DEFINITIONS, ACRONYMS AND ABBREVIATIONS Definitions Capacity-building: Increasing the ability of individuals, organizations and systems to perform appropriate functions effectively, efficiently and sustainably. Client: User of SUPPORT Unit services, including individual or groups of patients, providers, decision makers, researchers, and members of research teams. Health care decision makers (decision makers): Individuals who make decisions about, or influence, health policies or practices. Knowledge translation (KT): A dynamic and iterative process that includes synthesis, dissemination, exchange, and ethically-sound application of knowledge to improve the health of Canadians. KT broker: Individuals that engage with diverse stakeholders (researchers and research users) at various points in the research cycle for the purpose of increasing the use of health research evidence in practice, policy and further research. KT science (Canada) or dissemination and implementation (D&I) science: (US) The study of knowledge translation. Knowledge users: Patients, decision makers, practitioners or researchers anyone who puts research evidence to use. Patients: An overarching term inclusive of individuals with personal experience of a health issue and informal caregivers, including family and friends. Patient-centred: Prioritizing patient values and preferences. Patient engagement in research: Meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation. Depending on the context, patient-oriented research may also engage people who bring the collective voice of specific, affected communities. Patient-oriented research: A continuum of research that engages patients as partners, focuses on patient-identified priorities and improves patient outcomes. This research, conducted by multidisciplinary teams in partnership with relevant stakeholders, aims to apply the knowledge generated to improve health care systems and practices. Patient reported experience measure (PREM): Self-report instruments used to obtain patients appraisals of their health care experience (patients factual account of what they did or did not Page 1 of 5
experience) and satisfaction (patients subjective evaluation of their care experience) with the quality of care and services. Patient reported outcome measure (PROM): Assesses how care provided by the health system is affecting the health and quality of life of patients. That is, PROMs capture the patients perspective on whether the services provided changed their health and sense of well-being. Providers: Paid caregivers who deliver health services directly to patients. Real world clinical trials (RWCTs): Trials designed and conducted to test interventions in the full spectrum of everyday clinical settings, to maximize the applicability and generalizability of the intervention being evaluated. Research: Systematic investigations or inquiries designed to produce knowledge that may be applied to other settings or cases. Research team members: Individuals who support the conduct or implementation of research. Researchers: Individuals trained to conduct systematic investigations to generate new knowledge. Page 2 of 5
Acronyms and Abbreviations AHSN: Academic Health Science Network APRU: Applied Policy Research Unit (APRU) BC: British Columbia BCCA: British Columbia Cancer Agency BCCRIN: BC Clinical Research Infrastructure Network BCEHI: British Columbia Ethics Harmonization Initiative BPDT: Business Plan Development Team C2E2: Centre for Clinical Epidemiology & Evaluation CFRI: Child and Family Research Institute CHEOS: Centre for Health Evaluation Outcome Sciences CIHR: Canadian Institutes of Health Research CTMS: Clinical Trial Management System CoP: Community of Practice CST: Clinical and Systems Transformation Project DMO: Deputy Minister s Office DSMB: Data Safety Monitoring Board EAG: Expert Advisory Group ED: Emergency Department EEG: External Expert Group EMN: Emergency Medicine Network EMR: Electronic Medical Record Page 3 of 5
EoI: Expression of Interest FHA: Fraser Health Authority FNHA: First Nations Health Authority FTE: Full time equivalent GCP: Good Clinical Practice GIS: Geographical Information Science GPSC: General Practice Services Committee HSSBC: Health Shared Services of British Columbia HSPRSN: Health Services and Policy Research Support Network icon: Intercultural Online Network IGC: Interim Governing Council InspireNet: INnovative Health Services & Practice Informed by Research & Evaluation Network ICH: International Conference on Harmonization KT: Knowledge translation MAVED: Ministry of Advanced Education MoH: Ministry of Health MSFHR: Michael Smith Foundation for Health Research OBER: Office of Biobank Education and Research PCORI: Patient-Centered Outcomes Research Institute PDSA: Plan, Do, Study, Act PHSA: Provincial Health Services Authority PI: Principal Investigator Page 4 of 5
PopData: Population Data BC PREDICT: Personal Response Determinants of Cancer Therapy PREM: Patient-reported experience measure PROM: Patient-reported outcome measure PTC: Permission to contact PVN: Patient Voices Network RCT: Randomized controlled trial REDCap: Research electronic data capture SFU: Simon Fraser University SOP: Standard operating procedure SPOR: Strategy for Patient-Oriented Research SUPPORT: Support for People and Patient-Oriented Research and Trials TCPS2: Tri-Council Policy Statement 2 ToR: Terms of Reference UBC: University of British Columbia UBCO: University of British Columbia - Okanagan UNBC: University of Northern British Columbia UVic: University of Victoria Page 5 of 5