropriate Services in Health Care (CLAS Standards) provide guidance of Title VI Compliance Joint Commission Hospital Standards and Elements of Performance operationalize CLAS standards to specific actions to be performed by healthcare organizations

Appropriate Language Services Use: Interpreters Best outcomes and highest quality interpretation with certified professional interpreters Providers should be trained in use of an interpreter Use of family members, friends, or hospital staff not trained in interpretation or whose primary duty is not interpretation is NOT recommended Availability of interpreters and concerns about interpretation quality persist among providers and patients Lack of reimbursement also may limit use

Best Practices for Use of Interpreters Pre-session with interpreter Introductions between provider and interpreter Discuss nature of visit and provider s visit priorities Providers should be positioned so they are directly facing the patient with both provider and patient able to see the interpreter Use first-person language and address patient directly Speak slowly and in short segments and ask patient to repeat back information to assess understanding Document use of interpreter

% of Pediatricians Reporting Use Changes in Pediatricians report of interpreter use from 2004-2010 80 70 60 50 40 30 20 50 ** 56 40 43 28 * 38 2004 2010 10 0 Any Interpreter Professional Interpreter *p<.001 **p<.05 Data from AAP Periodic Surveys of Fellows Telephone Interpreter

Appropriate Language Services Use: Bilingual Providers Bilingual providers have been associated with improved patient outcomes and experience Federal mandates state healthcare organizations must assure language competence Healthcare providers often overestimate their target language competency/fluency

Identifying providers with adequate proficiency for safe communication Guided assessment using scale such as Interagency Language Roundtable improves proficiency characterization by providers Providers self-report language skills based on detailed skill descriptions Best practice : Formal testing of language proficiency Validated test: Clinician Cultural and Linguistic Assessment Interpreter certification testing acceptable but may not be needed

Healthcare Organization Level Responsibilities Identification of patients/families with a language need Meaningful Use and language needs Provision of appropriate and timely language services Tracking and reporting outcomes according to language needs

Identification of Language Need Question(s) used to elicit this information All staff should receive some training on usefulness of data for identifying and addressing healthcare needs & promoting healthcare equity Specific training with periodic updates for frontline staff that provides practical skills in collecting accurate patient-reported data Health IT challenges: patient registration screens and data flow

Questions to Elicit Language Need Karliner LS JGIM 2008

Staff Training Elements Importance of data and how they will be used Techniques to gather data in respectful, accurate, and efficient manner Address staff discomfort with data collection Provide strategies to respectfully address patient/family resistance to providing information Sample training program: http://www.hretdisparities.org/

Health IT Challenges How many and which languages to have in language field Use local data to develop list of top 10-15 languages Additional field for other with opportunity to specify Data editing rights & field autopopulation Data inclusion in reporting features Additional information Variation between caregivers Information on language spoken at home or written language preferences

Meaningful Use and Language Needs Stage 1 Core Measure: Documentation of Preferred Language Measure limitations No guidance about how to display this information in the EMR No requirement for assessment of accuracy of the data in the field No requirement to demonstrate communication with the patient in their preferred language Recommendations Prominent display of language need (e.g. EMR banner ) Periodic assessments of accuracy Structured recording by providers about language used for communication or interpreter use

Opportunities for Innovation using Health IT Remote Video Interpretation (Sutter Health, CA) Interpreters located in call center All rooms have two-way video equipment Doubled interpreter capacity, maintained continuity with patients, expanded patients receiving services EHR Best Practice Alerts (St. Mary s, WI) Language preference recorded in header Best Practice Alert includes prompt to request, information on how, dot phrase for documentation Interpreter use increased 66% at admission, 130% at discharge RWJF Promising Practices Addressing Disparities

Training in the Care of LEP Patients/Families

Increasing Attention Increasing attention over the last decade to training individuals in areas particularly relevant to the care of LEP patients/families. Cultural competency Health literacy Linguistic competency

ACGME competencies Residents are expected to: communicate effectively with patients, families, and the public, as appropriate, across a broad range of socioeconomic and cultural backgrounds (IV.A.5.d)

Inadequate training Studies show current training is inadequate 51% of pediatric residents rated their overall self-efficacy in the care of LEP families as low (Hernandez, 2014) >50% of pediatric residents reported never receiving training in the use of interpreters during residency (Thompson D, 2013) Feedback/Testing on proficiency level of language skills is not common.

The biggest thing (in caring for LEP families) is cultural competency, which I don t think we get enough of.

I always do worry about my communication and Spanish. I don t know 100% how I sound to the patient and what they think about that. I have never gone to a doctor who didn t speak English fluently. I do worry about how they see the interactions and if they re always understanding 100% of what I m saying.

Inappropriate care Getting-by Refers to using less than adequate language skills to communicate with LEP families 63% of residents testing non-proficient in Spanish, reported using their Spanish language skills in varying clinical scenarios.(lion, 2012) Physicians with medium proficiency in Spanish report varying use of using their own language skills vs using an interpreter. (Diamond et al, 2011) Variation in clinic practices in the care of LEP Impacts quality and safety for families with LEP

Goals of training Does Shows how Knows how Knowledge Miller s Learning Pyramid

Goals of training Does Shows how Knows how Knowledge Miller s Learning Pyramid

Content Content areas to enhance care for LEP patients/families Cultural competency Health literacy Linguistic Competency

Cross Cultural Capabilities Selfreflection Communication Collaboration Cultural Competence Cultural Understanding http://www.health.qld.gov.au/multi cultural/ health_workers/train-evaluate.asp Contextual understanding

Health literacy Knowledge Awareness of health literacy Skills Communication Oral Written October 14, 2014 31

Linguistic Competency Includes Identify a language barrier Best practices for working with interpreters Appropriately utilize a professional interpreter If applicable, demonstrating proficiency

How to implement curriculum? Considerations Types of learners Timing Preclinical Clinical Practicing

Methods Didactic Web Modules (+/- Interactive) Language courses Simulation Testing

Didactic Lecture or lecture series Evidence suggest this may not be enough Interaction and experiential may be needed

Web modules National level modules Think Cultural Health website (Office of Minority Health) Local web modules

Medical Spanish Medical Spanish courses Teach necessary Spanish language skills for clinicians Proficiency testing

Goals of training Does Shows how Knows how Knowledge Miller s Learning Pyramid

Simulation Value of experiential learning skills practice Simulation Practice interviewing with an interpreter Practice using tools to enhance communication

CHICOS Clínica Hispana de Cuidados de Salud at Children s Mercy Hospital, run by Dr. JC Cowden Goals Provide Spanish-speaking families high quality pediatric medical home Effective way to develop medical Spanish proficiency and cultural competency 3-year continuity care experience for bilingual pediatric residents

Program in Medical Education for the Latino Community (PRIME-LC) University of California Irvine Goal Improving health care provided to Latino community by equipping future physicians with needed skills for quality health care and advocacy for the broader Latino community Train medical students in linguistic skills and cultural understanding Manetta A, Academic Med, 2007

Training in Caring for LEP Patients Needs to address Cultural competency Health literacy Linguistic competency Need to dedicate the time and resources

Summary Providers and hospitals still struggle to patients meet language needs and provide interpretation or languagecompetent provider at key points Health IT advances lead to challenges and opportunities in the care of LEP patients Progress has been made in training in areas related to the care of LEP patients and families including policies Areas for improvement include: Tie curriculum across the pre-clinical and clinical years Using innovative methods including experiential learning

Question & Answer How is your healthcare organization using Health IT to improve care for LEP patients? What innovative methods is your healthcare organization using to train learners in the care of LEP patients?...or what challenges have you faced in expanding training?