ITEM 11.1 Regional Hospice Palliative Care Model Action Plan Central LHIN Board of Directors October 28, 2014 1
Agenda Background Declaration A Vision for Palliative Care in Ontario Central LHIN Approach Council Recommendations Regional Hospice Palliative Care Action and Implementation Plan Questions 2
Advancing High Quality, High Value Palliative Care in Ontario Declaration of Partnership and Commitment to Action Collaborative effort of over 80 stakeholders from across Ontario Vision: Adults and children with progressive life-limiting illness, their families and their caregivers will receive the holistic, proactive, timely and continuous care and support they need, through the entire spectrum of care both preceding and following death, to help them live as they choose, and optimize their quality of life, comfort, dignity and security. All LHIN CEOs signed off in December 2011 3
Key Elements to Achieve the Vision - Declaration 1. Broaden access and increase timeliness to access 2. Strengthen caregiver supports 3. Strengthen service capacity and human capital in all care settings 4. Improve integration and continuity across care settings 5. Strengthen accountability and introduce mechanisms for shared accountability 6. Build public awareness 4
Central LHIN Approach Hospice Palliative Care Network / Program Council Stakeholder and Patient Engagement Data Analysis / Evidence Declaration of Partnership as Roadmap 5
Current State: Facts about Death in Central LHIN 6/10 deaths are from chronic progressive diseases Deaths in Central region 49.1% in acute care 23.3 % at home 12.7 % in LTC 14.9 % in complex continuing care, EDs, rehabilitation facilities 25% LTC residents died in an ED or acute care bed Sources: *Palliative Care in Ontario Report Jan 2013 update, Health Analytics Branch CIHI DAD database (2011/2012) ICD- 10CA code Z51.5 **CIHI DAD and CCRS database (2012/2013) 6
Current System Challenges: Engagement Feedback Inadequate or inequitable access to integrated, comprehensive, high quality care Lack of public communication Inadequate caregiver support Limited and inequitable service capacity across all care settings Lack of system integration Lack of clear accountability 7
Recommendations for System Change in Central LHIN Broaden access and increase timeliness to access 1. Central point of access 2. One Number for crisis end of life support 3. Identification of individuals for hospice palliative approach to care 4. Offer consistent basket of services Strengthen caregiver supports 5. Adopt the proposed Central LHIN Hospice Palliative Care Model 6. Implement collaborative and consultative models 7. Strengthen care coordination and system navigation 8
Recommendations for System Change in Central LHIN Strengthen service capacity and human capital 8. Strengthen primary/generalist care service model 9. Implement education strategy 10. Support death in a place of choice 11. Strengthen long-term care homes capacity Strengthen accountability and shared accountability 12. Leverage current partnerships and integration opportunities 13. Minimizes the number of individual providers providing care 14. Adopt provincial system data and performance indicators 9
Future State: Palliative Care Model for Central LHIN The future model includes centralized, standardized and consistent elements that support integrated and coordinated care delivery by providers working in local communities. Communities of Care Centralized and Common Elements Hospice Palliative Care Hubs 10
Palliative Care Model: Communities of Care 11
Palliative Care Model: Centralized and Common Elements Centralized elements Central point of access system for hospice palliative care services and placement One phone number for end of life support and crisis avoidance for patients / families Triaging care delivery Education programs Common elements Early identification tools and standardized resources Hospice palliative care delivery by primary care providers supported by secondary experts in all care settings Enhanced care coordination and navigation Palliative care programs within every setting of care Consistent and equitable access to services Bereavement / family support Diversity and cultural competencies 12
Palliative Care Model: Hospice Palliative Care Hubs Aligns with Central LHIN Health Links Hub Components Goals of care and advance care planning Pain and symptom management Medical management and interventions Community support services Psychosocial and spiritual support Appropriate intensity of care coordination and navigation Home-like inpatient care options Grief and bereavement services 13
What Would Change for Patients, Families and Caregivers? Change Equitable and timely access for all Improved quality of life and symptom control Appropriate level of care based on patientcentred collaborative care plan Tertiary acute care when required Caregivers are supported Families/substitute decision makers know patient wishes Patients die in preferred place Key Elements Access Capacity Integration and Continuity Integration and Continuity Caregiver support Capacity, Public Awareness Capacity 14
Draft Action and Implementation Plan Priority Item RHPCP Council Recs 1 Central Point of Access for Palliative Care including system access, a resource and bed registry and system navigation 2 Single number for Crisis and Related Protocols, including protocol development and implementation 1,7,10,11, 13 Resp. CCAC with implementation task forces 2,11 Telehealth Advisory Service (THAS) (link to primary care, CCAC, specialists, Hospice Palliative Care Teams) Sequencing Phase 1 Phase 1 15
Draft Action and Implementation Plan Priority Item RHPCP Council Recs Resp. Sequencing 3 Strengthen generalist and specialist capacity through education and standardized tools for providers in all care settings, including primary care 3,8,9,10,11 CLHIN - RFP Phases 1,2&3 Early identification and triage - Implement UK Gold Standard framework in all care settings 16
Draft Action and Implementation Plan Priority Item RHPCP Council Recs Resp. Sequencing 4 Implement service delivery hubs aligned with the Health Links regions 4,5,6,10,11,12,13, 14 CLHIN - RFP Phases 2&3 5 Implement Patient experience surveys in all settings (e.g. VOICES) 6 Strengthen LTC capacity to deliver Hospice Palliative Care according to the Declaration through crisis support, education and linkage to the hubs 13 TBD Phases 2&3 11 Phases 1,2&3 17
Draft Action and Implementation Plan Sequencing 2014-2016 Phase 1 Central Access, Crisis Number, Education, LTCH Phase 3 Early ID, Patient Experience, Education, HL Hubs, LTCH Phase 2 Education, HL Hubs, LTCH
Questions 19